DaVinci happening this Friday

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Bedelia
New Member


Date Joined Nov 2009
Total Posts : 18
   Posted 12/6/2009 2:52 PM (GMT -6)   
The date is fast approaching for hubby's surgery.  He's been up and down emotionally, but overall doing well.
 
I found Bill's narrative rather amusing - might have him read it afterward.  Sounds like there's quite a bit the doc doesn't tell you.  Is it wise for me to tell hubby about the drainage tube, the penis shrink, suppositories, or are these questions we should ask the doc when he calls the night before surgery?  Hubby is in the dark about a lot of this, and that's the way he wants it (as of now anyway).
 
I did request a script for spasms and was denied.  According to the doc's PA, most men do not have them.  I at least wanted the script since it'll be the weekend and didn't want to deal with oncall if necessary.  What's so hard about giving a script for gosh sakes?  You'd think I was asking for a heroin script.
 
Also, I asked if he could have the xray (forgot the term) before his catheter was removed.  Another no.  What's up with that?
 
I'm stressing myself out by going overboard with research.  Maybe people are better off not knowing anything before surgery. 
 
Any last words of wisdom?
 
 
 

Age 60, no symptoms
Diagnosed 10/27/09
PSA 1.84
Left Mid and Apex: Adenocarcinoma, GS 3+3,
cancer in 2 of 10 cores occupying 40%
daVinci scheduled for 12/11/09
 


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 12/6/2009 3:11 PM (GMT -6)   
Hello Bedelia, I don't think it wise at all to not have information you want BUT I also recognize that some people, your husband sounds like one, have a very low threshold for information they want. I'm a bit this way and my wife, a former OR nurse, covers by finding out all sorts of things and I'm glad to leave it in her hands.

I don't blame you for going overboard with research, it's likely your way of coping. However, the dye is cast. By this time next week the prostate and the cancer will be out, gone, likely forever and he'll be back home doing just fine. While a script for spasms may seem reasonable to you, the doctor may have many options as to what drug to use and in what strength and will make those decisions if needed. And, I'd not worry about the oncall. Our family recently had a weekend medical issue in the hosptial and it turned out the oncall was a world renown expert that nobody gets in to see without a ten month out appointment. It was his turn to be on on Sunday.

It's easy for me to say, and I know it's tough to do, but the next five days can best be spent putting PCa out of your mind and enjoying the week, and each other, just as any normal week. Your husband has great stats (aside from the fact it's cancer, that is) and I'm sure all will be well.


Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week. 
Feel free to email me at:  sheldonprostate@yahoo.com    


grouchytx
Regular Member


Date Joined Oct 2009
Total Posts : 32
   Posted 12/6/2009 3:23 PM (GMT -6)   
All I can say is, thoughts and prrayers for both of you.
Age: 63
 
Gleason: 8 (5+3) Biopsys ranged from 90% to 100%
Refused surgery and hormone therapy. Doctor really made an argument for benefits of hormone therapy, I could not accept the consequences.
 
28 IMRT treatments.  Originally scheduled to get seed implants but doc decided that due to my prognosis High Dose Rate Brachythrapy was a better path to attempt.
 
PSA: 13
 
Let the chips fall where they may.


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4157
   Posted 12/6/2009 4:04 PM (GMT -6)   

Bedelia:

Well, I guess this is what makes the world go 'round...different strokes.  Personally, I wanted to know EVERYTHING possible about my procedure and aftermath.  But, hey...that's just me and obviously your hubby is different.

I guess the only other thing I can add is to ask yourself the question about how will you feel if and when your husband asks (post surgery), "Why didn't you tell me about this?".  If that doesn't pose a potential problem then so be it...if it does, maybe you should reconsider keeping this all to yourself.

Tudpock


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 12/09.  6 month PSA 1.4 and now 1 year PSA at 1.0.  My docs are "delighted"!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/6/2009 4:14 PM (GMT -6)   
Bedelia,

Good luck to your husband and his upcoming surgery, and especially to you, for handling all of this for him. The part I can't understand, is why would he want to be in the dark about what lies ahead. He is about to have a serious major operation, with the possibilities of various life changing side effects. Guess people are different with what they can handle. I don't like surprises myself, the more I knew ahead of time, the more comfortable I was with it.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 12/6/2009 5:33 PM (GMT -6)   
Bedelia
You have of course hit a hotbed of "want to know" guys here, but that is not the answer for everyone. Let your husband find his comfort zone, hold his hand, let him take life as it comes, and be ready with back-up information if he wants it. There is really not much more that knowledge can do at this point. They have cranked the roller coaster to the top of the track and are just waiting until Wednesday to pop the latch -- hold tight and remember that this is frightening but rarely fatal.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 12/6/2009 5:37 PM (GMT -6)   
Hi Amelia B. :-)

Have your hubby do some kegels, before the surgery. He should try to stop and start his flow a couple of times as practice and to et used to the idea. Believe me it will never be easier than right now.
Other than that, try to relax and set a side some alone time. That too will never be easier than right now.

