Posted 12/31/2009 7:28 PM (GMT -8)
Yeah, the TRIMIX shots hurt like hell. They don't do that for all patients....it depends on......whatever. They DO "work." But then I'd be in pain for two hours, and sore the next day. If that had been my last "shot" at FUNCTIONALITY, I'd have been grateful for the shots, I guess. I didn't mind the shots themselves, just the pain afterwards, which was quite impressive. Lucky for me, my physician at Hopkins who was handling the ED stuff was willing to do implant surgery, and I had it on Sept. 23, '09 (my original RPP was at Hopkins under a different surgeon, in April '08). The implant "works," there is no pain directly related to the equipment when it's....ahem, in action....but I've had constant pain in that region since Sept. 23 (it hurts to walk, it hurts to sit down, to get up, especially to lie down at night and get up in the morning). It has gotten a LITTLE better as time passes, and I'm optimistic. My G.P. says that the surgeon may have struck a nerve, and that this may be resolved with steroids. In which case, I plan to play major-league baseball, since everyone there seems to be on steroids, anyway. I'm 64, but the steroids work wonders (just ask Mark McGuire & Sammy Sosa, among others). Definitely TRY the TRIMIX. I was determined to get PART of my life back, that cancer had stolen (thymic cancer killed my wife Jeannie in 2005, so I'm p*ss*d at CANCER, period, and anything I can grab back from it, I plan to). To sum up, I am optimistic about the way the implant will turn out, in the long run, for me, and I do not at all regret trying the three "mixes" of shots and all the other apparatuses that I used earlier, nor do I regret the implant. It's bigger (the implant) than I thought, and it's like carrying a fishing tackle box around in my testicles. But the end result is.....better than what I had before. Good luck to you. Sally forth! And don't be too patient a patient. It was only 17 months after my RPP that I went for the implant, and I am glad I did that. (P.S., when my surgeon went in, for the RPP, he found a large blood clot beside the right side of my prostate gland--probably due to the biopsy performed by a urologist in my small hometown--and so they had to remove the nerve bundle on that side, just to dig out the blood clot. Dang, I hate when that happens.)
Oh, one last thing, of relevance to many who read these blogs: I couldn't get my earlier two physicians (both surgeons) at Hopkins to tell me a darned thing in the way of prognosis. My RPP surgeon just told me to go home "and enjoy every single day" (that should've come with a fortune cookie, but didn't), and after that guy left, another surgeon gave me very little help, and no encouragement (I have Gleason 7 [4+3], downgraded after surgery from the Gleason 9 I had on biopsy). So, I asked the surgeon whom I was considering for my implant, "Am I wasting my time and the insurance money to get an implant, if I'm just going to kick the bucket in a few years?"
He told me two things: (1) In a "worst-case scenario, I had 7 or 8 years left to live," so I could enjoy the implant in the meanwhile, and (2) even if I was taking hormone deprivation therapy, etc., later, I could still "pump it up" and enjoy. He didn't realize it, but he had given me the FIRST real "prognosis" I had heard from any doctor previously -- and I'm realistic, he cannot predict the natural history of my own particular prostate cancer -- but it was good that HE thinks that I have a "worst-case scenario" of 7 to 8 years. That's a hell of a lot more info than I had been given previously, by any doctor. So I immediately said, "I want the implant surgery," and so it was.....
By the way, if you haven't read my entry "Wanna hear some GOOD NEWS about PCa" that I entered on this site about five or six days back, go read it. It really DOES give most men with PCa hope for a longer life than they may been expecting.
Myself, I plan to take my new implant 'equipment' and go on tour with Tiger Woods next year. By then, I may be on steroids, so who knows how my golf game will go. And, besides, I'm not going to be touring with Tiger for the *golf,* anyway. Grin.