new gay member saying hello

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tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 1/2/2010 8:36 PM (GMT -6)   
-just posting a note to say hello -
-this seems like an interesting and supportive site
-I was diagnosed with PC in October 2009 and had a RP in November 2009.
-I am doing ok emotionally and occasionally frustrated with incontinence.
- ED is an issue but signs are hopeful.
-wishing you all the best for 2010.

tatt2man
............
Age: 54 - openly gay - with common-law spouse of 13 years - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Biospies: October 8, 2009 - 12 specimens taken rectally
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous, Gleason 7 (4+3)
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Catheter: in November 18 - out December 8, 2009
Incontinence: Life brand - Male Guards - extra absorbant - one for day - one for night - leaking on standing, quick movement, walking up stairs -
Incontinence Exercises: standing Kegel excercises - pelvic thrust (ala Rocky Horror Show Time Warp Dance) 20 reps x 5 times daily
Post Surgery Biopsy: - n/a
Post Surgery PSA: - n/a
ED:- some difficulty before surgery - after surgery - loss of length - 1-2" - some arousal 4 weeks after surgery - girth increase but not length
ED Therapy: use of water-based Bathmate pump - increase in girth and a little in length -
ED Prescription: n/a


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 1/2/2010 9:36 PM (GMT -6)   
Welcome aboard Tatt. On your stats you put na for post op PSA, is that because they are undetectable or because have you not had them? Anyway thanks for the well wishes of 2010 and hope that for you as well.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Consulting with Primary Urologist for further tx.
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/2/2010 9:55 PM (GMT -6)   
Hello and welcome, Tatt, Glad you found us, and looks like you are well on the recovery side of things. Hope you continue to post here, great place to be.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 1/2/2010 9:57 PM (GMT -6)   
Michael:
Thank you for the welcome.
I posted N/A in those spots in the signature since I do not have those figures as of yet.
I have the appointment with the Surgeon/Urologist with my partner, Steve, on January 7, 2010.
We will then find out the details of the RP surgery - the margins, extent of and positioning of the cancer in the prostate, etc, as well as if I will need radiation or chemotherapy or not.
I will attempt to start discussion regarding ED and recommended therapies.
I am keeping my fingers crossed.
Wishing you and your family all the best.
Hugs.
BRONSON
..............
Age: 54 - openly gay - with common-law spouse of 13 years - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Biospies: October 8, 2009 - 12 specimens taken rectally
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous, Gleason 7 (4+3)
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Catheter: in November 18 - out December 8, 2009
Incontinence: Life brand - Male Guards - extra absorbant - one for day - one for night - leaking on standing, quick movement, walking up stairs -
Incontinence Exercises: standing Kegel excercises - pelvic thrust (ala Rocky Horror Show Time Warp Dance) 20 reps x 5 times daily
Post Surgery Biopsy: - n/a
Post Surgery PSA: - n/a
ED:- some difficulty before surgery - after surgery - loss of length - 1-2" - some arousal 4 weeks after surgery - girth increase but not length
ED Therapy: use of water-based Bathmate pump - increase in girth and a little in length -
ED Prescription: n/a


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 1/2/2010 9:59 PM (GMT -6)   
David in SC:
Thanks for the welcome - it is gonna take some time to learn how to translate all the abbreviation and word-stats or is that stats-words?
Hugs.
BRONSON
..............
Age: 54 - openly gay - with common-law spouse of 13 years - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Biospies: October 8, 2009 - 12 specimens taken rectally
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous, Gleason 7 (4+3)
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Catheter: in November 18 - out December 8, 2009
Incontinence: Life brand - Male Guards - extra absorbant - one for day - one for night - leaking on standing, quick movement, walking up stairs -
Incontinence Exercises: standing Kegel excercises - pelvic thrust (ala Rocky Horror Show Time Warp Dance) 20 reps x 5 times daily
Post Surgery Biopsy: - n/a
Post Surgery PSA: - n/a
ED:- some difficulty before surgery - after surgery - loss of length - 1-2" - some arousal 4 weeks after surgery - girth increase but not length
ED Therapy: use of water-based Bathmate pump - increase in girth and a little in length -
ED Prescription: n/a


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 1/2/2010 10:04 PM (GMT -6)   
Welcome to the club that hates to get new members.
At a month and one half post surgery you are doing well. One pad day and one pad night is good -- expect improvement at night before the day. It is very early for any ED improvement -- many doctors say 6-9 months to get over the surgery.
You say "ED Prescription: n/a" you might want to search this site for AllDayChemist.com -- an Indian pharmacy with both good prices and recommendations from many members.