Good luck to both of you.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/31 3 months, Still no activity, nada, zip
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/27 2 months: Still 3 pads per day.
11/14 4 month: Still 3 pads per day. 420ml/day, 91 um leak. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks- 0.05, 10/13 3 months- 0.04 undetectable.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 12/6/2009 8:10 PM (GMT -6)   
Just remember that what you read here is a compendium of surgical techniques from hundreds of surgeons.

I assume you have a doctor you are comfortable with and he has enough experience with the DaVinci to make you feel comfortable. Each doctor develops his own methodology that works for him. Some of these things you mention are from another doctors methodology, not the "Book of How To Do PC Surgery".

You know your husband better than we. Most of us learned about all these things after our surgery, not before. Some of us might have chickened out if we had known all that stuff. It will be OK. Just be there for your husband.

Good luck on Friday
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


zachattack
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 12/6/2009 8:39 PM (GMT -6)   
bedelia

I've had 4 major surgeries.lost a kidney to cancer 1989 open lung biopsy 2001 appendectomy 2006 robotic prostectomy this year.the first three were what I call open surgeries the divinci surgery was far less hard on me. I was out of the hospital in 3 days and quickly was up and around.wait until after his surgery before you guys even think about any more problems than you have now.any more may never rear their heads.GOOD LUCK

zach
age 55dx 12-2008,psa at biopsy 8.6
biopsy 12/12 gleason 3+4=7
da vinci surgery 6-09 by DR. John W. Scott (my hero)
Hospital 3 days cath 7days still leaking from cough(bad lungs)
still have ed may be the hormones.
9-09 psa 2.2 hormone inj
10-09 nuclear bone scan no results yet I will have gold markers placed 12-29-09
start rad 1-10-09
organ confined
extracapsular seminal vesicle involvement
lymph node involvement


Bedelia
New Member


Date Joined Nov 2009
Total Posts : 18
   Posted 12/6/2009 9:21 PM (GMT -6)   
I didn't mean to make it sound like he's completely in the dark.  He has read lots of material the uro gave us, so he's familiar with the surgery procedure as well as the possible side effects.  He also has talked with a couple of guys who had the surgery (who both are doing great).  His doc has done over 1,500 davinci's so we are comfortable with our choice.
 
I guess I was more concerned with those things the doctor never tells you ahead of time.  Not sure if it were me that I'd want to know.  I'm a high anxiety person and it would make me worse.
 
Anyway, thanks to all you guys.  It is really nice to have someone to talk with who has been through it.
 
 
 
Age 60, no symptoms
Diagnosed 10/27/09
PSA 1.84
Left Mid and Apex: Adenocarcinoma, GS 3+3,
cancer in 2 of 10 cores occupying 40%
daVinci scheduled for 12/11/09
 


TeddyG
Regular Member


Date Joined Apr 2009
Total Posts : 133
   Posted 12/6/2009 10:10 PM (GMT -6)   

B,

The best thing you can do for him is what many wives did for most of us...be there for him. It is a family journey no doubt, but the process is his and holding his hand and giving comfort is the best support. As far as pain goes, the worst part for many of us was actually getting the digestive system running again. For two days following the procedure the nurses and docs would alway ask, "did you pass gas?" It can build up and cause alot of pain until it finds it's way through. Nobody told me about that but it wouldn't have made a difference other than to increase stress.

Hang in there, be there.

Ted


Background:
Age 55, two teens, very fit cyclist (avg 2000+ miles per year) and weight, diet, etc. consistent with good habits. Stressful job as attorney; very supporting wife who is helping me through every stage of this war.
Stats:
2006 PSA - 1.5
2007 PSA - 2.3
2008 PSA - 5.3 (18 mos.)
2009 Jan. 20 - Biopsy 12 samples
        Feb 3 Dx 2/12 samples positive, low volume  (5% and 7-10%)
Gleason 3+4, later downgraded by second opinion at Johns-Hopkins to 3+3, but "it's still PCa" as my Doc said.
Laproscopic surgery April 9,  University of KY Medical Center, Lexington, 3 days in hospital, catheter removal April 21.
Pathology: clear margins, no cancer in prostate: told that this is very rare and Doc has only seen it in 3 out of over 1400 cases; I rearched the concept of "vanishing cancer" and found a tumor classification of tP0 and asked Doc if it applied to me. He said that it was unlikely because if a pathologist had done a much more detailed analysis of the tissue, he would likely find more foci somewhere, and biopsy found "needle in the haystack as opposed to the tip of the iceberg"; Nevertheless, it is a blessing;
Regardless of the science, my family says "miracle."
Now working w/ post-surgery issues....
 


