Catheter #10 in Place - A New Level of Pain

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/7/2009 3:49 PM (GMT -6)   
Just got back from my uro/surgeon.  What a terrible experience.  He had hoped I would be well enough to sedate me and pull the SP cath, dialate me, and put in a Foley.  Soon as he saw me, he took one look and knew that wouldn't happen today.  So it sounded simple enough, just change out the SP cath as this one had been in 35 days.
 
I warned him how terribly sore and swollen I still was from the radiation, so he was being as easy as it could.  The old one came out painfully, but not too severe, and he went slower than normal to ease it.  After allowing me to catch my breath, he and his nurse went to put the new one in.   (35 days ago, when it was replaced, it hurt, but not for too long, perhaps 4-5 on the pain scale).  As soon as he started inserting the new one, I lit up in pain.  With the SP caths, you have a 2 minute window to replace a cath, or else the hole will try to close up.
 
He got it in most of the way, and then it got stuck, he had to pul it back halfway out, and then try again.  Oh my gosh, I was honestly at pain level 10, thought I was being cut in half with an axe from my penis through my rectum.  The nurse by then was mostly holding me down and keeping my hands out of the way.  The very worse part was inflating the balloon.  It put so much pain pressure on me I didnt think he could do it, but he did it in painful stages instead of the normal all at once.
 
I was shaking and in tears at the end of this procedure.  If I had known it would be that bad, would have had someone with me.  They had to help me sit up, and rest for awhile.  Then I couldn't even bend to dress, so the kind nurse helped me dress properly which I appreciated.
 
My dr. said he was going to have a serious talk with my radiation oncologist.  He said he couldn't believe how enflamed I was from even a month ago when he saw me last.
 
His is going to do my first post SRT PSA on 12/22 so that I will have it when I see her in 12/28.  I am to see him again on 1/11/10 and he said we will see how I am doing at that point.
 
I don't know how my car got me home, couldnt reach any of my normal back up drivers.  But was only about 4 city blocks away so I made it.  Took some pain med, ditropan, and laying down now even as I type.
 
He said he rarely has seen anyone so "burned" from radiation like I am.  His care once again under painful circumstanses was admirable.  That means a lot, and he feels terrible being the instrument of so much pain.
 
He said that the SP was still the right decision for this length of time  (started 10/1), and that if I had a Foley, I would probably be in a dangerous situation with all this swelling going on.
 
You never know, guys and girls, even a simple procedure can turn into a nightmare unexpectedly.
 
I told him this was exactly why I didn't want to go through major radiation for a second time in my life.  Thanks for your patience with me here.  I sure hope to at least get a "zero" when I am all done with this painful SRT routine.
 
David in SC


Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place

Post Edited (Purgatory) : 12/7/2009 2:53:39 PM (GMT-7)


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 12/7/2009 4:29 PM (GMT -6)   
 
David,
 
Your latest experience sounds awful you have been through so much you deserve a lifetime of zero's after all you have been through.  I go Monday for my follow-up PSA I cannot believe I will be happy if it did not go up and is still 0.3.  I will find out on the 17th what my future holds.
 
Jerry1 
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck that formed stones and caused burning and pressure for 9 months. 
11/16/09 PSA 0.3
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/7/2009 5:04 PM (GMT -6)   
Jerry, thanks, and for your sake and for your family, I hope you pull no higher than where you were in November, hopefully a nice drop would be in order if possible.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 12/7/2009 5:08 PM (GMT -6)   
David,


Your descripton of the days events actually made me cringe. I hope you are feeling better tonight.



Steve

Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 12/7/2009 5:23 PM (GMT -6)   
Hey David,

Wow! I am truly sorry that you had to endure that much pain today. I can't imagine how that must have felt. Hopefully you are settling down this evening and by tomorrow it will be a much better scenario.

Take it easy my friend,

Regards,
Bill

6071
Regular Member


Date Joined Jul 2008
Total Posts : 112
   Posted 12/7/2009 5:25 PM (GMT -6)   
hi dave
sorry to hear about the pain you had to day dave
i hope things get better for you very soon you have hard time of it so far
i was in the Hospital on the 25/11/09 got a DRE and a psa test
doctor said we will see you in 6 months
had to ask them to send on my psa results to my GP
phone up on last wednesday Results not back yet
i had that pain from my penis through to my rectum on sunday lasted about 10 mins not to bad
i hope things get a lot better for you soon
Age 61 at DX
Biopsy 7/2008 Positive 1 of 12 cores positive 3+4 5% To 10%
Open Radical Prostatectomy 15/10/2008
Stage pt2c
Post op staging Gleason's Score 3+4=7
apical margin is focally positive
no extraprostatic extension
Seminal vesicles and lymph nodes clear
Catheter out on the 13/11/2008
4 week PSA < 0.1
26/1/2009  < 0.1
20/4/2009 < 0.1
11/6/2009 ultra sensitive psa 0.07
20/7/2009 < 0.1
26/8/09 Starting photon 3D CRT
13/10/09 Radiation Finished
 







Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 12/7/2009 5:33 PM (GMT -6)   
David,
I read your post out loud and my private parts shriveled up in fear. You might even have cured my incontinence.
I wish you a restful sleep tonight. You've earned it.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/31 3 months, Still no activity, nada, zip
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/27 2 months: Still 3 pads per day.
11/14 4 month: Still 3 pads per day. 420ml/day, 91 um leak. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks- 0.05, 10/13 3 months- 0.04 undetectable.


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 12/7/2009 6:05 PM (GMT -6)   
Sorry about a horrible day David. You are due for a break and I hope it arrives soon for you. Take your meds and get some rest my friend.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/7/2009 6:21 PM (GMT -6)   
Steve, I made myself type it while still in a high state of pain to be accurate, thanks for caring.

Bill, thank you as usual, feel 90% improved from how I was 3 hrs ago, that's what meds are for, a lot of bleeding in my leg bag, but to be expected

6071, please post those results of your psa when you get them, and i will do the same later this month. at least you know the kind of pain area i am talking about, mine goes from the tip of my foreskin through my "back door" literally, and all points in between.

THank you Jeff, can always count on you and I appreciate your sincere concern. I did not expect this today, was just going to be another SP cath swap, was only expecting minimal pain.

Ohio (sigh) the first part of your post sounds like a loaded question to me, d*** if I do, or d*** if I don't. Why dont you ask your question straight up and not so tricky. I have nothing to hide.

Getting 10 opinions would not changed a single thing about why my body reacted so much severely to my recent salvage radiation. My original oncologist and radiation dr from my prior cancers 10 years ago, asked me some questions way back then, he said: are you real sensitive to heat, and do you sunburn easily? I said yes to both, and he told me then that I would have a hard time with radiation. I did then, and I did this time. You have to accept the fact that each human body reacts different to treatments, procedures, meds, etc. I have always ran on the sensitive side, even since I was a kid. I have unusual keep sense of smell, touch, hearing, vision, etc.

Plus, I am not as naturally distrusting of the medical community as your posts seem to indicate that you are. I am very compliant unless I have a good reason to think otherwise. My current medical team is patiently working with me in dealing with these complications and setbacks and painful episodes. What more do you think they should be doing?

On the writing front, why is that suddenly of interest to you? My two published books, and I am a novelist only, are still available at places like Amazon or Barnes and Noble online, both were Historic Romance novels. Just look under authors for David M. Riley and my stuff will pop up. I have a 3rd novel, dark horror, that is being shopped for a publisher right now. I have at least 4 other novels in various stages of completion at this moment. In non-fiction, I have had published book reviews and was the editor of a monthly Religious magazine for 5 years called "The Reformed Digest." Hope that helps your curiosity.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 12/7/2009 7:09 PM (GMT -6)   

Hi David,

Sorry to hear about the pain again. I hope your oncologist and uro get this sorted out for you. And soon.

It's a tough road you've been down. One I hope I don't have to travel. You've done us all a good deed in sharing.

I hope you do well soon and know that you have my support and best wishes.

Mike


-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/7/2009 7:47 PM (GMT -6)   
Thanks, Mike, you been a great friend too. My uro was real nervous handing me off to the Radiation folks for those two months, he was concerned from the start if they would cause more problems in the long run. I am starting to believe that. After my appt. with the rad. oncol on the 28th, I will be back in his primary care again.

He will be the one that has to deal with the aftermath. Despite my painful journey, I still have high confidence in him, and his level of sincere care is still there. He felt terrible today when things started to go wrong, but with an SP cath, you have approx. a 2 minute window once you remove the cath, to get the new one inserted before the hole starts to close up. The intense inflamation from the radiation caused all the swelling.

I just have to keep on keeping on and hoping for better days ahead. Least that is what my mind keeps telling me, lol.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 12/7/2009 7:50 PM (GMT -6)   
I hope you can somehow have a Merry Xmas and better New Year, not certain any patient should have such issues with radiation, do you know for certain the type delivery machinery that was used??? Also, why the body cast vs. the inked body markings?