Remember that you have been through major surgery even if through small incisions and are still doing a lot of recovery.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 1/2/2010 10:12 PM (GMT -6)   
thanks geezer99 -
I had the front version of a radical prostatectomy - so lovely neat incision line with staple marks from belly button to pubic mound - thanks for the pharmacy site -
happy new year and hugs
BRONSON
..............
Age: 54 - openly gay - with common-law spouse of 13 years - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Biospies: October 8, 2009 - 12 specimens taken rectally
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous, Gleason 7 (4+3)
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Catheter: in November 18 - out December 8, 2009
Incontinence: Life brand - Male Guards - extra absorbant - one for day - one for night - leaking on standing, quick movement, walking up stairs -
Incontinence Exercises: standing Kegel excercises - pelvic thrust (ala Rocky Horror Show Time Warp Dance) 20 reps x 5 times daily
Post Surgery Biopsy: - n/a
Post Surgery PSA: - n/a
ED:- some difficulty before surgery - after surgery - loss of length - 1-2" - some arousal 4 weeks after surgery - girth increase but not length
ED Therapy: use of water-based Bathmate pump - increase in girth and a little in length -
ED Prescription: n/a


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/2/2010 10:12 PM (GMT -6)   
No problem, Bronson. You are doing fine, there are some good help to HW Prostate Cancer at the top of the page. Your pathology report should show you a lot of about what you may or may not be dealing with in the future. For your sake, hope you make easy passage into our great"zero club" when you get your first PSA reading.

David in SC

PS Where are you at, geography wise, if you don't mind.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 1/2/2010 10:18 PM (GMT -6)   
David in SC
(assuming South Carolina, U.S.A)
I am in Peterborough, Ontario, Canada - population 74,000 - just 1-1/2 hour east of Toronto ( our province's capital - and how far I have to travel to see my family doctor)
hugs
BRONSON
.............
Age: 54 - openly gay - with common-law spouse of 13 years - 59
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Biospies: October 8, 2009 - 12 specimens taken rectally
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous, Gleason 7 (4+3)
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Catheter: in November 18 - out December 8, 2009
Incontinence: Life brand - Male Guards - extra absorbant - one for day - one for night - leaking on standing, quick movement, walking up stairs -
Incontinence Exercises: standing Kegel excercises - pelvic thrust (ala Rocky Horror Show Time Warp Dance) 20 reps x 5 times daily
Post Surgery Biopsy: - n/a
Post Surgery PSA: - n/a
ED:- some difficulty before surgery - after surgery - loss of length - 1-2" - some arousal 4 weeks after surgery - girth increase but not length
ED Therapy: use of water-based Bathmate pump - increase in girth and a little in length -
ED Prescription: n/a


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 1/2/2010 11:11 PM (GMT -6)   
Bronson, Welcome to HW. Read a few of the post and you will get the hand of the lingo quickly. If you get stumped just ask. All these terms and letters have been new to us at one time or other. Sounds like you are doing very well in you healing process. We have many guys from Canada on HW.

From you discription my guess is you had the same surgery and David and Myself (open radical) It seems like most of the guys here have had the DaVinci Surgery.

Best of luck on your healing. Do not hesitate to ask any question.

Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 1/2/2010 11:27 PM (GMT -6)   

Hey Bronson,

Welcome and hope your first PSA is zero. It's still a bit early to determine erectile function. I'm 8 months out from open RP and am just getting some good improvement with trimix. I was lucky on IC side...none within 48 hours of catheter removal. Everyone is a bit different with recovery.

 

Good luck


-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving significantly with Trimix at 7 months post-op. Oral ED meds didn't do much.


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 1/3/2010 8:33 AM (GMT -6)   
Bronson,
Welcome to our site and sorry you have to be among us. I'm 55 had my davinci surgery in Aug, 2009. I have many good friends that are gay even though I'm straight. You will find this site to be very supportive.
 
Larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 1/3/2010 9:11 AM (GMT -6)   
Larry- thank you for your posting - that is very re-assuring.
Peterborough is a small city-town of 74,000 and is viewed to be homophobic in nature with a good number of gay men very closeted (and / or married to women).
My partner, Steve, and I will be attending our first local Prostate Cancer Support group meeting in late January. We will go to it with an open mind and just go with the flow and see if we are comfortable there. I have been told by the moderator of the group that spouses are welcome - which includes Steve.
Will update you when I get the test results this week on the post-op meeting - having to make a list of what to ask and what pathology details to note -
happy new year and hugs
BRONSON
............
Age: 54 - openly gay - with common-law spouse of 13 years, Steve - 59
.................
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Biospies: October 8, 2009 - 12 specimens taken rectally
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous, Gleason 7 (4+3)
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Catheter: in November 18 - out December 8, 2009
Incontinence: Life brand - Male Guards - extra absorbant - one for day - one for night - leaking on standing, quick movement, walking up stairs -
Incontinence Exercises: standing Kegel excercises - pelvic thrust (ala Rocky Horror Show Time Warp Dance) 20 reps x 5 times daily
Post Surgery Biopsy: - n/a - get results January 7, 2010 -
Post Surgery PSA: - n/a
ED:- some difficulty before surgery - after surgery - loss of length - 1-2" - some arousal 4 weeks after surgery - girth increase but not length
ED Therapy: use of water-based Bathmate pump - increase in girth and a little in length -
ED Prescription: n/a
...........
location: Peteborough, Ontario, Canada
............


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 1/3/2010 9:29 AM (GMT -6)   
Bronson I am so glad you found our little club. We do not encourage nor enjoy when people have to join however when it happens we welcome people with open arms. I hope you stick with us and participate in the discussions. You will find a wealth of knowledge and experience here at HW. I look forward to hearing from you often.

peace and love
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 1/3/2010 9:46 AM (GMT -6)   
Dale - thank you for your kindness
- one question I have been afraid to ask our American cousins ( especially with the heated health care reform debate on the USA news) but how much is all this costing you ( the "metaphorical you" )?
- my surgery - RP - and hospital stay (ward level -in nov 18 out nv 21) was covered by our Canadian universal healthcare plan - in the province of Ontario, it is OHIP. From what I have seen of the rising costs of health care in USA - let alone what I imagine the Da Vinci method and followups would cost the uninsured individual -
- dry humour time - whenever I see Da Vinci mentioned , I flash onto some historian finding old sepia toned drawings of Michelangelo's outlining his new surgical procedures - (sorry , that is the artist side of my brain working)
hugs
BRONSON
..............
Age: 54 - openly gay - with common-law spouse of 13 years, Steve - 59
.................
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Biospies: October 8, 2009 - 12 specimens taken rectally
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous, Gleason 7 (4+3)
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Catheter: in November 18 - out December 8, 2009
Incontinence: Life brand - Male Guards - extra absorbant - one for day - one for night - leaking on standing, quick movement, walking up stairs -
Incontinence Exercises: standing Kegel excercises - pelvic thrust (ala Rocky Horror Show Time Warp Dance) 20 reps x 5 times daily
Post Surgery Biopsy: - n/a - get results January 7, 2010 -
Post Surgery PSA: - n/a
ED:- some difficulty before surgery - after surgery - loss of length - 1-2" - some arousal 4 weeks after surgery - girth increase but not length
ED Therapy: use of water-based Bathmate pump - increase in girth and a little in length -
ED Prescription: n/a
...........
location: Peteborough, Ontario, Canada
............


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 1/3/2010 9:57 AM (GMT -6)   
Bronson
 
Welcome to the site.  You will find these guys very supportive.
 
Had my RRP on Oct 23 -- little earlier than you.
 
Travelled Highway 115 from the 401 to Peterborough many many times over the past thirty years to get from London Ontario to my childhood hometown of Deep River.
 
Skeener
 


Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 07/10.      


