Well, my appointments are all set.
On Monday, I go to Umich and will see:
Dr. David Woods, a surgeon and then Dr. Hamstra, a radiation doctor, and finally Dr. Hassain, a urological oncologist.
(I may have the spelling wrong on the last two names above -- I'm too lazy/tired to dig through a growing mound of papers now to find it)
On Wednesday, I will be seeing Dr. Menon, a surgeon at Ford Hospital, and his team.
I have already requested that my slides be sent to Ford Hospital for a second reading. If they concur with the results I have, I will probably not seek a 3rd reading from an expert; if there is a difference (especially if it is worse), I might send the slides elsewhere if I feel it will make a difference in treatment. It also might be that Ford will send the slides out for a third opinion.
Ok my friends. I really seek advice on what to ask. I am going to ask each expert what his expertise can offer me (ie: radiation/surgery). Also, I want each doctor to look at the biopsy report and tell me what they think I should do. I guess that's obvious. Also, I had an umbilical hernia repair at birth and an inguinal hernia repair in 1988, so the obvious question for the surgeon: does that impact the surgery.
Meanwhile, I've done tons of reading/research but I also feel a bit burned out. It seems early on I had a ton of questions but now I don't. I will ask if I have aggressive cancer, but I know it is impossible to answer that at this time. (It's silly, but I'll ask). I realize it is difficult to prognosticate without the final pathology after a surgery. I can run the Partin Tables and Han table. I have and that's probably my best estimate at this point.
I will ask the surgeons about recovery times and their experiences with after-effects (incontinenece and ED). I will also want assurances that THE surgeon I'm talking to will be the one to do the actual surgery.
Although I am clearly leaning towards surgery, I will have an open mind about other modalities.
SO, I KNOW there are probably another 20 questions I should be asking. I would welcome suggestions!
63 years old
PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.
History of BPH/prostatitis.
PCA-3 test: 75.9 (bad news, guaranteeing I have to do....):
Biopsy on 11/30/09
Biopsy Report—Prostate Cancer
5 out of 12 positive
Gleason 4+3. More specifically:
2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:
2 cores are 4+3 (5%)--
1 core 3+4 (30%)
no peri-neural invasion
prostate is 45 grams
Latest: Have set up an appointment at Umich with surgeon, radiation guy, general medical oncologist on Monday, 12/14. Trying to also set up appointment with Dr. Menon at Ford Hospital. Looking at another reading of the slides.