post surgery question

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twotall
Regular Member


Date Joined Nov 2009
Total Posts : 47
   Posted 12/25/2009 4:34 PM (GMT -6)   
 
My bone scan, CT and MRI with coil ( a procedure that is not high on my list of things to do again) are completed and I have a date for surgery.  I live about 8 hours from the hospital so will be staying in a motel for the 5-7 days before the doctor will remove the cat.  My questions concerns the period after I get back to home and job.  I am a weldiing instructor and spend part of each day in front of a class and the other part in the welding shop ( usually 6-8 hours a day).  I don't want to loose this job so want to get back in action as soon as I can.  What have you found that will be a pretty safe control for incontinence while moving around quite a bit.  The heavest thing I have to lift would be small performance welding tests.  I do have an office where I can change and rest if need be but don't want to have an accident in front of the class.   Any suggestions as to type, brandnames, clothes, where to purchuse etc. would sure be appreaciated.  One last question, with the robotic surgery, how long before you could go back to work (assuming a nonlifting type job)? 
Thanks for your help.
 
age 59
2007 psa .6
Oct 2008 psa 9.4
Meds
Dec 2008 psa 11
Bio done 12 core, no cancer
Meds
July 2009 psa 16
Meds
Sept 2009 psa 20
All DRE were normal
Made appoinment at Mayo
Bio, 18 core 2 positive, gleason 3+3 =6
doctor said T2
Robotic scheduled for 1/27/10
 


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 12/25/2009 4:45 PM (GMT -6)   
I did not have DaVinci, but assuming the recovery is pretty similar.

While everyone is different, you are likely to be feeling well enough to work well before you get dry. So, be prepared to wear pads and change them freqently. I went back to work in about four-five weeks. My job had me travel every week, but other than that is a desk job. I went through about 8 pads a day in the begining. Over time it got better.

I tried a number of different brands of pads and liked Tena male guards best.

Best of luck with your surgery.

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/25/2009 5:10 PM (GMT -6)   
    You really need to remember that even though you are having robotic and it is sold as "less invasive"  The only thing that is different than the "open" surgery is how they get inside.  Your body will still have all the trauma and suituring on the inside.  I never realized how much work was done until I saw all the suitures on the inside during a cystogram a few weeks after my surgery.  It will be up to your Doctor when he will release you to work and what restrictions you will have.  I had good luck using the Depends Guards for Men.  I leaked alot so I would make a change every hour or so.  If I tried to push it any longer I would leak out.  I am a welder in a USAF repair depot.  I always carried a spare pad with me.  I would duck into any stall in the mens room and change.  I'd wrap the used pad in the liner they come in.  Then in some more toilet tissue.  I would "palm" it and drop it in the nearest trash can.  Then wash my hands, of course!  At first I was kind of embaressed.  But after a while, I figured Who Cares!  I was always open with "the Guys" about my treatment and condition.  Even needing to use "Manty Liners"
    Good Luck,
    KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
     Dec. 2006 – Oct. 2008 Cystoscope, Two Collagen injections,Second Opinion   
    Consultation for Incontinance at OU Medical Center, Bio-Feedback       
    training, Chiropractic, Accupuncture , AdVance Male Sling, Two More Collagen 
    injections, AUS Installed and Activated (Dr. Morey at UT Southwestern Dallas TX)
    All to try to resolve incontinence (using 6-8 Depends Guards a day)

    To Date All PSA's 0.00.

   http://www.healingwell.com/community/default.aspx?f=35&m=721171

    http://www.healingwell.com/community/default.aspx?f=35&m=978691


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 12/25/2009 10:03 PM (GMT -6)   
Twotall, I think they told me not to lift anything over 20 pounds the first 6 weeks and just after surgery I would think the first week you would not want to lift that muc. Went back to work 2 weeks after surgery but my work was a little on the road and then at home typing evaluations, so not sure what to tell you about teaching but take as much time as you feel you need without worrying about your job. We all probably have some of that job loss fear. I wore depends at first and then pads, but keep in mind my surgery did not go as well as others. I still like loose fitting clothing 7 months post op. Good luck and keep us posted.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Consulting with Primary Urologist for further tx.
Great family and friends
Michael


