I need some patience right now!

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/1/2009 7:49 PM (GMT -6)   
Been 4 full days since my last radiation zapping, and somehow I thought I would magically feel better.  It is wonderful not being zapped anymore, and going through that daily routine.  But in all honesty, I still feel physically as miserable as before.  Still a lot of penile pain, rectal pain, extreme tendernous to the abdomen area, and of course, lots of spasms, probably 2 - 3 per hour when I am awake.
 
My radiation oncologist said it might take weeks for the worse effecst of the radiation to lessen, so I guess she is right, or I am just being impatient.  Sick of the whole mess (PC in general), all I want is to feel better, be rid of this catheter, and try to get myself back into some kind of physical shape.
 
I am not going to be able to go into the Oncology Rehab program.  They expect me to come up with 80-120 USD a week for co-pays for the program, in my situation just don't have the money for a 10 week program.  When I went through it 10 years ago, at a different hospital system, it was free to me.
 
Trying my best to adapt to life after SRT, if all goes as plans, will have my first post-SRT PSA test after Christmas.  That, believe it or not, I am not even worrying or thinking about.  I did my part with the SRT, never missed a session, not even late once, the rest of that is out of my hands.
 
Best to all my brothers here (and sisters)
 
David in SC


Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 12/1/2009 8:29 PM (GMT -6)   
You have been a very patient "patient". I hope each day will get better for you. You have been put through the ringer. Just think of what you've already done. I hope the worse is behind you.
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
12 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 12/1/2009 8:30 PM (GMT -6)   
David, I do hope things get better for you quickly. Tell me what happens in the Oncology Rehab program. I think this is the time for you just the chill and let you body heal from the attack of radiation.

Will talk to you soon.

Your friend and brother in PC
Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 664
   Posted 12/1/2009 8:33 PM (GMT -6)   
Man ,I sure hope for you that things improve quickly. I’m following every post of your journey and it has impacted me as I’m sure it has others. I am a better person for having experienced your post.
Best your way
Hero

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/1/2009 8:54 PM (GMT -6)   
Thanks Rob.

Jeff, not sure, they were concerned anyway that I am still on a SP catheter, which would limit certain physical exercises.

Hero, thanks, just in a new part of my journey, hoping it does get better soon.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 12/1/2009 9:19 PM (GMT -6)   
David-(Purg) fellow warrior on this, your radiation is atypical in those side effects from probably the median or majority of rad/patients. But, since you have to deal with them you may have to just endure whatever length of time it is to get back to normalcy. I don't necessarily believe I am all that lucky in my own radiation experiences, but maybe I was...did not have nasty pain issues, stomach felt about normal, foods tasted the same, urinary things were not much different or an issue and bowel was probably the only side effect thing that went on and it got better and better overtime, not a burning thing more of occasional urgency thing( once I was to late....ummgggh...that is probably enough information on that episode, and found that I had not the same control as one had before, but not problematic. Also, it look like I got the max. program you can likely get from anywhere and had to sign off as doing such by my rad-onco-doc I have a copy of that paperwork. Neutron-(Cylcotron) rays-(super rare protocol anyway) & the Photon(IMRT) rays, with max body exposure they allow. The E.D. was ruined by prior ADT3 and then added onto with this proceedure and ADT and DES used after radiations.

It will also take time to reach your nadir psa level(lowest numbers) with radiations espcially if one has not had their prostate removed (for others info). Radiation in effect is not an instant kill on PCa, it messes up the DNA structure in them and eventually they don't reproduce and die off. I my case it took around 5-6 months to hit nadir, and I charted my psa's atleast monthly and sometimes even more often (remember my prognosis and numbers were in fact scary) . So know that you have to monitor psa awhile and like your doc mentions 3 consecutive rises, is what we all hope nobody has to witness in this type of treatment history.

I never had radiation psa bounce it can happen around 12 months and in some cases, way longer like 24 months, then a spike in psa happens and you can imagine the patient...freaks out..thinking failure...the good news is it is followed not real long after by a decline in psa, supposedly happens in around 30% of patients. Kind of a radiation postphone induced prostatitis thing is supposedly the cause, talk about land of bizzare....hey Iam just getting started....it is a jungle. PCa gets crazier and crazier for protocols for patients that are failing treatments, it is more like a twlight zone thing, especially for newbies looking at all this.
 
Hope you do well and conquer this beast.  Here is a snipet on Neutron use for PCa.
 
