Lurker Finally Tells Story

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Dec 2009
Total Posts : 214
   Posted 12/16/2009 1:18 AM (GMT -6)   
Well I have been lurking on this site for a couple of months now.  Generally I find the stories here very inspiring.
However, I was a bit disturbed today to see how quickly a couple of members were to suggest a member leave his doctor because the doctor was late -- well quite late -- for an appointment.  The doctor is in fact my oncologist and I credit him with my top notch surgery.  Anyway, I will stop lurking and tell my story.
Age:  63  Semi-retired for 9 years; finally retired fully in fall of 08 to start the good life!!
Family History:  3 brothers, 4 sisters -- mother died of cervical cancer but no cancer in children
Apr 09 - After 8 months of the good life, my GP booked an appointment with urologist because of high PSA indicated a possibility of prostate cancer.  Didn't even know what that was!!
May 09 - Saw Dr. Chin, urologist at Victoria Hospital in London, Ontario.  DRE revealed no abnormalities but a biopsy was indicated.
June 09 - Hey what's happening to my good life retirement.  12 core biopsy done in June -- very straightfoward painless procedure.  Optimistic there would be no cancer because none of my 3 brothers has cancer and the oldest is 70
July 09 - Back to see Dr. Chin -- stunned to learn two cores were positive for cancer -- one at 5% and one at 25% -- Dr. Chin indicated the Gleason scores were 3 + 3 which were among the lowest Gleason scores detectable which meant the cancer was progressing at a walking speed as compared to jet speed which would be an aggressive cancer.  He could see that I was stunned and suggested there was no rush for my case and that I make another appointment shortly and do some reading and research before coming in.
I remained pretty devastated.  Oh God this can't be happening to me.  I am just starting my retirement.  What are those waves of doubt going through my mind?
To make matters worse, my son-in-law had just lost his mother to cancer in a matter of a few months after diagnosis in Feb 09 which had really shaken me.  However after my son-in-law got on the computer, he asssured me that my prostate cancer generally had good outcomes.  That helped settle me down.  Whew!!  I could stop writing my obit!!
Spent the summer doing a lot of reading and research.  Found out that Dr. Chin is one of the best surgeons in Canada for cancer surgery.  
Became aware there are ongoing studies involving watchful waiting or active surveillance and discussed this briefly with Dr. Chin.  However, my daughter who is a chip off the old block said if it were her, she would have the cancer removed.  Since I trust her implicitly, I decided to follow her advice.
Booked my surgery, radical retropubic prostatectomy (what an awful name!! who wants to tell their friends they are having this operation!!)  for Oct 23 09.  Could have had robotic but there were no openings until January of next year.  
Had a long summer!  Probably read way too much on the internet about problems people have had.
Had my surgery Fri Oct 23,  In recovery a long time, 11 a.m. - 5 p.m., because they did not have a bed for me (Ontario health system!!)  Expected significant pain but had no pain (I must have gotten some pain medication through the IVs) but whenever they asked  "how's your pain on a scale from 1 to 10?", I kept saying 0.  Heck, my hernia surgeries thirty years ago were much more painful.
Saturday I was up walking up and down the hall three or four times.  Discovered I was not in the prostate surgery recovery ward but my bed had been found in the thoracic ward.  No wonder I heard the nurses say I was a dream patient!!  Spend a night and day seeing these patients post surgery and the "why me for prostate cancer" disappears.  
Never knew I would be so happy to pass gas and get on a liquid diet.  I got my release Sunday at noon -- I was so happy to go -- not because I was in any pain -- I just wanted to be in my own home.
After my summer reading, I was waiting for a lot of things to happen.  Bladder spasms -- surely they would bring me to my knees.  There were none.
Surely the catheter would be hugely uncomfortable -- it was not pleasant but not a pain at all.
I had read your penis could become infected and fall off.  I checked the end of my penis each day.  Kept it antisceptically clean just in case.  Didn't fall off although it might as well have (more on that later).
Bought a cushion to sit on to ease expected pain.  No problem.
Got the catheter out two weeks later.  The doctor took out the catheter in one deft stroke and put everything in the waste basket.  I just gushed - pee that is.  Good thing I was wearing my Tena absorbent pants. 
After we got back, my daughter brought my granddaughter over to visit.  As I felt a constant drip, drip, drip, I thought  "well she is getting out of diapers and I am going back into them."
I was glad that as always I was prepared for the situation.    I like to be prepared (you should have seen my stockpile of food, water, and flashlights during the Y2K debacle - took a couple of years to use up!!).
I had 50 Tena pants and 50 absorbent pads.
The first afternoon I didn't have any control.  I thought thank goodness I am well stocked.
That night I slept very well and the next morning I found that after years of restricted urine flow I could pee like a horse and hold it "pretty well."  Well four weeks later I am still leaky from time to time but hey I have to use up my supplies.
Dec 16 09 - My current situation. 
My pathology report came back clean so I am very happy with my decision.  However, that is tempered with the thought that I am still near the beginning of a long journey.
Of course I have to write about ED.  Most older patients write about ED problems after the surgery and I found they were spot on in that regard.
When I got the catheter out I went "Huh, that is not the size it was before.  There go the good times!!"
Seven weeks after surgery no amount of cajoling, teasing, begging, or gently touching (well even more than gentle) will cause even the slightest reaction.  This is not good for an organ that sprang into action at even the slightest indication of a good time.  I pray I don't have to wait the two years that some have reported.
So that is it.  I found an excellent doctor.  I made a decision that was family based and I have not looked back.  We all feel that the action I took has optimized my chances of seeing my grandchildren grow up.
Cancer is tough.  My journey, of course, is not over yet.  I get my first post operative PSA done in January so being the worry wart I am I shall worry.
But let me say that this site does provide much supportive reading and I thank the members for that. 
For those of you just learning you have PC, may God give you strength and a bit of humour as you begin your journey.
May you all enjoy the festive season with your families!!