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 1/3/2010 10:20 AM (GMT -6)   
Oh the cost you had to mention it. Well for me I had a high deductible $3400 and then the hospital I chose was out of network so it only paid 80% up to a point then it paid 100%. The first year I had out of pocket of over $30K and last year was about $10K out of pocket. Now that my PSA is rising again I hate to think what 2010 will bring. No matter what I have love joy and happiness in my heart and the situation will not be bigger than I can handle. It will however be much more than I can afford.

peace to you my friend
Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 1/3/2010 10:38 AM (GMT -6)   
wow!!!! 41 days from biopsy to radical surgery that may be a record.
Diagnosed 11/08/07 - Age: 58 - 3 of 12 @5%
Psa: 2.3 - 3+3=6 - Size: 34g -T-2-A
 
2/22/08 - 3D Mapping Saturation Biopsy - 1 of 45 @2% - Psa:2.1 - 3+3=6 - 28g after taking Avodart - Catheter for 1 day -Good Candidate for TFT(Targeted Focal Therapy) Cryosurgery(Ice Balls) - Clinical Research Study
 
4/22/08 - TFT performed at University of Colorado Medical Center - Catheter for 4 days - Slight soreness for 2 weeks but afterward life returns as normal
 
7/30/08 - Psa: .32
11/10/08 - Psa.62 - Not unexpected bounce after the 80% drop the quarter earlier. Along with urine flow readings, an acceptable amount left in bladder measured by sonic. Results warrant skipping third quarter tests, and to return April, 2009 for final biopsy scheduled to
complete clinical research study 
 
April 2009 12 of 12 Negative biopsy
10/12/09 - Psa .30
 
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/3/2010 11:12 AM (GMT -6)   
Realziggy, I thought that too reading this new friend's post. My surgeon wouldn't even consider the surgery with me, until a min. of 8 weeks from my last biopsy till first surgical date. They tend to like the old prostate healed up before removal.
Perhaps in Canada, schedules are different, don't know how much choice a person has under that system.


Bronson,
I have been fortunate with the cost part. I was dx. after being laid off from my job, my boss paid my premiums for 6 months so that i could be covered, that got me through the big surgery, then at open enrollment, my wife picked me up on her insurance and they had to accept prior conditions. Just forunate timing mostly. I have only had to pay $40 USD out of pocket so far, for my open surgery, 4 days in the hospital, 3 more corrective day surgeries, and 39 days of radiation treatments. I did have to pay $150 out of pocket for an ER visit with one of my many catheter emergencies, but then t he insurance company later refunded us the money..

David in western South Carolina (live in a small city of 20,000 just outside of Greenville by the mountains)
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 1/3/2010 11:20 AM (GMT -6)   
Hello tatt2man,

A welcome from me too. Hey, you are recovering well and doing better than I am on the incontinence issue. I just got the bill from Moffitt Cancer Center in Tampa and it was a little over $23,000, which so far Medicare has paid 100%.

Happy New Year

Steve

Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 1/3/2010 11:29 AM (GMT -6)   
Purgatory said...
Realziggy, I thought that too reading this new friend's post. My surgeon wouldn't even consider the surgery with me, until a min. of 8 weeks from my last biopsy till first surgical date. They tend to like the old prostate healed up before removal.
Perhaps in Canada, schedules are different, don't know how much choice a person has under that system.


Haven't we kept hearing about all those long and lengthy waiting lists up north with their national healthcare?

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted 1/3/2010 11:43 AM (GMT -6)   
Hey Bronson,

Welcome to the club brother. No tats here - just DaVinci scars in the shape of a squinty Happy face.
It sounds like you are doing great. I am jealous.
I like your physical therapy technique for incontinence. I've got to keep control... I tried jumping jacks, sit ups, kegels, jogging, zapping myself with a TENS unit. But I am still at 3 pads per day. I'm will to give Time Warp a try. It's just a jump to the left...


Realziggy: I might tie the record. I had the results of my PSA with my Uro, 23.2, 4 days later had the biopsy (I was very high risk in 5 categories) and 41 days later had my date with DaVinci. Do I get a cookie?
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next?
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
. 9/27 2 months: Still 3 pads per day.
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day Experimenting with Nyquil for 10 days: Can sleep through the night but withdrawal is bad. Stopped 12/20.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 1/3/2010 12:41 PM (GMT -6)   
hiya guys -
I am overwhelmed and relieved at such a positive response to my initial posting.

