ED Injections while still incontinent

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 12/22/2009 12:59 PM (GMT -6)   
No secret here, I am at the bottom end of the recovery curve. I figure I'm helping all you guys by taking up the slots nobody wants. (My Christmas present to you.)
I have tried Cialis, Viagra, and VED daily with no response so I am considering bimix, trimix, margaritamix or any other that might help me out.

Are any of you injection guys still incontinent like me: 3 full pads, 450 ml per day but dry when on my back in bed?
After you inject and you successfully get hard, do you leak when you change positions? Is leaking even a problem for that 1 hour of activity? Will I need a pad and how does it go on when I am still in "tent pole" mode ? Will I need to wear a K&N air filter www.knfilters.com/harley_intakes.htm stuffed with pee pad?
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next?
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
. 9/27 2 months: Still 3 pads per day.
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day Experimenting with Nyquil for 10 days: Can sleep through the night but withdrawal is bad. Stopped 12/20.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 12/22/2009 1:03 PM (GMT -6)   
Jeff, I know I've seen several guys use a small diameter silicone penis ring on the erection solely to control leaking. That should work much better than a pad on a erection. What ya gonna do when its time for the big show, push the pad to one side? Maybe an oven mitt, instead?smilewinkgrin
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN

Post Edited (James C.) : 12/22/2009 12:06:45 PM (GMT-7)


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 12/22/2009 1:10 PM (GMT -6)   
Hey James ....

Pads ... condoms .... PADDED CONDOMS!!!

What an idea .... men would hate em .... women would love em.

Jim

(seriously tho ... a condom ought to control leakage for long enough -- especially if you
don't like the feel of the constriction ring AND if you really want to shoot shoot shoot that
urine somewhere during the big O. )
Age 58, 195lbs, 6'4", 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
Biopsy Nov2008 1 of 12 cores 5%, Gleason 3+3 - Sona showed size 140+ cc (110 grams post op).
02/03/09 open RRP surgery , Nerve sparing both sides, 1 day in hospital, Day 4 first BM,
Pathology Report: All margins clear - No Invasive spread - no change in Gleason score.
02/18/09 Cath out, passed a 1cm oblong STONE within hours.
03/06/09 Started Levitra@20mg / Viagra@100mg / (04/01) Cialis@20mg -- no real effect (thru 11/2009).
04/01/09, 07/07/09, 10/01/09 PSA <0.1 - Stone Was Oxalate stone -- X-ray no stones.
08/09 - started MUSE@1000mcg ... pump&plump - success(80-90%) (alpro ache).
09/09 @500mcg +pump&plump + 2 advil - success(80-90%) - (less Alpro ache).
10/09 TrimixGel (500/300/100mcg): 1st:60%, 2nd:(pump&plump) 60%, 3rd(added 500mcg muse):70-80% -- (no Alpro aches!) but none @ useful hardness!


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 12/22/2009 1:26 PM (GMT -6)   
Wait! Are you telling me I will shoot urine? Does everyone? I'll have to start looking for size XXXSmall oven mitts.

Padded condoms - great idea.
James, I did not know the trick of using a silicone ring. I will go to Advanced Auto Part and check out different sized fuel injector "O" rings. I know they don't allow you to open packages but maybe they would make an exception in this case. "I.. just .. have .. to try.. this.. on.. here.. Yikes! Help! Get it off! Get it off!!!"

Post Edited (Worried Guy) : 12/22/2009 12:32:38 PM (GMT-7)


Rolerbe
Regular Member


Date Joined Dec 2008
Total Posts : 235
   Posted 12/22/2009 4:07 PM (GMT -6)   
Drain as completely as you can before the big act.  Then sometimes you may shoot urine.  If you're basically empty, then a condom should be sufficient.  Oh, the joy...

51 YO
PSA at Dx: 8.2
DaVinci RALP: 10/31/08 -- Great MD in New Haven, CT
Negative margins, no extra-capsular involvement
One nerve spared
PSA at 0 for just over a year now.
 
 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 12/22/2009 4:40 PM (GMT -6)   

I don't "shoot" urine, but will dribble sometimes in all the activity of doing what I came there to do.  This is where understanding wives and rubber sheets (just kidding) come in. 

I have found initially that I need the penis ring to maintain the erection anyway, so that does help the leakage.

Merry Christmas my friend !

Goodlife

P.S.  Can I open it yet ?


Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/22/2009 4:49 PM (GMT -6)   
Wow, I have read the stories here about men blasting urine while having sex, guess I was fortunate there, never had that happen, not sure what I would think if I did. The challenges we all face make for quite a complex story sometimes. My hat is off to you brothers who have that as a thorn in their sides.

