Canadian looking for help

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kak
Regular Member


Date Joined May 2009
Total Posts : 85
   Posted 11/24/2009 7:49 PM (GMT -6)   
Hi: My husbands psa has started to rise. He has radiation 2 years ago in October and was on lupron/casodex. Because his psa is rising while on the lupron we know that the radiation did not stop the cancer. Can anyone out there that is Canadian , possible in the the prairie province, if possible Saskatchewan, give us some help. The problem is as always there is a long waiting list and we were told if chemo is the form of treatment it would take at least 3-4 months to get in to see a chemo oncologist. Anyone out there got any help as far as what we should do as far as pushing. Also another problem is his doctor that he is seeing now is on leave(he is ill) so we really don't have a doctor as of record. The doctor covering said first he would send my husband for a bone scan and ct to see if there has been any spread. His psa is now 4.56 and rose from 1.19 taken in August.
Any help would be appreciated.
AGe 54 diagnosed March of 2007
PSA 107
Gleason 8
Stage T2 or T3 (weren't sure was out of prostate capsule)
Bone scan march 2007 and Aug 2008 both clear
ct 2007 clear
started casadex/lupron March of 2007 (casadex only for 4 months)(lupron for 2 yrs)
Aug 2007 had 37 treatments (also radiated lymph nodes)
psa spr 07-107,went down to .34 by Dec 08, March 09 0.7, May 1.54
 
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 11/24/2009 8:30 PM (GMT -6)   
Hi kak,
 
Sorry to hear that your husbands PSA is on the rise. I live in the Vancouver, B.C., region  and was lucky to find wonderful Doctors here when I was diagnosed with cancer. I have not had to deal with HT yet and I dread the day when and if I have to go that route. Unfortunately, here in Canada, information, Doctors and proper treatments  are not easy to come by. I have heard of many horror stories as to how the sick and elderly are being treated in our 'Great Country'. Your best chance of getting the help you and your husband need, is probably to go to on of the bigger cities in B.C., Alberta or Ontario unless you are financial able to go to one of the big cancer centers in the States. I wish I could be of more help to you. Perhaps some one with more helpful information will chime in.
Wishing all the best for you and your husband.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09, = 0.05; July 09, <0.04


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 11/24/2009 8:48 PM (GMT -6)   
I just came across this post by brother Sonny3. It maybe of interest to you:
 
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09, = 0.05; July 09, <0.04


pattipieca
New Member


Date Joined Sep 2009
Total Posts : 4
   Posted 12/9/2009 1:01 AM (GMT -6)   
This is a site for ladies only who are dealing with prostate cancer in husbands/partners/loved ones. There are many members from across Canada - I am sure someone could provide the info you are looking for. Please join us there.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 12/9/2009 9:32 AM (GMT -6)   
The Lupron is not working against HRPCa is what is happening, you need to try another therapy and get off of Lupron once you have a new protocol. Why don't you contact www.paactusa.org and talk to Rick P. (moderator) he will actually talk to you via phone and may be able to assist you even in Canada, his phone number is on the website or contact me for it.
Watch your doubling times on psa, get checked elsewhere soon and know how fast is the velocity so as to know how much faster you might need to move on this. Try not to let your psa run into the 100's(especially 1000's) level is likely a wise move, even on uncureable scenario.

kak
Regular Member


Date Joined May 2009
Total Posts : 85
   Posted 12/9/2009 10:17 AM (GMT -6)   
Thank you for all your posts. We saw the oncologist yesterday and decided our put our trust in his hands. He was very informative and seemed to be very caring. I have to say we have received very good treatment, even our first doctor getting very will. I guess maybe we have both come to an understanding that with the time we have wether it is is 5 years or 5 months we want to enjoy each other and our family. I do believe that having a good outlook and good mind does help the quality treatment.
AGe 54 diagnosed March of 2007
PSA 107

Gleason 8

Stage T2 or T3 (weren't sure was out of prostate capsule)

Bone scan march 2007 and Aug 2008 both clear

ct 2007 clear

started casadex/lupron March of 2007 (casadex only for 4 months)(lupron for 2 yrs)

Aug 2007 had 37 treatments (also radiated lymph nodes)

psa spr 07-107,went down to .34 by Dec 08, March 09 0.7, May 1.54,
Added casodex, PSA Aug 1.19, Psa Dec 09 5.65
Going for Bone scan and Ct Scan, than decide what to do with rising psa

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