Pre-op aggravation

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compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 1/2/2010 12:12 PM (GMT -6)   
Ok, I'm a bit pissed off.
My surgery is set for 1/25 with Dr. Menon at Ford Hospital (a 3-hour drive).
 
Anyway, I have a whole bunch of lab tests/chest x-ray/EKG to do.
I checked with our local hospital's lab a few days ago. I brought in the paperwork and they said no problem, they do all that stuff.
 
This morning I went to get it done (new flexible spending account replenishment as of 1/1/10 so I cleverly waited until today).
 
Well, you know where this is going. One of the many tests is some kind of comprehensive profile that includes a ton of tests, including: globulin and A/G ratio. Well, the comp. test done here does not do those and they have no idea where to send it out (or IF it can be sent out).
 
Anyway, I had them do everything else (7 vials of blood). I'll be checking with Ford Hospital. Hopefully, they will say don't worry about those two tests. If not, I'll be calling around to see if there is a local lab that can do it or if they can draw my blood and send it to Ford.
 
Pisses me off. Hopefully, it turns out to be a minor inconvenience (anything short of having to drive to Ford to get it done would be just an annoyance).
 
Mel
63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


TeddyG
Regular Member


Date Joined Apr 2009
Total Posts : 133
   Posted 1/2/2010 12:40 PM (GMT -6)   

Oh, I guess we all forgot to mention the adminitrative hassles that accompany the physical, surgical and anxiety hassles. It is all a test.

Deep breath.

Ted


Background:
Age 55, two teens, very fit cyclist (avg 2000+ miles per year) and weight, diet, etc. consistent with good habits. Stressful job as attorney; very supporting wife who is helping me through every stage of this war.
Stats:
2006 PSA - 1.5
2007 PSA - 2.3
2008 PSA - 5.3 (18 mos.)
2009 Jan. 20 - Biopsy 12 samples
        Feb 3 Dx 2/12 samples positive, low volume  (5% and 7-10%)
Gleason 3+4, later downgraded by second opinion at Johns-Hopkins to 3+3, but "it's still PCa" as my Doc said.
Laproscopic surgery April 9,  University of KY Medical Center, Lexington, 3 days in hospital, catheter removal April 21.
Pathology: clear margins, no cancer in prostate: told that this is very rare and Doc has only seen it in 3 out of over 1400 cases; I rearched the concept of "vanishing cancer" and found a tumor classification of tP0 and asked Doc if it applied to me. He said that it was unlikely because if a pathologist had done a much more detailed analysis of the tissue, he would likely find more foci somewhere, and biopsy found "needle in the haystack as opposed to the tip of the iceberg"; Nevertheless, it is a blessing;
Regardless of the science, my family says "miracle."
Now working w/ post-surgery issues....
 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 1/2/2010 1:36 PM (GMT -6)   
Compiler,

Those two can be done at HFM prior to surgery. Shouldn't be a problem.
 Hilarem datorum diligit Deus


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 1/2/2010 1:55 PM (GMT -6)   
Don't be surprized if H.Ford does not accept their tests (might happen), in my multiple opinions gig, I found that hospitals don't always like someone else doing their tests, not sure if it is liability or billing reasons thing and this might not apply to your situation either. Try Hurley in Flint or Genesys there too, maybe they run all those tests???


Youth is wasted on the Young-(W.C. Fields)


Zen9
Regular Member


Date Joined Oct 2009
Total Posts : 314
   Posted 1/2/2010 2:05 PM (GMT -6)   

I had to threaten to take my surgery elsewhere and literally walk out of the exam room into the hallway before M. D. Anderson would accept certain basic pre-op test results (EKG, basic bloodwork, etc.) from another well-respected hospital in town.

Zen9


No family history of PC.  PSA reading in 2000 was around 3.0 .  Annual PSA readings gradually rose; no one said anything to me until my PSA reached 4.0 in September 2007, at which point my internist advised me to see a urologist.   
Urologist advised a repeat PSA reading in six months = 4.0 .  Diagnosed May 2008 at age 56 as a result of 12 core biopsy.  Biopsy report by Bostwick Laboratories = Gleason 3 + 3. 
Interviewed two urologists - the one who did the biopsy and another - the latter had the biopsy slides re-examined = Gleason 3 + 3. 
Then went to M. D. Anderson Cancer Center in Houston in July 2008 and met with a urologist and a radiologist.  Biopsy slides re-examined yet again, this time by MDA's internal pathology department = Gleason 3 + 4.   
Chose da Vinci surgery over proton beam therapy; surgery performed at M. D. Anderson Cancer Center on August 15, 2008.  Post-operative pathology report = four tumors, carcinoma contained in prostate, clean (negative) margins, lymph nodes clear, seminal vesicles clear.  Gleason = 4 + 3. 
Minor temporary incontinence; current extent of ED uncertain due to lack of sexual partner; refused treatments for ED as being pointless under the circumstances. 
PSA readings: 
November 2008 = <0.1 ["undetectable"]
June 2009 = <0.1   
December 2009 = <0.1
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/2/2010 2:37 PM (GMT -6)   
I would definitely make sure that the Ford Hospital would accept all the test results from elsewhere. Or pehaps you have already done that.