David in sC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 12/22/2009 6:54 PM (GMT -6)   
Hey Goodlife,

Sure you can open it. It's everything you wished for.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next?
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
. 9/27 2 months: Still 3 pads per day.
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day Experimenting with Nyquil for 10 days: Can sleep through the night but withdrawal is bad. Stopped 12/20.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 12/23/2009 7:29 AM (GMT -6)   
You probably won't shoot urine if you are on your back. But, when you JO, even when limp, do you shoot urine? It will probably be the same. But, who cares? use a condom/ Or they make a cock ring with a nodule that can press right on your urethra. That should stop it. either of these...take for a test run by yourself! Some guys do shoot geysers, but if you've been ********** and it hasn't happened yet, it probably won't with an erection either.
paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 12/23/2009 12:27 PM (GMT -6)   
Paul,
That was exactly what I needed to know. I already know what happens without an erection: just a dribble. I was concerned that there would be a difference with one. Who knows how that plumbing works? I was able to convince myself it could go either way. If the volume is the same with an erection a condom should easily be enough to handle it.
Unfortunately the way things stand now (or should I say "don't stand"?) a condom is useless. Sadly, I need finger cots without the holes.
Thanks,
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next?
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
. 9/27 2 months: Still 3 pads per day.
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day Experimenting with Nyquil for 10 days: Can sleep through the night but withdrawal is bad. Stopped 12/20.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 12/23/2009 3:54 PM (GMT -6)   
Hi Jeff,

I would try the injections if nothing else has worked for you. ED oral drugs, VED didn't get me there and Trimix is starting to. Still a work in progress, but once I get dose and procedure worked out I think I'll be OK. I was doing great with the VED for a while but hit a wall, go figure. Leakage or not, ask your doc and give it a try.

Hope you have a great holiday.

Mike
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving significantly with Trimix at 7 months post-op. Oral ED meds didn't do much.


LenB
Regular Member


Date Joined Jul 2009
Total Posts : 102
   Posted 12/24/2009 9:37 AM (GMT -6)   
Jeff,

The visual of a pee pad with a whole in the center and a pole sticking through it is just too funny. As for shooting urine, remember your were shooting another liquid before so just think of it as a thinner version.

My one pad adventure didn't last long, I am now at 3-4 but better that 6-8 that I did a few weeks ago.

Merry Christmas.

Len
Age: 65
DX: 7/10/09
Gleason: 7
Biopsey: 2 chips with some cancer cells out of 30.
Robotic Surgery: 9/10/09
Cath out: 9/23/09
1st post op PSA: 10/20/09: <0.0
 
 


HPStevenson
New Member


Date Joined Oct 2008
Total Posts : 1
   Posted 12/24/2009 7:56 PM (GMT -6)   
Folks/Anybody

What are the negatives of Trimix-gel
I am thinking about going from VED to Trimix-gel but really skittish
about anything new.

Steve

MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 12/24/2009 8:19 PM (GMT -6)   
HPStevenson,

You would be better served to ask your ? in its own thread so people could see the topic and chime in, it will get lost in WorriedGuy's question


WorriedGuy,

Even when I leaked, if I emptied myself and did not drink anything, I was 100% dry for a few hours at least. I would not worry about a few drips if you were engaged in intercourse, did you ever worry about Pre-ejaculation when all worked well before PC ?
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 12/24/2009 8:19 PM (GMT -6)   
Has anyone tried the Trimix Gel?

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 12/24/2009 11:18 PM (GMT -6)   
I have talked to the inventor quite a bit! Does that count? It works for 40% of men for whom the oral meds do not work. That's pretty good. It is also very effective in combination with oral meds.
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 12/25/2009 8:34 AM (GMT -6)   
Here is a thread from earlier this year for Gel readers

Note:

If your RX of Oral ED meds is not covered by Ins then Trimix-Gel is likely also not covered ,seems like it is $15 a dose from what I read

It is a suppository and needs to be inserted into the end of your Penis, looks like people are reporting a 40% success rate. I wonder if taking one of the oral drugs can get that up much higher in success rate ? Could be a great "on-the go" solution


www.healingwell.com/community/default.aspx?f=35&m=1374541
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 12/25/2009 8:40 AM (GMT -6)   
More info

"there is no needle, just a tiny "turkey baster" used to install
the gel into the end of the penis. The result was very similar to the
tri-mix injections. One downside is that it cost $200 for 12 doses"

see here

www.health-forums.com/alt-support-cancer-prostate/tri-mix-gel-report-54132.html
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 12/25/2009 9:09 AM (GMT -6)   
I have read the lit. on the Gel but have not seen a post from anyone that has tried it. In interested in knowing if someone that uses it Get had tried MUSE and how do they compare.

JEFF T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, June 19, 2018 4:57 AM (GMT -6)
There are a total of 2,973,237 posts in 326,185 threads.
View Active Threads


Who's Online
This forum has 160972 registered members. Please welcome our newest member, lho51136.
317 Guest(s), 2 Registered Member(s) are currently online.  Details
doug9801, AnnaB114