For all the talk about
doctor's pushing their specialties, I never experienced any of that. My uro/surgeon was as
available options as one could expect. The radiation doctors were the same way. I liked how when I needed SRT, the radiation oncologist from one practiced consulted with my uro, to make sure she understood the scope of my surgery, and what kind of issues and problems I had up to that point. My uro has talked to her several times since, to make sure that I was doing ok through that process, and was on standby in case he was needed to fix anything.
Perhaps there are doctors that are so biased and pushy, but with all my maladies, operations, and treatments over the years, never ran into one of those type. It also helps if you, as the patient, are informed to start with, and in touch with your ailments, so that you can communicate properly and fully to the doctors. THey are not mind readers, the more you can tell them exactly how you are feeling, or reacting to some treatment, the easier it for them to understand and make adjustments as needed.
I feel like we should put together a statement about
patient responsibilities for all our new friends in this process.
Sounds like, Mel, you got a good panel of doctors to talk to. Take good notes, or tape record (though you have to disclose if you are taping). THen you can review it all after. Be even better if you have someone to go with you, i.e. spouse or friend, because an extra set of eyes and ears is useful.
I always see my doctors with a written check list in my hand, so that I dont fumble and forget things, and I dont let the doctor go till we have gone through all my questions and concerns.
David in SC
57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.33rd Biopsy
: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3Open RP:
11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09Path Rpt
: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place