The Realy Good Things About 2009 and PCa (Chime In Please)

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 12/31/2009 10:01 AM (GMT -6)   
Been doing a lot of thinking about the new year and what 2009 brought to me.

Yeah, I know it brought me Prostate Cancer, but it brought along some other good things too. That's right, PCa came with a few goodies as well.

I have been telling my son for years as he was growing up that my wife and I would help him buy his first car and help with college if he kept to the caveats we imposed;

No permanent marks (tattoos) on the body he was not born with,
No holes in the body (piercings) he was not born with,
And no recreational drugs in the body.

He kept his part of the bargain and will graduate from college in 2010. He has been taking great delight in teasing me about the fact that I now have 3 tattoos (for the rad treatment), I have some new holes (the SP catheter and da Vinci, okay so they healed) and I have found the hopefully wonderful world of ED drugs. Well at least the insurance companies consider them recreational. They won't pay for them.

Lynn and I have found a renewed and wonderful appreciation for life, our relationship and all we have. We truly live with "Every Day is A Bonus" as a sacred mantra.

I have added to my exercise regiment and program with vigor. The ED Penile Rehab Program is one to be addressed with vim, vigor and gusto. We are not there yet, but the rehab program is bringing some wonderful new toys, joys and ideas into our lives. And since it is only following the doctors orders there is absolutely no guilt to be associated with it.

Lynn's bout with H1N1 (and her cancer)and 7 week visit to ICU this summer, brought her to the wonderful world of retirement at the young age of 53. Yep, I married a child bride and oh sooo grateful for it. Well, she would have been a child if I had married her when I was 21, she would have only been 13.

Her compromised immune system and the respiratory scare have put airplane travel off limits for us. So the good news is that we are now RV shopping. Hope to have one in the next few months and start to do a little traveling. Never could get her to agree to sell the house and live in one, but she did agree that having one would be a great thing for us. Oh the small victories in life are sooo sweet.

I worked hard and paid my taxes throughout my life and "Hey Now", it's going to pay off. I don't hesitate for a second in taking my Social Security at the young age of 62 in August 2010. There is no need to wait another 4 years for a few hundred more. That's four years of traveling and having fun while I can enjoy it.

I served my country in the Navy at the young age of 17-21. Now it appears that my country is going to serve me. My PCa is a presumptive outcome of my year in Viet Nam and exposure to Agent Orange. The VA is soon to begin shipping me a monthly check just short of $3000. How's that for gas and lot rental money for taking some trips around the country? And if we are not traveling that month I can just spend it on life's enjoyment.

Our son did take the idea that we plan to travel and enjoy life a little more, in stride even though it came along with some not so good news for him. I told him that without any guilt at all, his mother and I plan to spend his inheritance. So he needs to put a great plan for the future into place. I think his level of maturity jumped a notch on that one.

PCa brought me to HW and you absolutely wonderful folks. The outpouring of love, support and caring is something that Lynn and I will cherish for the rest of our lives. We would have never found you folks without PCa.

So you see, 2009 and PCa have not been all bad by any means. Can't wait to see what 2010 brings with it.

Here's hoping that each and everyone of you have a fantastic 2010 and that you all experience the wonders and joys that it can bring.

Sonny

P.S. Did I mention the wonderful world of the Penile Rehab Program?
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative
da Vinci 9/17/09
Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
NERVES SPARED-positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT scheduled to begin Nov 30,2009 (74 days post surgery)


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 12/31/2009 11:07 AM (GMT -6)   
Well written Sonny and not sure that I can add anything to that other than with bad comes good and when handed a lemon make lemonade. If you watch closely and listen carefully,the little things sometimes bring the greatest joy. It seems that I pay much more attention to the good in life at this time. Anyway enjoy that RV and if you need to adopt a now 61 year old son to travel with you I will be available after March. You and Lynn discuss it.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Consulting with Primary Urologist for further tx.
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/31/2009 12:22 PM (GMT -6)   
Sonny, for me personally, the year 2009 will not be one I want to remember. The high lights were the short vacation with my wife to Florida in April, I was actually well enough at that time to go and enjoy that week. And of course, always grateful for the 100% love, care, and support from my family. And the great friendships and support here at HW.

The rest of 2009, not much to say. Three corrective surgeries for blockages were no fun. Still on a catheter at almost 14 months from surgery. My recurrance came so fast. The SP cath on day 92. And then the 39 days of hell with my salvage radiation. Spent over half the year on catheters. Not really complaining or venting, just how it is for me.

