Newbie with a few questions

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t-dog
Regular Member


Date Joined Dec 2009
Total Posts : 154
   Posted 12/18/2009 2:09 PM (GMT -6)   
Hey folks, unfortunately i find myself in your boat after a recent diagnosis. My psa was only 2.6 but my free fraction was 14 leading to a biopsy. Came back 3 partial involvements out of 12 with a Gleeson of 6, no symptoms. I`m 50, non smoker, slender and very active. I have fought a weird bladder issue all my adult life called interstitial cystitis so i`m all to familiar with some frequent pee issues. Doc says that with my age, health and this ic thing that the robot is the way to go. I`m also blessed that i have a guy here in my area that is very well respected in the field and has 500 proceedures under his belt so my confidence in him is high. I`ve been able to speak to a couple of guys he has done and all had excellent outcomes with no issues. I`m set to do this in Feb. and was wondering if anyone did any particular exercises before hand to help your stomach/pelvic muscles? I mountain bike, any idea how long it will take to get back on the bike? And lastly i have a physical job(mechanic) and figure it will take alittle longer than average to get back to work, any ideas on this? Thanks for any advise, Tim

bcc
Regular Member


Date Joined Oct 2009
Total Posts : 46
   Posted 12/18/2009 3:35 PM (GMT -6)   
hi welcome sorry about your news but the great thing is you seem so confident.have you looked at the many alternatives to radical,i have and i cant make up my mind.ihad hoped to go the hifu route but a recent template biopsy showed it more widespread than expected so the advantages are reduced so now i am considering brachy.yousound fit which ithink is a big advantage.hope all goes well bcc

t-dog
Regular Member


Date Joined Dec 2009
Total Posts : 154
   Posted 12/18/2009 3:52 PM (GMT -6)   
Thanks bcc, the ic issue pretty much ruled out brachy or any radiation. I`m sure like everyone here this scared the crap out of me but i figure lets fix it early and fix it right and get on with life. Now if i can just wrap my head around having to have the cath. for a week. Tim

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/18/2009 3:57 PM (GMT -6)   
Hello T-dog, if are you worrying about is having a cath, that should be the least of your worries. In the past 13 months, I am now on my 10th cath totalling 180 days so far.

You are fortunate to have both some time and some choices in front of you for treatment. Study hard, choose wisely, then don't look back.

Please keep us posted.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted 12/18/2009 4:30 PM (GMT -6)   
Hey Tim - Welcome to the site...Sorry you have to be here.
 
The catheter is a piece of cake....Had mine in for five weeks. I was lucky to be wearing it in the summer time so I wore shorts...Could just slide my short pant leg up and empty it easily.
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 12/18/2009 5:26 PM (GMT -6)   
Tim,

After the catheter is out, I would say within a week or 2, you could be back to work. Probably the doctor will say 4 to 6 weeks, but unless you are doing heavy lifting or really strenuous mechanic work like changing wheels on train cars, your body will let you know if you do too much.

The biking is a tough one to call. I might guess 6 to 8 weeks on that one. You are working the affected area pretty hard. Some guys complain of pain while sitting, or penile pain. The bike may tend to aggravate some of that.

Try not to worry about the surgery too much. It really is a fairly straight forward thing. Good news is, you caught it early.

Good luck, and keep us posted !

Goodlife
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 12/18/2009 6:14 PM (GMT -6)   

Sorry To hear that you have to join us in our journey but we also welcome new members! I'm 4 months post surgery. At 7 weeks post davinci surgery did an all day off and on scooter ride in Bermuda while on Vacation. Just recently joined a health club and last night rode 5 miles on the stationary bike. I think with you being in overall good health you will be doing great after the normal 6-8 week healing time.

Larry


Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 12/18/2009 7:04 PM (GMT -6)   
Welcome to open discussion...lots of ways to treat PCa...nothing is an absolute guarantee but you could do very well or be cured on various methods. My advise in short, get an education in PCa, get opinions, don't be rushed into anything and if you choose surgery or whatever. Consider it the biggest decision you can make. The skill(s) of whom does the work is much more important than the machinery in surgery. We had one guy whom got robotic LRRP and it was botched...cause the doc was not as skilled as he was lead to believe. (can happen in any type of protocol/treatments), skill and experience is primary.
Youth is wasted on the Young-(W.C. Fields)


Carlos
Regular Member


Date Joined Nov 2009
Total Posts : 486
   Posted 12/18/2009 7:36 PM (GMT -6)   
T-dog, Have you been able to treat your IC with any sucess? I can imagine that a Foley catheter would be quite an irritant, even for a short duration. Does your uro think it will be a problem? As far as pelvic floor muscle exercise, it depends on who you talk to. I did kegels for many years before my surgery because I thought it might help my sex life. I still do them today. The exercises may or may not have helped with incontinence, but I was dry and out of pads at six weeks. Some folks don't think they do any good. I was back at the gym one week after surgery. But, no heavy lifting, just the treadmill. I belive I was back to normal in about six weeks.

