OK- OK I'm convinced the PSA uptick was NOT a fluke

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 11/20/2009 9:45 PM (GMT -6)   
So at 30 days my PSA was .4, I was hoping that the test was too soon and some little PSA critters were still running around in my blood stream.

At about 50 days my PSA was .53 and we began talking to the RO about IMRT. After reading the pros and cons about supplements I decided to quit the Pomegranate stuff and the D3, maybe they were helping it to rise.

Today at day 64 my PSA came back at .6, so it's official I guess, the little bastiches are growing strong and just won't lay down and die even without the prostate for a home.

9 days from now, Monday after Thanksgiving, we'll stick the little nuclear rod up my butt and take it for a 39 day spin. May then the little suckers will get the message and DIE.

Just thought I would throw it out here. Not at all crying over the news. Just keeping up on my job of posting for posterity.

I had a great surgeon, who I am quite sure did a top notch job. Got a post path report that could have been a little better, but hey, it wasn't that bad, really.

It is just the luck of the draw. As has been said over and over here, PCa is fickle and unpredictable as hell. No two guys are alike in how they handle any of the treatments, and PCa does not respond ever to the know protocols.

Looking forward to the RT and seeing what the future brings.

BTW in celebration my wife gave me my Christmas present early today.

She bought me a new 55" LED TV, new surround sound system (complete with Blue Ray, and streaming Netflix) and a great universal remote.

I am replacing a 58" rear screen projection tv that is old but works great, however I am tired of missing out on the HDTV experience of watching the ball games. I put a 42" in the bedroom for her when she was first diagnosed and we knew she would be spending a lot of time in bed.

So you can really see that I am not down about the latest PSA news at all. If there is any one thing that is bothering me it's the thought of the job I face tomorrow; moving furniture, building the new tv stand, moving out the old tv and connecting this whole new system.

Hey when I think about it I did great on this deal. Took out a prostate and got a whole new entertainment system. And she told me I don't have to do any house painting for at least a year to boot.

Yee Haaa!. The good news keeps coming.

Sonny yeah
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero

Post Edited (Sonny3) : 11/20/2009 7:48:10 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/20/2009 10:15 PM (GMT -6)   
Sorry about the .6, my friend, but we both knew there was little if any reasonable reason to believe your uptick was a fluke, this result should even make you feel more sure about your SRT path you have laid out. Its weird, mine will be ending next Friday afternoon, and the following Monday, you start yours. I still hope and pray that your's won't be a production like mine has t urned out to be. Least you won't have a catheter in the middle of all that, or at least I hope you don't or won't.

55" LED? Geez, always got to outdo me. We just this past week got our first LCD, 32", was limited to the size because we wanted it to fit the same expensive piece of furniture our old analog tv fit in. Just now today, got Charter TV to get all the HD related bugs worked out and all systems go.

I will be with you each day of your journey too, just slightly ahead of you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 11/20/2009 10:24 PM (GMT -6)   
Sonny,

Way to go with the positive attitude. Honestly, I don't think there is any other way. Face it head on, take it for what it is, and beat the little bstrds over the head.

Now I know where we can watch TV this winter on vacation. Too bad Oprah is going off the air. Maybe you'll like Jerry Springer now.

Good luck my friend to you and Lynn.

Goodlife
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 11/21/2009 12:44 AM (GMT -6)   
Sonny, We take an inch any way we can. As they say size matters. You will just love the HDTV System with sound. I just knew Lynn was a keeper even before the Christmas Present. Do enjoy.

Your Bro in PC
Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 11/21/2009 3:32 PM (GMT -6)   
Sonny, sorry to hear that you're heading for SRT. Sounds like your head is in the right place though, which is a great start!

I wish you and your wife the best of luck with your treatments...looking forward to hear more about your journey.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4 SA. PSA: 0.0 til July 2009. August 2009 PSA was 0.1, in September it was 0.3 Met with radiation oncologist, CT scan and bone scan clean. Third PSA on October 16 - PSA BACK TO UNDETECTABLE! Next PSA scheduled for early December. No radiation treatment at this time!


