Leak Free Pad Free - Poll

Did you put on a pad when you left your home.
21
Robotic 3 month - Yes - 30.4%
26
Robotic 3 month - No - 37.7%
5
Open 3 month - Yes - 7.2%
17
Open 3 month - No - 24.6%

 
New Topic Post Reply Printable Version
42 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 11/17/2009 8:15 AM (GMT -6)   
I just read the interesting article results posted by Modelshipwrght. It is for Robotic surgery only and shows the percentage of men who do not wear pads at 1, 3, 6, 12, 24 months. The numbers were depressingly low (in my opinion).
I am wondering how this compares with open surgery.
This poll will be an unscientific study to get an idea if there is a difference between open and robotic. Granted we are not sorting for pathology. We will go by the strict definition of Pad Free ie. Did you put on a pad when you left the house in the morning? At 3 months and at one year.
Jeff

I could not do both 3 months and 1 year on one poll. Please look for the one year poll nearby.

Post Edited (Worried Guy) : 11/17/2009 7:45:58 AM (GMT-7)


jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 11/17/2009 11:13 AM (GMT -6)   
open here and one of those fortunate individuals who never leaked.
62yo
V10.46 Dx Feb-09
RRP 5-5-09
No adverse SE
PSA 6-19-09 -0-
PSA 9-21-09 -0-
 
Thriving, not just surviving!
 


Rolerbe
Regular Member


Date Joined Dec 2008
Total Posts : 235
   Posted 11/17/2009 11:36 AM (GMT -6)   
DaVinci here and one of those fortunate people to not need pads after the first 4 months. Can't say I never lose a drop, but not a problem.

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 11/17/2009 12:23 PM (GMT -6)   
I had the 'open' and  was dry after <3 month. Occasionally "moisture" occurred for another month or so. 
Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09, = 0.05; July 09, <0.04


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/17/2009 12:26 PM (GMT -6)   
da Vinci --- dry from day since catheter removal - no pads --wanna buy some, stocked up early.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


kodiak
Regular Member


Date Joined Nov 2009
Total Posts : 27
   Posted 11/17/2009 1:25 PM (GMT -6)   
3 weeks out and I'm down to a lite pad per day.So far so good, do the kegil thing everyday.
 
                                                           Charlie
 

Age 52
PSA4.5
Gleason 6
Robotic surgery Oct29, 2009
Pathology margins good
1 week off cath 1 pad per day
St Clairs hospital, Denville NJ
Dr Colton


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 11/17/2009 1:26 PM (GMT -6)   
Another open here and dry from day 1.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
19-month: 0.09 (maybe)
ED:
After a learning curve, Bimix injections (0.2ml) worked well. From 14 months, occasional nocturnal erections. Have "graduated" to just the pump.


engineer55
Regular Member


Date Joined May 2009
Total Posts : 121
   Posted 11/17/2009 1:53 PM (GMT -6)   
I went pad free at one month, but I also had the prostrate cooling during surgery which is suppose to cut the time 1/2. Maybe it works
Dx'ed 5/08 one core 2%  out of 12  3+3 gleason
DREs all negative
PSA was in the 3-4 range then jumped to 7
I have the enlarged prostate, on the order of 100cc.  After taking Avodart for 3 months  my
PSA was cut in half.
I did Active S for a year but concluded that I didn't want a life
of biopsies and Uro meetings.
DaVinci on 6/24/09  UCI Med Center  Dr Ahlering, long surgery based on size and location
Final was 5% one side all clear, but had a huge 90 grm prostate
Now we work on pee control, ok at night but sitting is a big problem.


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 672
   Posted 11/17/2009 3:48 PM (GMT -6)   

Hey Worried,

Just voted. I consider myself very lucky. I had full bladder control 48 hours after catheter removal...even though I snuck a pad in off/on for about a week...not a drop on those.  I had open. IMHO, I think part of the reason might have been that I had a pretty good level of fitness. However, didn't help ED.

Mike


-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 11/17/2009 4:17 PM (GMT -6)   
Guys,

This is turning out to be interesting data! It would be great if everyone entered their info.
It certainly won't help us but it might prove useful interesting for the ones follow the PCa highway.

Personally, I'm interested to see how many guys improve after 3 months. It gives me hope.

Jeff
(I'll write this on the 1 year survey, too.)

T40
Regular Member


Date Joined Oct 2009
Total Posts : 103
   Posted 11/17/2009 5:48 PM (GMT -6)   
I will be at 3 months on Nov. 19th. I still use an ultra light pad when I go on business calls for just in case scenarios. I worked out on the elliptical last night for half an hour with no pad and didn't leak at all. I go padless on the weekends and every night.

