Sonny Day O - Let the IMRT Treatment Begin

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/19/2009 7:57 PM (GMT -6)   
Went to MDA for my scan and tattoo appointment. Very nice tech asked me if I was related to Lynn. I told her yes, she was my wife, and I asked her if we were the first couple to be getting radiation at the same time at MDA. She looked at me and said "Would you mind terribly if I just gave you a great big hug"? Being the gentleman that I am, I happily obliged the young lady. She's a great hugger too. I told her I would have to have one of those before every treatment. She said just tell them to find me and I'll be there.

Nice way to start the whole process. She did say that while they have had other couples that have both been treated for cancer at MDA, she was sure that we were the first to be undergoing RT simultaneously. I told her we wanted the commemorative T shirts. She said what should they say? Told her the front says "We are a radiant couple", the back says "The couple that radiates together, stays together".

It was enough of the chit chat, she told me to drop my shorts and undies to my knees and lay down on the table. Wedge cushion under my knees, foam block between my knees and a big ole rubber band holding my feet together. Told me to lay still while she got me aligned.

She made a few marks with a sharpie on my hips and pubic mid line and the table was off and running through the machine.

When she came back she had a digital camera and starting taking pictures of the alignments. Before I could say anything, she said "forget it, I've heard every line there is about not wanting these pics to show up on the Internet".

Now that I was aligned properly, it was one more time through the machine for the scan that the doctor will use to map my zappings.

After this trip, she came back and gave me my tattoos. A drop of ink on each of the sharpie marks and then a couple of sticks with a needle in each one. For the first time in my 61 years, I have now gone from no tattoos to three.

I told her I had read about other guys going through IMRT and their process had a part where they were outfitted with some sort of formfitting mold or cast that aligned them for each treatment.

She said they had done that in the past, but found that it created more problems with alignment than it helped. It was much easier to move the patient the small amount necessary for alignment with out the forms. She said that with the wedge behind the knees, the block between them and the rubber band holding the feet together they had very little issues with alignments.

So I was done. They plan to start IMRT the Monday after thanksgiving for both my wife and I.

Lynn and I talked about it and decided that we wanted a time frame somewhere between 1pm and 3pm. The logic was that Lynn is absolutely not a morning person. If we begin to experience fatigue after the treatments, we could try to do the other things in the morning. If we were tired after the treatments, we could just come home and nap til dinner, then eat and go to bed.

So that's about my beginnings. Next report on it will be Monday the 30th.

Here's hoping that my reports are short and sweet. Something like; saw Joann at 2pm, she gave me a big ole hug, on the table, zapped 7 times, put my drawers on , drove Lynn home, went to play golf or mowed the grass or went fishing or etc. More tomorrow.

If I can't be rid of PCa with the surgery at least I can dream about the easy RT route.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 11/19/2009 8:04 PM (GMT -6)   
Sonny,my brother and friend, good report. Sounds just like what i went through. I got 8 tattoos, you only got 3? I managed to make it through the Navy like you and never been tattooed until age 57. Mine look like tiny freckles.

Sounds like you got a good team, clinic, and plan in place.

I can tell you from first hand experience, the custom form fitted mould they use with me from mid thighs to ankles sure hasn't made alignment easy, look at all my posts about alignment problems. Your place may have a point.

Lynn will probably suffer unique side effects considering where and how they are going to radiate her. You, I just want you to be one of the normal guys, that other than fatigue, just work your way through it without all the complications that I have been enduring.

Yeah, I used the same gag about the pictures on the net, they have heard that a million times, lol. But I didn't get any hugs from any good looking women, hope you were a good boy and kept your hands to your side, lol.

You know in advance I am on your team through the whole process, both you and your lovely bride.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 11/19/2009 8:38 PM (GMT -6)   
Sonny,
Good luck with your IMRT. You are at one of the best hospitals in the country and hopefully your result will great as well. I live in Austin only 180 miles from Houston. If you would like to come up for a visit I'll be more than happy to have you and your wife over. Something to do over the weekend during your treatment.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


O Buddy Boy
Regular Member


Date Joined Oct 2009
Total Posts : 106
   Posted 11/19/2009 8:44 PM (GMT -6)   
Good Luck Sonny

Almost always good to have your wife there by your side.

OBB
55 yo
Dx:9/29/09
DRE: Susp
PSA: 3.5
Gleason: 3+4/7
6/12 Cores Positive; Sextants were 1%, 3%, 8%, 15%, 12%, 0%
RALP: 10/09/09
PATH:
Margins: Clear
Lymph Nodes: Clear
Seminal Vesicles: Clear
Gleason: No increase from biopsy 3+4/7
Some perineural and capsule invasion.
T2c,NO,MX
Incontinence: Minor. 1 light pad a day. Some days don't need it.
ED: Natural with encouragement. 20mg Cialis and pump just makes things more fun.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/19/2009 9:10 PM (GMT -6)   
Ed C.,

Sorry man, the MD Anderson I am referring to is in Orlando, Florida.

Now my wife's primary doctor for her cancer is in Houston, so when we come back out there for one of her annual check-ups we may take you up on the offer.

I certainly appreciate that Texas offer of hospitality.

Thanks,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 11/19/2009 9:46 PM (GMT -6)   
OK Sunny. The offer stands for whenever you are in Texas.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 11/19/2009 10:03 PM (GMT -6)   
Brother Sonny, So pleased that things went so well today. You do know that we will walk this mile with both you and Lynn.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


clearwatercowboy
Regular Member


Date Joined Oct 2009
Total Posts : 135
   Posted 11/19/2009 10:26 PM (GMT -6)   
Sonny,

So sorry that you have to go through this at all, but we love where your "head" is about accepting what must be done. We will be sending many wishes that the treatments go well for you both and that the results will be successful.
Dallas
RRP May 04, 2009
Pre-op Gleason 6
Post-op Gleason 7


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 11/19/2009 11:30 PM (GMT -6)   
Hi Sonny and Lynn,
 
Just wanted to wish both of you the best of luck with your RT treatments. The procedure sounds very much like the one that I went thru exactly one year ago. 3 dots and no mold or cast, however, I wasn't lucky enough to get a hug :-(.  Had very few side effects from the RT and seam to be doing ok thus far. Hoping for the same for you.
All the best to both of you.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09, = 0.05; July 09, <0.04


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 11/20/2009 7:06 AM (GMT -6)   
Sonny, all the best to you and Lynn as you begin this next phase of your journeys. Sounds like you're in great (and loving) hands.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4 SA. PSA: 0.0 til July 2009. August 2009 PSA was 0.1, in September it was 0.3 Met with radiation oncologist, CT scan and bone scan clean. Third PSA on October 16 - PSA BACK TO UNDETECTABLE! Next PSA scheduled for early December. No radiation treatment at this time!


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 11/20/2009 7:39 AM (GMT -6)   
Hey Sonny,

Looks like the clinic is well run and you are in good hands. Good luck with the treatments,

Regards,
Bill

lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 11/20/2009 7:43 AM (GMT -6)   
Sonny & Lynn,

Best wishes and speedy recovery on this part of your journey. I'm looking forward to hearing a report 1 year from now as to how well you and your wife are doing. And then a report in 2, 3, 4, 5,,,,,Years!!!!

Larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0

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