TeddyG
Regular Member


Date Joined Apr 2009
Total Posts : 133
   Posted 12/25/2009 10:04 PM (GMT -6)   
Tall guy,
It takes about two weeks to get back to work. There is the basic recovery from surgery and the catheter perios which is close to 2 weeks. I went back after the catheter was out and kept a good supply of pads in my briefcase, in my jacket pockets and in my pants. I never passed by a mens room w/o stopping to pee and check out the plumbing. At first it was about 5 pads/day, then I noticed it was 3   etc. After a week or 2, you get used to it. A personal story: I work around alot of women at my law office and I recall talking to them at various times being ULTRA sensitive about my condition. I also teach at the University and was in front of my class with pads. It never showed. You can start with larger highly absorbant pads and you will end with "mini-pads" if all goes according to statistics. Over all I was dry in 3 months.
The recipe- brief style underwear and pads. I used womans pads cut in half. There is no need for long pads that ride your bottom since we are built differently that women.
best wishes,
Ted 
Background:
Age 55, two teens, very fit cyclist (avg 2000+ miles per year) and weight, diet, etc. consistent with good habits. Stressful job as attorney; very supporting wife who is helping me through every stage of this war.
Stats:
2006 PSA - 1.5
2007 PSA - 2.3
2008 PSA - 5.3 (18 mos.)
2009 Jan. 20 - Biopsy 12 samples
        Feb 3 Dx 2/12 samples positive, low volume  (5% and 7-10%)
Gleason 3+4, later downgraded by second opinion at Johns-Hopkins to 3+3, but "it's still PCa" as my Doc said.
Laproscopic surgery April 9,  University of KY Medical Center, Lexington, 3 days in hospital, catheter removal April 21.
Pathology: clear margins, no cancer in prostate: told that this is very rare and Doc has only seen it in 3 out of over 1400 cases; I rearched the concept of "vanishing cancer" and found a tumor classification of tP0 and asked Doc if it applied to me. He said that it was unlikely because if a pathologist had done a much more detailed analysis of the tissue, he would likely find more foci somewhere, and biopsy found "needle in the haystack as opposed to the tip of the iceberg"; Nevertheless, it is a blessing;
Regardless of the science, my family says "miracle."
Now working w/ post-surgery issues....
 


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 664
   Posted 12/25/2009 10:36 PM (GMT -6)   

I went back to work on post-op day 16. I had a limitation on how much I could do in terms of lifting . Dryness issues were not a problem as others above have said. I’m sure you’ll find only a little annoyance while using the pads. I was just open and honest with everybody. Told them when I had to go that I had to go NOW. Everybody was super helpful and gave me lots of privacy. Today is day 53 and I’m no longer using any pads. I still have the odd drip from time to time but nothing requiring pad usage. However if I had to continue to use a pad or so each day I’d be satisfied with the result. I took my catheter out at 6 am on day 9 and i feared that I was doomed because it was a very, very, wet situation. However I was out deer hunting on day 12 and was very pleased with my progress.

Hero


Age 51, PSA 08/31/2009= 6.8, DRE Neg.
Biopsy 9/24/09 =10 of 12 positive. Gleason 6. 75% of one core.
da Vinci at Wash U, Barnes on 11/02/09
Pathology Changed Gleason to 4 + 3 = 7. Gleason 7 present in all 4 quadrants
All(4)periprostatic Lymph Nodes Negative, All(10)pelvic Lymph Nodes negative
Seminal Vesicles tumor free. No prostate extension


