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compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 11/20/2009 9:29 PM (GMT -6)   
Any suggestions?
 
Mel
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro!
 
History of BPH/prostatitis.
 
Awaiting results of my PCA-3 test which will determine whether a biopsy is in my immediate future. Just in: BAD NEWS: PCA-3 = 75.9! Cut-off is 35. Biopsy scheduled for 11/30


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 11/21/2009 2:54 AM (GMT -6)   
Comp,
This booklet is well worth reading:

www.yananow.net/StrangePlace/index.html

Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01
PSA August 09 (2 year mark), <0.01

My Journey: www.yananow.net/Mentors/BillM2.htm


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 11/21/2009 5:58 AM (GMT -6)   
Dr. Patrick Walsh's Guide to Surviving Prostate Cancer is the bible for PCa.
46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
One year PSA - undectable!

ED Website: www.FrankTalk.org - frank discussions of Erectile Dysfunction - check it out.

Post Edited (Paul1959) : 11/21/2009 5:02:09 AM (GMT-7)


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 11/21/2009 8:03 AM (GMT -6)   

I agree with Paul1959's recommendation of Walsh's Guide as one of the "bibles" for PC.  Walsh is a pioneering PC surgeon.  A wee bit of a notable tilt towards surgery in this book.

I would also recommend A Primer on Prostate Cancer: The Empowered Patient's Guide by Stephen Strum and Donna Pogliano, which is generally considered more balanced.  Strum co-founded PCRI (Prostate Cancer Research Institute).  Someone else also recently posted the link to online PCRI papers which is an excellent wealth of information; I will re-post here:  http://www.prostate-cancer.org/education/education.html

Both of the books listed here are outstanding reference library additions for a PC patient, and both can be delivered to your home within days via any of the many online bookseller.  I have, and use, both books.  Good info on BPH, prostatitis and PC in both books.  Online chat sites like this are good for inquiring about the experiences of others, but if you want knowledge of what's going on and why, it's best to refer to the experts.

 


Post Edited (Casey59) : 11/21/2009 7:09:35 AM (GMT-7)


Zen9
Regular Member


Date Joined Oct 2009
Total Posts : 310
   Posted 11/21/2009 9:17 AM (GMT -6)   
Peter Scardino's book was and is my guide through this whole process.

However, there is no substitute for going directly to the medical articles yourself via PubMed. With a little patience and the use of one of the online medical dictionaries, you can get the information you really need, unfiltered by anyone's agenda.

Zen9

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 11/21/2009 12:40 PM (GMT -6)   
I'm with zen. Things are happening so fast, that by the time a book gets published and recognozed as noteworthy, the information is 2 to 5 years out of date.

I realize some facts about PC don't change, but with the advent of Hufu, proton, PCA3, etc. etc, books can't move that fast.

The internet is so fantastic. I can't imagine having PC 10 years ago.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 11/21/2009 12:46 PM (GMT -6)   
Walsh's book is still a good choice, if you are only going to buy a single book. Yes, he's a surgeon, and there is lots of bias toward surgery, but then again, surgery is the #1 choice for primary treatment. The rest of the book has good info. I read the entire book several times a year before I ever had a full dx of PC.

There are a lot of other good ones out there, and of course, endless choices on the web.

I have given away all my other PC books to other brothers here at HW, or else I would offer you some for free.

I kept my Walsh book, though, which I still use for review at times.

Good luck
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4229
   Posted 11/21/2009 4:49 PM (GMT -6)   
Strum's book is the best; you have to read it a couple of times before you really understand it.
"The Chna Study" is the best book on diet.
JohnT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 11/21/2009 5:18 PM (GMT -6)   

Thanks folks. I just ordered the Strum and Walsh books from Amazon.

Mel


PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro!
 
History of BPH/prostatitis.
 
Awaiting results of my PCA-3 test which will determine whether a biopsy is in my immediate future. Just in: BAD NEWS: PCA-3 = 75.9! Cut-off is 35. Biopsy scheduled for 11/30


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 11/21/2009 5:37 PM (GMT -6)   
You will enjoy Walsh book. I got it after my surgery (Robotic) and wished I would have read it before.

Larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 11/23/2009 12:11 PM (GMT -6)   
Both good books and very likely the best on PCa available especially for laypersons. I got my 5 minutes of fame on Dr. Strums book which is the best overall book I could find back in 2002-2003 era. I am on the inside front cover of the second edition (fyi) and met Donna P. back on the PCa forums way back...she helped get me in the book. I am the endorser whom says "This book trumps them all" book has our photos on it of a few fighters on PCa from that time frame.

This book lit a fire on fighting this for me and probably helped me get this far in the journey in good health, my stats were high side and bad overall. Very fortunate thus far to even be here.
 
Dx 2002- emergency room total urinary blockage (ooch!), bpsa 46.6  12/12 biopsies all 75-95% PCa~gleasons found 7,8,9's (2 sets about all equally too), ct and bone scans revealed nothing (clear=supposedly).

Post Edited (zufus) : 11/23/2009 11:14:17 AM (GMT-7)


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 11/23/2009 3:06 PM (GMT -6)   
I read all the books mentioned from the library, pre-op. The one I wanted to own though was Dr. Patrick Walsh's "Guide to Surviving Prostate Cancer", second edition. I purchased it through Amazon.
Age: 62
Pre-op PSA: 4.1

Post-op pathology:
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks --> .04 (undetectable)
ED: Improvement is evident, starting at seven weeks post-op.
One pad for the first six weeks. Two pairs of underpants now just to play it safe.
Surgery: Brigham & Women's Hospital, Boston

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