PSA = "Nul komma een"

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English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2218
   Posted 11/18/2009 9:50 AM (GMT -6)   
Hello PCa folk


Sorry if the subject line seemed a puzzle but "Nul Komma Een" is Dutch for "Nought Point One", which is what the urologist told me was my PSA level yesterday when I (with my wife for support) went to Amsterdam to get my first PSA result since surgery on 29th July. (So I've updated my profile too).

The conversation was all in Dutch so this is almost my first opportunity to process the information thoroughly into English.



I double checked and he said yes it was 0.1 and not <0.1 so I suppose the way to describe how things are is that he was satisfied rather than pleased.

He wants the next test in March to be 0.1 or <0.1 otherwise he says he will have to recommend me for radiotherapy. He said that as there had been some tumour in the seminal vesicles and as I was upgraded to 3+4, they would have to consider that there might be a bit somewhere else too which might thus not have been removed. So 0.2 will be the signal to use radiotherapy rather than wait till it's nearer something like 0.5.



So reading between the lines I am therefore not going to apply for membership of the Zero Club just yet.



He was very pleased to hear about my padless existence. (I again went up to Amsterdam and back by train etc without even having a pad just in case.)

He was interested to hear that I had made a note one day in October about how much I drank and peed and that I was drinking Camomille tea to try and calm down my bladder. He says it might be six months at the earliest before my bladder muscles stop feeling messed about by everything that went on during the operation. I am going to make another record of what I drink and pee in a few weeks time and he said he would be interested in the Camomiolle tea test results! (He actually laughed and proved that he is not as shy and awkward as we had thought after previous conversations)



As for the lack of ED, he was very glad about that, but niot half as glad as I am. (and I can also report the last couple of attempts to use Mr E have also not been marred by unwelcome leakage of urine, though I did have to keep running bad and forth to the bathroom to take pre-emptivbe measures).



I haven't posted for a few days as I was avoiding the Forum to try and help keep my head clear of PCa PSA thoughts, so I have been catching up today and have thus just posted a couple fo replies in other threads in relation to a very emotional mixture of tales in assorted new posts.



Wishing everyone well as we start to head into the Holiday Season.



Alfred

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/18/2009 10:14 AM (GMT -6)   
Alfred, thanks for reporting. Sorry you missed the zero mark, but with your staging and pathology, it was just a chance. Try to enjoy the upcoming holidays and get through them. If you end up having to have radiation, there is a growing group of us going through it right now. You never know, your next PSA might be <.1. I hope so for you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 686
   Posted 11/18/2009 6:38 PM (GMT -6)   

 

I had my semi-annual appointment with my urologist yesterday.  He said that my numbers were great and I had nothing to worry about, even if reoccurence happened, after three years the likelyhood of morbidity was very small.

  He was quite animated about what is considered 'UNDETECTABLE'.  He said that no lab in the world can make up any story except undetectable when the reading is below   (.1)  this conversation came up when I noted that my readings had been somewhere between  less than.01 and less than .03 . He said the labs should just say...UNDETECTABLE.

I am now on an annual review.  Interesting comment from the doctor.  New figures say that now 85% of all Pca surgery in the USA is being done by the DaVinci robot.  I haven't confirmed this, but I respect his knowledge.


PSA up to 4.7 July 2006 , nodule noted during DRE
Biopsy 10/16/06 ,stageT2A
Very Aggressive Gleason 4+4=8  right side
DaVinci Surgery  January 2007
Post op confirms gleason 4+4=8 with no extension or invasion
no long term continence problems
Post surgery PSA continues to be "undetectable"
One side nerves spared
Bi-Mix for ED 
born in 1941


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 664
   Posted 11/18/2009 6:57 PM (GMT -6)   
  Just got to love the Dutch..."Nul Komma Een" !  So Sorry about the result.  Good Luck on your next evaluation.
Hero

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/18/2009 7:49 PM (GMT -6)   
lifeguyd, see if you can confirm that robotic number, if that is true, its amazing it grew that fast. Though even here on HW, think how many surgery guys had robotic as opposed to open like mine. Its seems to be the vast majority here too.

Glad your numbers are still looking good, I agree, think it would relieve a lot of stress for all of us men if our PSA were simply reported as undetectable if under .10.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3741
   Posted 11/18/2009 10:54 PM (GMT -6)   
Lifeguyd, David.

My little incontinence study here at three months shows 21 Robotics and 11 open. That comes to 65.6% Robotic. Definitely a trend but we need more data to be sure.
The one year numbers show 52.5% Robotic

Come on guys, enter your info!
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/31 3 months, Still no activity, nada, zip
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/27 2 months: Still 3 pads per day.
11/14 4 month: Still 3 pads per day. 420ml/day, 91 um leak. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks- 0.05, 10/13 3 months- 0.04 undetectable.

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