 Info on Neutron radiation (DMC-Karmanos-Gershenson Center is all the same place in effect)-Detroit area this is offered at: (radiation rays in power: neutron, then proton, then photon, then electron for what is used on PCa and alot of other cancers)

The Gershenson Radiation Oncology Center at Harper University Hospital in Detroit is the only other neutron therapy center in the USA equipped with an MLC beam shaping device.

The WSU radiotherapy team has more experience than anyone in the world using the neutron cyclotron for prostate cancer, having treated nearly 1,000 patients during the past 10 years. The third-generation neutron cyclotron combines three-dimensional treatment planning with a type of collimator that tailors the beam of radiation to the exact size, shape and location of each person's tumor.

Dr. Jeff Forman (who's picture-endorsement is in one of the PCa books) has found that patients whom got the combo of Neutron first then followed later by Photon rays had significant better results as to control or survival time, I read that information at one time and went with his protocol and Bolla study combined. Only 2-3 places in USA offer the Neutron treatments.  Maybe someone else will travel this road.

Post Edited (zufus) : 12/1/2009 7:51:11 PM (GMT-7)


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 12/1/2009 9:44 PM (GMT -6)   
David,

I hereby and officially nominate you as the LIFETIME HOLDER of the HW "Murphy's Law" and "SNAFU" trophy.

The lord must have great confidence in you, it is said that he never bestows upon a man more than he can handle. He's got faith in your abilities, that's for sure.

Hang tough brother,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative
da Vinci 9/17/09
Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
NERVES SPARED-positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT scheduled to begin Nov 30,2009 (74 days post surgery)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/1/2009 9:59 PM (GMT -6)   
Zufas, good words and post, appreciate it. My rad. oncol. did say that I will not experience any kind of bounce, she said that was applicable only to men using RT as a primary treatment while retaining their prostates. In my case, with no prostate, this was a salvage treatment. She did say that it could take several month to reach the lowest number, and that she wouldn't be surprised if the first post SRT PSA late this month might even be the same or slightly higher than the last time it was checked before SRT. There was about a month and a half gap between last PSA and the start of SRT, so there could have been a slight rising on its own. This scenerio is one I am prepared mentally to handle. I will be more intersted in the tests 3 months and six months out from the first one.

From what she told me, my difficulties with the SRT probably put me in a small group of 4-5% of men suffering similar things to what I reported. Mine, of course, was further complicated by having it done with an indwelling catheter the whole time. She said she had never done that before, but felt safe about it, and knew that the natural swelling from the radiation would have shut down my already touchy bladder neck, which was well on its way to closing again by scar tissue before the SRT started, and that is despite having two corrective surgeries and a very painful emergency dialation done in the months prior. As painful and aggervating as this catheter is after being in me for 62 days now, the alternative to me is far worse if I didn't have it.

I have experienced a little of the bowel thing you mentioned. It is an urgency matter, if I even think I might need to go #2, I head straight for the crapper, haven't had an accident yet, but it wouldn't take much to miscalculate, lol.

THanks for the encouragement,

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/1/2009 10:07 PM (GMT -6)   
Sonny, not sure its the Murphy's Law thing, when we look at stats on side effects and problems, someone has to make the exception for it to show up in the stats. Despite my known troubles with blockages and radiation side effects, look at the good parts of my journey. When I went to go dry, it was a fairly quick and easy thing for me, less than a month, and even then, most of it was in my head. And of course, the big one, no ED at any point with only one nerve bundle spared. Considering that I had open surgery, I actually healed quickly from the incision itself and had no complications with that part.

I knew going into SRT that it was going to be trouble, and that was based on my previous RT in the past. Some people are just very sensitive to any kind of radiation poisoning. I was getting almost 2 gys a day delivered, and that is more than enough to have bad side effects if you are sensitive.

So its not all bad. If my uro/surgeon can get my bladder neck working right in a month, and I can be cath free for good, I will feel like a new man with a new lease on life. And if I can get back into the Zero club one day and stay there a while, then all of this pain and suffering will have been worth it to me.

