being on the other side has different pictures

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qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 12/2/2009 2:22 PM (GMT -6)   
My husband had Robotic surgery on Nov 17. 5 days later, catheter was out. at that time, doctor didn't prescript any ED pills, instead, he ask us go back to have PSA tested and talk about the ED issue on Juanary 4, 2010. which will be the 7th week after surgery. The doctor said during these 7 weeks my husband can find out where he at for the ED then decide what kind of med he should take.

this doctor is my husband's surgeon's assistant. originally, when we interview surgeon, was told would prescript ED pills right after catheter is out to start getting blood flow.

my question is, how many days after surgery, the patient should start taking ED pills? I don't think this 7 weeks is right.

now the surgery is over, leaking is improving (only use 2 pad per day). but penis is short and totally couldn't respond with manual stimulation (with both side of never sprated). my husband was joking last night that even with Victoria Secret model stand in front of him, he couldn't do anything. (never had ED issue before surgery). for the first time I can tell that is very mentally challenging.

should my husband call the doctor to get prescription for ED pills now or wait till 7 weeks?

Thanks

Jennfier

lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 12/2/2009 2:30 PM (GMT -6)   
Jennifier,
First tell your husband to relax. All of us fellow prostate cancer survivors have been down the same road as he has with the changes related to the surgery. You are still very close to your surgery date. If I remember I started taking the ED pills about 5 days after the cath came out. They don't work magic and take lots of stimulation to get an erection. So be patient, hang in there, enjoy each others company, find new ways to enjoy each other. Stress can quickly kill any beginnings of an erection. Did the Doc not supply you with samples? I would go ahead and ask if you can get some before January.

Larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 12/2/2009 2:34 PM (GMT -6)   
Ditto....SLOW DOWN.
 
The ED meds are to be used to help get blood flowing to keep his your know what healthy....Then after a good while you can consider intercourse.
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 12/2/2009 2:50 PM (GMT -6)   
thanks Larry, we didn't get any samples. maybe he will give us when we see him after 4 weeks. maybe we should ask for sample. today is the third week after surgery, 9 days after catheter out.


Steve, we know now is only for blood flow exercise, not for real sex. I guess my husband just want to see he is still capable.


remember somebody said something like this: sex is just like air. when you can't have it, you know you can't live without it.

Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 12/2/2009 4:06 PM (GMT -6)   
Chances are the pills will make no difference, so there is no harm in waiting.

In the meantime, I suggest hubby starts experimenting with a VED (pump). A cheapie from a sex shop will be fine -- just make sure it has a quick-release valve (most do). Plan on using it just for exercise -- it should help improve the length. If you can make enough happen, then you may be able to use it for sex too.

On your return visit to the doc ask about injections. For me, even with no nerves at all they worked well.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
19-month: 0.09 (maybe)
ED:
After a learning curve, Bimix injections (0.2ml) worked well. From 14 months, occasional nocturnal erections. Have "graduated" to just the pump.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 12/2/2009 4:15 PM (GMT -6)   
Jennifer,

Cleveland Ckinic will give you a script for Viagara at 6 week checkup. Cleveland Clinic does not allow drug reps on site, so they have no free samples.

Richard is correct. The Victoria Secret model most likely could not make anything happen for a while, even wth 100 mg of Viagara. The nerves have been bruised, cut, or damaged in the process. If manual stimulation doesn't do anything, odds are Viagara won't either.

He needs to heal. As things heal, he'll start to see things happen.

So glad to hear of progress in the pads.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


Rolerbe
Regular Member


Date Joined Dec 2008
Total Posts : 235
   Posted 12/2/2009 4:51 PM (GMT -6)   
Different places apparently prescribe earlier or later. My view -- First things first, let things heal well. The upside potential of starting early is small, the downside risk of causing damage to the healing by starting too early is large.
51 YO
PSA at Dx: 8.2
DaVinci RALP: 10/31/08 -- Great MD in New Haven, CT
Negative margins, no extra-capsular involvement
One nerve spared
PSA at 0 for just over a year now.
 
 


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 12/2/2009 7:23 PM (GMT -6)   
qjenxu, my doctor started me on ED meds as soon as the cath was removed but with strict instructions to not have intercourse for 6 weeks.
Age 51
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
Mild ED. Levitra works well for me
PSA 0.00 at one year post op


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 12/2/2009 7:24 PM (GMT -6)   
Jennifer

I was told to not even think about getting an erection until 6 weeks after my surgery. The PA said I should not risk damaging the doc's handiwork.
(It has been 4.5 months now and I think about it a lot - to no avail. Oh well...)
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/31 3 months, Still no activity, nada, zip
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/27 2 months: Still 3 pads per day.
11/14 4 month: Still 3 pads per day. 420ml/day, 91 um leak. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks- 0.05, 10/13 3 months- 0.04 undetectable.

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