Just wondering and not meant to be critical, hope nobody else has to go through such an experience with radiations it should not be that way. The older systems Box radiation and EBRT are not anywhere near as safe for the patient and hopefully nobody is having that equipment used on them now, that did cause more colateral body issues and side effects.

Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 285
   Posted 12/7/2009 7:59 PM (GMT -6)   
David, your experiences must have a place in your next novel, can't imagine a good title since "To Hell and back" is already taken.

Keep pushing forward, we're looking forward to the day when catheters are just a faint memory for you... it won't be long.

Our best,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3, seeing radiation oncologist 12/09/09 ... odd call from GP, annual bloodwork shows triglycerides over 400 despite being on a statin


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/7/2009 8:08 PM (GMT -6)   
Zufas,

I was on the Novalis (?) IMRT machine, they said it was less than 4 years old, upgrades all current, cost around 3.5 million dollars.
The cast went from my upper thighs to my ankles. That was to keep my legs and fit in the exact same position each time I was zapped.
The 7 tattoos were also for part of the alignment process. They also had two "snap shot" instant x-ray camera that took alignment pics that overlapped the original as another means of alignment. Dont know if any of this is normal or not, just how they did it.

Ten years ago, I had EBRT in my neck and throat, 35 sessions, and it was terrible, so much "scattering" did lots of collateral damage at the time.

This time, the dr was trying to get max. grys. just in the prostate bed, but avoiding my bladder neck and rectum as much as possible (though its odd that is where I have the most pain). The complication was having the SP cath in the middle of the whole thing, it was a first for my clinic, also, due to the cath, they didnt make me drink water ahead of time.

My surgeon makes note, that my prostate bed is unusually deep and narrow. Don't totally understand what that means or the ramifications of that. Perhaps that is making for some of the complexities. I know it did during surgery, because that is why my bladder neck to urethra connection has been so touch all along, and why I would have been rejected for robotic had I chosen it.

I plan to have a great Christmas for sure, with a new cath in place, and my radiation treatments over with, i am hoping that things will slowly improve over the next few weeks.

Your questions are valid.

David
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 12/7/2009 8:13 PM (GMT -6)   
David, I must say my heart is heavy knowing you are suffering so much. I can not understand why the Dr. did not sedate you for the procedure. I prey that tomorrow is better. Rest my brother as much as you can. Tomorrow is going to be better.

Your Brother in PC
Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 12/7/2009 8:15 PM (GMT -6)   
David, all I can say is "good Lord"...words simply fail me. What you have gone through and are still going through just isn't fair.

Ohio, with all due respect and with no intention of starting another "war," where is your sympathy for what your "PC brother" is going through? Why always with the DD and seeking multiple opinions? We all get the importance of seeking multiple opinions, and reading what Strum, et al has to say. David set his course based on his needs. He placed his trust in his medical team, and is confident in his decisions. Why can't you accept that? All this knowledge that you've worked so hard to accumulate becomes useless when it is used as a weapon.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4 SA. PSA: 0.0 til July 2009. August 2009 PSA was 0.1, in September it was 0.3 Met with radiation oncologist, CT scan and bone scan clean. Third PSA on October 16 - PSA BACK TO UNDETECTABLE! Next PSA scheduled for early December. No radiation treatment at this time!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/7/2009 8:53 PM (GMT -6)   
Thank you Jeff, but in fairness to my Dr., todays event shouldn't have been a problem, it was just going to be a quick 2 minute SP cath swap. By the time it went wrong, there was no time to administer any sedating drug, and time was of extreme escence to get the new tube in before the hole close for good.

Thank you Sephie, I was too tired and sore this evening to play that game - not much energy for that nonsense. You spoke well on my behalf and I appreciate it. Hope your John (husband, not toilet) is doing well.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 12/8/2009 7:29 AM (GMT -6)   
Reading your post actually brought a tear to my eye. I do not tolerate pain well and can only imagine what you went through.
I hope the radiation burns heal quickly for you.
 
Larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/8/2009 8:41 AM (GMT -6)   
Thanks Larry, even my uro concedes that it may take many weeks or a couple of good months to heal from that level of "burn". As much as he wants to tweek my bladder neck opening, he clearly knows that right now it is not the good time. He said that with this much evident pain in the area, I would never be able to tolerate having a regular Foley catheter in place. I don't need convincing of that.

