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Amy41
Regular Member


Date Joined Jan 2009
Total Posts : 30
   Posted 12/7/2009 5:38 PM (GMT -6)   
I wanted to let you all know my husband Robert  lost his battle with prostate cancer on November 17.  He fought hard but was one of the .1% with an agressive case that was not caught at a place where surgery or brachetheraphy could be done.   The cancer was causing metastatic plueral effusions which ended up being what took him from me.  This was not in the plan - he had a PSA test at 45 that was OK but by 50 the cancer was out of control.  Here is a poam that we read at his service - his ashes were dropped into the puget sound from a WA state ferry and the horn sounded 3 times for a mariners send off he was an avid kayaker.
To the living, I am gone
To the sorrowful, I will never return
To the angry, I was cheated
But to the happy, I am at peace
And to the faithful, I have never left
I cannot speak, but I can listen
I cannot be seen, but I can be heard
So as you stand upon the shore
Gazing at the beautiful sea, remember me
As you look in awe at a mighty forest
And its grand majesty, remember me
Remember me in your hearts,
In your thoughts, and the memories of the
Times we loved, the times we cried, the
Battle we fought and the times we laughed
For if you always think of me, I will
Have never gone.
 

biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 12/7/2009 5:44 PM (GMT -6)   
Dear Army41,

MaryLu and I send out deepest condolences at your loss. Cancer is indeed a devastating foe. Here's to you finding peace of mind, solace for your grieving and friendship among us.

Jim
Age 75. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06. Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + .03 cc Trimix = Excellent Results
PSAs from 1/3/07 - 7/17/09 zero.
Next PSA - July/2010
Lung cancer dxed on 5/16/08. Surgery on 6/25/08 T1N1M0 - Stage IIA Finished 4 cycles of chemo on 11/7/08.
CT scans on 12/2/08 - 9/22/09 - in remission!!!
Next scan in December 09.
Biker90's Journey
http://www.caringbridge.org/visit/jimrobinson
"Patience is essential, attitude is everything."


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 12/7/2009 5:54 PM (GMT -6)   
I'm so sorry, Amy.

My thoughts are with you.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 12/7/2009 5:56 PM (GMT -6)   
What a great poem Amy. Must have been a great man. Sorry for your loss and now you have memories.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/7/2009 6:04 PM (GMT -6)   
Dear Amy,

It breaks my heart that you lost your dear husband, and a brother to us here at HW Prostate Cancer. Beautiful poem. May you have a lifetime of wonderful memories to help you through your loss.

May your heart find comfort,

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 12/7/2009 6:10 PM (GMT -6)   

Amy,

 

My heart goes out to you in this difficult time.  My he rest in peace.

 

Mika


age at dx 54 now 57
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
ED is getting better
the shots work great, still can't give them to myself
two years of zero's


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 12/7/2009 6:33 PM (GMT -6)   
Amy, I am so sorry to hear of your loss. I hope you find strength and comfort from family and friends, including yours here.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, Bimix .3ml PRN or Trimix .15ml PRN


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 285
   Posted 12/7/2009 6:46 PM (GMT -6)   
Very sorry about the passing of your husband. I was very moved by the poem read in his honor and will always remember the last line "For if you always think of me, I will
Have never gone. "

Our deepest condolences,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3, seeing radiation oncologist 12/09/09 ... odd call from GP, annual bloodwork shows triglycerides over 400 despite being on a statin


O Buddy Boy
Regular Member


Date Joined Oct 2009
Total Posts : 106
   Posted 12/7/2009 6:47 PM (GMT -6)   
I am sorry for your loss, Amy.

Tears fill my eyes. The salt stings.

Peace.

OBB
55 yo
Dx:9/29/09
DRE: Susp
PSA: 3.5
Gleason: 3+4/7
6/12 Cores Positive; Sextants were 1%, 3%, 8%, 15%, 12%, 0%
RALP: 10/09/09
PATH:
Margins: Clear
Lymph Nodes: Clear
Seminal Vesicles: Clear
Gleason: No increase from biopsy 3+4/7
Some perineural and capsule invasion.
T2c,NO,MX
Incontinence: Minor. 1 light pad a day. Some days don't need it.
ED: Natural with encouragement. 20mg Cialis and pump just makes things more fun.


