Still No Post-SRT PSA results

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/31/2009 12:15 PM (GMT -6)   
The lab that re-did my first post SRT PSA test told me to call them for results this afternoon.  When I called, they said they just faxed them to my uro/surgeon's office, who ordered them on behalf of my radiation oncologist.  So I call my dr's office, and they closed at noon for the holidays, and won't open again till Monday.  So I have  to still sweat it out another half a week for results that I am paying for.  Very aggervated.  Because I have to see the rad. oncl. on Monday at 10 AM.  These stupid HIPPA laws can work for and against you, I told the lab I could properly identify myself, but they said all they could say was that they faxed  the results, end of the subject.  Not use to having these kind of technicalities on top of the normal PSA worries.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


keysailfisher
Regular Member


Date Joined Dec 2009
Total Posts : 346
   Posted 12/31/2009 6:53 PM (GMT 0)   
Praying for a good report for you.
age 45
psa 3.09 at time of physical
Biopsy results 12/9
Left side base 3+3=6 21% 2/2 cores positive
Left side mid  3+3=6 100% 2/2 cores positive
Left side apex 3+4=7 88% 2/2 cores positive
Right side - 0/6
Probability of seminal vesicle or lymph node involement below avg. 5.9%
Relative risk of seminal vesicle or lymph node involvement 32.7% decreased risk
CT & Bone scan negative


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 12/31/2009 12:54 PM (GMT -6)   
Hi David,
 
Sorry to read that you have to suffer another few days to get your PSA test result. I'll be going to make my 6 monthly donation to the local vampires an Tuesday and then sweat for a week to get my result. I hate this disease!   Hopefully both our test results will make us feel better for the next few month.
Wishing for all the best for you and your family in 2010 and beyond.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09, = 0.05; July 09, <0.04


Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 12/31/2009 12:57 PM (GMT -6)   
Can't they give it to you face to face?

LuvMyDAD
Regular Member


Date Joined Dec 2009
Total Posts : 315
   Posted 12/31/2009 1:04 PM (GMT -6)   
Hi Dave,
I am really sorry you have to sit around and just wait, I know that can be grueling. Try to keep yourself busy, I know that sounds easier said then done. I like to think of worst possible scenarios (say to myself even if it is, its not that bad and I can work with it) and that makes me feel so much better.
It's NYE try to enjoy the time with your family...in summary keep yourself busy!
If there was a chat on healing well actually was active that would be a nice way to keep busy.
LuvMyDAD
Lynne

rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 12/31/2009 1:39 PM (GMT -6)   
Geez. I know you must be climbing the walls by now. To go through what you've gone through and now have the results at the doctor's office. Like everyone here, we are hoping for great news on Monday. I too would be thoroughly pxssed not having the results. Even the doctor should have requested them and called you today!!!!
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
12 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 12/31/2009 1:46 PM (GMT -6)   
What aggravation!!   You have had way more than your share of it!!
 
I hope that despite this travesty you will be able to enjoy the weekend with your family!!
 
Happy new year.  Here's hoping for good results on Monday.
 
Skeener
 
 
 
 

Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 07/10.      


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/31/2009 2:32 PM (GMT -6)   
Now is the time to move on and just have a care free week end. Life has to be more than waiting for test results week after week, month after month. Seeing a goofy movie sounds good for example. I'm headed out to see anything fun...Have a Happy New Year Folks!
 Hilarem datorum diligit Deus


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/31/2009 3:41 PM (GMT -6)   
What the heck are you talking about OS?

I suggested not obsessing and move on to enjoy a nice weekend. Take a mental health day, a break from the worry and let loose for a little fun in life. Now I remember why I took most of 2010 off! Prioritizing stressors.

I, in fact, know a boat load more than most do about cancer and a few other select medical subjects. Most importantly, I know not worrying about the little things we can't change (like the office being closed for the weekend) that really don't do any harm. Those are the easiest in which to let go. PSA results sitting on the Doc's desk is only a worry if Purg let's it be one. It's still gonna be the same come Monday morning so why not take a few days repsite? The only "source" he's getting on this thread is causing stress, not reducing it IMO.

Run Purg...run to the nearest funny movie and laugh for a couple of hours :>) It does a body so much good :>)
 Hilarem datorum diligit Deus


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 12/31/2009 4:05 PM (GMT -6)   
Swimom,
Got to respectfully disagree with you there. With what David's been through this past year I too would be impatiently anxious waiting for some sort of positive news, especially after the lab completely ballsed up the first test. Of course the extra couple of days of not knowing won't make the slightest difference but I guess that as often occurs with doctors, labs, etc, knowing a lot about cancer and/or seeing it everyday and actually having it are two very different things.
Bill

Post Edited (BillyMac) : 12/31/2009 3:09:26 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/31/2009 4:56 PM (GMT -6)   
keysail, thank you.

