SRT 37 of 39 - Tuesday

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/24/2009 12:48 PM (GMT -6)   
Had my Tuesday zapping done at 1030 this morning instead of my usual time.  Was a 25 minute deal this time.  Lots of burning at the SP site, they said it looked all red, but clean.
 
Two left - one tommorow, and then one Friday.  Can't hardly stand it at this point.  Be so glad when this phase of treatment is over with, and I can start healing from that.  Next big item, is to be catheter  free after all this time, today is day 55 on the SP catheter alone.  The earliest time frame from the looks of it won't be completely cath free until mid January, so still have a lot of spasms and cath annoying things to look forward until then.  But one problem at a time.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 11/24/2009 1:38 PM (GMT -6)   

David,

I have been following your daily accounts. Your journal will be a great resource for others to follow in the future. It brings back vivid memories of my 35 treatments, which were almost uneventful compared to yours. I can recall that last week. Hang in there my friend, and let the healing begin. May the zaps send your PC into oblivion, and start rolling zeros again.

Bill in San Diego


Age 61 (59 @ Dx) PSA 4.4

Biopsy 5/15/08 Gleason (3+3=6)

Bone scan and pelvic CT: clear

HT - 2 mo Casodex, 3 mo Trelstar

RRP Surgery 9/15/08

Post-OP Gleason 3+4=7, Stage pT2c pN0 MX

SV, perineural margin, 18 lymph nodes, bladder neck: all carcinoma free

Perineural invasion & Distal Margin: Carcinoma present

IMRT adjuvant radiation (35 Treatments) Ended 1/27/09

PSA Tests: (10/13/08) (3/13/09) (7/10/09): all <0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/24/2009 2:01 PM (GMT -6)   
Thank you so much, Bill, I would have prefered that my SRT had been non-eventful too, but its been anything but that.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 11/24/2009 4:32 PM (GMT -6)   

Hi David,

Only two more to go and then the RT part is over. We're all rootin' for you and may the Pca be blown to oblivion, as another poster said.

Good luck with the last two.

Mike

 



-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 11/24/2009 4:39 PM (GMT -6)   
David I am thankful this Thanksgiving that you are almost through with your tx. Lots of other things to be grateful for as well, but happy for you.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/24/2009 5:07 PM (GMT -6)   
Thank you, Ohio, Mike, and Michael. When you go through an extended situation like this, its almost anti-climatic when its over. You simply get up from the table and walk away. But still got my last two to deal with, after 37, its seems like nothing. Just want it over.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 11/24/2009 6:07 PM (GMT -6)   
Hey David,

Wow, two to go. And a bonus, a day off between them to eat some turkey. I wish you a very Happy Thanksgiving and hope that you enjoy the holiday. You have benefited by posting your daily journey and so have we,. Thanks for that David,

Regards,
Bill

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/24/2009 6:28 PM (GMT -6)   
Bill,a big thanks to your support. It's not that I think my SRT time was remarkable, but several people here did request for me to do a running diary, so thus I did. My complications were not entirely unexpected. Like my dr. said. she had never radiated anyone with an SP catheter in place. And she planned my treatments based on past performance of my hyper sensitivity to radiation in general. I feel she did a great job, the staff there has been very sincerly caring.

You can probably tell from my posts, I am not into the blame game like some folks are. The complications I have encountered in my PC journey, definitely been a few, lol, I dont blame on my uro/surgeon, my gp, or the radiation doctor. Its because I am David Riley, and must be an odd duck and my body has its own quirks. No one to blame, just thankful my current medical staff is in tune with me, my feelings and my pain. And none of them ever rush me when we meet.

Just my opinion, perhaps from being married to a nurse, but unless you have really really strong evidence to the norm, it pays to be a compiiant patient. My life is in my doctor's hands at one level, so good teamwork and cooperation, and open communications makes it easier for them, and for me, the patient of course.

Best to you, brother
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 11/24/2009 6:44 PM (GMT -6)   
DAVID, What is left to say..... TWO MORE ZAPS!!!!. What time is your Friday Zapping? I think I will plan a celebration here in Cajun country to salute you.

May even take pics and send them to you.