Still officially unemployed since being laid off at the end of July 2008.

So, I am hoping, really hoping that 2010 will be a much better year. I just want to get better, and put this behind me like a bad dream, except since my dx. back in August of 2008, I still haven't woke up from the nightmare.

Thankful to know you and Lynn, you are good people, and you have a much better attitude at the moment than I do.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 12/31/2009 12:39 PM (GMT -6)   
Hi Sonny3,
 
Your attitude towards life and your ability to put it into writing are second to non. Thank you for sharing part of your life with us. You have enriched our site and I can only try to live up to your standard.
All the best to you and yours for 2010 and beyond.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09, = 0.05; July 09, <0.04


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 12/31/2009 12:48 PM (GMT -6)   

Hey Sonny,

Don't forget the bigscreen !

I'll bet you can steal an RV right now with $3.00+ gas.

Your post is a reminder to all of us to look beyond whatever our difficulties are.  There are good things to be found in every situation.  It is way too easy to focus on the bad, which only makes things worse.

Happy New Year to you and Lynn.  May we be finding even more good things this time next year !

Goodlife


Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 12/31/2009 1:15 PM (GMT -6)   
Amen to Sonny and Ohio for their beautiful and true posts. Thank you for sharing your journeys with us.

2009 was a roller coaster of a year. Just when I thought we had John's PCa under control, we had to face what appeared to be the inevitable course of SRT. I get really scared when I think of how close we had come to actually pushing the button on radiation.

If I may share a story with you which is one of faith and religion - those who don't believe are forewarned. We are practicing Catholics and I pray the rosary each day. I have a CD with the rosary that I pray along with on my way to work. My prayer was generally along the lines of "you know what I want but I accept that it may not be. I pray that John's PSA will go down but if it is not to be, then please don't let it be higher." One morning, right before John had the results of his 3rd PSA test, I was praying along with the CD when a voice - loud and clear - came on in my head. The voice said "my Son has heard your prayer; continue to pray for others." From that moment I didn't worry anymore and try to remember as many of you as possible each day.

This year is close to ending and I look back at what I've learned. I can be a stubborn mule and like to have control at all times. With cancer - whether it be prostate, breast, whatever - that's the one thing you don't have. But, we have hope and we have courage and we take strength from those who support us along our journeys. To all here who have supported us on our journey, I say thank you from the bottom of my heart and wish you and your loved ones a most Happy New Year.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009- 0.1, September 0.3, October back to 0.0, December 0.0. Thank you God!


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 12/31/2009 2:05 PM (GMT -6)   
Sonny and Others:
.
Thank you so much for your inspiring stories. 
 
It seems like yesterday that I was celebrating the evening of Dec 31 2008.  Little did I know what 2009 would bring.
 
The PSA test.  The biopsy.  The result PCa with the sinking feeling that life was over.
 
I found this site early on in my diagnosis.  I don't post that often but I do check in to the site often and am buoyed by the people who mentor here.
 
I had my surgery on Oct 23 and progress has been reasonable.  But the story has not ended.  In January I go for my first post op PSA.  I can't focus too much on it or my stomach will tie up in knots.
 
On the good side, PCa taught me to look at my life more closely.  I now spend more time with my family and volunteer helping those in need.
 
At this point I still view each month as a bonus!
 
Wishing all of you a happy new year!!
 
Skeener
 
 
 

Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 07/10.      


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 12/31/2009 2:51 PM (GMT -6)   
Ohio, I truly do hope that we find the key to curing cancer as I've lost way too many dear ones to it: both my mom and John's mom to breast cancer, several friends to the same, my father to stomach, my brother in law and our best man to lung cancer, John's younger brother to lymphoma, and one of the dearest men I'd ever known and was fortunate to work with to pancreatic. That is why I reacted so very strongly when John told me he had prostate cancer - I remember feeling the ground tilt under my feet and thinking "Oh God don't let this be true." But, in spite of the heartache of seeing so many whom I love suffer through their disease, I consider myself truly blessed because they were in my life. I would have loved to have them around a bit longer, but it wasn't meant to be.

Giving of ones self to help others is the most noble calling of all - charity in its finest form.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009- 0.1, September 0.3, October back to 0.0, December 0.0. Thank you God!