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 12/7/2009 6:54 PM (GMT -6)   

Amy,

I'm so sorry for your loss. Thank you for the poem. My family's thoughts are with you.

Mike

 


-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 12/7/2009 6:57 PM (GMT -6)   
Amy,
I am at a loss for words. Through my church I visit weekly people that are suffering from cancer, but I am still never prepared when we loose one of our brothers and friends. I truly pray that you will find the grace disguised through this tragic loss. Please stay in touch when you can and know we love you very much.

peace and love
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


TeddyG
Regular Member


Date Joined Apr 2009
Total Posts : 133
   Posted 12/7/2009 7:01 PM (GMT -6)   

Amy,

Thankyou for sharing with us. PCa will take 27,000 this year and I am sorry it touched your family.

best wishes,

Ted


Background:
Age 55, two teens, very fit cyclist (avg 2000+ miles per year) and weight, diet, etc. consistent with good habits. Stressful job as attorney; very supporting wife who is helping me through every stage of this war.
Stats:
2006 PSA - 1.5
2007 PSA - 2.3
2008 PSA - 5.3 (18 mos.)
2009 Jan. 20 - Biopsy 12 samples
        Feb 3 Dx 2/12 samples positive, low volume  (5% and 7-10%)
Gleason 3+4, later downgraded by second opinion at Johns-Hopkins to 3+3, but "it's still PCa" as my Doc said.
Laproscopic surgery April 9,  University of KY Medical Center, Lexington, 3 days in hospital, catheter removal April 21.
Pathology: clear margins, no cancer in prostate: told that this is very rare and Doc has only seen it in 3 out of over 1400 cases; I rearched the concept of "vanishing cancer" and found a tumor classification of tP0 and asked Doc if it applied to me. He said that it was unlikely because if a pathologist had done a much more detailed analysis of the tissue, he would likely find more foci somewhere, and biopsy found "needle in the haystack as opposed to the tip of the iceberg"; Nevertheless, it is a blessing;
Regardless of the science, my family says "miracle."
Now working w/ post-surgery issues....
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 12/7/2009 7:13 PM (GMT -6)   
Please accept my heart felt condolences for your loss. It's always tough and sad when when one of us has been beaten by the beast. He is now in a better place without pain and will live in the memories of those left behind.

Magaboo
Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09, = 0.05; July 09, <0.04


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4157
   Posted 12/7/2009 7:17 PM (GMT -6)   

Dear Amy:

Please accept my heartfelt condolences on the loss of your husband.  I hope you will be comforted by his memory and thank you so much for sharing that beautiful poem.

My thoughts are with you,

Tudpock


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 12/09.  6 month PSA 1.4 and now 1 year PSA at 1.0.  My docs are "delighted"!

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 12/7/2009 7:37 PM (GMT -6)   
Anytime we lose another PCa brother it diminishes us as a group of hopeful patients, perhaps you can be an advocate for others with PCa, Judy Thurman (at www.prostate-help.org) could assist you in that area if you have interest, she is moderator now of that group and is a wonderful person, too.

May Peace find you

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 12/7/2009 8:20 PM (GMT -6)   
Amy, John and I send you our deepest condolences. Another angel to watch over us.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4 SA. PSA: 0.0 til July 2009. August 2009 PSA was 0.1, in September it was 0.3 Met with radiation oncologist, CT scan and bone scan clean. Third PSA on October 16 - PSA BACK TO UNDETECTABLE! Next PSA scheduled for early December. No radiation treatment at this time!


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 12/7/2009 8:34 PM (GMT -6)   
Amy, May peace be with you. I am so sorry about Robert. Pat and I will keep you in our prayers through the Holliday Season.

Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/7/2009 8:41 PM (GMT -6)   
Wow Amy,
I am very sorry for your loss. This is terrible news. You are such a wonderful wife. You put your heart in your posts, and I am certain that this was the toughest one. I hate cancer...

You and your family are in our thoughts and prayers. May the Lord bless you and your husbands soul. May peace always find you.

