Worry about PSA results

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londonjohn
New Member


Date Joined Dec 2009
Total Posts : 5
   Posted 12/23/2009 6:10 PM (GMT -6)   
Hi there, Hopefully someone can help me here. I had PSa of 14.0 and Gleason scale of 8.5. In august I had prostate etc removed and lymph nodes removed(which were negative.) I have been back to hospital now twice for check ups, the first one showed PSA of 0.7 and the second showed PSa of 0.9 should I be worried by these numbers or the slight increase.

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 12/23/2009 6:17 PM (GMT -6)   
londonjohn,
The numbers you indicate are not good, you should be seeing and oncologist and a radiation oncologist. There are treatments available to you but you must act. Please add information to your signature such as age, pathology report and the dates for your post op PSA. Good luck.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 12/23/2009 6:27 PM (GMT -6)   
Londonjohn

These are not the best numbers, however, salvage radiation may help you if you act now. Your chances for a cure are better if you can get the treatment before it rises above 1.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009
Completed 37 treatments July 31, 2009 (66.6gy)
11/23/09 Post IMRT PSA .18


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 12/23/2009 6:29 PM (GMT -6)   
Like Ed said London those numbers sugggest the need for likely f\treatment and your urologist should be talking to you about this. I will likely be starting IMRT after the first of the year. Hang in there and have some serious conversations with you tx team. keep us posted, but enjoy Christmas as much as possible as this one wont ever come back.
best to you.
Mchael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Consulting with Primary Urologist for further tx.
Great family and friends
Michael


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 12/23/2009 6:35 PM (GMT -6)   
We need to see the pathology report to see what went on in the surgery, but I agree that an appt with a radiation oncologist is certainbly in order. Usually they like to begin as soon as possible after surgery. Within 4 months is ideal.

Good luck and keep us updated. The guys here will do all they can to help you.

Ar the top of the forum page you will see a button called control panel. From there you will go to edit profile, and update your signature. If you have it, let us know what the pathology rerport was from the surgery. If you don't have it, you shoud call your doctor and get it. It is important in knowing what your next step should be.

Goodlife
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 12/23/2009 6:46 PM (GMT -6)   
londonjohn, Do listen to what this guys have posted. Important that you get a Dr's advise ASAP. To us non-Docters sounds like you need a mop-up, but what do we know. Sounds like many others on HW. Do keep us posted.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


londonjohn
New Member


Date Joined Dec 2009
Total Posts : 5
   Posted 12/23/2009 6:57 PM (GMT -6)   
Thanks guys. dont know if its a UK thing but they do seem to be information retentive here. Just terrified that its still there and the longer this goes on the worse its going to get. Like a fool I thought that 0.7 and 0.9 were good results given that it was initially 14 no-one at the hospital said these were poor results!! now that is a worry.
PSA 14
Gleason 8.5
Lymph Nodes were clear
Laparospicy to remove prostate 6th August 2009

1st Check in October 2009 PSA = 0.7
2nd Check in December 2009 PSA = 0.9

Next Check in February 2010

incontinence 2 pads per day, nothing at night
ED no progress taking Cialis (no effect)


Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 12/23/2009 7:11 PM (GMT -6)   
Are you sure it's 0.7 and 0.9 and not .07 and .09?

I'm surprised they haven't mentioned salvage radiation.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 12/23/2009 7:18 PM (GMT -6)   
I agree squirm, if those numbers are really .7 and .9, thats pretty rapid and serious recurrance, and needs immediate attention before it goes over some point of no return for salvage. Hope we can get that clarified.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


londonjohn
New Member


Date Joined Dec 2009
Total Posts : 5
   Posted 12/23/2009 7:39 PM (GMT -6)   
Well thats a good point i will ring them tommorow, but I am absolutely sure they said 0.7 and 0.9. well lets hope I have picked them up wrong. thanks again
PSA 14
Gleason 8.5
Lymph Nodes were clear
Laparospicy to remove prostate 6th August 2009

1st Check in October 2009 PSA = 0.7
2nd Check in December 2009 PSA = 0.9

Next Check in February 2010

incontinence 2 pads per day, nothing at night
ED no progress taking Cialis (no effect)


londonjohn
New Member


Date Joined Dec 2009
Total Posts : 5
   Posted 12/23/2009 8:38 PM (GMT -6)   
Well thats a good point i will ring them tommorow, but I am absolutely sure they said 0.7 and 0.9. well lets hope I have picked them up wrong. thanks again
PSA 14
Gleason 8.5
Lymph Nodes were clear
Laparospicy to remove prostate 6th August 2009

