New PCa Information Site - Pretty Cool

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 11/24/2009 10:07 AM (GMT -6)   
Modelshipwright (Bill) posted a link earlier about a specific study relating to PCa. I went there to read the article, and found the site very informative overall.

Here is the link for the home page, check it out. New guys especially will like it I think.

http://prostatecancerinfolink.net/

Thanks to Bill for finding this site,

Sonny

61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative
da Vinci 9/17/09
Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
NERVES SPARED-positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT scheduled to begin Nov 30,2009 (74 days post surgery)

Post Edited By Moderator (TC-LasVegas) : 11/24/2009 11:22:28 AM (GMT-7)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/24/2009 1:17 PM (GMT -6)   
Sonny I have been mentioning the InfoLink since the site was started last February 2008. I call it the InfoLink, but it's full name is The "New" Prostate Cancer Infolink.

Mike Scott and Dr. Arnon Krongrad set out and started this website as a news feed and also a social network for prostate cancer professionals, patients, advocates, and students. Mike is the Sitemaster of the news feed you linked above. Arnon is a surgeon and pioneer of Laproscopic radical prostatectomy.

Here is my link to my page in the social network: www.prostatecancerinfolink.ning.com/profile/tonycrispino

Anyone can join the social network, and you will see many doctors and industry professionals there.

I consider the site one of the top on the internet because Mike sorts through all the misinformation and posts fantastic commentary. So good, I thought, that I linked it at the new "UsTOO Las Vegas" website for the Las Vegas chapter of UsTOO which I am now the President/Facilitator for. ( ustoolasvegas.blogspot.com ). You can check it daily, as it is updated with the latest prostate cancer news.

I mentioned here about my involvement with Prostate Cancer International as a "regional representative". PCaI is the parent company of the InfoLink. So understand that I will from time to time work with Mike and Arnon at shows and in seminars. But the beauty of that website is the cost of membership ~ it's free.

Tony
Prostate Cancer Forum Co-Moderator


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4269
   Posted 11/24/2009 2:31 PM (GMT -6)   
It's a great site, well worth visiting on a regular basis as the articles are the most up to date. Tony, your commentary on some of the articles is very good as it gives a patient's advocate point of view as is sometimes missing from just the data and news.
JT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 11/24/2009 6:18 PM (GMT -6)   
When visiting this site, you can sign up for a daily mailing by email of the events of the day regarding PCa. I get an email every morning.

Regards,
Bill
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