May your treatments continue to go well for you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 12/1/2009 10:11 PM (GMT -6)   
Yeah I was posting the bounce info so others will read about such things, atleast you cannot be facing that. Like you mentioned the surgery repairs and bladder neck along with radiation probably is a rough combo, hope you can drop the catheter. I wore one at the beginning of my total urinary blockage-then diagnosed with PCa, I cut the hose off after 7 days or so in spite of the doc's time frame, did well with Flomax at the time.
How you or Andrew can handle a catheter for that long of time frame is something. I did drive a stickshift with it on, that was dumb and might have helped lead me to cutting the hose and it fell out after that.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/1/2009 10:21 PM (GMT -6)   
No easy answer to that part. The pain associated with total retention and blockage is so severe you only wish you die. Went through that so many times. When my doc switches out this cath for a clean one on Dec 7, it will make #10 in 13 months. I thought when I agreed to the surgically inplanted SP cath, it would save some wear and tear on my weiner. For starters, most of my pains are still in my penis, even though I wasn't radiated directly there, and even though I am not wearing a foley cath, so in some ways, it defeated the purpose.

Even though I am capable of a full errection even now unassisted, I am too sore and weak to want to entertain sexual activities, so again, kind of defeated the purpose of going SP.

As far as Andrews and my long cath times, you get use to things, you adapt. My wife (the nurse) tells me of people at her facilitiy that have been on SP caths for over 10-12 years, they change them out monthly just to keep down UTI's.

Severe bouts of pain have taught me that there are worse things in life than caths.

Just my thoughts
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/2/2009 12:07 AM (GMT -6)   
Purg,

Don't forget that radiation continues to do its job for a while after the last treatment. S/E start to lessen over a few weeks and get better over a few more. Fatigue is the last thing to improve usually so hang in there. You're on the road to recovery.
 Hilarem datorum diligit Deus


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 12/2/2009 12:14 AM (GMT -6)   
Hi David,

I know that it will probably take a bit of time, but you will get better soon. Your body is repairing the RT damage RIGHT NOW (although it doesn't feel like that right now). It is working hard 24/7 and very soon you will notice the effect. Hang in there David.
All the best to you.

Your friend, Magaboo
Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09, = 0.05; July 09, <0.04


Rolerbe
Regular Member


Date Joined Dec 2008
Total Posts : 235
   Posted 12/2/2009 12:51 AM (GMT -6)   
Purg,

Just think of how the little buggers must feel. Hopefully much, much worse. Hopefully so dang bad they just give up and DIE already.
51 YO
PSA at Dx: 8.2
DaVinci RALP: 10/31/08 -- Great MD in New Haven, CT
Negative margins, no extra-capsular involvement
One nerve spared
PSA at 0 for just over a year now.
 
 


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 789
   Posted 12/2/2009 3:34 AM (GMT -6)   
Hi David, had a bit of bowel trouble after the RT, (frequency, and urge to go) also the forementioned red bottom, I would say my bowel has never been the same since, but it has settled down some what, all the best with the next PSA, keep me informed.

Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept.
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd August 09 0.6
PSA 25th November 0.6 (I am now 69)
next PSA January 2010


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/2/2009 6:48 AM (GMT -6)   
Good morning, David,
When I finished my radiation treatments, it took a couple weeks before I noticed anything different. All the way through treatment I never noticed anything, but two weeks after stopping, I suddenly noticed a gradual increase in energy. In other words I was feeling fatigue and I did not notice it until a period after the final treatment.

My advice would be to give yourself time on this. Don't set any expectations and let it do it's work. Swimom is correct in that radiation is not "done doing what it does" (sic) for quite some time after therapy. Up to two years. I am beyond the two year mark for my treatment, and I feel pretty good. Sadly, the fatigue I felt after RT went away, but two years on HT and fatigue is chronic. But I am satisfied with where we are. And we both have much to be thankful for.

Good luck on the upcoming tests. And as I always say ~ Stay positive!

Tony
Prostate Cancer Forum Co-Moderator

Post Edited (TC-LasVegas) : 12/2/2009 8:25:03 AM (GMT-7)


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 12/2/2009 8:01 AM (GMT -6)   
While it would be nice if all the effects of the SRT were to magically disappear as soon as the treatments were over. You had quite a dose of radiation over 7 weeks, which will not disappear over night. On the positive side, if you're still feeling crappy then the radiation is still working in your body which means it;s busy doing its job of hunting and killing those pesky varmint cells!

Seriously, alot has happened to your body over these past months. I am praying that all the bad effects will disappear very soon while the good ones stay with you for a long, long time.

John sends his regards - getting ready for his PSA test next week. I'm not worried and neither is he for it will be what it will be.

Try to relax and get ready for Christmas with your wonderful family.

