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Erick060
New Member


Date Joined Sep 2009
Total Posts : 4
   Posted 11/20/2009 5:17 PM (GMT -6)   
  For those who responded to my (no subject) Pump questions...thanks.
 
 I am as impatient as ever. I am taking  10mg ciali/day. My results are thus far dissappointing.
 
My Dr. is (and always has been) very conservative with meds.
 
I am wondering if anyone would comment on their dosage experimentation. I have not read any negative results or reactions to exceeding my dosage of cialis. If there is a "link" please share the info.

Age 58 @ DX  ( PSA 6.2 )
Six Mos later  ( PSA 4.9 ) after 90day Levaquin
One Mo later  ( PSA 5.1 )
Four Mos later Biopsy ( 2 of 12 cores positive) 3+3=6
Three Mos later ( PSA 8.2)
Six Mos later 7/17/09  Robotic Radical Prostatectomy
Lab confirmed 3+4=7
Post Surgery PSA= 0.04
Post Sugery: 10mg Cialis daily
Two pads /day
Rare ocurrance of erection


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 374
   Posted 11/20/2009 6:00 PM (GMT -6)   
Hi Erick..........be patient. You're only 4 months out from surgery. None of us on this site have exactly the same results. Some recover from ED more quickly than others, some recover more quickly from incontinence than others, etc.------but just as an inexact reference for you, I'm about 10 months out from surgery, and just started having some success in the ED dept at the 9-month mark. Nothing major, mind you, but movement in the right direction. I've been taking 100mg of Viagra a night for about 7 months with the blessing of my surgeon and treating uro. Sometimes I get the stuffy head side effect, and sometimes some flushing, but nothing I can't live with...haven't worked with Cialis, so i can't comment there. But I think that you're a little early in the game to be too disappointed with results at this point. It's a process that sometimes doesn't move as quickly as we'd like. The rule of thumb for ED recovery is 6-24 months. Some get there more quickly, others take longer. So hang in there, keep with the meds (perhaps ask if you can try another kind) and also check into using a pump. Stay tuned to this site, and others, as you know, will jump in with their two cents. 
 
Arnie in DE
Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point.
3 month PSA--<0.1
6 month PSA--<0.1


dsmc
Regular Member


Date Joined Jul 2008
Total Posts : 150
   Posted 11/20/2009 6:49 PM (GMT -6)   
Hi Erick, probably gonna have to be patient! Everyone is different some sooner than others. I was 2 years and it went from nothing to something. Good luck and good luck with the psa's also. BTW I don't need any meds at all at this point.

David
Age 54
Pre-op PSA 4.3
Surgery Feb. 17 2005
Post-op Path : Gleason 3+3=6
Right pelvic lymph nodes: negative for metastatic carcinoma
Left pelvic lymph nodes: negative for metastatic carcinoma
extent: right lobe 40% left lobe 10%
capsular penetration: Absent
Seminal vesicles and vasa differentia: Uninvolved
Prostate: 26 grams
Post-op PSA's <0.04 for 3 years
Feb. 08: 0.07, March 08: 0.08, June 08: 0.09 and Sept. 08: 0.1
IGRT scheduled.....November 17th....
FINISHED 01/14/09 YEA!
05/14/09
1st PSA after Salvage RT <0.04..... Another YEA!


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 11/20/2009 8:16 PM (GMT -6)   
Isn't 10 mg a half doze? Perhaps you should ask about uping the med.

Larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 11/21/2009 7:59 AM (GMT -6)   
Yes - 10mg cialis/day is a half dose.
Talk to your doctor before using more.
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 11/22/2009 6:26 PM (GMT -6)   
Simply take two 10 mg pills at once, a single 10mg pill is simply not enough to get the ball rolling

Be patient, at 4 months you may still have a ways to go.

Mine has told me repeatedly one yr before I would get consistent results with oral medications., until then the Trimix shot works like a champ every time

FYI, Trimix is far cheaper than even generic Cialis and no worries if it work or not
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 11/23/2009 9:10 PM (GMT -6)   
Erick,
Assuming you don't already have low blood pressure (who does??) you can always take the full dose of any of the ED meds -- check with your Doc if you have any doubts. I've been using all three for 10 months with nothing much to show. I have mentioned before that most Docs know that nothing is going to happen no matter how much you take in the early months so why waste the money using full doses? Of course since a full dose costs the same as a half dose you should at least ask your doc to go full dose so you can cut them. BUT your insurance might insist paying only for say 15 x 5mg cialis per month. That is what Medco allows for me. I accept them just to stretch my ADC stash. You can always try a full dose once a week or something just to check if it helps. You wouldn't want to be moping along on half dose only to realize more does work -- unlikely, but possible.

