I joined the club

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Whitey58
New Member


Date Joined Nov 2009
Total Posts : 7
   Posted 11/17/2009 8:56 PM (GMT -6)   
  Received pc diagnosis on Sept.19, 2009.  Urologist  believes cancer is confined to prostate only & recommends robotic prostatectomy.  Met with radiology oncologist today who thinks ebrt is the way to go. Pathology report says 2  cores involved on right side, tumor up to 9mm, involving 20% of tissue examined, gleason score of 3+3. I haven't seen much discussion here of ebrt as initial treatment. I am an otherwise healthy, active 51yr old with no symptoms or additional health issues & need to determine what treatment would be best fit for us.  Any advice, thoughts, experiences would be appreciated.  Thanks. 

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/17/2009 9:06 PM (GMT -6)   
Whitey,

Welcome to the club that Nobody really wants to join. That being said you are most welcome here. Myself I am a da vinci guy, but there are plenty of radiation guys that will be along soon to address your questions.

In the meantime, it will make it a lot easier if you click on control panel at the top of the page, then click on edit profile and establish a signature to include you stats. Mine is at the bottom of this post.

This is an extremely knowledgeable and supportive bunch of folks and your signature line will provide them with the info that will help them in formulating answers to your questions.

So come on in, pull up a keyboard and join in on the discussions.

Good luck with your own personal search for answers and the right decision for you.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 11/17/2009 9:55 PM (GMT -6)   
Whitey,

Welcome. You have come to the right place.

Take a deep breath and relax a little before you begin this journey. Educate yourself, and arrive at a treatment option that you agree with. Second or even third opinions are good things.

Based on the initial report in your post, you have some time here to make an informed decsion.

We have some guys who can help with Brachytherapy, and all the other aspects of radiation therapy. Also have many guys who have opted for surgery. Active Survelliance may also be an option for a time.

No dumb questions here. Ask away, and soak up all the answers that you can get here on HW.

Good luck !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


Rolerbe
Regular Member


Date Joined Dec 2008
Total Posts : 235
   Posted 11/17/2009 9:55 PM (GMT -6)   
What I'd like to say: "Sorry, full up. No new members allowed."

What I will say: "Sorry to have you aboard, but, if you really must, this is a good, helpful place."

The treatment choice is a difficult one, particularly since no one stands out as a clear winner. Get all the facts you can. Search here can be your friend. There are links to many articles and other assistance.

Best of futures, friend.

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/17/2009 10:28 PM (GMT -6)   
Whitey,

I posted a thread the other day that contained an extremely helpful and good starting place to learn about all things PCa.

I have copied it here for you.

http://www.prostate-cancer.org/education/education.html

Good luck and good hunting,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 11/17/2009 10:33 PM (GMT -6)   
Welcome aboard Whitey, sorry you needed to find us, but will always make room for one more brother.

You should have the full range of options in your situation. Study well, ask a million questions.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Franchot
Regular Member


Date Joined Jun 2009
Total Posts : 130
   Posted 11/18/2009 2:07 AM (GMT -6)   
Research everything about treatments and get many opinions from many different types of doctors. No need to rush into anything without ALL the facts.

Peace.
Age: 53 6' 0" Weight: 170 Caucasian

Rising PSA over the last six years (from when I started being tested) from 3.9 to 5.2 to 4.6 to 4.5.

DX with PC in January 2009 after biopsy. Bone scan--negative

Consulted Cedars-Sinai Beverly Hills urologist--recommended surgery
Consulted Cedars-Sinai Beverly Hills radiologist--recommended IMRT
Consulted San Diego Cyber-Blade doctor--recommended treatments
Consulted Long Beach radiologist--recommended IGRT
Consulted Loma Linda radiologist--recommended Hypo-fractionated Proton treatments

Insurance approved any treatment I wanted.

Consulted Marnia del Rey urologist Dr. Scholz.
Dr. Scholz referred me to Dr. Bahn for a Color Doppler test.
Scholz and Bahn recommended Active Surveillance, some diet changes, and steady exercise.

I am currently on Active Surveillance.


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 11/18/2009 7:58 AM (GMT -6)   
Welcome Whitey,

You are in a good place here and I hope that you find all the support you need for the road ahead.

Regards,
Bill

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2215
   Posted 11/18/2009 8:00 AM (GMT -6)   
Welcome Whitey.
 
Take your time to find out lots.
Better to ask one question too many than one too few
 
Alfred

Age at Dx 48         No Family history  of Prostate Cancer

Married 25 years, and I cannot thank my wife enough for her support.

April 2009: PSA 8.6  DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.

RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.

Partial erections on while catheter still in.  Catheter out on 6th Aug 2009. 

Dry at night after catheter came out

Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.