I don't drink very often but spent the last weekend in Mexico down by Cancun. One night of way to many crown and cokes allowed for one occasion of leaking. I can live with that seeing as several other guys had similar mistakes and they didn't have my built in excuse!

T41
Age 40
Pre-op PSA was 5.8 from wellness test on May 19, 09
Follow up test from uro was 4.6 with a 9.3% free psa
Gleason 3+3 in one core, 3+4 in second core of 12 samples taken
Uro recommended Robotic for someone of my age. My research confirms.
Surgery performed August 19th, 09.
One side nerves spared. Nerve graft on other side.
Six weeks incontinence almost over. ED a work in progress but seeing some response.
Post op October 2nd, 2009 All margins were negative. PSA results in a few days.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/17/2009 5:56 PM (GMT -6)   
I have had an odd pad situation lately. The first month on the SP catheter, not a drop would make its way through the urethra and penis, no matter how bad it hurt, you only hope and pray it will relieve the pressure. When my uro changed out the SP at the one month mark just for sanitary reason, now when I have a bad spasms, which can be often most days, urine does get under the balloon, which now sits up higher in the bladder than a foley, and I will get pressure relief all the way through my penis.

So I am in the odd posiition of having a catheter in place, though it is an SP not a Foley, and sometimes will wear a depends pad in case I get some leaking from the bladder spasms. Kind of sucks, one should only have to endure one or the other, not both.

Trust me, I wear black pants almost anytime I am out in public for obvious reasons.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 11/17/2009 7:05 PM (GMT -6)   
Does wearing two underpants count? Where's that choice in the poll? lol

I'm two months opost op and I am wearing two underpants (no pad) for the heck of it. I really don't think I need to do it, but it feels good. After daVinci, my wife stocked up on pads, so I used one each day and one at night for the first week because I thought I had to, but there really was not much need. At two weeks I went to one pad for day and night. Then one pad for two days and nights; I know I'm cheap. After about 6 weeks I just use underpants, two of them.

Btw, I think if a guy has had success with this, he will be more apt to respond and vote. Just saying....
Age: 62
Pre-op PSA: 4.1
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks --> .04 (undetectable)
One pad for the first six weeks. Two pairs of underpants now just to play it safe.
Surgery: Brigham & Women's Hospital, Boston


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 11/17/2009 7:09 PM (GMT -6)   
Hey Red.
I'm one of the leakers and I responded. I figure it's a data point.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/31 3 months, Still no activity, nada, zip
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/27 2 months: Still 3 pads per day.
11/14 4 month: Still 3 pads per day. 420ml/day, 91 um leak. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks- 0.05, 10/13 3 months- 0.04 undetectable.


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 11/17/2009 7:39 PM (GMT -6)   
But Jeff, it's your poll. Of course you would vote!

Just kidding big guy. I think the poll findings will be interesting.
Age: 62
Pre-op PSA: 4.1
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks --> .04 (undetectable)
One pad for the first six weeks. Two pairs of underpants now just to play it safe.
Surgery: Brigham & Women's Hospital, Boston


Colin45
Regular Member


Date Joined Feb 2009
Total Posts : 216
   Posted 11/17/2009 10:32 PM (GMT -6)   
Hi Jeff Just voted I was out yesterday as you know I am very interested in the results at the moment on the 3 month poll it seems to show that open have the better results of continence as you may remember I never even brought any male pads and just used half a baby diaper for the first week
 
 
Age 64 From UK now in Thailand Baby boy born 2/14/2009
First PSA was showing 9.73 on 1/21/09.   on 5/7/09 PSA 9.78  Free PSA 0.83   Free:Total  PSA 0.08 
1/28/09 Biopsy carried out 12 core results show no adenocarcinoma
5/15/0924 Core biopsy results Gleason'S Grade 3+2=5
Involving approx 30% of one out of 12 cores on each side no perineural or angiolymphatic invation identified
One side PIN High Grade Bone scan clear 
Open surgery 7/27/09
Prostate Gland weighting 34 grms lost one nerve bundle
Gleason upgraded to 3+3 Tumour not close to prostatic capsule Seminal Vesicles not involved by Tumour 6 Lymph Nodes negative for Malignant cells
First PSA Nov 2009 was 0.06 Continence 99% occasional stress dribbles no ED from first day after catheter removed


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2211
   Posted 11/18/2009 7:53 AM (GMT -6)   
No pad in underpants at 3 months but one in my jacket pocket, and it's getting a bit battered. (As worn out as a teenager's unused condom.)
Alfred

Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 11/18/2009 8:07 AM (GMT -6)   
Hi Jeff,

I am sorry that I can't answer the poll as I am just 7 weeks out of surgery. I posted LFPF as it was an interesting and somewhat depressing report. My Leak and Pad status is better than a lot of folks and for that I am thankful. One pad per day is not the end of the workd and I think I am still improving.