And don't forget using All Day Chemist to get plenty of full doses on the cheap.

(also take my advice and don't order from ADC during Thanksgiving-Xmas time! They must get overwhelmed at customs around this time. I have an order that went in on Nov 16 and is still sitting there (NY City). Other times it's in and out in a day or so.
Age 58, 195lbs, 6'4", 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
Biopsy Nov2008 1 of 12 cores 5%, Gleason 3+3 - Sona showed size 140+ cc (110 grams post op).
02/03/09 open RRP surgery , Nerve sparing both sides, 1 day in hospital, Day 4 first BM,
Pathology Report: All margins clear - No Invasive spread - no change in Gleason score.
02/18/09 Cath out, passed a 1cm oblong STONE within hours.
03/06/09 Started Levitra@20mg / Viagra@100mg / (04/01) Cialis@20mg -- no real effect (thru 10/2009).
04/01/09, 07/07/09, 10/01/09 PSA <0.1 - Stone Was Oxalate stone -- X-ray no stones.
08/09 - started MUSE@1000mcg ... pump&plump - success (alpro ache).
09/09 @500mcg +pump&plump + 2 advil - success - (less Alpro ache).
10/09 TrimixGel (500/300/100mcg): 1st:60%, 2nd:(pump&plump) 60%, 3rd(added 500mcg muse):70-80% -- (no Alpro aches!) but none @ useful hardness!

Post Edited (JimStars) : 11/23/2009 7:29:29 PM (GMT-7)


apacker1950
Regular Member


Date Joined Nov 2008
Total Posts : 122
   Posted 11/24/2009 1:58 AM (GMT -6)   
I was patient for almost 6 months with the Big 3 pills and got  no results except a headache, (mine, not my wife's) and a stuffy nose.  I was hesitant about injections but I was also highly motivated to regain what had been an active love life with my wife.  I started using Trimix 3 1/2 yrs ago and have never regretted it.  I will most likely never have natural erections again but I get great ones with Trimix. 
 
It has been said by many on this forum that using injections my also help in recovery of ED.  Lots of reasons to try it.  Very few reasons not to.  The best of luck to you.
 
Allan
Dx PCa age 54. Jly 05- PSA 8.1 Sept 05- PSA 10.7
Sept 05- Biopsy  9 of 12 cancerous, Gleason 3+3=6, T2
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- bone biopsy, ouch.  benign , no cancer in bones.
Nov 05- PSA 15.4 Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, by Dr. Robert Stevenson. 100% continence at 3 months. ED- Tried the big 3 pills with no results. Feb 06-Started VED, worked, but painful with constriction rings. May 06 started Trimix injections.
ED appears to be perminant but doing great with Trimix.
PSA remains undetectable.


KrisP
Regular Member


Date Joined Mar 2008
Total Posts : 162
   Posted 11/24/2009 4:48 PM (GMT -6)   
My doctor had given me cialis 20mg after surgery and I was getting lots of headaches. I then tried viagra 20 mg and that worked great.
Occupation: Mechanical Engineer

Biopsy: 3/5/2008; Pre surgery: Gleason 6 (3+3), involving left lobe
t2b. DaVinci Surgery on 4/21/2008 in Austin by Dr Randy Fagin.[/color]

Pathologist report upgraded to a Gleason 7 (3+4); Margins: Clear
ED back to 95%, Viagra o<SPAN style="FONT-SIZE: 9pt; FONT-FAMILY: Verdana">ccasionally

<SPAN style="FONT-SIZE: 9pt; FONT-FAMILY: Verdana"><?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" /><o:p></o:p>
First PSA (06/17/08) = <0.04 Undetectable

Second PSA (10/27/08) = < 0.1 Undetectable

Third PSA (02/11/09) = < 0.1 Undetectable

Fourth PSA (05/13/09) = < 0.1 Undetectable

Fifth PSA (11/11/09) = < 0.1 Undetectable

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