I think between between being stress exhulsted last night and taking sufficient meds, I managed to rest and to sleep better last night than I have previously. I am hoping that will make for a better day.

Thanks for your care.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


zachattack
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 12/8/2009 9:39 AM (GMT -6)   
David

I just finished reading your post!My butt hole clinched so much I don't know how long it will take to release the vacuum from my chair! Words fail me now and I don't want to say anything that may offend you so I will just say hang in there and stay as comfortable as possible Take it easy brother.

Zach
age 55dx 12-2008,psa at biopsy 8.6
biopsy 12/12 gleason 3+4=7
da vinci surgery 6-09 by DR. John W. Scott (my hero)
Hospital 3 days cath 7days still leaking from cough(bad lungs)
still have ed may be the hormones.
9-09 psa 2.2 hormone inj
10-09 nuclear bone scan no results yet I will have gold markers placed 12-29-09
start rad 1-10-09
organ confined
extracapsular seminal vesicle involvement
lymph node involvement


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 12/8/2009 9:48 AM (GMT -6)   
David

I tried to finish reading your post for three times but I failed, as well as one of your other post. i just have to leave this forum for a while because just couldn't bear with those suffering words and feelings. It is hurting to see a human has to go through all that much of pain. I am so sorry and pray and hope you will getting better. feel better!!!

Jennifer

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/8/2009 10:07 AM (GMT -6)   
Zach, you won't offend me, and thanks for your care and concern. If you ask a novelist to write a descriptive paragraph, that's what you get, lol. You can unclinch your buttcheeks now.

Jennifer, I am sorry it effects you that, not the intent of my posts or I am sure of other posters. This is a support and information site, while many men have uneventful surgeries, radiation, HT, and other treatment and procedures, there will always be exceptions to the rule and diffiuclt cases, circumstances, and procedure.

I could just as easy write a rosy picture with every post, but it wouldn't be true, and not sure it would be helpful to anyone. There is a lot of reality in this place, and when you deal with any cancer, and treatments, and side effects, you will get both victories and failures.

I sincerely hope your husband is still recovering well, and I mean this in the right way, having an uneventful time. Good luck to the both of you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 12/8/2009 2:14 PM (GMT -6)   
David

When I say leave this forum meaning close the internet browser then come back later. yous post doesn't bother me just they are not easy. when I was little my grandfather was in bed many years then died that i witnessed many painful moment that I still remembered. I do recognize the reality more then you think. I guess you are a very good and creative writter that I do enjoy read your post include the painful one (keep me come back to finish read it). Same as many other members here, I do feel pain when I seeing you are in the pain. you are right about this is a support and information site, I do care and support everyone here include you, the one who is has most trouble of pain. All I want to say is I wish you getting better, feel better, be happy!

Best wishes!

Jennifer

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/8/2009 2:40 PM (GMT -6)   
Thanks Jennifer, I dont think I have a monopoly in the pain department, sure everybody here has dealt with their own issues. I only wish to get back to some kind of "normal" life, be happy to have an entire month go by without any procedures, tests, or needing a cath, that alone would make me feel like a new man. Hoping to get there early in the new year. Still have to be patient a bit longer.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 12/8/2009 3:03 PM (GMT -6)   
Hi David,
So Glad it is over for you. What an amazing, horrific experience. I am afraid my response is off beam a little compared to others, but I was just plain angry when I read your description. I am sorry, but in my opinion, there is never an excuse for holding a person down who is in pain such as you experienced. The entire experience should have been prevented or at least partially predicted. If minimal dental procedures can be performed under sedation for those with anxiety (common here in Australia, and safe it seems), there is NEVER an excuse, medical or otherwise, for putting a person through what you have been through. Especially given what you have already been through! You are a remarkable man to see it with such logic and empathy for those who put you through this, and to be able to see the bigger picture (of your health) at these sorts of times. Anyway, I will now jump off my soapbox, and wish you all the best in your now recovery from this. Thank you for sharing this most powerful account which needs to be shared. Have a wonderful. safe and happy Christmas season with your family David. Take good care & kind regards, Lana & CJ.
Creed_three - Husband 51 yrs (49 years at diagnosis)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x 5% core of 12 positive at biopsy. Open Radical Prostatectomy with nerve sparing April 2007. Gleeson 3 + 4 = 7.   Undetectable <.1 PSA since, specifically, June 2007-0.01, Oct 2007-0.02, April 2008-0.02: Oct 2008-0.03, Nov, 2008-0.02, April 2009-0.03. 

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