One of my thanks on Thursday is that you will finish this on Friday and that I have you as a friend.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/24/2009 7:07 PM (GMT -6)   
My normal zap time is 1430. My wife, being off that day, wanted to come to the last one herself. Was fortunate that I never needed anyone to drive me home during this time. There were 2 or 3 times, that I was so knocked for a loop leaving there that I wished I hadn't been driving, either from severe nausea or pain or both, but managed to get home.

Yes, I too have a lot to be thankful for as well this year. And you too, have been a good and faithful friend throughout this entire process, and for that, I am thankful in return for you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 11/24/2009 7:58 PM (GMT -6)   
One day and a wake - up.  How I remember that from 1969!  You can and will prevail.  Don't let the -------- wear you down.
 
Best,
 
Bill
August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
 
Wow, almost two years behind.  I had a typical radiation bounce that
scared me, but it seems to be ok.  PSA is about 1.0 which is ok for
a rad guy at this stage of the game.
 
Got my FAA medical certificate back four months after starting my
treatment.  It's still a First Class, just jumping through a few hoops.
 
October, 2009.  Latest PSA is still 1.0 - that would make you surgery guys nuts, but it's just fine for a rad guy.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 11/24/2009 8:07 PM (GMT -6)   
David,

Somewhere in my memory banks is a chant that keeps repeating to me;

"One down two to go, one down two to go, hey- hey-hey!

"One down two to go, one down two to go, hey- hey-hey!

Many of us will be including you in our Thanksgiving prayers this Thursday. I sincerely hope that my journey beginning Monday will not be a mirror image of yours, so that those that follow in our foot steps will have differing views and expectations from the treatment.

Hang in there brother,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative
da Vinci 9/17/09
Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
NERVES SPARED-positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT scheduled to begin Nov 30,2009 (74 days post surgery)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/24/2009 11:19 PM (GMT -6)   
Sonny, no reason in the world to think that you would experience the same difficulties as I have been having with my SRT. Since you haven't been through RT before, no reason to think that you might be sensitive to it, you won't know yourself till you do. And thank goodness, you don't currently have stricture issues and/or having to have any type of cath, Foley or SP while undergoing it. Definitely a case of two entirely different situations but undergoing the same treatment.

I think most people reading this segment of my journey, fully realize that I am in a small percentile group with these types of complications.

I wish, and hope, that at most, you only have the discomfort of having fatigue directly from the RT as a side effect. That also hits different people in different ways.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Gunner59
Regular Member


Date Joined Nov 2008
Total Posts : 110
   Posted 11/25/2009 6:24 AM (GMT -6)   
David,
 
I'm so glad to hear you've nearly completed your radiation adventure.  I don't know how you've managed to deal with everything that's been thrown your way in your lifetime, but you are a shining beacon to those of us whos journey's have just begun.  You are in my prayers, and I pray for your recovery from this monster that has so affected all our lives and the lives of those we love.
 
Your brother in PCa
 
Ralph
Age 48 at diagnosis
3 Jul 08 PSA 27.21
Biopsy positive 3+3=6 on 9 of 24 punches
Bone scan clear
22 Sep 08 Laproscopic Radical Prostatectomy and bilateral pelvic Lymphadenectomy
Gleason 3+4=7 after prostate removal, lymph nodes clear
Stage T2B
PSA at 3 months=undetectable
6 month PSA still 0
14 Sep 09 PSA .014


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 11/25/2009 7:01 AM (GMT -6)   
David,
Today is next to last. T minus 52 hours and counting. May you miss it like you miss a leaking cath bag.
By Friday afternoon you will be on the road to recovery instead of to the hospital.
Stay well,
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/31 3 months, Still no activity, nada, zip
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/27 2 months: Still 3 pads per day.
11/14 4 month: Still 3 pads per day. 420ml/day, 91 um leak. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks- 0.05, 10/13 3 months- 0.04 undetectable.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/25/2009 10:01 AM (GMT -6)   
Jeff, its been a long almost 2 months of this, but I can now say, the day after tommorow its all over with. At least getting slammed with a daily dose of radiation. Looking forward to the recovery side of this part. After Christams has passed, then on to dialations, and catheter removal, be nice to start the new year free of the snake(s). I figured, by New Years day, I would have spent almost 200 days on a total of 10 or 11 catheters. A record I wish I never knew about.

Thanks for your support
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place

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