Our new member SEPPBURGH has a question

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Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 11/13/2009 11:19 PM (GMT -6)   
Knowing it's Friday night, and who knows what gaiety our moderators may be up to, I'm usurping again to bring forward into a thread of its own a question asked by SEPPBURGH who has just joined us.  In the thread started by plugedup here's what SEPPBURGH had to say:
 
 
 
That is great news.  Can you say what surgery you had and how long the cat. was in?  My own robotic surgery is schedule for the end of January.  Need to figure out how much leave to take.  Though after 2 or 3 works, could return to work, but work out of my home.  Leaking is one of my main concerns with the surgery.
 
Thank you.

Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week. 
Feel free to email me at:  sheldonprostate@yahoo.com    


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 11/13/2009 11:42 PM (GMT -6)   
Seppburgh, welcome to healing well. This is the club that nobody really wants to belong to, but once here you will now find the most supportive and knowledgeable bunch of folks that you could every hope to find.

There will be many along soon that can answer you questions from their own experiences. You will find that those experiences are as different as you can expect.

My experience was such that I was nominated (for a while) as Poster Boy of Catheter Success.

First, my doctor does not use the typical Foley catheter, rather he uses the Supra Pubic. This is a tub that exits from the abdomen and is connected to the collection bag. As far as I know, I am the only one in recent memory here that had this. I did not have any of the discomfort issues that you will read about from others. While you will also read that to many of the other Foley users there experience was not all that bad.

Secondly, my catheter was removed at only 6 days post surgery. In this you will find many differences also. There does not appear to be a cut and dried answer to your question as to how long.

And lastly, I have been done dry since the day the catheter was removed. Somewhat of a rarity, but then again so am I.

So there you have it.

You say you work from home. If that is the case you will find that working with the cath is not an issue. Unless of course your job is splitting logs by hand or rebuilding engines or such.

So welcome to the board. Jump in a talk with any of us on any subject, anytime. We are always open to questions and having someone new to look at things through a different set of eyes.

Welcome to the brotherhood,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 11/13/2009 11:56 PM (GMT -6)   
I took two weeks -- one with catheter, one after removal. I could have gone back after ten days if needed. You can live with pads if you can get to the bathroom every two hours. It is very strange to be giving a presentation while peeing in your pants, but it is only strange for you.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted 11/14/2009 6:47 AM (GMT -6)   
I missed seven work days AND had my catheter in for five weeks.
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 11/14/2009 8:06 AM (GMT -6)   
I had my catheter in 10 days so I took off 2 weeks from work. I travel locally and also do work from home part of the time. Did not want to travel with the catheter in place. Now some people have had their catheter in longer and some shorter periods of time. Since you work from home it will be your call. Good luck and keep us posted.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael


brainsurgeon
Regular Member


Date Joined Jul 2009
Total Posts : 137
   Posted 11/14/2009 9:32 AM (GMT -6)   
I was really fortunate. Danced with the robot on Wednesday, catheter in until Monday, home in two days, no incontinence or leakage. Now, if I can get the playground equipment to fully function, I will be just fine.
70 years old USA citizen
Prostatic carcinoma dxed June 2009 by PSA (7.0) and then Bx
PSAs yearly since 2001 ranged 1.52 to 7.0
Neg. CT and BS
4 of 8 biopsies positive (all right side) Gleason Score 3+4=7
Robotic assisted total prostatectomy and node excision July 2009 in Luzern, Switzerland by Dr. Mattei in the Kantonsspital
pT2c G3 pN0 (0/14)
Catheter out in 5 days (home in 3 days)
No incontinence
Potency: beginning tumescence??? at 3 weeks post-op. Still happens at 3 months PO
3month PSA less than 0.01


LenB
Regular Member


Date Joined Jul 2009
Total Posts : 102
   Posted 11/14/2009 10:00 AM (GMT -6)   
I too work from home. Cath was in for two weeks. I had robotic surgery on thursday was released from the hospital on Saturday and did some work on Monday. rember that you have had major surgery, TAK IT SLOW. Work until you feel tired then stop and rest for awhile.

Len
Age: 65
DX: 7/10/09
Gleason: 7
Biopsey: 2 chips with some cancer cells out of 30.
Robotic Surgery: 9/10/09
Cath out: 9/23/09
1st post op PSA: 10/20/09: <0.0
 
 


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 11/14/2009 10:04 AM (GMT -6)   
Greetings, everyone.  I had open surgery so the healing process is somewhat different.  I had the surgery on Monday, went home with the cath on Wednesday, and had the cath and staples removed the next Wednesday.  So I had the cath about 10 days.  I was basically dry from the start but wore a pad for 2 days just to be sure.  I had an erection the Saturday after cath was removed.  I went back to work the following Wednesday for a special event and started back to work every day the following Monday - 3 weeks to the day post surgery.  Everyone is different - I have contended for some time it all comes down to the skill of your surgeon.  Get the best surgeon out there and you'll do fine.  Mine was great and I'm eternally grateful.  David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 11/14/2009 10:05 AM (GMT -6)   
Hi SEPPBURGH, first, welcome to the group, but sorry you have to be here.

I found returning to work to be more of being mentally ready than having the energy. I was lucky, being able to slide into it by having managers come to the house for meetings and to give me updates etc. While I was sharp enough while they were here, or at least I felt sharp enough, I found when they left I was glad to see them go and quite happy to sit in a recliner chair on the verhanda and have a snooze.

On the leaking, it is amazing how well the pads work. Like Geezer says, if you've got a bathroom available to make a pad change you're good to go. Some people dry up near instantly. Others can take months and months. Assume you're going to be in the months and months group. If you are, it's just as expected, if you dry faster, that's great.

Before surgery I too was concerned about not having control. But, if you can see the humor in standing at a check out counter, dealing with a nice young lady who is ringing up your purchase and having a nice chat with you, while all the while you're squirting into your pad and working on keeping conversation normal, then you'll do fine. Again, wise Geezer has nailed it. The experience is yours and only strange to you. Other people have no idea and it's situation normal for them.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week. 
Feel free to email me at:  sheldonprostate@yahoo.com    


kodiak
Regular Member


Date Joined Nov 2009
Total Posts : 27
   Posted 11/14/2009 12:52 PM (GMT -6)   
Hi Seppburgh, new member here I had robotic surgery on Oct 29, 2009 1 week with cath which I found to be very uncomforatable. I have been on the pads for 10 days now and getting a little better everyday.I do the exercises all the time and at this point I'm at 1 pad per day,it's not so bad and is more mental than anything else.I just have some leakage it's not like your are full streaming peeing in your pants just a leaky faucet .
 
                                                Good luck
                                                 Charlie  

Age 52
PSA4.5
Gleason 6
Robotic surgery Oct29, 2009
Pathology margins good
1 week off cath 1 pad per day
St Clairs hospital, Denville NJ
Dr Colton

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