Sephie & John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4 SA. PSA: 0.0 til July 2009. August 2009 PSA was 0.1, in September it was 0.3 Met with radiation oncologist, CT scan and bone scan clean. Third PSA on October 16 - PSA BACK TO UNDETECTABLE! Next PSA scheduled for early December. No radiation treatment at this time!


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 12/2/2009 8:04 AM (GMT -6)   

Greetings, David.  I'm reminded of the old saying "Lord give me patience and I want it right now!"  It has to be difficult to be finished with the treatment and still feeling lousy but we trust it will get better - much better - and soon - very soon.  I went to physical therapy last year for back pain and it didn't do much good - so maybe when the time is right you can get into the rehab program.  Please know we think of you often and continue to pray for you. 

By the way - I'm headed off to South Africa for 2 weeks so most likely won't be posting during that time.  I'll catch up with you and others when I return.  This is supposed to be my last trip of the year so looking forward to about 3 weeks at home!  David


Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


dsmc
Regular Member


Date Joined Jul 2008
Total Posts : 150
   Posted 12/2/2009 8:18 AM (GMT -6)   
Hi David,
Like the other guys and gals said you are on the mend now and the RT is still doing it's work. You will probably be getting better with the fatigue a week or so and maybe get that cath taken care of. I did a PSA at 2 months, 1st generation, which read <0.1 and the regular 2nd generation at my Uro at 3 months and it was already down to <0.04. I believe you will have the same success. As a matter of fact I am about to walk out the door to get my 6 month draw now. I will be back with those results when they come in. Wishing you the best......

David
Age 54
Pre-op PSA 4.3
Surgery Feb. 17 2005
Post-op Path : Gleason 3+3=6
Right pelvic lymph nodes: negative for metastatic carcinoma
Left pelvic lymph nodes: negative for metastatic carcinoma
extent: right lobe 40% left lobe 10%
capsular penetration: Absent
Seminal vesicles and vasa differentia: Uninvolved
Prostate: 26 grams
Post-op PSA's <0.04 for 3 years
Feb. 08: 0.07, March 08: 0.08, June 08: 0.09 and Sept. 08: 0.1
IGRT scheduled.....November 17th....
FINISHED 01/14/09 YEA!
05/14/09
1st PSA after Salvage RT <0.04..... Another YEA!


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 12/2/2009 8:22 AM (GMT -6)   
Hey David,


Just like the surgery, you need time to heal from the radiation therapy. Take it a day at a time and keep talking to us. We are here to get you through this as well.



Regards,

Bill

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/2/2009 10:08 AM (GMT -6)   
swimon - that's what my dr said, thats why I need the patience, what I am going through is just another recovery phase. I still suffer Chronic Fatigue from RT from ten years ago, so I am sure this SRT is going to add to that.

magaboo - you are quite right, that is a good way of looking at what is going on right now, thanks.

rolerbe - i am a pacifist, but i hope all those nasty cells die a painful death, lol

mal - sounds like you had a rougher time on the bowel part, my rad dr went out of her way to stay clear of that area to keep down that SE

tony - thanks for the good advice, as usual, will take that under advisement. you been there, you get through something like this, and you want to just pop up and be better, but the body says slow down, mac

sephie/john - hugs and thanks for your kind words, guess i should look at this recovery time as part 2 of the srt. just been a frustrating year with all my woes. i hope and pray that john gets another fat zero.

david/cpa - thanks, and good luck on your South Africa job, gee, I never got to travel 1/10th as much as you do when I was working.

bill - thank you as well, can always count on you. i am here for you and all the guys when needed.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 12/2/2009 10:30 AM (GMT -6)   
David, I remember someone said something like this: Lord only gives you what you can take.

I know in your case, all the suffering already beyond what you can handle. But, you will feeling better soon. right now still in the hangover stage of the RT side effect.

You must feel better soon, for you, for your family, and for us.

Best wishes!


Jennifer

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/2/2009 10:37 AM (GMT -6)   
david/dsmc - thanks for the encouragement, and i hope your latest test is a big fat zero, you deserve another

jennifer - thank you for your thoughts, hope your husband is still mending on schedule
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 12/2/2009 11:21 AM (GMT -6)   

Hi David,

The radiation effects take a while to wear off. I think of the treatment effects as like a big heavy flywheel. When treatment is done the flywheel is turned off, but it takes a while for it to stop.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/2/2009 12:03 PM (GMT -6)   
thats a good analogy, squirm, thanks
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place

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