SRT 35 of 39 - Friday

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/20/2009 3:35 PM (GMT -6)   
35 down, 4 to go, that is the good news.  Will be done a week from today, on the Friday after American Thanksgiving Day.
 
Woke up with a lot of burning penis pain and rectal pain in the middle of the night.  Another night with little sleep.  Theses treatments can't end fast enough for me.
 
Today's session was a 35 minute one.  When they pulled the little self-adhesive sticker things off of me  (used on top of the tattoos for alignment) they burned and hurt, my skin was that tender to the touch.  And the usual burning pain at the SP exit.
 
Had trouble walking without pain while I was dressing, and then had a huge painful spasm attack in the men's room before leaving.
 
So thankful its the weekend, I can't honestly take much more of this.  I know its only 4, but the cumulative effect on me is rising by the day.
 
Back home now ,but any movements at all causes another spasm, waiting for some meds to kick in.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 672
   Posted 11/20/2009 3:52 PM (GMT -6)   
Only 4 more to go. Hope the PCa is zapped for good! Mike

-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/20/2009 3:56 PM (GMT -6)   
Thank you Mike, its all I can hope for, dont want this to be in vain
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 11/20/2009 4:01 PM (GMT -6)   
Hi David,

Just 4 more treatments. As I've said before It's easy for those of us not living your situation to see it that way. In some small way I'm trying to imagine myself in your condition so I can understand it better. In that light I see 4 huge obstacles to get past. I'm pulling for you.

Best wishes,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Four PSA tests undetectable, latest Oct 30


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/20/2009 4:21 PM (GMT -6)   
Thank you a lot, Bob, increasingly harder to make myself go at this point, was very sore before I went, so I knew I was in for a tough dose. Several of my "regulars" in the waiting area said I looked very rough today. Geez, didn't know it showed on the outside, lol.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 11/20/2009 5:37 PM (GMT -6)   
Hey David,

Another week in the record books and only one more to go. Relax and enjoy the weekend and know that the end is clearly in site now.

Keep well,
Regards,
Bill

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2215
   Posted 11/20/2009 5:39 PM (GMT -6)   
David,
Glad that you have this weekend to get some rest in, and it is now about 6:40pm our time, so maybe the meds have kicked in. Take care.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/20/2009 5:52 PM (GMT -6)   
Thanks, as usual, Bill for your steady encouragement.

Michael, yeah, the meds have started taking the edge off the pain, can feel the meds working against gentle waves of fatigue. Thanks for your concern and care
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/20/2009 8:57 PM (GMT -6)   
David,

It's time to take another look at the short-timers calendar.

You are now officially - "So short you could walk under a razor blade with a top hat AND stilts on".

Here's hoping you have a very restful and recuperative weekend. Maybe your team can pull out a victory this weekend.

Hang in brother,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/20/2009 9:18 PM (GMT -6)   
Sonny, if you are talking about my beloved Patriots, they will do fine. Me, just needs lots of rest and little walking this weekend, got to feel well enough to push into next weeks last 4 treatments. The way I feel tonight, don't even want to think about going back again ever.
But that's the pain talking.

Thanks for caring.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4088
   Posted 11/20/2009 11:49 PM (GMT -6)   
David, Sorry for the difficult time last night and againg today. Just keep that positive thought ONLY 4 MORE. That would be
1 - Monday
2- Tuesday
3- Wed
4- Rest watch football games
5- THE END

Doesn't that just look WONDERFUL!!!!!!

Take care my friend.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 11/21/2009 2:57 AM (GMT -6)   
David,
the finish line is in sight----------head down, bum up and go for it!
Bill

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/21/2009 9:02 AM (GMT -6)   
Jeff, what a great organized countdown sheet, you are right about the Football part, we wont have our family Thanksgiving till the Sunday after. Yeah, getting so close. Keep pushing, i need it right now.

Billy, I'm going, not as fast or strong as before, but still moving forward. Doing the best I can. Thanks.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7197
   Posted 11/21/2009 3:24 PM (GMT -6)   

Purg:

 

I have a question for you. At some point, assuming a positive biopsy, I'll have to make a treatment choice. Obviously, it will depend on the biopsy specifics.

