Just got back from my uro/surgeon. What a terrible experience. He had hoped I would be well enough to sedate me and pull the SP cath, dialate me, and put in a Foley. Soon as he saw me, he took one look and knew that wouldn't happen today. So it sounded simple enough, just change out the SP cath as this one had been in 35 days.
I warned him how terribly sore and swollen I still was from the radiation, so he was being as easy as it could. The old one came out painfully, but not too severe, and he went slower than normal to ease it. After allowing me to catch my breath, he and his nurse went to put the new one in. (35 days ago, when it was replaced, it hurt, but not for too long, perhaps 4-5 on the pain scale). As soon as he started inserting the new one, I lit up in pain. With the SP caths, you have a 2 minute window to replace a cath, or else the hole will try to close up.
He got it in most of the way, and then it got stuck, he had to pul it back halfway out, and then try again. Oh my gosh, I was honestly at pain level 10, thought I was being cut in half with an axe from my penis through my rectum. The nurse by then was mostly holding me down and keeping my hands out of the way. The very worse part was inflating the balloon. It put so much pain pressure on me I didnt think he could do it, but he did it in painful stages instead of the normal all at once.
I was shaking and in tears at the end of this procedure. If I had known it would be that bad, would have had someone with me. They had to help me sit up, and rest for awhile. Then I couldn't even bend to dress, so the kind nurse helped me dress properly which I appreciated.
My dr. said he was going to have a serious talk with my radiation oncologist. He said he couldn't believe how enflamed I was from even a month ago when he saw me last.
His is going to do my first post SRT PSA on 12/22 so that I will have it when I see her in 12/28. I am to see him again on 1/11/10 and he said we will see how I am doing at that point.
I don't know how my car got me home, couldnt reach any of my normal back up drivers. But was only about 4 city blocks away so I made it. Took some pain med, ditropan, and laying down now even as I type.
He said he rarely has seen anyone so "burned" from radiation like I am. His care once again under painful circumstanses was admirable. That means a lot, and he feels terrible being the instrument of so much pain.
He said that the SP was still the right decision for this length of time (started 10/1), and that if I had a Foley, I would probably be in a dangerous situation with all this swelling going on.
You never know, guys and girls, even a simple procedure can turn into a nightmare unexpectedly.
I told him this was exactly why I didn't want to go through major radiation for a second time in my life. Thanks for your patience with me here. I sure hope to at least get a "zero" when I am all done with this painful SRT routine.
David in SC
57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.33rd Biopsy
: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3Open RP:
11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09Path Rpt
: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
1 Month ED:
Non issue at any point post surgeryPost Surgery PSA
: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16Latest:
7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place
Post Edited (Purgatory) : 12/7/2009 2:53:39 PM (GMT-7)