Can't wait to see the result of your poll stats.

Regards,
Bill

PSheedy
New Member


Date Joined Nov 2009
Total Posts : 1
   Posted 11/18/2009 3:38 PM (GMT -6)   

Hi There - just joined!  Glad to be here (not really) :-)

I had robotic surgery and am still wearing 3 - 4 pads daily at 5 months.  I have just finshed radiation, and am told that this is partly responsible for my slow recovery.


Diagnosed at age 48; June '09
- Initial psa during routine physical = 33.0  (yikes)
- no other symptoms
- 3 of 12 samples positive, 12% max,  Gleasons were 7, 7, and 8
- Gleason 9 from pathology report
- Initial pathology report said T2C - my surgeon did not agree and sent it back for re-examination - came back the second time at T3C with one seminal vesicle involved
- No lymph node involvement 0/5
- Extensive margin involvement at bladder neck, all other margins clear
- nerve-sparing robotic rp in June '09
- 50% right nerves removed, 25% of left nerves removed
- post-surgical psa at 3 months = 1.1
- hormone (eligard) and IMRT (37 sessions), completed 11/11/09
- psa as of 11/17/09 < 0.1 undetectable
- incontinence - a real struggle!!!
- impotence - for some god-given reason, i have been able to achieve hard erections with viagra - i consider myself very lucky
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 11/18/2009 4:03 PM (GMT -6)   
Hi PSheedy,
Welcome to the club- I think... ;-) You will find there are a great bunch of guys here who really care. They certainly helped me during my darkest days.
I read the last line of your signature and thought "lucky guy indeed." My PSA was high too and also found during a routine physical. My biopsy was 7/12 hot with up to 70%.
I think you and I are going to be comparing notes for a long time.
Thanks for entering your data.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/31 3 months, Still no activity, nada, zip
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/27 2 months: Still 3 pads per day.
11/14 4 month: Still 3 pads per day. 420ml/day, 91 um leak. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks- 0.05, 10/13 3 months- 0.04 undetectable.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 11/19/2009 4:27 PM (GMT -6)   
Results so far.
VIEW IMAGE

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2457
   Posted 11/19/2009 8:56 PM (GMT -6)   
Jeff, I just voted. I used a pad for about 4 months. I consider myself dry even though and Occasionally have few stress drops when I play golf. I can't seem to shake those drops off so I ware a thin liner just in case.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2457
   Posted 11/19/2009 8:56 PM (GMT -6)   
Jeff, I just voted. I used a pad for about 4 months. I consider myself dry even though and Occasionally have few stress drops when I play golf. I can't seem to shake those drops off so I ware a thin liner just in case.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 11/19/2009 9:44 PM (GMT -6)   
I had both surgeries but I was very lucky and never leaked from the first day except for a sneeze.
12/06/07 DaVinci and open prostate surgery after difficulties in breathing stopped the davinci.


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2211
   Posted 11/20/2009 10:20 AM (GMT -6)   
Jeff
 
I'm not sure it makes much or any difference to the usefullness of these statistics, (and I think they are useful) it's just that I was thinking about the "when you left the house" part of the question. For in my own situation I was able to stop wearing pads while at home long before I was able to risk leaving home without one. It's that big difference between knowing the nearest bathroom is less than a minute away and being somewhere where you may have no idea where there is a bathroom.
Also there is another thread where someone has recently noted the latest figures that say that only 15% of people are having open surgery these days, which may start making it difficult to interpret the statistics.
 
The key thing is that it is clear that the Majority of us (about 75% on today's figures) are padless at three months regardless of whether we've been opened or Da Vincied, and that has to be good to know.
 
Alfred
New Topic Post Reply Printable Version
42 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Sunday, April 22, 2018 4:52 AM (GMT -6)
There are a total of 2,954,163 posts in 324,087 threads.
View Active Threads


Who's Online
This forum has 162142 registered members. Please welcome our newest member, janetcambridge1236789.
220 Guest(s), 3 Registered Member(s) are currently online.  Details
fishface, PA_grandma, Crazyick