feeling strange

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maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 784
   Posted 12/28/2009 1:44 AM (GMT -6)   
Hi everyone, all the best for the New Year, I am in a comfortable place mentally, I should be worried about my rising PSA, in fact I only really think about it a week before I see my Uro. I have spent a wonderful Christmas with my 3 children, and their partners, and my 8 grandchildren, I feel really well, am living life to the full, sleeping without a worry, doing all the things I did before Pca, I have arrived at a place where I realize that there is very little use worrying about what may happen in the future, as I have very little control over how things may progress.

At one stage I started to think that I would die a premature death, and what's the use of planning anything for the future, but soon put that down to negative thinking. The disappointment of not getting to zero Psa after the RP and salvage radiation, has worn off, and I feel calm, and ready to face whatever comes, this is where I am at the moment............... strange.

Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept.
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd August 09 0.6
PSA 25th November 0.6 (I am now 69)
next PSA January 2010


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 12/28/2009 2:00 AM (GMT -6)   
A great attitude Mal. Whenever I get a bit off or crotchety I look around at what I've got........a marvelous wife, two great kids (boy and girl who are twins)........alas no grand kids yet but my wife and I are really putting the pressure on. I have absolutely nothing to complain about (other than my golf handicap but that's another story). To be at peace with yourself is one of life's greatest gifts so more power to you.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01
PSA August 09 (2 year mark), <0.01
PSA December 09 <0.01

My Journey: www.yananow.net/Mentors/BillM2.htm


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 12/28/2009 8:28 AM (GMT -6)   
Greetings, Mal.  That's a great attitute - I always strive to be content with whatever state I am currently in.  Doesn't always happen but that is what my goal is.  Sounds as if you are there - look forward to continued good reports. David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/28/2009 8:46 AM (GMT -6)   
Mal,

When you can reach that level of peace in your mind about your situation, you are doing well. My frame of mind varies depending on how tired or pained I feel. I am trying to tell myself, that year 2010 will be the big year for me, I will be back employed, I will be free of a catheter, and I won't have any more PC related set backs. My family makes the whole thing worth struggling with, that is for sure.

As you move ahead in your journey, you are right, there is only so much we can do ourselves, even only so much our doctors and treatments can do, in the bigger picture of things, you have to accept life as it unravels before your eyes, and enjoy every good thing there is in it.

THinking only the best for you, brother.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 12/28/2009 10:22 AM (GMT -6)   
Hi Mal,

Often our "haves" outweigh our "don't haves" as you have shown us in your message. Thanks for your courage and for your positive attitude.

Nice to hear from you.

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/07 <0.04; 12/07 <0.04; 03/08 <0.04;
06/08 <0.04; 12/08 <0.04; 06/09 =0.06; 09/09 <0.04;
Latest PSA 12/09 =0.05


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/28/2009 11:04 AM (GMT -6)   
I ditto what Barry said...

Mal, we love ya buddy! I feel the same you do. In two weeks I go back to the oncologist with every bit as much uncertainty as the prognosis after surgery, now we are three years later. I just don't have time to worry about it anymore. It is what it is. So stay positive and hopeful.

Peace to you,

Tony
Prostate Cancer Forum Co-Moderator


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4225
   Posted 12/28/2009 11:47 AM (GMT -6)   
Mal,
Your psa has been steady for a year and is at a low level. If you have very agressive PC it would have been already rising at a rapid rate. If it does rise HT should keep it at bay for many years. I have no doubt that you will probably die from something else and that will be years from now.
Enjoy your family; you have many years of productive life ahead of you.
JY

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


kendo
New Member


Date Joined Sep 2009
Total Posts : 12
   Posted 12/28/2009 3:27 PM (GMT -6)   
Hello Mal.
I am still to have my first post RP PSA test (5 weeks to go), and I haven't got my pathology results back yet, so I am trying to keep positive too. It is good to hear you are coping well with your situation and have plenty of support here and from your family. Life is brief, so we, especially, need to make the most of it. My personal choice is faith in God and service to Him, family, and others, which keeps me positive, whatever time I have left.
I hope you continue to stay positive and experience much happiness and many years yet.

Kendo.
Diagnosed from biopsy July 28, 2009.
12 cores - all positive 100%
Stage T2a/T2c Gleason 3+4
PSA 8.2
Due for Robotic-assisted prostatectomy Dec. 11, 2009
Clear bone scan, CT scan, MRI scan


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 12/28/2009 7:10 PM (GMT -6)   
Mal,
We often think of our problems instead of our blessings. I'm almost the same age as you and had a wonderful Christmas with my 4 children and 12 grand children. Like you said, no sense worrying about what we can't do anything about. I hope the best for you.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


Hopeful in MD
Regular Member


Date Joined Apr 2009
Total Posts : 66
   Posted 12/28/2009 7:36 PM (GMT -6)   

Hey, Mal,

You're .1 ahead of me.  See my signature.  Latest PSA .7 after two Lupron shots.  I'm 70, you're 69.  We're both survivors and able to enjoy life.  Go for it!

Gene in Md


Age 70.
Dx Dec 07. PSA 8.4. DRE confirmed tumor. Three of six positive. Gleason: 6 (3+3). Seeds Iodine 125 Jan 08. PSA's 3.9, 1.7. Rising PSA's: 2.3, 3.4, 3.9, indicating  seeds not working.  April 09 began Lupron 30 MG ea. 4 mos.  Side effects hot flashes. Aug 09 - PSA 0.5!!!  Lupron working! Aug. 21 - 2nd Lupron shot.  Aug. 31 - began hyperbaric oxygen for rectal bleeding (radiation proctitis).  50 sessions as of Nov. 24 helped. 10 sessions saved in case they are needed later on.  Dec. 9, PSA 0.7.  Onco DRE negative. Says not to worry about 0.2 rise in PSA.  So far, so good. 3rd Lupron shot Dec. 23, 09.


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 12/28/2009 7:41 PM (GMT -6)   
Hi Mal. You are such an inspiration to the rest of us. I wish some day to not let all this bother me along with all the other problems of the day, work, kids etc., but it hasn't happened yet.

Mika
age at dx 54 now 57
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
ED is getting better
the shots work great, still can't give them to myself
two years of zero's


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 784
   Posted 12/29/2009 5:51 PM (GMT -6)   
Thanks to you all for the replies, best wishes for the coming year ahead. yeah


Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept.
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd August 09 0.6
PSA 25th November 0.6 (I am now 69)
next PSA January 2010


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 12/29/2009 7:11 PM (GMT -6)   
Glad you are doing ok

Great Yogi-ism you came up with

at 67 - I started to think that I would die a premature death
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 12/30/2009 9:35 AM (GMT -6)   
maldugs, am glad you are keeping on, and in such a state of calm. Wishing the best for you on your Journey.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN

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