Post Edited (skeener) : 12/16/2009 6:23:34 AM (GMT-7)

Tony Crispino
Veteran Member

Date Joined Dec 2006
Total Posts : 8128
   Posted 12/16/2009 1:33 AM (GMT -6)   
Hi skeener,
Welcome the the posting side of HealingWell. I enjoyed reading your story. Don't worry too much about that PSA in January, I am willing to bet it is where it needs to be for good health. You and I share another story. Two New Years days ago, New Years 2008, my mother checked into the hospital with renal failure. When all was said and done, she had metastatic cervical cancer. She had already been through the beginning of my ordeal. But she didn't hang around long, she died two months later of the disease. Her passing triggered some depression on my part, but as I like to say, she never let me stay down for long. I believe that I do have that guardian angel and I am well now.

Peace to you. And again, Welcome!

My Story ~
Prostate Cancer Forum Co-Moderator

Regular Member

Date Joined Dec 2009
Total Posts : 214
   Posted 12/16/2009 8:14 AM (GMT -6)   
Hi Tony:
Thank you for your comments.
This is the first time that I have posted.  I was certainly overdue to acknowledge those in the online community who have helped me so much.
Yours was one of the first blogs I read in the summer.  You certainly illustrate that terrible conditions (is pc a condition, disease or illness?) can bring out the best in people.
I found your writing to be truly inspirational.
God bless and may you and your family have an enjoyable Christmas!!

Veteran Member

Date Joined Jul 2008
Total Posts : 966
   Posted 12/16/2009 9:14 AM (GMT -6)   
Hi Skeener, thank you for your story and was well written.

It's good to see folks like your self coming forward to share their stories that offer hope and inspiration to all of us. The ED is a little tough to take right now, as it is for all of us just out of surgery and not be able to get any reaction from our little man friend. I know at the beginning just out of surgery, I couldn't get that "I Can't Get No...Satisfaction" lyrics from the Rolling Stones song out of my mind. (Still comes back to haunt me from time to time)

Good luck and I bet that psa test will come back with a big zero for you.
You are beating back cancer, so hold your head up with dignity
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month Apr 2009 .06
                   9 month Jul  2009 .08
                 12 month Oct 2009 .09 

Elite Member

Date Joined Oct 2008
Total Posts : 25393
   Posted 12/16/2009 10:34 AM (GMT -6)   
Hello and welcome Skeener,

That was a great and well written testimony of your dx, your decision process, your surgical experience (I had open too), and you recovery thus far. As you know first hand, there is no one way fits all with our PC. Even the processes, the treatments, the surgeries, the aftermath and recovery vary so much. What you learned here and elsewhere, helped prepare you mentally for what might happen. If you are like me, I would rather know too much and be prepared. One of my favourite lines to my doctors "I don't like surprises, tell me what might happen?.