Good luck to you.

Carlos
Diagnosed 2/2008 at age 71, PSA 9.1, Gleason 8 (5+3)and stage T1c.  CT and bone scan neg.
Robotic surgery 5/2008, nerves spared, bladder neck spared with pelvic floor reconstruction.
All margins, SV and lymph nodes were neg. 
Staged pT2c, Gleason sum 8 (5+3).
Continent at 6 weeks. 
PSA <0.1 at 18 months, Nov. 2009.


t-dog
Regular Member


Date Joined Dec 2009
Total Posts : 154
   Posted 12/19/2009 10:21 AM (GMT -6)   
Thanks for the input guys, Carlos i`ve had some success with bladder dilation and now they have a drug called elmiron that looks promising but requires long term use and patience. Uro gave no indication cath should be a problem. Thanks

MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 12/19/2009 1:09 PM (GMT -6)   
Hi T-dog,

You will be back to work in a few weeks if you are in good shape. Your incontinence will occur more when you bend and lift, but that to will go away after a few months. I had my catheter in 10 days if I recall correctly

Biking is likely out for up to 6 months, you really will not want to sit on a bike seat, much less absorb all the bouncing on that area. You will be sore for a while in the area directly between your Anus and testicles, right where a seat would touch
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0


TeddyG
Regular Member


Date Joined Apr 2009
Total Posts : 133
   Posted 12/20/2009 9:00 PM (GMT -6)   
T-Dog,
Several of us are serious cyclists. I ride about 2000 miles/year and was most concerned about the implications of surgery. I had laproscopic surgery and it took about 3 months to be totally dry. In the interim, of course I was getting antsy about getting back on the road. At about 6 weeks I went to gym with doc approval and sat on a recumbant bike for 30 minutes, low resistance just to move those pistons. As the weeks wore on, I increased slowly. I was back on my road bike in 3 months. You must be careful as you heal from surgery. Do not be lulled into thinking the procedure is simple, it is very complicated and is so deep inside you that if they go any further inside you, they come out the back door. All of the plumbing needs to heal well before you jostle those pipes. Frankly, you do not want anyone having to back in there. Sooo...3 months off before any real riding and even then, I wouldn't start by stump jumping.  Period.
Best wishes,
Ted
Background:
Age 55, two teens, very fit cyclist (avg 2000+ miles per year) and weight, diet, etc. consistent with good habits. Stressful job as attorney; very supporting wife who is helping me through every stage of this war.
Stats:
2006 PSA - 1.5
2007 PSA - 2.3
2008 PSA - 5.3 (18 mos.)
2009 Jan. 20 - Biopsy 12 samples
        Feb 3 Dx 2/12 samples positive, low volume  (5% and 7-10%)
Gleason 3+4, later downgraded by second opinion at Johns-Hopkins to 3+3, but "it's still PCa" as my Doc said.
Laproscopic surgery April 9,  University of KY Medical Center, Lexington, 3 days in hospital, catheter removal April 21.
Pathology: clear margins, no cancer in prostate: told that this is very rare and Doc has only seen it in 3 out of over 1400 cases; I rearched the concept of "vanishing cancer" and found a tumor classification of tP0 and asked Doc if it applied to me. He said that it was unlikely because if a pathologist had done a much more detailed analysis of the tissue, he would likely find more foci somewhere, and biopsy found "needle in the haystack as opposed to the tip of the iceberg"; Nevertheless, it is a blessing;
Regardless of the science, my family says "miracle."
Now working w/ post-surgery issues....
 


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 12/21/2009 8:54 AM (GMT -6)   
Greetings, Tim.  Welcome to the forum.  You have already received some good advice and it sounds like you were already on the right track.  Do your homework - find out your options - make a decision - and never look back.  There are lots of good options and you will hear from many of the guys here who have had the various treatments.  What is right for me may not be right for you - we are all unique and aren't we glad we are! 
 
I just posted on another message what my doc advised me about kegels - just stop your urine flow 4 or 5 times each time you go.  This is very similar to a kegel and you know you are getting the right muscle(s). 
 
I was back at work in 3 weeks but I am in an office - don't know how much I could have done had I been on my feet all day. 
 
You will do great - look forward to hearing great reports.  David
Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me

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