David

PS I certainly understand the aggervating part.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 1/2/2010 2:51 PM (GMT -6)   
Mel,

Take this one off your worry list IMMEDIATELY. I came home from my first visit with Dr. Menon with the same list of test, xrays, ekgs and so on. Took the list to my GP and gave it to them. Some of the tests they did in house (EKG, Xray, etc.) some of the blood work they sent out.

NO PROBLEM. The whole purpose of the testing is for the anesthesia and other surgical pieces of the process. They just want you to do them ahead of time to save you time hanging around HF waiting for the results to come back.

Carl Arletta first thing Monday and let her know what's going on. I am sure she will have suggestions on a "work around" for you.

They (HF) will accept all of the tests results you get back, from wherever you get them. It is just a part of the process.

DON'T WORRY----BE HAPPY---as the song goes. No sense getting worked up about this one. It is just a bump in the road. Take your foot off the gas and the bump won't seem so big. LLOOLL

Call me if you want to talk about this more. Now kick back and enjoy the weekend,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative
da Vinci 9/17/09
Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
NERVES SPARED-positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT scheduled to begin Nov 30,2009 (74 days post surgery)

Post Edited (Sonny3) : 1/2/2010 12:55:16 PM (GMT-7)


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 1/2/2010 2:53 PM (GMT -6)   

When I did my consultation at Ford they said I could do the tests at my local lab.

Otherwise I would have had them done right then and there!

I probably should have, but my back was hurting and it had been a long day. Ford seemed to have no problems with my doing the tests locally!

 

I am irritated at my local lab first saying no problem and now suddenly yes problem. I think this will just turn out to be a very minor annoyance.

 

Mel

 


63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 1/2/2010 2:56 PM (GMT -6)   
We've had the pleasure of off site tests more times than I can count...thank you managed care!
Like Zen said; occasionally ya gotta practically threaten em. IMO, it's all about keeping money in house and less about computerized charting.

A/G ratio might be either standard practice for HFM (not necessarily HFH) or, for someone who has an auto immune disorder or, has received blood transfusions in the past. I can see it either way.

Compiler, if you can, have all results faxed over to you and to your surgeon's office as soon as they are available. Give it oh, maybe two days, then do a follow up with Menon's office to make sure they received them. Works for us to manage the distribution of off site tests. After a couple of times, it isn't so bad.
 Hilarem datorum diligit Deus


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 1/2/2010 3:03 PM (GMT -6)   
Sonny:
 
I am not that worked up. Ford seems to be great to work with. So far, it is just a VERY small ANNOYANCE. As I said, it would seem that at WORSE they would have me get blood drawn to send to them (to do the remaining small portion of the tests). I would be very surprised if I had to make a special trip down there. At BEST, they may say forget that, we don't need it.
My annoyance is with our local lab. We don't live in podunkville either. Our hospital is supposed to be the major medical center in mid-Michigan. LOL.
 
Incidentally, did they (Ford) give you a patient liasson person? They have a lady named Nancy Long who has been very helpful. She gave us her 24/7 cell phone number. Her job is to smooth out any such bumps. We already contacted her and she will follow up and get us an answer, probably on Monday.
 
Mel
63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 1/2/2010 3:07 PM (GMT -6)   

Swim:

The test orders from Ford request that the results be faxed to them. I will absolutely be following up (but I'll give them a week; I think some of the tests have to be sent out).

I also am having the results sent to my family physician. I can then go into his office and they will make the copies for my own records. Then I'll have them and I can fax any missing results myself.

 

This stuff could become a real problem if left to the last minute!

 

Mel

 


63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/2/2010 3:11 PM (GMT -6)   
Mel, you will get through this just fine and be right on track for the big day

David
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 1/2/2010 3:48 PM (GMT -6)   
Compiler,

Sounds like you got the orders all set to fax labs. Now, if only they actually read them :>) We do a follow up for the simple reason, U of M is huge. The right and left frequently gets stuck in the middle and of course, no one knows a dog-gone thing. We run into it all the time because our kids have to go to the U but our insurance hasn't always done the same.
 Hilarem datorum diligit Deus


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 1/2/2010 4:46 PM (GMT -6)   

Swim:

 

Again, just have results sent to your local doctor's office. I assume you can then get copies.