I am glad you wer spared many if not most of usual aches and pains and annoying parts post surgery. As far as no pain after that open surgery, I assue you they had you doped up properly in your IV line, either that or you are incarnation of Superman. But regardless, glad major pain wasn't an issue for you.

Please keep us posted. Sounds like you had a good experience about a bad cancer.

There are some natural doctor bashers here from time to time. I have the highest respect and confidence for my medical team, the amount of time and effort in working with me and my endless issues astounds me. From a patien'ts point of view, you get along a whole lot better if you are compliant with those that treat you. Learned that years ago. An informed compliant patient is a doctor's dream.

Good luck to you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place

Regular Member

Date Joined Dec 2009
Total Posts : 97
   Posted 12/16/2009 10:37 AM (GMT -6)   
Skeener,Sorry you are hear but at the same time glad you have joined us.I had my surgery about 7 months ago and still leak a little,and the little soldier is still at parade rest.Hoping one day he will snap to attention,but if he don't it's no big deal after all getting rid of cancer is my big fight right now!Welcome to our brotherhood and good luck along your PCa journey!

age 55dx 12-2008,psa at biopsy 8.6
biopsy 12/12 gleason 3+4=7
da vinci surgery 6-09 nerve sparing by DR. John W. Scott (my hero)
Hospital 3 days cath 7days still leaking from cough(bad lungs)
still have ed may be the hormones.
9-09 psa 2.2 hormone inj
10-09 nuclear bone scan no results yet I will have gold markers placed 12-29-09
start rad 1-10-10
organ confined
extracapsular seminal vesicle involvement
lymph node involvement

Veteran Member

Date Joined Oct 2006
Total Posts : 1211
   Posted 12/16/2009 1:03 PM (GMT -6)   
Hi skeener,
What an interesting and well written account of your journey thus far. I'm here in B.C., and my open RRP experience was very similar to yours, although my numbers were a bit more serious. Be patient in the ED department. It took me about 12 month+ to get back to near 'normal'.  My Surgeon was Dr. Goodman and I couldn't have found a better man for the job. Although I had to undergo SRT about a year ago, early indications are that it was successful. Time will tell.
Anyway, thanks for letting us know your story.
Hoping for a full recovery for you in the not to distance future.

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09, = 0.05; July 09, <0.04

James C.
Veteran Member

Date Joined Aug 2007
Total Posts : 4463
   Posted 12/16/2009 1:19 PM (GMT -6)   
Hi skeener, welcome to the forum. Can't add anything, but enjoyed reading your story. Hope you stick around with us.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, Bimix .3ml PRN or Trimix .15ml PRN

Doting Daughter
Veteran Member

Date Joined Aug 2007
Total Posts : 1064
   Posted 12/16/2009 1:21 PM (GMT -6)   
Hi Skeener! Welcome to HW! I am glad you decided to join us and share your story. It is great to hear that you are on your way to healing well. Please keep us posted and let us know how we can continue to help! I hope you take the time to rest and heal over the holidays. Best wishes for a wonderful season and a new year with undetectable PSAs.

Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Oct. 9, 09 PSA <.01 Last Lupron Shot
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum

Regular Member

Date Joined Nov 2009
Total Posts : 206
   Posted 12/16/2009 1:57 PM (GMT -6)   
Hi skeener:
That was a most enjoyable read, in fact I'm hoping that it
is a preview as to what I will post here, after my open surgery with Dr. Chin on January 23rd.
I have been a bit of a 'doomer & gloomer' lately but your story has given me an uplift and my expectations are now for a similar outcome as yours.
Thank you, THANK YOU !
Age, only 71.
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. (not ordered
by first urologist)
Started Casodex 50mg. on Nov. 6, first pill of 30.
Got Lupron 22.5mg ( 90 day ) on  November 19.
No side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week.
Open surgery scheduled for Jan. 22 by Dr. J. Chen
at London (Ontario) Health Sciences Centre.
Need to get this over with ASAP so next season
I can continue with motorcycling, sailing  and enjoying life, TOGETHER with my wife, Debbie.

Regular Member

Date Joined Aug 2008
Total Posts : 328
   Posted 12/16/2009 2:24 PM (GMT -6)   
Great post!! Congrats on the successful post-op results. Just be patient for me the ED gets better over time..... and remember your not alone!!!
This site has been great for me as well in reading and feeling the same trial and issues we are going through.
Enjoy the Holidays!!!

