Paid My Dues for Next 6 Months!!

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SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 12/4/2009 1:10 PM (GMT -6)   
Just got back from Doctor's, psa still undetectable!! 15 months since surgery and my 5th PSA test < 0.1. So my membership has been renewed for another six months!
 
Said thats important issue #1, how bout the #2 with going to bathroom. Tell I him i go much more since surgery where I dont have has much urine but go, and no pads...only leakage is when i cough or sneeze real hard or when I have a couple of beers... But I told him go much more then pre-surgery and go sometimes then have to feel like going 5 minutes later and not much comes.. and wake up just once a night to go but only once.... said OK normal...
 
Asked me about the ED, told him the injections work but had bad experience where i hit a vein once and got a bruise that scared the begeezees out of me...So I stopped and continued with the oral med's which help but dont get the job completly done. He told me wants me to continue with injections twice a week said it will stretch it which it needs and will greatly help where I shouldnt need to do just short term since I am getting blood flow now without it.... Easy for him to say, the pain doesnt bother me just the whole needle thing freaks me out....
 
So Tip Your Glass Tonight, I will be!!!
 
Livestrong!!!


Age Dx 37, 7/2008, First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008, Biopsy: 6 out 12 Postive all on right side, Gleason 7 (3+4). Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008, Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008, PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
5 Post OP PSA's from 9/2008 to 12/2009: <0.1
 
 
 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 12/4/2009 1:17 PM (GMT -6)   
Congrats SHU93
 
You and I are on pretty much the same schedule/story.
 
I kind of have always "gone pee pee" alot....In theory there is a trick to training you and your bladder....In short - Just don't go....Hold off - distract yourself - think of something else.....
 
ED - pills no workee for me and give me nasty headachs...TriMax does wonders...See if you can get the spouce/GF to give the shots...I don't have either one....But you can Cowboy Up and get over the fear factor...
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 12/4/2009 1:50 PM (GMT -6)   
How much are the dues anyway ? I will pay a lot for zeros !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/4/2009 3:00 PM (GMT -6)   
Shue,

Great going on another big zero, you are on a roll now. Jealous there, hoping to be back in the club soon myself. Go and celebrate for the rest of us.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 12/4/2009 9:30 PM (GMT -6)   
I am with David I am jealous, haha. Great news my friend I to hope to be back in the club soon.

peace to you
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 12/4/2009 11:28 PM (GMT -6)   
Age 37...that is young!! What prompted you to get a psa testing at such a young age?
Congrats on the zeros.

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 12/5/2009 10:21 AM (GMT -6)   
Fabulous news!!! Congrats and cheers to a lifetime of undetectable PSAs and lot of reasons to "tip your glass"!
Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Oct. 9, 09 PSA <.01 Last Lupron Shot
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 12/6/2009 12:00 PM (GMT -6)   
Thanks everyone. Family history is why I thankfully got tested. Without the PSA test I would be walking around not knowing!
Age Dx 37, 7/2008, First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008, Biopsy: 6 out 12 Postive all on right side, Gleason 7 (3+4). Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008, Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008, PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
5 Post OP PSA's from 9/2008 to 12/2009: <0.1
 
 
 


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 12/6/2009 12:25 PM (GMT -6)   
Great news! Those zeros are building to a great success.

One incontinence tip -- it seems to be easier to completely empty your bladder if you pee sitting down. This is a good idea for your last visit before bedtime.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 12/7/2009 8:20 AM (GMT -6)   
Thanks Geezer I will try!!!
Age Dx 37, 7/2008, First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008, Biopsy: 6 out 12 Postive all on right side, Gleason 7 (3+4). Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008, Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008, PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
5 Post OP PSA's from 9/2008 to 12/2009: <0.1
 
 
 


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 12/7/2009 8:33 AM (GMT -6)   
 
Great news! Hope you have a long future of zero's.
 
Jerry1
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck that formed stones and caused burning and pressure for 9 months. 
11/16/09 PSA 0.3
 


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 12/7/2009 9:45 AM (GMT -6)   
Congrats on those zeros SHU93...wishing you a lifetime of them.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month Apr 2009 .06
                   9 month Jul  2009 .08
                 12 month Oct 2009 .09 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 12/7/2009 9:46 AM (GMT -6)   
I empty the pee tank by flossing my bits with a hand towel. I put the towel between my legs, grab the front with one hand and the rear with the other and then pull straight up.
It's best to do this in the shower when nobody is looking. Usually good for about 10 ml - not that I would ever measure such a thing.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/31 3 months, Still no activity, nada, zip
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/27 2 months: Still 3 pads per day.
11/14 4 month: Still 3 pads per day. 420ml/day, 91 um leak. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks- 0.05, 10/13 3 months- 0.04 undetectable.

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