Left Seminal Vesicle invaded, (=T3b!)

no perineraul invasion, no vascular invasion. clear margins,

Erection 100% on 15th Aug 2009, but lots of leaking

Stopped wearing pads on 21st Sept 2009

Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc.

Nov 17th 2009 PSA = 0.1 


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 11/18/2009 8:57 AM (GMT -6)   
Welcome Whitey..

Yes it is too bad you had to join our merry little troupe, but it's a great place to ask questions and a good starting point in your research. Based so far on what you said, from a curative stand point any route you take should promise great success of being cured. Most men want to look at the side effects as a reason to go one way or another. Just note that any form of treatment will have side effects and will differ from men to men. So when you read of one's difficulties, there will be hundreds that don't experience the same problems that you probably won't read about. Just take everything in stride.

I chose surgery based on my uro's recommendation because of my age and health would make for a good outcome. The size of my prostate was getting close to the borderline size for radiation seeds and thus they indicated that the outcome would still be very good...but the statistics for a cure would be slightly lower. Of course that was the thinking at the time, which is the reason for the decision I made for surgery. But the truth be known, the success rates are a toss up between surgery and radiation...both are excellent.

Just chose what fits for you and you won't go wrong.

Again welcome here.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month Apr 2009 .06
                   9 month Jul  2009 .08
                 12 month Oct 2009 .09 


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 11/18/2009 11:05 AM (GMT -6)   
Welcome Whitey,
You have already taken a wise step in seeking out this forum. You have time to take a deep breath and learn as much as you can about your options. Fortunately, it looks like you have many possible options, based on your age and information you have provided so far so now is the time to do some research. Having so many options can become a burden, but eventually you will know in your heart what is the best path for treatment. It takes awhile though to get to that point, at least it was for me.

Good luck and God bless!
Age: 62
Pre-op PSA: 4.1
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks --> .04 (undetectable)
One pad for the first six weeks. Two pairs of underpants now just to play it safe.
Surgery: Brigham & Women's Hospital, Boston


kodiak
Regular Member


Date Joined Nov 2009
Total Posts : 27
   Posted 11/18/2009 5:12 PM (GMT -6)   

Hello Whitney,

       I am also a new member , unfortunatley I found the site after my Da vinci surgery.So you are way ahead of the situation .I found the worst time of the whole ordeal was reading all the info and trying to decide which treatment to go with.Once I decided to go with the robot I  was at peace.There are many stories here and  a great bunch so take it all in and good luck.

                                                      Charlie


Age 52
PSA4.5
Gleason 6
Robotic surgery Oct29, 2009
Pathology margins good
1 week off cath 1 pad per day
St Clairs hospital, Denville NJ
Dr Colton


gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 11/18/2009 7:53 PM (GMT -6)   
Hi White,I do not like to welcome any one to this club,but we are here to help you to fight this monster.research is the name of the game,and at the end you are the only one that will make the final choice. In may humble opinion,I dicided surgery and thanks God it worked for me it has been almost five years and my psa=0.04.
DIAGN=46 YEARS
GLEASON=3+3
FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.
MARRIED,TWO CHILDREN.AGE 13 AND 8.
LAPROSCOPY SURGERY 6/2005
PATOLOGY REPORT.
GLEASON=3+3
TUMOR VOLUME=5%
LYMPHOVASCULAR INVASION=NEG
PERINEURAL INVASION=POSI
TUMOR MULTICENTRICITY=NEG
EXTRAPROSTATIC INVASION=NEG
SEMINAL VESICLES BOTH=CLEAN
MARGIN ALL=NEG
PT2ANXMX
DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,
PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09
0.04,10/09,0.04
 


Whitey58
New Member


Date Joined Nov 2009
Total Posts : 7
   Posted 11/18/2009 7:56 PM (GMT -6)   
Thanks for comments and links provided. I already know way more than I ever expected to need to know about PC, but not enough to determine our direction. There is no better support than from those who have already been where I now find myself. Thanks again.
51 yrs old
PSA 4.8  06/09- 3wk antibiotic regimen
PSA 5.1  07/09
DRE- prostate smooth but enlarged
biopsy 9/09  - R side- adenocarcinoma, gleason 3+3, 2 cores involved, tumor up to 9mm length, volume approx 20% of tissue examined, high grade PIN present.
L side - high grade PIN, no evidence of invasive carcinoma.

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, June 23, 2018 3:55 PM (GMT -6)
There are a total of 2,974,574 posts in 326,193 threads.
View Active Threads


Who's Online
This forum has 161289 registered members. Please welcome our newest member, boatlover.
395 Guest(s), 10 Registered Member(s) are currently online.  Details
Solaris719, Artist Mark, Lwill351, RobertC, ArtAngel, Sinmiedo, Girlie, johncl, Tall Allen, Yracman