I think I'm getting dry!!!!!

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LenB
Regular Member


Date Joined Jul 2009
Total Posts : 102
   Posted 12/18/2009 8:52 AM (GMT -6)   
After almost three months since the catheter was removed, I only had to use 2 pads yesterday and I seem to be able to go from sitting to standing and moving around with little to no leakage.  I am so excited!  I hope this is getting near to the end of my incontinence.  Just a few days ago I was complaining about using 6-8 pads a day and it seems overnight it is getting better.  I hope it continues to improve.  My question is, iis this the way it happens? One day you are leaking and the next day is is almost stopped?
I hope I didn't jinks myself by shouting to the world but WOW what a Christmas gift.
 
Merry Christmas Guys and a Happy, Healthy New Year.
 
Lenturn
Age: 65
DX: 7/10/09
Gleason: 7
Biopsey: 2 chips with some cancer cells out of 30.
Robotic Surgery: 9/10/09
Cath out: 9/23/09
1st post op PSA: 10/20/09: <0.0
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/18/2009 8:58 AM (GMT -6)   
Len that is both great and encouraging news to hear on the incontinence front.

Based on some of the stories here, yes, it can work that way, you reach a point of using lots of pads, thinking you aren't getting anywhere, and then just like that, you reach some platau of improvement and start drying rapdidly. Hope that continues for you like this, that will give you a good reason to celebrate the new year shortly ahead of us.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 12/18/2009 9:13 AM (GMT -6)   
Hey Len,

I am acquainted with your problem and I can't tell you how pleased I am that you made some great progress! Maybe the same thing is going to happen to me too! A week or so ago a member here told me that at about three months he also went dry almost overnight. So it can and does happen. Keep me informed of your progress, some inspiriation alway helps. From what I have gathered progress can be two steps forward and one back, so don't let a slip bother you if it happens. You are almost there.

My best,

Steve

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 12/18/2009 10:00 AM (GMT -6)   
Hey Len -  try what I tried. (and it worked)
 
Since tomorrow is a Saturday - don't wear a pad..."Think" yourself dry. You just have to concentrate and "hold it in/back" and maybe won't leak at all.
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 12/18/2009 11:40 AM (GMT -6)   
The no pad at home helped me too. I gets you focused on control (and maybe some extra kegels) I had a couple of times that I had to change pants but fewer than I expected.
Good luck
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 12/18/2009 12:47 PM (GMT -6)   
Len, What great news. Let us know about the pad free day at home.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 12/18/2009 12:58 PM (GMT -6)   
Congratulations Len. Good Luck with your experiment.

My pad free experiences are not ever pleasant.
Unless I am holding a towel in front or underneath me, I leave a trail of drips not unlike Hansel and Gretel. If I ever got lost in the snow covered woods this ability might come in handy.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
. 9/27 2 months: Still 3 pads per day.
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day Experimenting with Nyquil.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 12/18/2009 1:00 PM (GMT -6)   
This incontinence stuff does seem to be a stair step process. However, don't be surprised if you take a step back for a short while, and then go up 2 steps.

Maybe those kegals are working after all.

I am down to virtually no pads, so when I get home at night, I go bare back, and on weekends, I do as well. Still a little squirt here and there, but overall, I am 98 % there.

Good luck, and Merry Christmas. That's one gift that 's tough to put under the tree.

Goodlife
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


LenB
Regular Member


Date Joined Jul 2009
Total Posts : 102
   Posted 12/22/2009 2:59 PM (GMT -6)   
Well guys, the day after my announcement I discovered that I wasn't that dry after all. There has been an improvement. I am down to 3 pads during the day from 6-8 pads. and at night only one pad that is really pretty dry. I am getting there but not ready to go pad free. I guess its one step forward and one backward.
I'll keep you posted.
Merry Christmas.
Age: 65
DX: 7/10/09
Gleason: 7
Biopsey: 2 chips with some cancer cells out of 30.
Robotic Surgery: 9/10/09
Cath out: 9/23/09
1st post op PSA: 10/20/09: <0.0
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/22/2009 3:34 PM (GMT -6)   
Len, you are still doing great, and that is still a noticable improvement, you will get there brother.

David in sC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 12/22/2009 4:33 PM (GMT -6)   
Len,

I think it's a huge step to be able to walk around and not leak too much. Hang in.
Steve

skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 12/22/2009 5:17 PM (GMT -6)   
Hang in Steve.  You are gonna get there!!  Have a nice Christmas!!
 
Skeener


Age:  63
 
Biopsy May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason score 3+3.
 
Considering all the controversy about whether action is needed or not (I could die with prostate cancer not from it), gave consideration to active surveillance.
 
Had open RRP on Oct 23/09 in London, Ontario.  Excellent surgeon.
 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.  Forum tells me can't do anything about ED right now.  Give it a rest!!
 
Nothing of concern in the pathology report. 
 
First followup PSA and visit in Feb 09.      

Post Edited (skeener) : 12/23/2009 5:48:17 AM (GMT-7)


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 12/23/2009 6:17 AM (GMT -6)   
The Hand Inn......would that be by any chance, a bed and breakfast for men with ED?

Steve

skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 12/23/2009 6:49 AM (GMT -6)   
LOL, tx for catching that typo from above Steve. 
 
On second thought maybe a Hand Inn for ED would be good!!
 
Merry Christmas.
 
Skeener
 
Age:  63
 
Biopsy May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason score 3+3.
 
Considering all the controversy about whether action is needed or not (I could die with prostate cancer not from it), gave consideration to active surveillance.
 
Had open RRP on Oct 23/09 in London, Ontario.  Excellent surgeon.
 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.  Forum tells me can't do anything about ED right now.  Give it a rest!!
 
Nothing of concern in the pathology report. 
 
First followup PSA and visit in Feb 09.      


LenB
Regular Member


Date Joined Jul 2009
Total Posts : 102
   Posted 12/24/2009 9:39 AM (GMT -6)   
Skeener,
Please let us all know where the Hand Inn is located. Sounds like a nice place.

len
Age: 65
DX: 7/10/09
Gleason: 7
Biopsey: 2 chips with some cancer cells out of 30.
Robotic Surgery: 9/10/09
Cath out: 9/23/09
1st post op PSA: 10/20/09: <0.0
 
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 12/24/2009 2:35 PM (GMT -6)   
I'd go, too, but unfortunately it would be a waste of time for me... Sigh.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next?
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
. 9/27 2 months: Still 3 pads per day.
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day Experimenting with Nyquil for 10 days: Can sleep through the night but withdrawal is bad. Stopped 12/20.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.

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