Oncology Rehab Program - Starting Soon

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 12/15/2009 9:51 PM (GMT -6)   
I will be starting 10 weeks of Oncology Rehab after all.  Will start January 5, and it will be twice a week for 10 weeks in the first phase.  I am not expected to need phase 2 of the program.
 
At first, they will be limited to what they can have me do with a catheter in place, but hopefully it will only be in me for the first 3 weeks of the program  (jury still out on that subject).
 
They will work with me at first with upper body exercises and routines, give dietary info, and closely monitor me.  It is suppose to really help overcome the fatigue factor that I am still fighting post SRT.
 
I went through a similar program 10 years ago, but I was in much worse physical shape after the throat/neck RT I had back then.  I went for 11 months at that time.
 
I just want to be better.  I just want out of this hellish world of endless catheters.  I want the old me back, pre-surgery me at least, so I can start out the new year better.
 
I will bring highlights of what happens there once it starts.  Interestingly, the head of the program is the same woman that headed the program I was in 10 years ago, but with a different hospital system.  She still remembered me from back then.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


montee
Regular Member


Date Joined Mar 2007
Total Posts : 315
   Posted 12/15/2009 10:13 PM (GMT -6)   
I hope this is successful for you, you certainly deserve a break from the catheter journey.
diagnosed sept 2006 @ 54 years old, live in Georgia, gleason 3+4=7, (r) lobe only

psa 4.7 (psa rose 1 point per year for 3 years, urologist said still under 4 and no concern. If I can find out about PSA velocity, why didn't he know!)

Told not to have surgery at Dana Farber as cancer had already penetrated prostate, in seminal vesicles, would have positive margins. Would only treat with radiation and HT

RP Emory Atlanta December 2006. Path-negative margin, negative lymph nodes, negative SV, both Lobes involved, 40% gland involved
multifocal perineural invasion, Gleason 3+4=7

1st psa April 2007-<0.04, 6 mos-<0.04, 9 mos <0.04, 1yr <0.04, 21 mos <0.04, 2 yr 0.04 (rising?) 26 mos-0.05, 27 mos-0.04, 29 mos 0.06


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 12/15/2009 10:19 PM (GMT -6)   
Good luck with this David. Good diet and proper exercise are a good Rx for anyone.

It may be tough starting, but once you do, I'm sure you'll notice the difference.

Mike
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 12/15/2009 10:30 PM (GMT -6)   
As been said before, you're one tough hombre and I'm positive you'll come out of rehab stronger than ever.
Our best to you and the rest of the gang,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
radiation setup scheduled 01/05/10, 35 sessions follow


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 12/15/2009 11:04 PM (GMT -6)   
montee, I have to keep believing that, that's what keeps me going through all this stuff.

mike, the toughest part for me in my journey was mentally accepting that I had to go through the SRT, even more than all the surgical issues and catheter part. I knew I would have a rough time, I did anyway, and I had to fight the temptation to quit each and every day,
so yeah, the rehab won't be easy at first, but in comparisom, it will be a walk in the park to what I just went through

jake, still dont know about the tough part, perhaps a combo of being stubborn/stupid in equal parts. plus, not a fan of pain, so that's a pretty good motivator in itself. my adult age kids are not use to seeing their dad in such a weakened state for the past year or so, and i feel bad about that, even though its not my fault, i have really been doing the best i can. i want to mend up so they can remember me the way they still do in their hearts. tired of the patient/invalid mode, just want to function normal again.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 12/15/2009 11:43 PM (GMT -6)   
Your kids see their dad getting up every time this thing knocks you down. That's what they'll remember in their hearts with a lot of pride.
Take care,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
radiation setup scheduled 01/05/10, 35 sessions follow


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 12/16/2009 10:06 AM (GMT -6)   
Well, Jake, they know they I am not a quitter, they have made that clear.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


zachattack
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 12/16/2009 10:22 AM (GMT -6)   
David,no doubt in MY mind.

Zach
age 55dx 12-2008,psa at biopsy 8.6
biopsy 12/12 gleason 3+4=7
da vinci surgery 6-09 nerve sparing by DR. John W. Scott (my hero)
Hospital 3 days cath 7days still leaking from cough(bad lungs)
still have ed may be the hormones.
9-09 psa 2.2 hormone inj
10-09 nuclear bone scan no results yet I will have gold markers placed 12-29-09
start rad 1-10-10
organ confined
extracapsular seminal vesicle involvement
lymph node involvement


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 12/16/2009 10:36 AM (GMT -6)   
With my surgery and all the complications with catheters and blockages, I jsut kind of took a pragmatic approach to it. This is what is going on, this is why its going on, this is what I can do to help myself. But with the radiation I just went through, too much mental damage from a very horrific RT from 10 years ago, so I was scared to start with, and thinking back, how I made all 39 treatments is beyond me, but I did.
Glad that is past tense.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 12/16/2009 3:08 PM (GMT -6)   
David,

I'm happy you are going to get started soon. Surely it will make a big difference in your quality of life. BTW, the first time, was it of great benefit?

My best,

Steve

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 12/16/2009 3:28 PM (GMT -6)   
Steve,

Not really, just an orientation, and layout of the program, how it would be fitted to me. Looks like when I did this before, very few men in the program. But I am excited to get all the bad stuff behind me and really hoping for a good 2010 ahead.

Thanks for all your care.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 12/16/2009 4:36 PM (GMT -6)   
Greetings, David.  Glad the plan is coming together.  I trust that you will be able to get rid of the catheter at the appointed time.  I know you will be looking forward to that.  For now, just sit back and enjoy the Christmas season and spend lots of quality time with your family. We'll look forward to hearing good reports about the rehab early next year.  David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 12/16/2009 5:02 PM (GMT -6)   
Thanks David/CPA, hope the same for you and your family too. 2009 was not at all what I expected, it was like being in a time delay about getting better.

Should add, once I am out of the cath, then I will be going 3x a week to the rehab classes, only so much I can do with the sp cath in place.

Are you off the road for the holidays?

David
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 12/16/2009 6:24 PM (GMT -6)   
Hi David.  I'm home until Jan 20 - a little over a whole month at home! South Africa was a beautiful place but it is good to be home.  Look forward to hearing continued good reports.  Rest up and get that strength back. David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25394
   Posted 12/16/2009 6:29 PM (GMT -6)   
David, I lived in North Africa for 4 years (Morrocco), but never been to the south. Would love to see it though. Enjoy your time back home.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place

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