brainsurgeon
Regular Member


Date Joined Jul 2009
Total Posts : 137
   Posted 12/26/2009 5:37 AM (GMT -6)   
I am retired, so I cannot advise you on work, but let's be optimistic on the continence. My catheter was out at 10 AM on Monday after DaVinci on the previous Wednesday. By 2 PM that day, I was in control. I still wore Tena pads for several weeks because I awakened several times at night with the urge. Day time, it is nice to be close to a bathroom for some weeks. Now, I sleep the night at 5 months PO. The ED is about 70%, but for an old fart like me, who lost one nerve, that's not bad. Good luck!!
70 years old (1939) USA citizen
Prostatic carcinoma dxed June 2009 by PSA (7.0) and then Bx
PSAs yearly since 2001 ranged 1.52 to 7.0
Neg. CT and BS
4 of 8 biopsies positive (all right side) Gleason Score 3+4=7
Robotic assisted total prostatectomy and node excision July 2009 in Luzern, Switzerland by Dr. Mattei in the Kantonsspital
pT2c G3 pN0 (0/14)
Catheter out in 5 days (home in 3 days)
No incontinence
Potency: beginning tumescence??? at 3 weeks post-op. Still happens at 3 months PO. Nearly usable one month later.
3month PSA less than 0.01


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 12/26/2009 7:43 AM (GMT -6)   
TallGuy
Good luck with your upcoming surgery in January.  As indicated in the replies, experiences afterwards vary.
 
I was told not to do much of anything (no lifting young grandchildren, shoveling snow, vacuuming (!)) for 4 to 6 weeks after surgery.
 
The surgery went very well and after the catheter was out I took another week off before I returned to my volunteer teaching duties which I do for three hours at a time, three times a week.
 
My biggest concern was incontinence - wetting in front of students.  I work with small groups but embarrassment is embarrassment whether it be 5 or 30 students.  The day I got the catheter out I was very concerned because I had little control.  Things improved steadily after this.  When I returned to teaching after 3 weeks I still used a pad just to be safe even though I was dripping just a bit.
 
As for lifting etc., I do not lift anything heavy, but I did lift my grandchild (30 lb) after 3 weeks with no problem.
 
I think another concern for you Tallguy will be tiredness.  I taught for 40 years and I remember when I had hernia surgery twenty years ago (much younger then!!) and I returned after 4 weeks I thought I was back in tip top shape but after teaching for a full day I was very tired.  I did continue to teach but made sure I adjusted my routine for a couple more months -- sitting much more often, making sure I took it easier in the evenings etc.
 
Your job with teaching and welding sounds demanding.  You will appreciate having the couch nearby to have a rest.
 
Please keep us posted how the surgery goes and your recovery afterwards.
 
Skeener

Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 07/10.      


twotall
Regular Member


Date Joined Nov 2009
Total Posts : 47
   Posted 12/26/2009 7:37 PM (GMT -6)   

 

Thanks everyone for taking the time to answer my questions.  I am trying to cover all of the bases that I can before surgery.  I know that everyones experiences are a little different but your imput has been a big help,  Thanks alot.

Bob


 
age 59
2007 psa .6
Oct 2008 psa 9.4
Meds
Dec 2008 psa 11
Bio done 12 core, no cancer
Meds
July 2009 psa 16
Meds
Sept 2009 psa 20
All DRE were normal
Made appoinment at Mayo
Bio, 18 core 2 positive, gleason 3+3 =6
doctor said T2
Bone scan neg, CT neg, MRI with coil indicated cancer still in prostate
Robotic scheduled for 1/27/10
 


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 12/26/2009 8:19 PM (GMT -6)   
Twotall,

One thing to watch out for is not just trying to lift THINGS but lifting yourself.

By that I mean getting up from a crouching or kneeling position (or even sitting position). That'll be a tough one to not leak in the early days.