Mag, thanks, and the same to you and yours as well

squirm, they had to send mine off to somewhere else, but they had been instructed to tell me the number by phone, which in the end they wouldn't do

lynne, thank you to for your thoughts

rob, didnt even know my dr was cutting out early today, knew they would be close friday

thanks too, skeener, best to your family as well

swim, easier to say than to do at the moment, too many recent bad and painful memories, just want to make sure all this was worth going through

thanks billymac, i can always count on you to be the voice of reason, and i appreciate your friendship. this was the only time that my uro didnt handle directly a psa test for me, and it gets all screwed up. you are right, with the never ending agony i have been through the past few months, and even now as i type this, just wanted a simple piece of mind thing, thats all. of course waiting to monday won't impact the rest of my life, others seem to get a little cold on the understanding part.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 12/31/2009 6:35 PM (GMT -6)   
Hi David,

Yeah, me too. Hear you loud and clear. I got my first post_surgery PSA coming up Mon. I'm gonna INSIST that 2010 is a turn-around year and I'll include you in my demands.

Steve

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/31/2009 6:50 PM (GMT -6)   
Thanks, Steve. Will be thinking about you too, that first PSA post is always an anxious moment, hope to see you ushered into the infamous Zero Club. And in your case, hope you get to stay there too!

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 784
   Posted 12/31/2009 11:27 PM (GMT -6)   
Hi David, was anxious about my own post radiation PSA, know how you feel, hope all goes well.

Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept. Totally dry since catheter removed
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd August 09 0.6
PSA 25th November 0.6 (I am now 69)
next PSA January 2010


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/1/2010 9:30 AM (GMT -6)   
Mal, thank you. A question, I know each of our cases differ from man to man, our your doctors ok with your post radiation numbers? Since I don't have any number(s) yet, not sure what to expect to see in the months leading up to the first year after my radiation ended.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 1/1/2010 1:47 PM (GMT -6)   
Hey David,
 
I can understand your aggravation. I'd probably be more peeved than anything.
 
Here's to hoping it will be a very low number and that it stays that way. 
 
Happy 2010 to you and your family and may this be a great year for you.
 
Mike
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving significantly with Trimix at 7 months post-op. Oral ED meds didn't do much.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/1/2010 2:20 PM (GMT -6)   
Thank you, Mike, same to you and your family, you have been there 100% for me, and I appreciate it.

I just need a sense of direction in the new post SRT world. From this point on, according to my radiaton oncologist, any rise in PSA, after this reading, is a sure sign that SRT failed. So it will make future PSA readings a bit more antsy in my opinion, but I will deal with that when and if I have to.

Thanks for being there.

David in sC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 1/1/2010 2:23 PM (GMT -6)   
Hi David,

If you like college football, perhaps that will help with a nice distraction this weekend! tongue

Here's wishing you a great report on Monday.

All the best,

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/07 <0.04; 12/07 <0.04; 03/08 <0.04;
06/08 <0.04; 12/08 <0.04; 06/09 =0.06; 09/09 <0.04;
Latest PSA 12/09 =0.05


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/1/2010 2:29 PM (GMT -6)   
Thanks and hello Barry, not into college football, but big NFL fan, Patriots for 39 years ever faithful. Got plenty to keep me busy, it wasn't not knowing the number as much as the "failure to communicate" on the part of the local hospital's lab in screwing up a very simple thing.

The number is what it is, nothing is going to change that, whether I know or not know, that's for sure.

Have a great year ahead, I think we all need some of that.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 784
   Posted 1/1/2010 7:08 PM (GMT -6)   
Hi David, in answer to your question, initially when my post radiation PSA came back as 0.4, we all thought that the PSA was on the way down and the SRT was a success, as you can see, it hovered around 0.4, 0.5, for quite a long time, and now is 0.6.

The theory is that some Pca cells had escaped into the system, either before or during the RP, obviously they were not present for the radiation to kill, my Oncologist says that wherever they are, they are growing very, very slowly, and being microscopic, are unable to be found until they start to grow, my doctors don't seem very concerned at this stage, probably because I am nearly 70, and the PSA is not rising dramatically. I feel good.

So David, hoping for a better result for you brother. yeah

Seeing my Uro on 27th January.

Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept. Totally dry since catheter removed
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd August 09 0.6
PSA 25th November 0.6 (I am now 69)
next PSA January 2010


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 1/1/2010 7:41 PM (GMT -6)   
David, I know your are frustrated, not so much for the numbers but the lack of communications. Take care my friend and happy new year to you and you family.


Your Brother from the South
Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/1/2010 7:51 PM (GMT -6)   
Mal, your explanation makes perfect sense. For one thing, I didn't think about your age, not that you are old by any stretch of the word. And true, at this point in time, the recurance would be microscopic at best, and may stay manageable the rest of your natural lifetime.

I hope your's stays hovering in that range, or hopefully lower, for years. Hope you get the break there you deserve.

And Jeff, my friend, thanks for the encouragement.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 1/2/2010 9:24 PM (GMT -6)   
Saturday night... Thinking about you, David.

Monday will be here soon, buddy!

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/07 <0.04; 12/07 <0.04; 03/08 <0.04;
06/08 <0.04; 12/08 <0.04; 06/09 =0.06; 09/09 <0.04;
Latest PSA 12/09 =0.05

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