Age Dx 37, 7/2008, First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008, Biopsy: 6 out 12 Postive all on right side, Gleason 7 (3+4). Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008, Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008, PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
5 Post OP PSA's from 9/2008 to 12/2009: <0.1

Regular Member

Date Joined Dec 2009
Total Posts : 214
   Posted 12/16/2009 2:29 PM (GMT -6)   
Thanks to all who wrote today!!

If there are five or six posts when I log on, is there a way that I can reply to an individual post right under the post or do I have to make all comments at the end of all posts?

Thanks, skeener

James C.
Veteran Member

Date Joined Aug 2007
Total Posts : 4463
   Posted 12/16/2009 2:33 PM (GMT -6)   
Replies form a chain, so any replies you make will be the next (or last) in the line.. If replying to more than one, just use their name in the post, so they know you are talking to them...
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN

Veteran Member

Date Joined May 2009
Total Posts : 2692
   Posted 12/16/2009 5:08 PM (GMT -6)   

Great post. Sure am glad it didn't fall off, altho that would have been a first for this site.

Your story just emphasizes that surgery really isn't all that bad. Pain is usually minimal, recovery is usually fairly quick.

Welocme to HW, and look forward to folowing your progress.

Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections

Veteran Member

Date Joined Dec 2008
Total Posts : 673
   Posted 12/16/2009 5:58 PM (GMT -6)   
Great post Skeener! I had the same surgeon and I think I'm doing good. I was in control of my bladder within 48 hours of catheter removal...ED, well a couple recent Trimix is waking that up. I'm 7 months post-op open surgery.

Your waiting experience with Dr. Chin was same as mine on more than one occasion. However, his staff phoned me beforehand and asked if I had any questions, bring them to the appointments. I did. He spent an extra hour with me on my 1st..early in the day. That's probably why the guys that had 3:00 appointments didn't get in until 6:00.

All the best!
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.

Veteran Member

Date Joined Feb 2008
Total Posts : 655
   Posted 12/17/2009 8:12 AM (GMT -6)   

Greetings, Skeener.  Welcome to the forum and glad you are doing well.  I have been overseas for a couple of weeks so missed the posts suggesting you leave a doctor for being late.  I have been one of those who get distressed when a doctor is very late for an appointment - my time is valuable as well.  However, my surgeon found a way to overcome my distress. 

After I was diagnosed and referred to this particular surgeon, I made an appointment for 3PM.  My wife and I were there at 2:30 being a little anxious just having been diagnosed with prostate cancer.  3 PM came and went and then 3:30 came and went and we were still waiting.  about 3:45 there was a lady sitting next to us who finally said "I hope we are not the cause you are still waiting - my father had an emergency and the doctor worked him in and is still working with him."  Now we have an explanation of why we are probably waiting but it is still a little stressful being almost an hour late. 

As we sat there in the waiting room for an hour and a half, time after time a nurse would come out and call a patient back.  Seems like probably 50 - 100 people got called back by one nurse or another (there are a couple of dozen docs in this practice).  Finally, right at 4 PM a gentleman walks out, looks right at us and walks up to us and says "Hi, I'm Bill Morgan - I'm sorry you had to wait."  That simple gesture made all the difference.  The hour and half wait was forgotten immediately.  Unfortunately, my experience with doctors is not many will do that but right from that experience I have had great confidence in my surgeon.  Not only does he have great bedside manner as evidenced by this event, he has proven to be a great surgeon as well. 

Look forward to hearing more from you Skeener.  Have a very Merry Christmas.  David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me

Regular Member

Date Joined Dec 2009
Total Posts : 214
   Posted 12/17/2009 9:29 AM (GMT -6)   
Good comments.  It has always impressed me over the years what a few words can achieve!
I now take a good book or a few cryptic crosswords with me to the doctor's appointments.
Like your 0's!!

Post Edited (skeener) : 12/17/2009 7:36:23 AM (GMT-7)

Regular Member

Date Joined Dec 2009
Total Posts : 214
   Posted 12/17/2009 9:35 AM (GMT -6)   
Mikey 1995
Thanks for the comments.  We are very fortunate to have Dr. Chin here is London.  It is so nice just to get in the car and travel 10 minutes to Victoria Hospital to see him. 
Even if the waits can be long.  As I said above, I now take a book or puzzles with me.
Have a nice Christmas!!