Hey one other comment on another subject: You had only 2 cores and a 3+3 gleason, yet they did a Bone Scan, CT and MRI??? Wow, if that ain't what is wrong with U.S. medicine and why costs are out of control! None of those really needed to be done. NOT a criticism of you or anything you are doing -- just your Doc. Maybe he has stock in the MRI facility?

Good luck with the surgery..
Age 58, 195lbs, 6'4", 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
Biopsy Nov2008 1 of 12 cores 5%, Gleason 3+3 - Sona showed size 140+ cc (110 grams post op).
02/03/09 open RRP surgery , Nerve sparing both sides, 1 day in hospital, Day 4 first BM,
Pathology Report: All margins clear - No Invasive spread - no change in Gleason score.
02/18/09 Cath out, passed a 1cm oblong STONE within hours.
03/06/09 Started Levitra@20mg / Viagra@100mg / (04/01) Cialis@20mg -- no real effect (thru 11/2009).
04/01/09, 07/07/09, 10/01/09 PSA <0.1 - Stone Was Oxalate stone -- X-ray no stones.
08/09 - started MUSE@1000mcg ... pump&plump - success(80-90%) (alpro ache).
09/09 @500mcg +pump&plump + 2 advil - success(80-90%) - (less Alpro ache).
10/09 TrimixGel (500/300/100mcg): 1st:60%, 2nd:(pump&plump) 60%, 3rd(added 500mcg muse):70-80% -- (no Alpro aches!) but none @ useful hardness!


twotall
Regular Member


Date Joined Nov 2009
Total Posts : 47
   Posted 12/27/2009 1:02 AM (GMT -6)   

 

Jimstars, I wondered about all of the tests also.  My present doctor at first didn't want to do a bio. or any other tests as he thought that I had a prostate infection.   I told him I was concerned because other doctors had given me several different meds. and the PSA kept going up (20 at last check).  He finally decided to do a bladder scope and 18 core bio.  After it came back postive, he told me he wanted to do the other tests because of the high psa level.  I am not real excited about surgery but want the cancer gone if possible.  I also understand the only way to have a good idea of where the cancer is located and the true score is to cut it out and check.  Thanks for taking the time to offer suggestions.

Bob


 
age 59
2007 psa .6
Oct 2008 psa 9.4
Meds
Dec 2008 psa 11
Bio done 12 core, no cancer
Meds
July 2009 psa 16
Meds
Sept 2009 psa 20
All DRE were normal
Made appoinment at Mayo
Bio, 18 core 2 positive, gleason 3+3 =6
doctor said T2
Bone scan neg, CT neg, MRI with coil indicated cancer still in prostate
Robotic scheduled for 1/27/10
 


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 12/28/2009 10:41 AM (GMT -6)   
Twotall,

Yeah with a PSA of 20 he was probably wondering where all that PSA level was coming from and wanted to look around. Maybe not such a bad idea (for using one of those methods at least).

jim
Age 58, 195lbs, 6'4", 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
Biopsy Nov2008 1 of 12 cores 5%, Gleason 3+3 - Sona showed size 140+ cc (110 grams post op).
02/03/09 open RRP surgery , Nerve sparing both sides, 1 day in hospital, Day 4 first BM,
Pathology Report: All margins clear - No Invasive spread - no change in Gleason score.
02/18/09 Cath out, passed a 1cm oblong STONE within hours.
03/06/09 Started Levitra@20mg / Viagra@100mg / (04/01) Cialis@20mg -- no real effect (thru 11/2009).
04/01/09, 07/07/09, 10/01/09 PSA <0.1 - Stone Was Oxalate stone -- X-ray no stones.
08/09 - started MUSE@1000mcg ... pump&plump - success(80-90%) (alpro ache).
09/09 @500mcg +pump&plump + 2 advil - success(80-90%) - (less Alpro ache).
10/09 TrimixGel (500/300/100mcg): 1st:60%, 2nd:(pump&plump) 60%, 3rd(added 500mcg muse):70-80% -- (no Alpro aches!) but none @ useful hardness!

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