 

But I see you had 7/7 cores positive. Doesn't that automatically preclude surgery? Obviously not since you had it (although not successful, I gather). Did you have an overzealous surgeon or was there a decent chance of a successful surgery?

Mel


PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro!
 
History of BPH/prostatitis.
 
Awaiting results of my PCA-3 test which will determine whether a biopsy is in my immediate future. Just in: BAD NEWS: PCA-3 = 75.9! Cut-off is 35. Biopsy scheduled for 11/30


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/21/2009 4:26 PM (GMT -6)   
Mel, missing something in your question, you might need to re-phrase it.

First biopsy - 8/2007 12 core Negative for PC, some High Grade PIN found

Second biopsy - 8/2008 12 core Negative for PC, lots of High Grade PIN, "suspicious shadows" to the left side Prostate

Third biopsy - 9/2008 7 core, all targeted into the "suspicous shadows", came back 7 positive of 7 cores for PC

Why would that keep me from surgery? That's why I don't understand the question. My uro/surgeon had a gut feeling on the 2nd biopsy that something was wrong, I wanted to wait a full year for a 3rd biopsy, he talked me into the 3rd, and his hunch (based on a lot of experience) was correct. Had I waited another year, my case may have been much worse.

I went into surgery as a Gleason 7 (4+3), but post surgery pathology showed it as a Gleason 7 (3+4)

Surgery would be a normal option for a Gleason 7, my age, and a PSA that was above 16 prior to surgery. So please ask again if this doesn't answer what you were thinking
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/21/2009 4:33 PM (GMT -6)   
PS to Mel:

My uro./surgeon was not over zealous. Far from it, we spent an abundance of time disucssing treatment options. In my area, I was not a candidate for seeding, which was my first choice. The regular radiation folks also didn't think that IMRT as a primary option would get it all, with me, the big concern was my PSA velocity, which tripled in the last year before dx.

My surgeon did an excellent job with a difficult situation. Ended up having an unusually deep and narrow prostate bed. I didn't want robotic, but had I chosen it, they would have aborted it after starting it. It was due to a difficult surgery, that I have had so many post surgery problems of strictures and blockages, and still continue to do so.

Yes, my surgery failed 6 months later, but not because of the surgery, this is one of the problems when you are dealing with rapid PSA velocity. I was Stage 2, and the one tiny positive margin shouldn't have been a problem so soon, but it was, and it is.

When I knew that I was going to have to have salvage radiation (which was my worse nightmare), I "interviewed" 3 radiation oncologists. After they looked at my case and my numbers, they all seperately agreed that surgery was the only thing that made sense at the time.


Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place

Post Edited (Purgatory) : 11/21/2009 3:36:24 PM (GMT-7)


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7197
   Posted 11/21/2009 4:37 PM (GMT -6)   

Purg:

 

OK. I thought the % of positive cores figured into the decision regarding surgery. In other words, 7/7 was too high, rendering the situation non-surgical. If you had a Gleason 4+4=8, would THAT have precluded surgery?

 

Maybe I should just ask this: when is surgery precluded?

 

Mel


PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro!
 
History of BPH/prostatitis.
 
Awaiting results of my PCA-3 test which will determine whether a biopsy is in my immediate future. Just in: BAD NEWS: PCA-3 = 75.9! Cut-off is 35. Biopsy scheduled for 11/30


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/21/2009 4:46 PM (GMT -6)   
We have men here with Gleason 8 they have had surgeries and are doing well.

Some stage 3 men don't have surgeries, and never heard of anyone dx at stage 4 they had surgery, because by then the PC is usually well outside the prostate which would preclude surgery.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, April 23, 2018 9:23 AM (GMT -6)
There are a total of 2,954,574 posts in 324,134 threads.
View Active Threads


Who's Online
This forum has 162176 registered members. Please welcome our newest member, B_Ram.
342 Guest(s), 7 Registered Member(s) are currently online.  Details
Cberg, Hope4Happiness, Lymess, PA_grandma, Tim Tam, Noggin2u2, Runninheid