One Year On Living with Prostate Cancer

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6071
Regular Member


Date Joined Jul 2008
Total Posts : 112
   Posted 12/22/2009 6:23 PM (GMT -6)   
Hi i found this video on youtube have a look at it i think it says a lot
http://www.youtube.com/watch?v=U8TCYe8sMNI


Age 61 at DX
Biopsy 7/2008 Positive 1 of 12 cores positive 3+4 5% To 10%
Open Radical Prostatectomy 15/10/2008
Stage pt2c
Post op staging Gleason's Score 3+4=7
apical margin is focally positive
no extraprostatic extension
Seminal vesicles and lymph nodes clear
Catheter out on the 13/11/2008
4 week PSA < 0.1
26/1/2009  < 0.1
20/4/2009 < 0.1
11/6/2009 ultra sensitive psa 0.07
20/7/2009 < 0.1
26/8/09 Starting photon 3D CRT
13/10/09 Radiation Finished
25/11/09 ultra sensitive psa < 0.05
 






Post Edited (6071) : 12/30/2009 2:59:53 AM (GMT-7)


BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 12/22/2009 7:06 PM (GMT -6)   

Outstanding. I can relate to every frame. Thanks for sharing.

Bill in San Diego


Age 61 (59 @ Dx) PSA 4.4

Biopsy 5/15/08 Gleason (3+3=6)

Bone scan and pelvic CT: clear

HT - 2 mo Casodex, 3 mo Trelstar

RRP Surgery 9/15/08

Post-OP Gleason 3+4=7, Stage pT2c pN0 MX

SV, perineural margin, 18 lymph nodes, bladder neck: all carcinoma free

Perineural invasion & Distal Margin: Carcinoma present

IMRT adjuvant radiation (35 Treatments) Ended 1/27/09

PSA Tests: (10/13/08) (3/13/09) (7/10/09): all <0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/22/2009 7:28 PM (GMT -6)   
Great link, thanks for finding and sharing
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 12/22/2009 8:34 PM (GMT -6)   
A great presentation. Thanks for finding and sharing it. I am getting to know my 1st grandchild, too. As far as the Triumph Bonneville, I rode one for a very short time many years ago.

Mike
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving significantly with Trimix at 7 months post-op. Oral ED meds didn't do much.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 12/22/2009 8:59 PM (GMT -6)   
WOW what a great link thanks.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 12/23/2009 10:16 AM (GMT -6)   
. . . . . . . . and my Goldwing will be waiting for me come Spring.
Age, only 71.
 
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
 
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
 
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. (not ordered
by first urologist)
 
Started Casodex 50mg. on Nov. 6, first pill of 30.
 
Got Lupron 22.5mg ( 90 day ) on  November 19.
 
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Open surgery scheduled for Jan. 22 by Dr. J. Chen
at London (Ontario) Health Sciences Centre.
 
NOPE, that just changed to January 20th. (2 days earlier) and the venue for entertainment gets moved to the University Hospital.
 
Need to get this over with ASAP so next season
I can continue with motorcycling, sailing  and enjoying life, TOGETHER with my wife, Debbie.
.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 12/23/2009 5:37 PM (GMT -6)   
Great video. WE can all relate to his journey. Thank for sharing.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 12/27/2009 9:23 AM (GMT -6)   
Thanks it is very nice video.cool
DIAGN=46 YEARS
GLEASON=3+3
FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.
MARRIED,TWO CHILDREN.AGE 13 AND 8.
LAPROSCOPY SURGERY 6/2005
PATOLOGY REPORT.
GLEASON=3+3
TUMOR VOLUME=5%
LYMPHOVASCULAR INVASION=NEG
PERINEURAL INVASION=POSI
TUMOR MULTICENTRICITY=NEG
EXTRAPROSTATIC INVASION=NEG
SEMINAL VESICLES BOTH=CLEAN
MARGIN ALL=NEG
PT2ANXMX
DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,
PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09
0.04,10/09,0.04
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 12/27/2009 10:32 AM (GMT -6)   
That was a good video. I especially like the end where it shows him enjoying life with his wife and new grandchild. We all have so much to live for.

peace and joy
Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 662
   Posted 12/27/2009 4:10 PM (GMT -6)   

 

Bravado


Age 51, PSA 08/31/2009= 6.8, DRE Neg.
Biopsy 9/24/09 =10 of 12 positive. Gleason 6. 75% of one core.
da Vinci at Wash U, Barnes on 11/02/09
Pathology Changed Gleason to 4 + 3 = 7. Gleason 7 present in all 4 quadrants
All(4)periprostatic Lymph Nodes Negative, All(10)pelvic Lymph Nodes negative
Seminal Vesicles tumor free. No prostate extension


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 12/27/2009 5:55 PM (GMT -6)   
Great post. I have been in one of my stressful moods about cancer and I needed this post.
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
12 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 12/27/2009 8:35 PM (GMT -6)   
INCREDIBLE! What an amazingly strong and brave man. By the way, this is the reason my hubby chose RP with a biopsy result of only 1 x 5% core at his particular age at the time (49) with a Gleeson 7, instead of active surveillance. It was the potential for the aggressiveness of the Gleeson 7 to spread, which (for us and in our situation), decided the treatment option for us. My hubby had surgery which (thankfully) showed no local spread unlike this guy (however lymph nodes were not tested, just examined). For many months however, the outcomes of post op PSA were always looming ominously as my hubby prepared mentally for further treatment if needbe, although he had a favourable path report. He didn't need it in the end (so far) as it turned out, but this visual account did indeed bring back strong memories 6071. But such a GREAT ending as you say Dale.... that little kid is soooooo lucky to have a grandad like him.

