walking and leakage

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jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 12/15/2009 6:22 PM (GMT -6)   
I am 15 months out from surgery and in zero club. My problem is I'm still leaking. I find that when I walk alot it increases leakage. I will fill a pad a day. I know that does'nt seem like much but at this stage it's a drag. When I work out with power walking I can half fill a pad in 45 minutes. I feel I've probably come as far as I'm going to in this area. I know alot of you guys out there are in the newer stages of our battle. Anyone out there that has gotten better at a later stage. I'm thankful for my zeros but I'm sick of water in the basement.
 
As always Carry On.
 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 3,6,9 month psa <0.04 one year <0.04
still use 1 pad per day
 
Walked thru the darkness on the edge of town.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 12/15/2009 6:52 PM (GMT -6)   
I realize I am a noob at incontinence but I have taken quite a bit of data. Waaayy too much data. I have found that the water works start about one hour after drinking anything. If I time my drinking with my activities I can control it pretty well. Meaning, I can walk and exercise immediately before or after drinking. I sit at my pc about 45 minutes after drinking. I drink heaviest in the evening about 30 minutes before getting in bed. Lately I have been experimenting with Nyquil at night and manage to sleep through the night and awaken with the ability to produce a forceful pee worthy of a youtube video.
Experimentation is the key. And write things down. At the very least your wife can use the records as evidence at your insanity hearing.
Jeff

Post Edited (Worried Guy) : 12/16/2009 1:55:47 AM (GMT-7)


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 12/15/2009 10:47 PM (GMT -6)   
I still leak a few drops when I play golf. Most days I'm completely dry. I workout in the mornings and come home dry but there are other times when I may leak a little in the afternoon or evenings if I lift something heavy. I don't ware a pad except when I play golf which involves a lot of walking, swinging a club and so on. I'm not sure if that will ever stop.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


LenB
Regular Member


Date Joined Jul 2009
Total Posts : 102
   Posted 12/16/2009 10:26 AM (GMT -6)   
I am still leaking a lot. 6-7 full pads per day. 1 pad at night. I am so frustrated, I can't take it any more. DaVinci surgery was Sept 10th Cat out Sept 23rd. when will it STOP?
Age: 65
DX: 7/10/09
Gleason: 7
Biopsey: 2 chips with some cancer cells out of 30.
Robotic Surgery: 9/10/09
Cath out: 9/23/09
1st post op PSA: 10/20/09: <0.0
 
 


LenB
Regular Member


Date Joined Jul 2009
Total Posts : 102
   Posted 12/16/2009 10:26 AM (GMT -6)   
I am still leaking a lot. 6-7 full pads per day. 1 pad at night. I am so frustrated, I can't take it any more. DaVinci surgery was Sept 10th Cat out Sept 23rd. when will it STOP?
Age: 65
DX: 7/10/09
Gleason: 7
Biopsey: 2 chips with some cancer cells out of 30.
Robotic Surgery: 9/10/09
Cath out: 9/23/09
1st post op PSA: 10/20/09: <0.0
 
 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 12/16/2009 9:10 PM (GMT -6)   
LenB

You need to give it at least 6 months and maybe as long as a year.

I hate to ask the obvious, but of course you are doing the kegals religiously ?

I actually used a clamp during this period, which allowed me to make it through the day without the hassle of wet pants, pad changes etc. When I got down to 1 or 2 pads a day, I quit the clamp.

Goodlife
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/16/2009 9:32 PM (GMT -6)   
Hey Guys,  I was one of the "expert" leakers here.  From what I went through, I was told by a few different doctors the what you have at 9-12 months is what your gonna get.  Please do not get me wrong.  I was the first one that wanted to try every treatment in the book to get the leakin stopped.  But, I finally gave in to having the AUS installed.  If it is minor leaking using just a pad or two a day you may get relief by having the AdVance Male Sling installed.  A heavier rate may require the AUS.  I know the plastic plumbing is not what anyone wants to do.  For me, It gave me my life back.  Try not to get down. Keep working on your exercises.  A few of us here know exactly what you are dealing with.
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
     Dec. 2006 – Oct. 2008 Cystoscope, Two Collagen injections,Second Opinion   
    Consultation for Incontinance at OU Medical Center, Bio-Feedback       
    training, Chiropractic, Accupuncture , AdVance Male Sling, Two More Collagen 
    injections, AUS Installed and Activated (Dr. Morey at UT Southwestern Dallas TX)
    All to try to resolve incontinence (using 6-8 Depends Guards a day)

    To Date All PSA's 0.00.

   http://www.healingwell.com/community/default.aspx?f=35&m=721171

    http://www.healingwell.com/community/default.aspx?f=35&m=978691

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