1st Check in October 2009 PSA = 0.7
2nd Check in December 2009 PSA = 0.9

Next Check in February 2010

incontinence 2 pads per day, nothing at night
ED no progress taking Cialis (no effect)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 12/23/2009 8:51 PM (GMT -6)   
If you didn't already get the message from the other guys, the answer to your question is: "Yes! You should be worried." But worry alone won't fix it. (This from a person named Worried Guy). You need to start a treatment soon. There are studies that show you want it within 18 weeks of the surgery.
Your job now is to get as much info as possible so you are prepared to grab your doc right after the holiday. If you read through the signatures of other guys here you'll find many start to get excited when their post surgery PSA gets above 0.1! At 0.4 they are scheduling some form of radiation.
Let's hope it was 0.09 not 0.9. That is a significant decimal point indeed.
Good luck,
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next?
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
. 9/27 2 months: Still 3 pads per day.
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day Experimenting with Nyquil for 10 days: Can sleep through the night but withdrawal is bad. Stopped 12/20.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 12/23/2009 9:48 PM (GMT -6)   
We will look for your reply tomorrow after you check the numbers again.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 12/23/2009 10:05 PM (GMT -6)   
Just before you panic -- 1.0 is the point that lots of radiation Docs think that it is time to start treatment. So it is not that you are in serious trouble, but just that you need to press for further treatment if your PSA goes higher.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 12/23/2009 10:09 PM (GMT -6)   
London,
While I am somewhat unfamiliar with the U.K. situation it may be somewhat similar to Australia. Patients are simply not in the habit of asking their doc for a copy of their pathology results, so docs certainly don't offer. I remember the first time I asked the doc's assistant for mine.....it was certainly obvious that it was a very unusual request. Now the supply to me of any reports we discuss is routine. Next time you see yours, make a point of directly asking for a copy. If he displays any hesitancy (this may be the case) explain that you want to learn all you can about your disease and the benefits and consequences of any treatment. he may well appreciate your efforts at helping yourself. After all it is you who is being treated not him. We all have to be vitally interested in our own well being and this includes being our own advocate. Nothing like having things in black and white.
All the best,
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01
PSA August 09 (2 year mark), <0.01
PSA December 09 <0.01

My Journey: www.yananow.net/Mentors/BillM2.htm


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 12/23/2009 10:09 PM (GMT -6)   
This is the wrong place to seek an educated/meaningful answer to your question.  What did your Urologist or Primary Care Physician tell you when you asked the same question(s)? 

Age:  60 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1/2 light pads per day)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0; 9/09: 0.0

 


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 12/23/2009 10:53 PM (GMT -6)   
Mavica said...
This is the wrong place to seek an educated/meaningful answer to your question. What did your Urologist or Primary Care Physician tell you when you asked the same question(s)?


Why would you say that? The whole purpose of this forum is to give support, explain the meaning of many of the terms and describe the different treatment options as well as giving a more honest outlining of some of the pitfalls and side effects of treatments (all this by people who have actually been through the mill). By all means seriously take on board what your "urologist or primary care physician" advises, but as we all know here, 3 different docs will give you 5 different opinions (often dependent on their speciality). And this does not even begin to look at the range of competency of those very urologists and primary care givers. Remember, in a study published this month ( I can find it if you wish) it was reported that 80% of all procedures in the US for example, are carried out by doctors who do less than 10 procedures a year and that more than 25% of procedures are carried out by doctors who only do one procedure a year. (do you really want to be that one?) Advice that you should carte blanche do what your doctor says, really is not much help. I would in fact bet that there are many patients on this site who know more about PCa than the average GP. (and this is no reflection on the GPs.........they cannot know everything about every disease, nor all the latest developments)
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01
PSA August 09 (2 year mark), <0.01
PSA December 09 <0.01

My Journey: www.yananow.net/Mentors/BillM2.htm

Post Edited (BillyMac) : 12/24/2009 4:31:47 AM (GMT-7)


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 12/23/2009 11:57 PM (GMT -6)   
If someone asks if they should be worried about a couple of PSA results, why would this be the wrong place ?

We have some men who in my opinion are better schooled in the facts of PC than many doctors out there.