Happy holidays to all... we are just in and out for a few days then away for about a month now. Our beautiful 10 yr old dog went to doggy heaven just before Christmas, so we need to take a holiday now. ... such a lovely and powerful Utube to see today however - thanks, and happy holidays 6071 and everyone else, especially Billy Boy Mac, and Biker, Swim, David, Barry, Dale, Sephie, Dotting, James C, Alf, Kev (& Angela) and everyone I have missed out.
Bye for a few weeks now. Lana & CJ (sitting in the perfect summer rain......today). xxoo


Creed_three (Lana) - with husband "CJ" now aged 52 yrs (49 years at diagnosis).
PSA (2002) 2.1. (2006) 3.5.  1 x 5% core of 12 positive at biopsy. Open Radical Prostatectomy with nerve sparing April 2007 Sydney, Australia. Gleeson 3 + 4 = 7. 2 small multifocal lesions. Contained. Undetectable <.1 PSA since: June 2007-0.01, Oct 2007-0.02, April 2008-0.02: Oct 2008-0.03, Nov, 2008-0.02, April 2009-0.03. Next PSA April 2010.

Post Edited (creed_three) : 12/27/2009 7:40:00 PM (GMT-7)


Jim B
Regular Member


Date Joined Mar 2009
Total Posts : 45
   Posted 12/27/2009 10:40 PM (GMT -6)   
Just want to add my thanks for posting this link. Although I never had surgery, everything else is so familiar. I, too, look forward to the spring and riding my GoldWing.
Dx age 48 PSA 11.58
Biopsy Nov 04
4 of 6 specimens positive
gleason 4+5=9
Perineural invasion at two locations
40 radiation treatments Jan-Mar 05
PSA May 05 0.07
Aug 05 - 0.15; Feb 06- 0.92; Oct 06- 0.55; Sep 07-0.42; Mar 08-1.13 Aug 08-2.26
Nov 08-3.98; Jan 09-5.81; Mar 09-9.02
Bone scan in Nov 08- one spot in pelvic region 1.9cm with SUV of 11
Bone scan in Mar 09-two spots. Original now 2.5cm with SUV of 22 and 2nd spot less than 1cm with SUV of 7.8
Bone scan in Nov 09 - NO CHANGE WOO HOO!


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 12/27/2009 11:53 PM (GMT -6)   
Great video! Thank you for sharing. 'Shows us how every additional day is precious.

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/07 <0.04; 12/07 <0.04; 03/08 <0.04;
06/08 <0.04; 12/08 <0.04; 06/09 =0.06; 09/09 <0.04;
Latest PSA 12/09 =0.05


Maxjr
New Member


Date Joined Dec 2009
Total Posts : 2
   Posted 12/30/2009 12:06 AM (GMT -6)   
DX 6/07 PSA 22 (had been rising steadily) Biopsy revealed total involvement. USC/Norris, Radical. Half life PSA began to fall, incontinent, catheter removed, 40 radiation. Margins were supposed to be clean but one questionable. (still use pads from surgery in 8/07 as of right now). PSA stopped dropping and began to rise to .9 6/08, Lupron, Casodex, 1.1 PSA, monthly rise to 2.2 then change in meds, drop 1.9 (happy day) 10/09 2.2 PSA again, another change in meds to Lupron, Ketoconazole 200x 3 daily, 20 mg hydrocortisone x 2 daily + Lupron. 11/24 PSA 2.1 12/18 PSA 2.3 weekly blood PSA (yesterday, don't know yet) Tried Estrogen and worst experience of my life. off in 7 days as worse than slow death. USC/Norris all the way, but, it's back. Bone and body scan clear (thank you) but it's somewhere. Radical surgery supposedly spared some plumbing but I doubt it. impotent since surgery and utterly no interest whatsoever now. Free testosterone 18 ppm. So, difficulty in talking, and that's what I do for a living. Bench press before 335 x 10. now, can't press once at 125. Very discouraging. Just want my 5 grandkids (all two and under) to remember me. Is it the low testosterone or am I giving up? Sorry to bum anyone out. Wish to God story was happier. Maybe next week.

Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 12/30/2009 7:02 AM (GMT -6)   
The message is crystal clear to me. Despite all the trials and tribulations, the many and varied outcomes, and the enduring mental and physical battles we fought, there remains one primary result that makes it all worthwhile, we are still here and enjoying whatever quality of life the cards dealt us which is a step above the alternative.

Keep well,
Regards,
Bill
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