The turnaround time from initial consultation to surgery varies of course depending on the patient, the doctor and results of testings.
The alleged delay and wait time has been exaggerated in the media for the benefit of those who are against health care reform in the states - as we all know, surveys and opinion polls can be altered ( elimination of or inclusion of data) to show their own side of the story.

My family history - father's side - DAD- prostate cancer 12 years - died due to parkinsons - mother's side - Mother - sarcoma age 47- 1974- still around to bug the daylights out of me and my sister :) - Uncle - bladder cancer - age 57 - died of heart failure 20 years lated - grandpa - colon cancer - prostate cancer - died of heart failure - grandma - lung cancer - died age 60.

My family doctor in Toronto ( unable to find a GP in Peterborough) actually called me at home to make me find an Urologist here in Peterborough - when was the last time a family doctor called you at home?! - my last time was in the 1970's. I was refered to my Urologist/surgeon from Peterborough Hospital - he is well respected and does 2-3 prostatectomies a week .
NOTE: the majority of the population of Peterborough -74,000 is made up of College students and retired citizens -
-
When I got my results from the initial biopsies - the PSA had inscreased in 1 month from 3.64 to 3.86 - and 6 of the core samples taken were cancerous - on both sides- gleason level 7 (4+3) - I asked him if there were any options - and we both agreed it was an No-ifs-and-or-buts - radical surgery was the route to take.

I told him my main focus was "get it out of me!!" and do what you know what to do once you get inside - that included saying, if the nerve bundles looked suspect - don't spare them just for the chance of a boner ( is that acceptable? - the humourous side of me) -

I think I followed up on what was of interest - if not remind me - dementia runs in my family - both sides! - so it is so nice to run into new people every day...
happy new year and hugs
BRONSON
..............
Age: 54 - openly gay - with common-law spouse of 13 years, Steve - 59
.................
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Biospies: October 8, 2009 - 12 specimens taken rectally
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous, Gleason 7 (4+3)
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Catheter: in November 18 - out December 8, 2009
Incontinence: Life brand - Male Guards - extra absorbant - one for day - one for night - leaking on standing, quick movement, walking up stairs -
Incontinence Exercises: standing Kegel excercises - pelvic thrust (ala Rocky Horror Show Time Warp Dance) 20 reps x 5 times daily
Post Surgery Biopsy: - n/a - get results January 7, 2010 -
Post Surgery PSA: - n/a
ED:- some difficulty before surgery - after surgery - loss of length - 1-2" - some arousal 4 weeks after surgery - girth increase but not length
ED Therapy: use of water-based Bathmate pump - increase in girth and a little in length -
ED Prescription: n/a
...........
location: Peteborough, Ontario, Canada
............


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 1/3/2010 12:47 PM (GMT -6)   
Worried Guy said...
Hey Bronson,

Welcome to the club brother. No tats here - just DaVinci scars in the shape of a squinty Happy face.
It sounds like you are doing great. I am jealous.
I like your physical therapy technique for incontinence. I've got to keep control... I tried jumping jacks, sit ups, kegels, jogging, zapping myself with a TENS unit. But I am still at 3 pads per day. I'm will to give Time Warp a try. It's just a jump to the left...


Realziggy: I might tie the record. I had the results of my PSA with my Uro, 23.2, 4 days later had the biopsy (I was very high risk in 5 categories) and 41 days later had my date with DaVinci. Do I get a cookie?
Jeff


I understand your PSA and its rate of velocity being a major factor. But as purgatory said it's SOP to wait until at least 8 weeks to avoid surgical complications from a still traumatized prostate. It's just unusual is all.

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 1/3/2010 1:00 PM (GMT -6)   
When you see your doctor be sure to get a copy of the pathology report -- no matter how well you both listen, you won't remember everything. Waiting for the report is painful for most (the rest are liars) but the chances are in the 70%-80% range that the recommendation will be to wait and watch your PSA tests.

Some of the terminology may sound frightening, so be sure to ask questions -- for example "positive margins" sounds bad but is usually only a slight worry.

If your doctor doesn't do it for you, you can plug your path statistics into the slone-kettering nomograms (see the permanent links at the top) to get the probabilities that you are cured.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day

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