First Post SRT PSA & Radiation Oncologist Visit

New Topic Post Reply Printable Version
68 posts in this thread.
Viewing Page :
 1  2  3 
[ << Previous Thread | Next Thread >> ]

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/4/2010 11:11 AM (GMT -6)   
My last PSA prior to SRT was .16 as a reference.  I went by my uro and picked up the delayed test results, and my first post SRT came in at .12.  Didn't know quite how to interpet the number, figured it would be more of a new baseline.  By percentages, it went down 25%, but we are talking microscopics amounts of PSA to start with.
 
Then took that to my Radiation Oncologist.  She said she was worried that it might have continued to rise, indicating a non-local event.  But she was hoping for a clean knock out blow, she fully expected it to come well under .10 limit for the zero club.  She said unfortunately, there is not much chance of it going down any lower.  She wants to do another PSA by my Uro in April, 3 months out, she said if it stays where it's at, I could be ok for several years, but if it goes up even a 1/100th, or .01, then I would be on way to recurrance again.  I already knew if that happens, I was out of curative means to deal with it.  So we didn't discuss that.
 
She reacted the same way my uro/surgeon reacted when my first Post Surgery PSA came in at .05, and not lower, he pretty well knew it would rise.
 
She is a big believer in the dangers of Gleason 7 from a predictability vantage.   Depends how much "4" cells are floating around.  Some apprerently are far more agressive than others.  Both doctors feel the same way about that, and both prescribed  to the real danger in the PSA velocity theory, and in doubling time.
 
Nothing more I can do on the physical side of my PC at this time.  Three months, I will get another PSA, and hope for the best.  I am hoping for a cure still, or at least a long repreive.  If not, and the ugly beast re-appears in my life, its my intention to let nature run its course.  Probably get some flack for saying that, but have been giving a lot of thought about my life and quality of life issues, and what I have been through so far.
 
No disrespect to any brother on HT, short term or long term, I know it can help lengthen one's life when in need, or help shrink tumors to more managable sizes, but at this point, I don't want to go down the HT or chemo path.  You guys have seen how ultra sensitive my body is to this journey at each step of the way.
 
I don't want to be a perpetual patient the remainder of my life.  My next goal, and it will start next Monday, a week, I will be with my uro/surgeon about getting this annoying and painful SP catheter out of me.  Current thinking is still to have a quick day surgery procedure, he can remove this, dialate and re-open my bladder neck ,and insert a Foley catheter for healing purposes, all while I am safely blacked out into the next world.  Don't want another traumatic and painful even in his office.
 
Not giving up, just accepting what my reality is right now.  As we all say often, it is what it is.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


clearwatercowboy
Regular Member


Date Joined Oct 2009
Total Posts : 135
   Posted 1/4/2010 11:21 AM (GMT -6)   
David,
 
So sorry to hear about your PSA, after all that you have been through.  And, trust me, you get no flack from me about not proceeding to HT.  I know that this must have been a real slap in your face but let's all  send good wishes to you for the April PSA readings.  Just maybe, that level will hold down and not rise.
 
Wishing you better days ahead.
 
Dallas
RRP May 04, 2009
Pre-op Gleason 6
Post-op Gleason 7


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 1/4/2010 11:24 AM (GMT -6)   

Hi David.........sorry you didn't get the knock out result you were looking for. We were praying for better. Since I'm not well versed in the nuances of SRT, is there a chance that there is a delayed effect to the radiation, and hence a possible decrease in the PSA#?.......that it could go down in the ensuing 3 months? I certainly hope so. Not going to try to change your mind or comment on your choice to perhaps forego further treatment. I get the quality/quantity issue. I've done the hypotheticals for myself; imagining scenarios and such. You and I are the same age (although with very different stats)---presenting a really tough decision for one to make. Get the catheter out, check the PSA in 3 months, then revisit, eh?

take care,

Arnie in DE

 

 


Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1


Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 1/4/2010 11:39 AM (GMT -6)   
Hi David,
I'm not sure I quite understand. I was under the impression that PSA nadir post SRT took at least 9 months.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/4/2010 11:42 AM (GMT -6)   
Thanks, Dallas

Arnie, if I still had a prostate, it would be normal to maintain some level of PSA after radiation, and with many that use RT as a first line of defense, you can even get a "PSA Bounce" where it can go up after x amount of time. That is because you still have a prostate producing legitmate PSA.

My doctor(s) had indicated in this salvage situation, that there should be no reason to indicated any PSA at this point, assuming that the cancer was still located in my prostate bed, and assuming it hadn't already escaped prior to radiation.

Not blaming the doctor, she gave me a big dose of radiation for a secondary treatmet, at 72 gys. She did that, because of my previous PSA and velocity issues, hoping to knock it out of the park.

She felt strongly that it would not be realistic for it to drop anymore at this point, that it would better to think of it holding its own in the future. Time will tell.

I have known from day one, that the long term prognosis for guys with sharp velocity and doubling times aren't very good. There are plenty of studies of that.

Right now, more interested in wanting to get out of the patient mode, and let me have a chance to live my life without tubes and pain. This catheter has been in me now for 96 days, and that doesnt count the other 101 days of catheter time I have had since my main surgery.

