A "No ED" problem, anybody else?

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O Buddy Boy
Regular Member


Date Joined Oct 2009
Total Posts : 106
   Posted 11/19/2009 8:28 PM (GMT -6)   
Reading most posts this is a problem a lot of other guys would like to have.

I'm about six weeks out of surgery. I've been getting erections every now and then without the pump or Cialis.

These are raging, I'm-17-again things. No problem there.

Here is the problem. Orgasm is very intense and really, really painful.

I'll be sore for 36-48 hours afterwards and I've noticed bleeding the next morning. I haven't bled for a couple of weeks, but I will have blood in my urine the next morning after this. And I'll want to return to sitting on the donut, too.

Doc says use it or lose it. But it is difficult to hold back once everything is up and at em. No way I want to disappoint the Missus, either.

I'm thinking I'm still healing and the surgery isn't ready for this kind of intensity.

Anybody have this kind of thing happens. It hurts!

OBB
55 yo
Dx:9/29/09
DRE: Susp
PSA: 3.5
Gleason: 3+4/7
6/12 Cores Positive; Sextants were 1%, 3%, 8%, 15%, 12%, 0%
RALP: 10/09/09
PATH:
Margins: Clear
Lymph Nodes: Clear
Seminal Vesicles: Clear
Gleason: No increase from biopsy 3+4/7
Some perineural and capsule invasion.
T2c,NO,MX
Incontinence: Minor. 1 light pad a day. Some days don't need it.
ED: Natural with encouragement. 20mg Cialis and pump just makes things more fun.


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 11/19/2009 8:36 PM (GMT -6)   
My doc said no sex for 4 to 6 weeks. However, I had no issues like you describe after that time.
Age 51
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
Mild ED. Levitra works well for me
PSA 0.00 at one year post op


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/19/2009 8:54 PM (GMT -6)   
I am in a rare positive club here, of having no ED issues from the start, with only one nerve bundled left.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 11/19/2009 9:59 PM (GMT -6)   
Well, to reverse a phrase, if it doesn't feel good, don't do it. You have been through major surgery even if through small incisions. Figure a minimum of 6 months for the healing. Come on, be inventive. Pleasure the woman in your life and let your own amusement wait for a while.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/19/2009 10:15 PM (GMT -6)   
geezer, i agree, when i was too sore down there after surgery, didnt stop me from taking care of "business". won some good brownie points at the time for effort. lol.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 11/19/2009 11:39 PM (GMT -6)   
yeah, I just can't stop getting erections, and then I have to something with them, every night. NOT
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


Bob D
Regular Member


Date Joined Mar 2008
Total Posts : 199
   Posted 11/20/2009 1:10 AM (GMT -6)   
Congrats on your ED recovery.
I have been fortunate also in the ED department.
I started getting erections back just 5 days post op with the cath still in. Have been using
5mg Cialis and now can go the distance med free but 5mg Cialis will kick it up a notch.
I am 20 months post op. I noticed a big improvement in just the last 4 months.
I did get some pain at first but it will deminish after time.
Meanwhile, enjoy the ride. LOL
    1. Age 59, psa 4.7 in Jan. 08. Biopsy: one positive sample out of 13. 1% of one sample cancer. Prostate removed on 3/5/08. Open Surgery. Northeast Georgia Medical Center, Gainesville Ga. Nerves spared. Cath out 12 days later. Continence good. No pads needed since 6/10/08. First PSA: Less than 0.1 on 6/17/08. First erection five days post op and have been improving well since then. Full erection now possible (less than four months post op) with the assistance of Cialis.  Post Op Biopsy : No malignant cells in lymph node. Gleason 3=4=7. Tumor on both lobes. Urethral margins/apex free of neoplasia. Right and left seminal vesicles free of neoplasia. No invasion of prostatic capsule of the resection margins are noted by the tumor. Tumor occupies 10 to15% of the prostate gland. Path staging T2c, NO, MX- Group staging II.  Focal areas of perineural invasion by tumor are noted. 80% natural erections and full erections with 10mg Cialis. 9/22/08-Took 10mg Cialis on Monday night, had very usable full hard erection at night, the next morning, and the following Thursday morning, 60 hours after original dose !! Orgasm quality Excellent.!!!!! I am pleased with the progress so far. Married to same wonderful woman for 39 years. She is still beautiful and sexy as ever. A great help in my recovery !!: 3/12/09: Full natural erections with penetration. 10mg Cialis makes them easier to maintain but I have had several med free full erections lately, Yipieeee !!!!!!!  3/24/09: One year PSA <0.1.  3/28 & 3/29: had sex with full naturals with no meds. Erections are gained and maintained with very little manipulation. Getting more like pre op every day. 5/30/09, I take only 5mg Cialis every 2 or 3 days. This greatly assists my full naturals and provides great staying power and no manipulation required and allows sex anytime !! Lenght and girth are back to pre op size due to regular "workouts". 11/10/09: Full naturals without meds. I will sometimes take 5mg of Cialis if my wife and I have a big weekend or evening planned, but spontanous erections are fine even without.
    1.  


      cocrgolfer
      Regular Member


      Date Joined Oct 2009
      Total Posts : 171
         Posted 11/20/2009 7:29 AM (GMT -6)   
      I'm looking at my op report and it says the vas deferencia were transected. Meaning cut and ligated. In a normal functioning male reproductive system they contract in paroxisms to eject the sperm and seminal fluids. I imagine yours are still traumatized and the contractions are painful. It sounds like you need to hang loose for a while longer until there is more healing. You lucky guy!

      Good luck to us all,

      Steve

      jacketch
      Regular Member


      Date Joined Apr 2009
      Total Posts : 179
         Posted 11/20/2009 10:43 AM (GMT -6)   
      I waited 1 or 2 days after getting the catheter out (10 days post op) and, pardon the pun, knock on wood, I've had no problems so far.
      62yo
      V10.46 Dx Feb-09
      RRP 5-5-09
      No adverse SE
      PSA 6-19-09 -0-
      PSA 9-21-09 -0-
       
      Thriving, not just surviving!
       


      DJBearGuy
      Veteran Member


      Date Joined Dec 2008
      Total Posts : 818
         Posted 11/20/2009 11:37 AM (GMT -6)   
      As I've noted elsewhere, my problem is that the erection itself is painful. Of necessity, I found that it is still possible to have an orgasm with a slightly less than full (and therefore less painful) erection. Haven't had blood in the urine since maybe a month out. But I agree, the orgasm pain, or erection pain in my case, will get better with more healing.

      DJ
      Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
      Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
      CT and Bone scan negative
      Da Vinci surgery at City of Hope December 8, 2008
      Radical prostatectomy and lymph node dissection
      Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
      Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
      PSA 1/22/08 non-detectable! 8-)
      4/23/09, 07/30/09, Oct 2009 still undetectable!

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