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 12/31/2009 3:03 PM (GMT -6)   
2009 was not my best year ever.
However, it was the year I found this site and had gift of learning more about life and meeting some truly great guys. My life is better for it.
Jeff

cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 12/31/2009 5:46 PM (GMT -6)   
Happy New Year to all the brothers and best wishes to all of us for 2010.

Personally I'm more than ready to say goodbye to 2009. Besides the misery and indignity of the PCa and sequelae, I also just had a MOHS surgery to get rid of a basal cell CA on the tip of my nose. It could hardly be seen but when the dermatologist finally dug it all out you could have fit a medium sized grape in the hole. So I went to a plastic surgeon to fix the hole, and guess what? When the bandage came off I had a huge red knob right on the tip of my nose. Just in time for Christmas. Ingrid gasped, said I looked just like Rudolph, and ran down to Kmart and bought me a set of antlers. It must have looked bad because a few days later I went to MacDonalds ordered a cheeseburger, and the smarty pants behind the counter brought me a plate of hay. Then the Bradenton City Christmas Parade got wind of it and began to hound me to lead the festivities. Rodney, I don't get no respect either!

Sincerely, thanks to all the brothers here at HW. You have helped me immeasurably through about the toughest time in my life and taught me so much about our disease and how to get through to the other side. My first post-surgery PSA is coming up next week I now understand the P.I.S.S. (PSA. Interval. Stress. Syndrome) that someone mentioned.

Steve

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/31/2009 5:58 PM (GMT -6)   
Steve, that was a great story about your nose, hopefully it won't be red forever, but what a great holiday fixture you made. I needed a good smile. My best to you and your family.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 12/31/2009 6:12 PM (GMT -6)   
Year 2009 has been a time for healing. I started my retirement this year and have had a chance to travel with my wife. "This country is just beautiful" HW with all you guys and gals has been a great blessing to both myself and my wife. I can not thank you enough for all that you had done for me. I especially with to thank the new friends that I have made here you have enriched my life.

Happy New Year to each and every one of you.

Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 1/1/2010 10:46 PM (GMT -6)   
Sonny,
2009 brought a lot of anxiety and a lot of lessons. Just like you said so well, it is all bad. You learn to live your life with more passion. Even though we will all die some day, having PCa brings that reality home, as a result, you do more planning, and your change the way you live. I have done more traveling in 2009 since I retired from IBM. I spent 15 days in Australia, one week in Key West, one week in N.Y city and more than a week on the road on a coach with my son and daughter and their kids. We went to west Texas, New Mexico and Colorado. I guess having PCa reminds you not to postpone doing what makes you happy. I'm grateful to the Lord for all his blessing and plan to follow my favorite saying:
Yesterday is only a dream, and tomorrow is only a vision but, today well lived, makes every yesterday a dream of happiness and every tomorrow a vision of hope.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 1/2/2010 11:03 PM (GMT -6)   

Hi Sonny,

2009 was a roller-coaster for us. It did bring a new perspective for me...I tried to do some of the many things we'd been planning for a while. We did buy an RV and hope to enjoy it in warmer weather...going south soon, I hope.

Wish you all the best in 2010.

 

Mike


-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving significantly with Trimix at 7 months post-op. Oral ED meds didn't do much.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/3/2010 10:16 AM (GMT -6)   
Mike is correct, mega BBQ appointments await my friend when he and his lovely wife pass south. Got all the best places scoped out. Perhaps I will be well enough when you come this way, and we can to a covered wagon thing with our tiny Shasta trailer.

You have had quite the year yourself, and you are doing great, don't know where you get all your energy from.

Your friend,

David in BBQ Land
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 1/3/2010 1:42 PM (GMT -6)   
Friends and Brothers,

I see that 2009 has brought a mixed bag of things for us all. Your posts do show that the ability to find the good in any situation is the strength we use to continue the fight where needed and to enjoy the blessings of life that are put before us each day.

It is my hope that we can arrange some gathering in 2010 where the most of us can get together and greet each other face to face. There have been some strong bonds formed here.

I look forward to 2010 and all of the positives that it can bring to each of us and our families.

Thanks for chiming in. As usual, I gain a lot from the positive caring and support shown here at HW.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative
da Vinci 9/17/09
Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
NERVES SPARED-positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT scheduled to begin Nov 30,2009 (74 days post surgery)

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