My last PSA prior to SRT was .16 as a reference. I went by my uro and picked up the delayed test results, and my first post SRT came in at .12. Didn't know quite how to interpet the number, figured it would be more of a new baseline. By percentages, it went down 25%, but we are talking microscopics amounts of PSA to start with.
Then took that to my Radiation Oncologist. She said she was worried that it might have continued to rise, indicating a non-local event. But she was hoping for a clean knock out blow, she fully expected it to come well under .10 limit for the zero club. She said unfortunately, there is not much chance of it going down any lower. She wants to do another PSA by my Uro in April, 3 months out, she said if it stays where it's at, I could be ok for several years, but if it goes up even a 1/100th, or .01, then I would be on way to recurrance again. I already knew if that happens, I was out of curative means to deal with it. So we didn't discuss that.
She reacted the same way my uro/surgeon reacted when my first Post Surgery PSA came in at .05, and not lower, he pretty well knew it would rise.
She is a big believer in the dangers of Gleason 7 from a predictability vantage. Depends how much "4" cells are floating around. Some apprerently are far more agressive than others. Both doctors feel the same way about that, and both prescribed to the real danger in the PSA velocity theory, and in doubling time.
Nothing more I can do on the physical side of my PC at this time. Three months, I will get another PSA, and hope for the best. I am hoping for a cure still, or at least a long repreive. If not, and the ugly beast re-appears in my life, its my intention to let nature run its course. Probably get some flack for saying that, but have been giving a lot of thought about my life and quality of life issues, and what I have been through so far.
No disrespect to any brother on HT, short term or long term, I know it can help lengthen one's life when in need, or help shrink tumors to more managable sizes, but at this point, I don't want to go down the HT or chemo path. You guys have seen how ultra sensitive my body is to this journey at each step of the way.
I don't want to be a perpetual patient the remainder of my life. My next goal, and it will start next Monday, a week, I will be with my uro/surgeon about getting this annoying and painful SP catheter out of me. Current thinking is still to have a quick day surgery procedure, he can remove this, dialate and re-open my bladder neck ,and insert a Foley catheter for healing purposes, all while I am safely blacked out into the next world. Don't want another traumatic and painful even in his office.
Not giving up, just accepting what my reality is right now. As we all say often, it is what it is.
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place