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 12/7/2009 6:37 AM (GMT -6)   
Hi Bedelia,

Good luck to both of you on the upcoming surgery. Remember, it doesn't hurt to maintain a sense of humour throughout the process. Makes it all seem a little less of a worry.

Keep well,
Regards,
Bill

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2215
   Posted 12/7/2009 7:20 AM (GMT -6)   
Bedelia
While I obviously wish your husband well, don't forget about yourself.



Make sure you've got yourself sorted out for that eerie time my wife described while the surgery is happening.



I don't know what is near the hospital, but while I was in surgery my wife was able to go for a long walk in a park (in was of course July) and read a book and have some lunch and coffe and stuff while trying not think about what was on her mind.

Whatever she did it was good for me to have her calm support before and after (ie even if she wasn't as calm as she may have appeared)



Talk to him after surgery as there is an odd period when things will not be clear to him and he may be able to hear even when you think he can't. I also found I was only half able to remember things, so may be repeat yourself. (And blame me if he says you're repeating yourself)



And also because listening was easier than a lot of things I enjoyed having 200 or so tracks to listen to on my MP3 player with some comfortable earpieces.



And if the operation makes his throat sore he might like some ice-cream



Good luck to all for Friday



Alfred

Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4157
   Posted 12/7/2009 8:05 AM (GMT -6)   

Bedelia:

I will just share one more thought and then shut up.  One of the cornerstones of my marriage is honesty and trust.  I would personally be very unhappy if my wife knew key, important things "that the doctors never tell you..." and did not share that info with me.  But, again, that's my marriage and every one is different.  If you and hubby are comfortable keeping those sorts of things secret then more power to you.

In any case, I will you both well as you take the next step in this journey.

Tudpock


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 12/09.  6 month PSA 1.4 and now 1 year PSA at 1.0.  My docs are "delighted"!

Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 12/7/2009 1:30 PM (GMT -6)   

Yes... Make sure that everybody that comes into his room postoperatively uses real good hand washing (or the alcohol hand sanitizer) this is his life and you don’t want to risk a post op infection because someone got careless.  It never hurts to be reminded. I sat a small bottle of the hand sanitizer on my bed table and used it each time a worker came in to do something to me.  If I noticed that they had not used any I jokingly said something like “here have some of mine”.  I had a most uneventful recovery from the actual surgery.  I think for the most part everybody does.  I would say that the biggest surprise for me was that I thought that post-operatively I would be less obsessed about the prostate cancer. However that is not the case.  I got one of the best hints from another person who just had the surgery, he told me to be sure to get some hooks to place in the shower.  He recommended the suction type that locks into place.  This was wonderful advice for hanging the urine bag on during the shower.  I would place a regular plastic bag from the store upside down over the urine bag and hang the thing on one of the two hooks I placed in the shower depending on which way I was pointed.  This helped make me relax and it was a reminder of how important it was to keep the actual Foley cleaned.  In the way of pain I actually had very minimal amount of discomfort. The first 72 hour or so I had burning from the stab wounds (5 in my case) but not enough to take pain medication.  Lots of people worry about the anesthesia.  My experience was unbelievable.  The supervising Anesthesiologist and the CRNA both saw me the surgical morning in the pre-op area, and the anesthesiologist really gave me a good going over, I found this reassuring.  He pointed out that the CRNA participated with the robotic team and was involved in probably 80% of the robotic cases, which I also found reassuring.  My car trip home was 70 miles and by the end of it I was real uncomfortable.  My wife said that she didn’t think she could go one more mile.  If I had to do that over I believe that I would have come up with a better way to ride home. You think that the bucket seat is going to be real good for the ride because of the reclining feature however; it sucks.  I could not get my legs comfortable because unlike a recliner or the hospital bed I had no support on the back of my legs. No adjustment in the seat kept all the pressure off my bottom or my abdomen.   Think about options if you have much of a trip on the way home from the hospital.  One last very important thing…absolutely, positively make sure that he takes his stool softeners!!!

Best of luck!!!

Hero,


Age 51, PSA 08/31/2009= 6.8, DRE Neg.
Biopsy 9/24/09 =10 of 12 positive. Gleason 6. 75% of one core.
da Vinci at Wash U, Barnes on 11/02/09
Pathology Changed Gleason to 4 + 3 = 7. Gleason 7 present in all 4 quadrants
All(4)periprostatic Lymph Nodes Negative, All(10)pelvic Lymph Nodes negative
Seminal Vesicles tumor free. No prostate extension


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 732
   Posted 12/7/2009 2:34 PM (GMT -6)   
Bedelia,

Hero has a good point: bring a pillow to sit on for the ride home! A doughnut shaped cushion would be best. I sure would have appreciated that myself, but fortunately the ride was only ten miles.