Regular Member

Date Joined Dec 2009
Total Posts : 214
   Posted 12/17/2009 9:39 AM (GMT -6)   

Thanks for the comments.

Hope things are progressing well with you.

Have a nice Christmas!!


Regular Member

Date Joined Dec 2009
Total Posts : 214
   Posted 12/17/2009 9:46 AM (GMT -6)   

Thanks so much for your comments. From your stats I see that you have been on quite a journey the past year. Nice to see that you are have been getting 0's!!

Have a nice Christmas!!


Regular Member

Date Joined Dec 2009
Total Posts : 214
   Posted 12/17/2009 10:03 AM (GMT -6)   

Thanks for the post JB. The surgery with Dr. Chin went extremely well. I had a hernia repaired twice thirty years ago. The first repair failed and so did the second.

A urologist I saw later commented "you now have two hernias -- You should get those repaired at the Shouldice Institute in Toronto. People come from all over the world to have their repairs done there.

I did go to the Shouldice Institute and had both repairs done there using a mesh technique. Thirty years later I am still fine.

I decided at that time that if I ever had to have surgery again, I would get the best!!

When prostate cancer was a possibility last spring, my GP in London referred me to Dr. Chin. I researched him and realized he is the best. He assured me that he would do the surgery. I knew after the operation that he had done the surgery because only someone like him with very small hands could work through what seemed to me like a very small incision. I mentioned this to the attending after surgery and he said that if he had done the surgery with his big hands, the incision would have been twice as long.

Everything else went very well but as I said above, I was glad to be going home.

You are going to have down days before the surgery. I had to wait three months and some of those days were pretty down. I am sure that things are going to be better after the surgery.

If you have any questions, let me know. And please let me know how the surgery goes in January!!

Have a nice Christmas!!


Jim B
Regular Member

Date Joined Mar 2009
Total Posts : 45
   Posted 12/17/2009 10:07 AM (GMT -6)   

Very nice post. Looking forward to seein you in the zero club.
Dx age 48 PSA 11.58
Biopsy Nov 04
4 of 6 specimens positive
gleason 4+5=9
Perineural invasion at two locations
40 radiation treatments Jan-Mar 05
PSA May 05 0.07
Aug 05 0.15
Feb 06 0.92
Oct 06 0.55
Sep 07 0.42
Mar 08 1.13
Aug 08 2.26
Nov 08 3.98
Jan 09 5.81
Mar 09 9.02
Bone scan in Nov 08- one spot in pelvic region 1.9cm with SUV of 11
Bone scan in Mar 09-two spots. Original now 2.5cm with SUV of 22 and 2nd spot less than 1cm with SUV of 7.8

Regular Member

Date Joined Dec 2009
Total Posts : 214
   Posted 12/17/2009 10:08 AM (GMT -6)   
Doting Daugther:

Thanks for your comments.

I have read a number of your posts on the site.

Your dad is so fortunate to have you fighting for him and we are so fortunate to have you on this site.

You certainly deserve a nice Christmas.

Will keep the site posted about my progress in the New Year.


Regular Member

Date Joined Dec 2009
Total Posts : 214
   Posted 12/17/2009 10:15 AM (GMT -6)   

Thanks for your comments and your encouraging words of support.

It is apparent that you have had a challenging journey. It makes such a difference I think when you have complete confidence in your doctor.

Please let me know how things progress.

Now that the weather has settled down out west, I hope you are enjoying the season. Have a nice Christmas!!


Elite Member

Date Joined Oct 2008
Total Posts : 25393
   Posted 12/17/2009 10:38 AM (GMT -6)   

There is nothing like the feeling of that first zero. With all the stresss of having a PC dx. and then executing your primary treatment, you so badly need to see something with your own eyes to make you feel like you have turned the corner with the beast.

I will be most happy when I read about yours.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 10:06 PM (GMT -6)
There are a total of 3,005,613 posts in 329,243 threads.
View Active Threads

Who's Online
This forum has 161786 registered members. Please welcome our newest member, Wildcat44444.
283 Guest(s), 4 Registered Member(s) are currently online.  Details
Wildcat44444, Kristin93, Healing98, noodlesnoodles