Heading to Mayo for penile implant- was No Subject

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me too
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 12/9/2009 1:26 PM (GMT -6)   
Hi everyone its been some time for me I 'm heading to Mayo for takes on penile implant the little blue pill does not work for me the injections hurt and work about half the time. so if anyone has had this done or know about it please let me know thanks Pat

added a subject for archiving and searching

Post Edited By Moderator (James C.) : 12/10/2009 10:28:17 AM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/9/2009 2:07 PM (GMT -6)   
Your surgery was only 11 months ago, are you sure it's not too soon to be thinking about penile implants? Or are you just going to research the possibility if needed in the future. A penile plant is a pretty serious investment in so many ways, physically, mentally, and of course financially. Have you tried all the pills, or just Viagra?

I know some of our regular ED guys might think 11 months is a bit soon to expect recovery from ED. Did you have a nerve sparing op, or were both sides removed, or just one side?

Hope you can find the right answer for you.


David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 12/9/2009 7:31 PM (GMT -6)   
Its common for the blue pills to not work. But you should be able improve the effectiveness of the injection. Techniques that we have discussed here include pre-pumping and constriction at the time of injection. If you are getting an ache from the injection, you might be able to fix that by reducing the dose or switching to Bimix. If pain at injection time, an auto-injector might help.

Also have you tried a VED (pump)? For both pump and injections, you may need a lot of experimentation to find the techniques that work for you.

It's common to see ED improvement out to about three years, so I wouldn't recommend an implant before then, and of course, there's no going back.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
19-month: 0.09 (maybe)
ED:
After a learning curve, Bimix injections (0.2ml) worked well. From 14 months, occasional nocturnal erections. Have "graduated" to just the pump.


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 677
   Posted 12/9/2009 8:36 PM (GMT -6)   
me too said...
Hi everyone its been some time for me I 'm heading to Mayo for takes on penile implant the little blue pill does not work for me the injections hurt and work about half the time. so if anyone has had this done or know about it please let me know thanks Pat

As others here have said, it might be too early to consider the pain and cost of a penile implant.  If you think injections are painful, just ask some people about their painful and often unsuccessful penil implants.
 
I highly recommend BIMIX.  When you use TriMix or Caverject it includes prostaglandin, which causes pain and aching in almost every case I have heard of.  The BIMix leaves out the prostaglandin and for me works EVERY TIME.  I have no pain what so ever and only minor and temporary discomfort when injecting.  Pills do not work for me and I am not able to get a natural erection.  It is bimix or nothing.  I would consider an implant only if after much effort nothing else would do the job.
PSA up to 4.7 July 2006 , nodule noted during DRE
Biopsy 10/16/06 ,stageT2A
Very Aggressive Gleason 4+4=8  right side
DaVinci Surgery  January 2007
Post op confirms gleason 4+4=8 with no extension or invasion
no long term continence problems
Post surgery PSA continues to be "undetectable"
One side nerves spared
Bi-Mix for ED 
born in 1941


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 12/9/2009 9:28 PM (GMT -6)   
Ditto on the above posts. I know how hard (or not) it is with the ED. I have never been more horny, but I am going to give it at least 2 years before I do anything drastic.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


zachattack
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 12/10/2009 10:29 AM (GMT -6)   
My doctor told me it may take up to two years.I will just wait and see what happens.

Zach
age 55dx 12-2008,psa at biopsy 8.6
biopsy 12/12 gleason 3+4=7
da vinci surgery 6-09 by DR. John W. Scott (my hero)
Hospital 3 days cath 7days still leaking from cough(bad lungs)
still have ed may be the hormones.
9-09 psa 2.2 hormone inj
10-09 nuclear bone scan no results yet I will have gold markers placed 12-29-09
start rad 1-10-09
organ confined
extracapsular seminal vesicle involvement
lymph node involvement


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 12/10/2009 11:30 AM (GMT -6)   
At 2 1/2 years my doc is still saying to give it time. smilewinkgrin
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, Bimix .3ml PRN or Trimix .15ml PRN

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