Made friends today at the clinic with a man and his two sisters that I have only seen a couple of times before. And what a story. No matter how miserable we can feel in our own journeys, trust me, there are those so much worse than we can imagine.
Confined to a wheel chair now, Johnyy, a strong looking, African-American man, 61 years old started his PC journey barely a year ago. He was mowing his lawn, when he said he felt a sharp pain and fell to the ground with his right leg snapping several times. To make a long story short, he has PC in the worse way. Didn't know it. Didn't run in his family. By the time he knew it, had spread through his hips and legs. The VA amputated his right leg below the knee, his left leg may go next. They did a 12 core biopsy, and this is too much, he was Gleason 10 in 12/12 cores, 96-100% PC. The VA did both HT and chemo with him, and he was holding his own until recently. A breathing issue turns out that the PC has taken over a good portion of his left lung. THey were radiating him in the lung to try to reduce the swelling so that it doesnt cut off his breathing.
THis man was a kind, gentle giant of a person, 6'4", with a great spirit and attitude. The VA told him this was the direct result of Agent Orange exposure and he gets his 100% disability and lives with his sisters. He was Army Special Ops in Nam in 1968-69. He said he remembers on mutilple times in getting dusted by the stuff as they were doing OPs, but never thought any thing about it at the time.
WHen they took him for treatment, I had a good talk with his sisters. I gave them my name, phone number, and email, and since they are fairly local to me, told them I would be glad to come talk to their brother anytime he wants or needs it.
Despite his condition, his level of dignity was overwhelming, and all he wants is what we want, to live free of PC.
Just wanted to share this unique story.
David in SC
57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.33rd Biopsy
: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3Open RP:
11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09Path Rpt
: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place