Not sure I understood that statement.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 12/24/2009 8:46 AM (GMT -6)   
Mavica, that was a silly answer. This is a guy that turned to us fro some advice and we all said get with yout tx. team and make sure you have your numbers right. Not sure why you would bother to post here if that is your mindset.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Consulting with Primary Urologist for further tx.
Great family and friends
Michael


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 12/24/2009 8:54 AM (GMT -6)   
I'm with Goodlife, BillyMac, et al on this.
Gee, I listened to my Doc's advice and never had my PSA checked since he quoted "studies show regular PSA screening of men with no indications only saves only one man in 1000 and results in much over treatment." I was not educated. It was an insurance company physical that required it. And with a PSA of 17 I believe it saved my life.
As a whole the collective knowledge of this board, their research and contacts is much higher than a single physician. If someone makes a suggestion it is often tempered with a different opinion- something you would not get by visiting a single specialist.

A question like "Can anyone here do a XYZ procedure on me?" is not appropriate. But asking "Should I be worried about ABC?" or "What would you suggest?" , or "Does anyone know of a study that shows DEF?" or "Who does the GHI procedure in East Podunk?" is exactly right.
The advice can always be ignored and over ruled by the paid professional who may or may not have financial interest in the results.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next?
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
. 9/27 2 months: Still 3 pads per day.
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day Experimenting with Nyquil for 10 days: Can sleep through the night but withdrawal is bad. Stopped 12/20.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.


STW
Regular Member


Date Joined Jun 2009
Total Posts : 292
   Posted 12/24/2009 12:12 PM (GMT -6)   
Worried Guy - just curious. You have a new doc now?

This is a great place to seek information and counsel but not diagnoses.
I figured out over 10 years ago when I had a brain tumor that most doctors have one hammer and you are a nail. You need to seek as much other information as possible.
Diagnosed at 54
PSA 8.7 Biopsy 1/7/09
4 of 6 cores positive, one at 90%
Gleason 3+4=7 Neg bone scan 1/15/09
One shot Lupron Depot 1/27/09 Tax Season
RP 4/29/09
Neg lymph nodes, postive seminal vesicle, 1 positive margin
Gleason 3+4=7 with tertiary 5
Catheter out at 2 weeks no nighttime incontinence Pad free week 5
PSA 6/6/09 <0.1 PSA 9/10/09 <0.1


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 12/24/2009 12:43 PM (GMT -6)   
STW,
He is my primary care physician and I actually stuck with him. But now he's a lot more educated on the subject. He even admitted my experience might have changed his mind.
I can now ask him for any referral and get it immediately.
Why break in somebody new?
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next?
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
. 9/27 2 months: Still 3 pads per day.
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day Experimenting with Nyquil for 10 days: Can sleep through the night but withdrawal is bad. Stopped 12/20.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 12/24/2009 3:45 PM (GMT -6)   
The sum total of the knowledge and advice on this forum are, in my opinion, beyond the range of most PAs, GPs, urologists, oncologists, and surgeons, taken singly that is. If I have a big problem in the future with whatever issue pertaining to PCa the first place I would turn is right here. THe advice that would follow would surely get me thinking, deciding and acting on the right track. If you doubt this, go back and re-read all the advice and support that was recently given to Complier, an intelligent person who arrived here scared and confused and made his way through the PCa maze by asking great questions and getting great council right here on HW. He would never have been given that by a huge percentage of physicians in the field of PCa treatment, for whatever reasons, i.e., difficult to contact, lack of time, tunnel-vision on treatment options, prejudice by speciality, etc.

Happy Holidays to all the brothers,

Steve

londonjohn
New Member


Date Joined Dec 2009
Total Posts : 5
   Posted 12/24/2009 3:58 PM (GMT -6)   
well I am deeply grateful to you all, especially you squirm. I was on the doorstep of the hospital first thing this morning and believe it or not they confirmed that the doc read out the results wrongly it is 0.07 then rose to 0.09.
In terms of the usefullness of tjis forum, had I not asked the question and had so many very useful replies I would have worried myself sick over and beyond the festive period. Once again many thanks to you all. Happy christmas.
PSA 14
Gleason 8.5
Lymph Nodes were clear
Laparospicy to remove prostate 6th August 2009

1st Check in October 2009 PSA = 0.7
2nd Check in December 2009 PSA = 0.9

Next Check in February 2010

incontinence 2 pads per day, nothing at night
ED no progress taking Cialis (no effect)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 12/24/2009 4:02 PM (GMT -6)   
LondonJohn,
You just made my Christmas brighter. Thanks for letting all of us know.
Enjoy the holiday!
Jeff
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