Surgery Countdown - 4 weeks from tomorrow

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Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 12/15/2009 1:29 PM (GMT -6)   
Completed all of my pre op testing.  Chest x ray and ekg normal - waiting for blood test results before primary doc will give clearance letter to surgeon.
 
Not nervous yet, probably too busy at this point. 
 
Question for you guys - when did the nerves kick in and how bad was the anticipation as your date with the robot got close. 
diag 9/09
 
age at diag 54
 
stage 2b (biopsy done because of firmness felt on right side)
 
3 positive cores out of 12 (all less than 25%)
 
Gleason 6
 
Surgery scheduled 1/13 at UP with Dr David Lee
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/15/2009 1:57 PM (GMT -6)   
I had a nine week wait for my open surgery, was never real nervous about the whole process until probably the last week. Even though I have had numerous other surgeries under my belt, it got a little scary when it got close. I kept myself busy, that was my way of handling it. And knowing that my sex life would litearlly be changed forever, regardless of the outcome, kept myself busy in that department too.

With the holidays here, your 4 weeks should go pretty fast. Also gives you time to make sure that you are 100% sure that you want to do this surgery, not talking you out of it, your choice, but remember, if you wanted to, you can still change your mind.

Stay busy, think positive, and soon you will be on the recovery side.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 12/15/2009 2:11 PM (GMT -6)   
I keep reading the news looking for a new miracle cure but absent that I am onboard as one can be for the surgery. It helps TREMENDOUSLY to read the experiences of all those who take the time to post.  Although I am sure you cant fully appreciate the process prior to undergoing the surgery, I feel that I have learned so much as to what to expect from reading all the posts.  The first day or two may be very tough, but it is helpful to see from the firsthand accounts that each day generally gets tremendously better.

diag 9/09
 
age at diag 54
 
stage 2b (biopsy done because of firmness felt on right side)
 
3 positive cores out of 12 (all less than 25%)
 
Gleason 6
 
Surgery scheduled 1/13 at UP with Dr David Lee
 
 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 12/15/2009 2:15 PM (GMT -6)   
Also gives you time to spend extra time with those you love.

I would recommend a weekend getaway as well.

I would say this about nerves. The die is cast. Worrying can do nothing about the PC, won't help the doctor or the medical team. If you find yourself getting over anxious, just slap yourself, and find something else to do, like finding your significant other and bothering her.

Goodlife
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 12/15/2009 3:42 PM (GMT -6)   
Very good point about the die being cast.  I think that is getting me thru this period.  I feel I did my homework and made the best decision for me and my family. 

diag 9/09
 
age at diag 54
 
stage 2b (biopsy done because of firmness felt on right side)
 
3 positive cores out of 12 (all less than 25%)
 
Gleason 6
 
Surgery scheduled 1/13 at UP with Dr David Lee
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/15/2009 4:01 PM (GMT -6)   
Then you just sit back, enjoy the next 4 weeks, and so be it. It's much nicer on the recovery side, as each day hopefully gets better and puts your cancer in the past tense.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted 12/15/2009 6:11 PM (GMT -6)   
Start getting ready by letting the nesting instinct take over. Take time to take care of yourself. Get exercise - all kinds. Pretend you have 4 weeks to get ready for your 30th high school reunion and Nancy will be there - fresh from her divorce from that bum Allan. You want to look and feel at the top of your game. Do kegels now. Run in the morning or evening. And for Pete's sake, throw out that junk you have piled in the bedroom. It will only be in the way when you are convalescing.
Go on a trip someplace and make it romantic.

Like Joni Mitchel said: "Don't it always seem to go, that you don't know what you've got 'till it's gone. " Get busy! You get the best surgical results if your prostate is empty. (At least that's what I told my wife.)
Good Luck,
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
. 9/27 2 months: Still 3 pads per day.
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day Experimenting with Nyquil.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 12/15/2009 7:15 PM (GMT -6)   
My wife has a great saying; "I gave it to God." Once I had decided on surgery I worked very hard to take the view that everything was out of my hands. Not that I shouldn't be prepared, but that what ever happened did not need me but was dependent on God's plan.

If that is too religious for you, give it to fate, or luck, or fortuna. But whatever, the problem is no longer yours
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day

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