I'm not sure from your posts what country you are in. That might be a factor in your doc's decisions.

Best of luck,

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09, 07/30/09, Oct 2009 still undetectable!


Rolerbe
Regular Member


Date Joined Dec 2008
Total Posts : 235
   Posted 12/7/2009 2:38 PM (GMT -6)   
Bedilia,  Best of luck to you both.
 
There is a point at which it becomes TMI.  Different for each, I guess.  I was a big info seeker, but...
 
Had a great talk with my surgeon about a week before the event.  I'm a computer guy, so asked about 'bugs' in the robot, etc.  He, being very knowledgeable and up to speed, pointed me to a recent article on how often they had to 'reboot' the robot during a surgery.  Started to read that, then decided "you know, I don't need to know that." (read it later -- it is VERY infrequent, and the fail-safe's are VERY good, so it's a non-event anyway).
 
Found a video of the DaVinci procedure on the web.  Started to view that, then decided "you know, I don't need to see that."
 
It's a good machine.  With a good doc you should have a good experience (well, as far as any surgery goes).
 
See you on the other, PCa free and healing side.
51 YO
PSA at Dx: 8.2
DaVinci RALP: 10/31/08 -- Great MD in New Haven, CT
Negative margins, no extra-capsular involvement
One nerve spared
PSA at 0 for just over a year now.
 
 


pigeonflyer
Regular Member


Date Joined Nov 2009
Total Posts : 85
   Posted 12/7/2009 7:39 PM (GMT -6)   
one more thing to think about when the cather comes out. make sure the doc fills the bladder with sterile water and make sure he can urinate. it will save you a trip to the er. first hand experience here. neil
49 years
da vinci on 9/28/09
gleeson 3+3
psa before surgery 5.1
cather out on oct 5, back in on oct 5
two more trys for cather out, still in .
cather out nov. 13/09
cystocope nov.13/09      


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 12/8/2009 11:37 AM (GMT -6)   
With the date approaching, I suppose you have read the threads dealing with preparing for surgery and the aftercare. You should be all set, so try to relax, play like you're on vacation the rest of the week and just enjoy each others company until the day. See ya on the other side, at the beginning of recovery and healing.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, Bimix .3ml PRN or Trimix .15ml PRN


Bedelia
New Member


Date Joined Nov 2009
Total Posts : 18
   Posted 12/8/2009 4:26 PM (GMT -6)   
Thanks for the tips re the suction cups for the shower, hand sanitizer and the pillow for the ride home (we live around 15 min. from the hospital).
 
Ohiostate:  The primary care doc found hardness in the DRE at time of a physical.  He referred him to a uro who did the biopsy.  There's cancer history in the family, but not prostate.  Surgery is 7 wks out from the biopsy - doc said 6-8 wks is good.  PSA went up from 1.5 to 1.8.  We met with a 2nd uro and a radiologist, so he was aware of options.  We're confident with our decision.
 
 
 
 
Age 60, no symptoms
Diagnosed 10/27/09
PSA 1.84
Left Mid and Apex: Adenocarcinoma, GS 3+3,
cancer in 2 of 10 cores occupying 40%
daVinci scheduled for 12/11/09
Strong Memorial Hospital, Rochester NY
 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 12/8/2009 5:05 PM (GMT -6)   
Bedelia,

Glad to hear of your confidence in your decision. Don't ever look back.

Wishing you guys aqll the best on Friday !

Goodlife
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 12/8/2009 5:42 PM (GMT -6)   
Hey Bedeila,
Since we are using the same Uro, PA and hopsital, I can only assume your experience will be like mine. (Although, like children, no two are ever alike.)
My catheter leaked from day one. Filling the balloon makes for a tight seal but can cause spasms. Partially filling the balloon is more comfortable for the patient but can leak. Apparently Dr J's team under-filled mine rather than over fills. For the 10 days after the surgery I wore pee pads and slept on one of those green sheets, just in case.
When the tech deflated the balloon on removal day it only had 12 ml in it. - I checked. (Of course.)
So... buy pee pads now -before you think you need them.
If by some miracle you don't finish the bag you can drop the remainder off at my house. ;-) Looks like I will be needing them for a looong while.

Good luck!

Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/31 3 months, Still no activity, nada, zip
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/27 2 months: Still 3 pads per day.
11/14 4 month: Still 3 pads per day. 420ml/day, 91 um leak. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks- 0.05, 10/13 3 months- 0.04 undetectable.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 12/8/2009 6:21 PM (GMT -6)   
Jeff,]

Small world. I wondered when she said Rochester NY
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections

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