 

Mel


63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 1/2/2010 9:48 PM (GMT -6)   
I understand your aggrevation. When I went in for my tests, I was stresed out. Matters only got worse when they asked me to confirm that I was having a kidney removed. I basically broke down.... Hope it is all over for you soon. You haven definitely stayed on top of things.
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
12 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 1/2/2010 11:07 PM (GMT -6)   
Don't take the advice of the well-meaning but uninformed folks around here  - check with the hospital doing the surgery first.  If there's any chance the hospital will not accept testing done elsewhere then go to Ford to have it done.  This isn't some sort of game, or playful "testing" of temperment - it can have life or death consequences.  My hospital, one of the best in the nation, wouldn't accept test results from any other source, either.  Part of the reason is probably legal liability, while other concern is over competence or your surgeon having (or not) confidence in the testing standards.  You seem to continually be fighting the process but if you just followed instructions from the medical team things would move more smoothly and be less stressful.

Age:  60 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1/2 light pads per day)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0; 9/09: 0.0

 


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 1/3/2010 1:40 PM (GMT -6)   

Gee Whiz, Mavica:

Why do you think I am fighting my doctors? I have no clue as to how you would come to that conclusion.

On the contrary: as I posted, when I went for my consultation at Ford they indicated that I could do the tests locally. In fact, the lab forms instruct that the results be faxed to them.

 

I THOUGHT I MADE THAT CLEAR!

 

Mel

 


63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


zachattack
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 1/3/2010 4:48 PM (GMT -6)   
Mel remember it is better to be pissed off than pissed on.sit back and go with the flow.

Zach
age 55dx 12-2008,psa at biopsy 8.6
biopsy 12/12 gleason 3+4=7
da vinci surgery 6-09 nerve sparing by DR. John W. Scott (my hero)
Hospital 3 days cath 7days still leaking from cough(bad lungs)
still have ed may be the hormones.
9-09 psa 2.2 hormone inj
10-09 nuclear bone scan no results yet I will have gold markers placed 12-29-09
start rad 1-10-10
organ confined
extracapsular seminal vesicle involvement
lymph node involvement


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 1/3/2010 5:00 PM (GMT -6)   
Compiler,
You and the other uninformed members here need to listen to mavica and stop questioning your medical team and/or primary care physician's instructions and opinions. After all their only interest is your well being. rolleyes
Bill

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 1/3/2010 5:37 PM (GMT -6)   

Billy:

 

Then I better not try inactive surveillance

 

Mel


63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4274
   Posted 1/3/2010 7:42 PM (GMT -6)   

Mel, I'm not sure why Mavica and Billy are on your case.  It seems to me that you have pretty much done everything right.  You have been very organized and thorough with great follow through.  And, you have taken the initiative to take responsibility for your own situation without blindly accepting advice from either the medical community or "the uninformed members here" (to quote Billy and Mav).  IMHO, it's ok to vent a bit about the medical bureaucracy which, after all, is all you really did with your post....

Keep going man...and good luck in a few weeks.

Tudpock


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 12/09.  6 month PSA 1.4 and now 1 year PSA at 1.0.  My docs are "delighted"!

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 1/3/2010 8:26 PM (GMT -6)   
Tudpock18 said...
Mel, I'm not sure why Mavica and Billy are on your case. It seems to me that you have pretty much done everything right. You have been very organized and thorough with great follow through. And, you have taken the initiative to take responsibility for your own situation without blindly accepting advice from either the medical community or "the uninformed members here" (to quote Billy and Mav). IMHO, it's ok to vent a bit about the medical bureaucracy which, after all, is all you really did with your post....

Keep going man...and good luck in a few weeks.

Tudpock


I am a little disappointed my sarcasm flew right over your head.
Bill

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 1/3/2010 8:36 PM (GMT -6)   
Seems as tho everyone has some kind of pet peeve in thos game.

From unclear responses from the myriad of lab and heath care workeres to uninformed HW responders.

Mine was the pre-op interviews at the hospital. After writing out all my medical history, I then had to repeat it to the nurse, and PA.

It was all forgiven when the doctor said it was gone, and the margins were clear, and he even left me some nerve fibers.

It will be OK !

Goodlife
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 1/3/2010 8:41 PM (GMT -6)   

Tud:

 

I think Billy had his tongue firmly implanted in his cheek.

 

The other post was from a parallel universe.

 

Mel


63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/3/2010 8:44 PM (GMT -6)   
Mel, think you are doing fine with this whole process. You have done your homework well, and have asked a million good questions, and got a good range of opinions.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place

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