reachout
Veteran Member


Date Joined May 2009
Total Posts : 739
   Posted 11/21/2009 7:03 PM (GMT -6)   
Sorry you are headed the IMRT route, Sonny, but you have a good attitude, and those little PC cells are in for some very bad days ahead. You're right about the luck of the draw. You had one of the best surgeons in the business (so did I, I think), and most guys who go under the knife or robot are in capable hands. The number of botched operations, in my opinion, are very very small, even if some surgeons are better than others at the fine art of excising PC. But even with the best of surgeons, we are each individuals, and have different results. If you had had a less competent surgeon, you would likely have a much bigger problem than you do. So on we go with our lives and our struggles, and the most important thing is to keep our heads up and fight the good fight. Best of luck.
Age 64 yrs
DX 5/2009
8 out of 12 cores positive
PSA 5.6
Gleason Score 3+4=7
Stage T2a
Da Vinci Surgery 08/07/2009
Upgrade Gleanson Score 4+3=7
Stage pT2c
Neg Margins and Nodes
Extracapsular extension noted but neg Extraprostatic Extention
Dry immediately
First PSA 11/3/09 <0.1


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 11/22/2009 8:43 AM (GMT -6)   
Hi Sonny

Sorry for you have to do IMRT after your surgery. Both are not fun. However, the little left over pc cells won't survive from IMRT treatment. My father in law had it done 13 years ago and he is doing great right now. My father in-law was in much worse case at time, psa 19 and stage 3. he didn't have surgery because of his age. the IMRT sure did cleaned all the pc.

with your great attitude and support from your loving wife, and us, you will be the winner in this battle.

Best!

Jennifer

Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 11/22/2009 9:06 AM (GMT -6)   
Hi Sonny,

Kudos on keeping a positive outlook. The glass is half full... right? It always is in my mind.

Keep well,
Regards,
Bill

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7269
   Posted 11/22/2009 1:28 PM (GMT -6)   
Good luck Sonny. YOU have IMRT and I have a biopsy that day.
Mel
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro!
 
History of BPH/prostatitis.
 
Awaiting results of my PCA-3 test which will determine whether a biopsy is in my immediate future. Just in: BAD NEWS: PCA-3 = 75.9! Cut-off is 35. Biopsy scheduled for 11/30


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/22/2009 4:35 PM (GMT -6)   
And if will be my first week day after my SRT ends. What a day.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Rolerbe
Regular Member


Date Joined Dec 2008
Total Posts : 235
   Posted 11/22/2009 9:29 PM (GMT -6)   
Sonny,

Hope you kick those little buggers in THEIR butts. Keep on truckin'
51 YO
PSA at Dx: 8.2
DaVinci RALP: 10/31/08 -- Great MD in New Haven, CT
Negative margins, no extra-capsular involvement
One nerve spared
PSA at 0 for just over a year now.
 
 


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 11/23/2009 12:26 PM (GMT -6)   
Just a quick note of follow up. Yep, the psa is still 0.60.

However, the discomfort I had during my recovery from surgery is nothing compared to the contorted discomfort, frustration and mental anguish I am still suffering since I began to install the new electronics Entertainment package yesterday.

It's nice that the new TV and Blue Ray/FM/Surround Sound systems have every feature know to modern man except for an electric dog polisher. But holy joe some of these things and their connections are really beginning to drive me nuts. And I haven't even started yet on the new and improved computer programmable universal remote.

So, the psa is still .6 and I start my RT a week from today, and I really can't be worried about either right now.

I just need to get the package working so I can relax after a tough day spent with the nuclear rod up my butt.

All things in perspective guys, "Every day is a bonus".

Sonny

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/23/2009 12:59 PM (GMT -6)   
Sonny, thought I knew what was going on with your RT plan. A couple or so posts you refer to "nuclear rod up my butt". Am I missing something here in your treatment, or am I taking things too literal again?

David in SC

Nothing up my butt, that's my policy, it's for "Exit Purposes" only
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 11/23/2009 2:02 PM (GMT -6)   
Sonny,


THey'll get them all this time. My best hopes and wishes for you from Bradenton.



Steve

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 11/23/2009 6:03 PM (GMT -6)   
David, no rods, no butts, just a bad attempt at humor.

Steve, thanks alot.


Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative
da Vinci 9/17/09
Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
NERVES SPARED-positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT scheduled to begin Nov 30,2009 (74 days post surgery)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/23/2009 6:26 PM (GMT -6)   
Sonny, thats one of my flaws to take things literally most times, I know there is someone here that either got treated or tested by having a metal probe up their bum, I thought perhaps your clinic was going to do things different down there in the Sunshine State.

Glad you aren't getting probed in the poop locker.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place

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