Tony
Prostate Cancer Forum Co-Moderator


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 12/7/2009 8:50 PM (GMT -6)   
I'm so sorry!  Thanks so much for the words.
Peace be with you.
Jack

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 12/7/2009 9:49 PM (GMT -6)   
Amy,
We are so sorry for your loss. My problems suddenly seem small and petty.
Thank you for taking the time to teach us all a valuable lesson.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/31 3 months, Still no activity, nada, zip
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/27 2 months: Still 3 pads per day.
11/14 4 month: Still 3 pads per day. 420ml/day, 91 um leak. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks- 0.05, 10/13 3 months- 0.04 undetectable.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 12/7/2009 11:38 PM (GMT -6)   
Amy,

This is a nasty disease. It may take our life, but can never take our spirit. Your poem has inspired me to work even harder at making my spirit even larger than what I am. I think that is what Robert was able to do.

May God bless you.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


clearwatercowboy
Regular Member


Date Joined Oct 2009
Total Posts : 135
   Posted 12/8/2009 12:02 AM (GMT -6)   
Amy,
So sorry to hear of Robert's death. It appears that he fought it like a true warrior. Thanks for sharing the poem with all of us out here in PCa land. It helps to remind of all of us of what we do have in life, and taking it for granted is a huge mistake. At this difficult time, may you find some peace in knowing that Robert's suffering no longer lingers.

Our love to you and your family
Dallas & Jeannie
Clearwater, ID
RRP May 04, 2009
Pre-op Gleason 6
Post-op Gleason 7


hawkfan75
Regular Member


Date Joined Jan 2007
Total Posts : 165
   Posted 12/8/2009 12:49 AM (GMT -6)   
Amy
 
I take the ferry out of Seattle frequently, and will think about Robert on my next trip across the Sound.  Our thoughts and prayers are with you.
Age 57 at diagnosis (2006),  PSA 4.7 (up from 3.2 one year previous)
Biopsy November 8, 2006 1 of 10 cores positive 5% LEFT Side Gleason 3+3
Robotic surgery January 19, 2007
Post Surgery Pathology Stage T3a, Gleason 3+4, positive margins and capsular penetration RIGHT Side
Post Surgery PSA:  March 5, 2007:  0.01    5 month PSA  0.08
Adjuvant therapy began June 26, 2007 with Zoladex injection
Radiation began August 23, 2007, ended October 8
First post radiation PSA, December 18, 2007:  0;  March 2008 - still 0;  July 2008 - 0; Sept. 2008 - 0;  Dec 2008 - 0;  March 2009 - 0;  Final Zoladex injection!
 
 


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 12/8/2009 12:53 AM (GMT -6)   
Thinking of you in your sadness Amy. Thank you for sharing a beautiful tribute to your man. Lana & CJ
Creed_three - Husband 51 yrs (49 years at diagnosis)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x 5% core of 12 positive at biopsy. Open Radical Prostatectomy with nerve sparing April 2007. Gleeson 3 + 4 = 7.   Undetectable <.1 PSA since, specifically, June 2007-0.01, Oct 2007-0.02, April 2008-0.02: Oct 2008-0.03, Nov, 2008-0.02, April 2009-0.03. 


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 12/8/2009 3:08 AM (GMT -6)   

 

   Almost speechless, as I read your post I could hear that ferry's horn echoing across the sound, a most beautiful place......

   I'm sorry for your loss.


 
  age: 53 @ Dx, Pre-op PSA Feb 08' 5.0, April 08' 4.1
  Biopsy 5.1.08, 5 of 15 cores postive, T2a, Gleason 3+4=7
  DaVinci performed 7.29.08
  Bladder sling installed, umbilical hernia repaired during surgery.
  Path report, "cancer fully contained, margins clear".
  Cath removed 8.8.08, ED therapy begins 8.9.08
  100mg Viagra three times a week, pump for ten minutes daily
  and hold for ten minutes.
  8.16.08 switched to Levitra 20mg, immediate results
  9.15.08 Pad free at night, one thin (light) pad during the day
  9.18.08 1st Post-op PSA Undetectable Zero's....Yes!
  12.22.08 2nd Post-op PSA  Zero's still...
  6.23.09 1yr Post-op PSA Still a zero..
  Pads gone 1.3.09, finally found the courage...Thanks ya'll
          ".....tryin' to reason with hurricane season...."
       

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