Update from user 'Newly Diagnosed" treatment plan falling in place- was No Subject

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Whistling Gus
New Member


Date Joined Nov 2009
Total Posts : 5
   Posted 12/29/2009 1:01 AM (GMT -6)   
Hi Friends: This is an update of my postings in early November, then using "Newly Diagnosed" as my display name. I'm much further along now, as follows: my PCa is stage T2B (Gleason score of 3+4); I've met with Dr. Larry Goldenberg who does robotic surgery at the Vancouver General Hospital; he's scheduled me for surgery on March 11, 2010; and he's prescribed hormone therapy medication to decrease my testosterone level, which will hopefully shrink the prostate. The medication is one pill daily of Casodex for 28 days, and one shot of Lupron (which I've now had). So, the course of action is falling into place. I'm now beginning to collect information as to what my post-op life will be like, and I would welcome any information and/or thought which you might like to share with me. Thanks in advance! "Whistling Gus"


added a Subject for archiving and searching. James C.

Post Edited By Moderator (James C.) : 12/29/2009 7:26:07 AM (GMT-7)


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 12/29/2009 10:42 AM (GMT -6)   
Gus it sounds like you have gathered your facts and now you are in the process of developing a tx. plan. Thanks for the update and maybe the others can tell you about the hormone tx as I have not had that, at least not yet. Best to you my friend.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Consulting with Primary Urologist for further tx.
Great family and friends
Michael


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 12/29/2009 2:31 PM (GMT -6)   

Gus - I am scheduled for surgery two weeks from tomorrow.  I've been waiting since the end of November and the time has passed quickly given the holiday season and all. I am starting to get a little nervous but I have faith that everything will be alright. I've weighed the options and for me this is the long term best decision.

As you have done, I've read a lot of information on line and spoken with people that I know who have had surgery.  The hurdles of incontinence and ED will be there to some degree or another, but generally the feedback I have gotten is the surgery is not that bad and recovery is relatively quick especially after getting rid of the catheter.  Good luck

Ray

 

 
 
 
diag 9/09
 
age at diag 54
 
PSA 6/09 1.3
 
stage 2b (biopsy done because of firmness felt on right side)
 
3 positive cores out of 12 (all less than 25%)
 
Gleason 6
 
Surgery scheduled 1/13 at UP with Dr David Lee
 
 


Whistling Gus
New Member


Date Joined Nov 2009
Total Posts : 5
   Posted 12/29/2009 2:52 PM (GMT -6)   
Thanks for your interest, Michael !! And Ray, good luck in 2 weeks ! Whistling Gus

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/29/2009 3:14 PM (GMT -6)   
Hello, and welcome to HW, Gus. Sorry you have the need, but glad you found us.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 12/30/2009 6:35 PM (GMT -6)   
Hello Whistling Gus, love the name.

It's a good question you ask, but one that's difficult to answer. Your post-op life will divide into some very distinct experiences. First, immediate post-op you'll have the fun of a catheter, which isn't all bad as you get to drink as much as you want before going to bed and then sleep the night through --- at least without needing to empty your bladder, which for me was a nice experience. I don't know when it had been I'd slept for eight hours without a bathroom break. And, early on, you'll have pain management, wound care, and wondering how to sit, or lie in the bed, comfortably. The first conversation with the surgeon after is probably a heart stopper as is waiting for the final pathology.

Second, post catheter, there is the joy of pads and wondering if you'll ever be able to hold a drop again. Going for walks. Being amazed at how schwacked you are.

Third, you'll gradually realize life is pretty normal again. Oh sure, ED is a challenge and there's the odd dribble, but one day you find you've been to the office, out to dinner and a movie, and while the surgery was a factor you're so used to whatever the issues are, they are just part of life --- no big deal. What is a big deal is suddenly it's PSA time and you can't help but worry.

The above, I believe, is how it is for most people. Some go through the various stages quickly, some slowly. I'm probably in the middle.

For some the PSA doesn't co-operate and then there's decisions to be made and more treatment to get through.

All in all, while there are some general commonalities, fact is this is a journey that's somewhat unique for each of us.

I suggest the best way to know what you're going to be facing is to start to read HW everyday. Every thread. Over time you'll find in bits here, and bits there, what lies ahead for you, and you'll probably have questions about this, or that. And, when you have questions, there is no better spot than here to get answers.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week. 
Feel free to email me at:  sheldonprostate@yahoo.com    


Whistling Gus
New Member


Date Joined Nov 2009
Total Posts : 5
   Posted 1/3/2010 12:56 AM (GMT -6)   
Hi Sheldon AKA Sleepless: Many thanks ..... I appreciate all the suggestions as to where I should look for advice!!

Cheers!

Whistling Gus

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/3/2010 10:19 AM (GMT -6)   
Sheldon,

That was an excelent re-capture of our lives and events after prostate surgery. Well written.

David in SC

- Is it really suppose to get down to 14 F here in the deep South? Frostbite coming soon.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 1/3/2010 12:01 PM (GMT -6)   
Whistliing Gus welcome!
I will be having surgery on Feb. 5th this place  is a wealth of information.
Many has gone before us and it's sad to say many will follow. I read this link
that has alot of information. Good luck with the surgery. Burlcodad good luck
with your surgery too.
Here's the link
psa 3.09 at time of physical
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
Probability of seminal vesicle or lymph node involement below avg. 5.9%
Relative risk of seminal vesicle or lymph node involvement 32.7% decreased risk
CT & Bone scan negative

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