Most doctors know very little about
PC and how to diagnose and stage it. You've already experienced this with conflicting opinions. I went through 10 years of this before I found a couple of doctors that really understand how this disease works and were skilled enough to provide a correct diagonosis.
Dr Lee in Rochester Mi, Dr Scholz in Marina Del Rey Ca, Dr Bahn in Ventura Ca,
Stephen Strum in Ashland Ore, Dr Myers in Earlysville Va. are all well qualified to evaluate you. There are certaintly others, but these are the best.
Right now you have a very high PSA with a very high velocity that puts you into a very high risk catagory, and you don't know what's causing it. Seeking treatment without knowing the exact cause is just asking for an unfavorable outcome. If you just had a G6 with a low PSA that would be one thing; but your PSA and PSA velocity suggest you need the help of a specialist to really understand what is causing it.
64 years old.
PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.
2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.
Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.
Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.
25 treatments of IMRT 6 weeks after seed implants. No side affects at all.
PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.