Sonny IG/IMRT #6 through #10 of 35

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 12/10/2009 9:03 PM (GMT -6)   
Well Good Evening Sports Fans,

I have been taking a little break away from HW. Kinda needed it for mental health. Been kinda busy with Rad treatments with both my wife and I. Seems like the treatments and then running the errands (while already out of the house) have been consuming the better part of the days lately.

Lynn completed treatment #11 today and will finish up with her 13 on Monday. I will complete #10 tomorrow, the end of the second week. For the statistical and math conscious folks, that's 28.5%. Although I am sure that some of you will come up with some other equations and representations.

So far, nothing much has changed for me. There have been no (knocking big time on wood here) side effects from the treatments. I have been taking a few naps in the afternoon this week. Lynn says that I must be having a little fatigue. I don't argue with her, but I ain't telling her that I just like my afternoon naps. Makes her feel good that she is taking care of me for a change after the last four years. You guys know me, I am just a caring kinda guy and don't want to take anything away from her. Yet, I have taken to carrying a rabbits foot, four leaf lucky clover and horse shoe, in the car with me, just to make sure that the side effects stay away.

Lynn is doing fine with hers, except for the fact that things are getting a little more than uncomfortable for her. The steroids have her face swelled up pretty good and the mask is getting more than just tight. I mentioned that her treatment took a little longer today and she said that they are having a real tough time getting her face in the mask. The little square impressions on her face from the mask are getting a little deeper and taking about 30-40 minutes before they clear up. Yet she says that with only 2 to go she can handle it and deal with anything. I told her that for a joke she should carry a little can of Crisco with her tomorrow and tell the techs she felt bad they were having such a tough time.

All in all things are good with the Wolfe household. Just doing a little shopping and getting ready for the holidays. Except for the treatments I have been trying earnestly to not think about PCa all the time. That's the reason for the absence from HW.

As much as I enjoy coming here and giving back to HW, it's tough to put it out of your mind if you spend every day looking at the new posts and replying. I am sure that most of you understand this. I still find myself checking once in a while, but resist the urge to jump in and get involved in the conversations.

So this is my weekly report, 2 weeks down and five to go. Meet with the doc today and the plan is Monday the week of Christmas and Monday the week of New Years, we are going to double up on my treatments, so that I don't have to go into another week to finish them off. He feels very comfortable with this and I have tremendous confidence in him. I don't figure that the guy who is going to be the Vice Chair of Radiology at UCLA got there by not knowing what he is doing.

Blessings to all of you,

Sonny

yeah yeah
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative
da Vinci 9/17/09
Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
NERVES SPARED-positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT scheduled to begin Nov 30,2009 (74 days post surgery)

Post Edited (Sonny3) : 12/10/2009 8:57:18 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/10/2009 9:09 PM (GMT -6)   
Sonny, so good to hear from my dear Brother

Sounds like you are doing fine and feeling the first effects of the fatigue associated with RT. Glad Lynn is holding up as well as she has been, with just 2 more for her, and a weekend in between them, she will soon be through. I know how horrible that mask is, I still remember mine vividly from 10 years ago. She's a beautiful woman, and that mask is never going to change that.

Taking a nap is a good thing, I tried that, but unless I am running a fever (which is like never), I just cant sleep by day. Have enough problems sleeping at night, even on meds.

Please keep us posted, we care much for whats going on with you and Lynn. Give me a call if you wish.

Bless you, brother.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 12/10/2009 9:51 PM (GMT -6)   
Good to hear from you Sonny and glad all is going fairly well. I had been thinking about you and your wife this week and I think it is very healthy to take a break from HW. As someone said on another post, you can always come back. Take care and hope to hear at least one more report from you before the holiday's, but if not have a great Christmas. My best to you and your family.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 12/10/2009 10:18 PM (GMT -6)   
David, thanks for the well wishes. Took you up on your offer to call, it was good chatting with again.

Michael, no worries, I will be checking in twice before the holidays. I have two more weeks of reports to file with you guys before Christmas.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative
da Vinci 9/17/09
Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
NERVES SPARED-positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT scheduled to begin Nov 30,2009 (74 days post surgery)


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 12/10/2009 10:30 PM (GMT -6)   
Sonny,
I'm glad your RT is moving along without any complications. I'm also glad to know that Lynn is almost done with hers. Hopefully this will be over soon and you will beat this beast we are all fighting against.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 12/10/2009 10:55 PM (GMT -6)   
Thank you Ed. I hope things continue well for you. Your PSA history is looking good. Keep them low scores rolling along.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative
da Vinci 9/17/09
Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
NERVES SPARED-positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT scheduled to begin Nov 30,2009 (74 days post surgery)


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 12/10/2009 11:45 PM (GMT -6)   
Sonny, Really good to hear from you. Naps in the afternoon are kind of nice. Keep taking care of Lynn and keep that positive attitude. We are walking each step with you my brother.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


clearwatercowboy
Regular Member


Date Joined Oct 2009
Total Posts : 135
   Posted 12/11/2009 12:21 AM (GMT -6)   
Sonny,

Thanks for the update. I sure understand your desire to draw back a little from the forums. I know that for me, sometimes the more I read about PCa, the less I really want to know, and like all of us here, it can be all consuming. And with all that you and Lynn are having to go through, especially with the holidays approaching, sometimes stepping away is a good thing.

Glad to hear that Lynn is nearing completion of her therapy. My son that has multiple myeloma just this week started his first of eight rounds of chemotherapy, which will not end until May 2010. And like Lynn, he has considerable swelling, his is due to the Dex. therapy.

Keep at those naps and let Lynn fuss over you a bit.

Will be in touch.
God Bless you Both
Dallas
RRP May 04, 2009
Pre-op Gleason 6
Post-op Gleason 7


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 12/11/2009 9:45 AM (GMT -6)   
Jeff, thanks man, hope all is going well in your house too.

Dallas, sorry to here your son has to go through this process. And yes DEX is the culprit to my wife's swelling as well. Prayers are with you and your son.

Blessings to you guys and your families,

Sonny
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