There is no bitterness in my thoughts about this, I have just reached my limits of patience on the matter. Feel like I was the good patient, and did all I was told to do, but I have had enough.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/4/2010 11:45 AM (GMT -6)   
squirm, perhaps under some circumstances that is correct. my dr feelings were with that mega dose of radiation on such a small psa recurrance should have knocked it out of existence. Be nice to think she is wrong, but she is a very smart and experienced radiation oncologist.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 285
   Posted 1/4/2010 11:45 AM (GMT -6)   
David I can only imagine the toll on your immune system during the past year. You've been pretty beat-up physically so I suspect as you recover so will your natural defense against any stray cells left. The jury is still out but I take the 25% drop as a positive sign (and that is what my radiation oncologist told me in the three scenarios... lower initial psa = good; the same initially = as expected; higher = not so good).

Our best,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
radiation setup scheduled 01/05/10, 35 sessions follow


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4227
   Posted 1/4/2010 12:00 PM (GMT -6)   

David,

Sorry to hear the results of your PSA. This is not the end. I know you are dead against HT, but it is effective for a lot of patients and can keep the PC unter control for many years. Better to hit it while the psa is still low and doesn;t get a chance to set up anywhere.

Good luck with everything.

JT


64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 1/4/2010 12:02 PM (GMT -6)   
Hi David,
I hope she is wrong and hope as time goes on your PSA continues to fall. I just keep wondering in back of my mind that perhaps she's comparing it with someone who was also doing HT at the same time as SRT.

Regarding the quality of life issue if God forbid the pc does come back, please at least consider intermittent HT.

Hoping the best for you.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/4/2010 12:02 PM (GMT -6)   
Jake, the radiation does a major job on your immune system. My system was strange prior to all this, in that, and I dont mean it in a boasting way, but I virtually never get colds, coughs, sorethroats or ears, flus, etc. Proably been more than 10 years since I had a cold, cant even remember last time I ever had fever. Also, I seem to be immune to any thing outside that causes allergies, and I live near Greenville SC which is usually rated #1 in the US for allergies. Also obliviouus to exposure to poison oak and ivy.

But having said that, I seem to be a cancer magent, this PC is my 4th bout of cancer in the past 10 years. Yeah, I know it sounds contradictary. The human body is a fickled thing.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4156
   Posted 1/4/2010 12:04 PM (GMT -6)   

Hi David:

I can't say I blame you for feeling the way you do after all you have been thru for the past year+.  I guess there is not much you can do for the next 3 months except get out of patient mode and hope for the best.  Hopefully, by then you will have recovered your strength and energy and will be prepared to face whatever you find.

I certainly wish you all the best and will pray for a speedy recovery period and good news in 3 months.  In the meantime I think your empathy for others has filled a real need on this forum and I know we are all pulling for you.

Tud


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 12/09.  6 month PSA 1.4 and now 1 year PSA at 1.0.  My docs are "delighted"!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/4/2010 12:35 PM (GMT -6)   
Tud, thanks sincerely. There is nothing more I can pro-active at this point on my own case. I am hoping above hope, that I can still beat the odds and percentages. No one really knows that until you get there. Not so much about giving up, as it is accepting things the way they really are. I would be happy right now to going back to being cath free longterm/forever, dry again as I was before this round of caths got in the way, and hopefully maintaining my mirraculous no ED situation, at least for a while longer. When and if, and that's a big question, my situation were to take a nose dive in the wrong direction, I will simply re-evaluate my life and options when in that situation, so I am not going to worry myself to death about "what if" at the next juncture. I played the PC game by the book, and what I go is what I got. I'm ok with that part.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 1/4/2010 12:47 PM (GMT -6)   
Hi David,
 
It would have been nice if your PSA reduction was a bit better than 25%. However, my situation is not un-similar to yours. My PSA, about 3 weeks after SRT, went down only 50% (.05 from .1), but went down to <.04 on  the next test 6 month later. So you see, your PSA may well be lower in 3 or 6 month from now. I'm going to the lab later today to make a donation for my next 6 month test. I'll see what the result is in about a week from now. Keep your chin up David. In 3 month from now your PSA may well be on it's way to zero. At least that is my wish for you from me, and I'm sure, from all the guys on this forum.
All the best to you David.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09, = 0.05; July 09, <0.04


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 1/4/2010 12:52 PM (GMT -6)   

David

I wish you the best.  Hopefully the PSA will hold steady.  Best of luck and peace to you and your family. 

 Thanks for all the kindness you have given to me and other here. 

Ray

 


diag 9/09
 
age at diag 54
 
PSA 6/09 1.3
 
stage 2b (biopsy done because of firmness felt on right side)
 
3 positive cores out of 12 (all less than 25%)
 
Gleason 6
 
Surgery scheduled 1/13 at UP with Dr David Lee
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/4/2010 12:52 PM (GMT -6)   
Mag, thanks and true enough. I will be anxious for my next one in April, I think it will tell me a lot more of what is going on this one. I was hoping for me, and obviously my rad. oncl. did too, but time will tell. Hoping a lot of things will be better by April.

Our situations have been very similar for sure, I stay concerned for you as well, my brother.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 1/4/2010 1:06 PM (GMT -6)   

David, I 2nd Magaboo's comments. Maybe it will be lower in 3 months and stay low. I don't know enough about salvage RT (after RP)and baseline/reference immediately after, but, hope that's the case for you...that it does go down.

I also 2nd other comments like Tud's about the empathy and support you've shown to so many people here. Thanks for that and please know that we're all pulling for you.

All my best, friend.

 

Mike

 


-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving significantly with Trimix at 7 months post-op. Oral ED meds didn't do much.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/4/2010 1:22 PM (GMT -6)   
Ray, thanks for your kindness too.

Mike, you have been and are a good friend, always appreciative of that fact. I can only report my doctor's thoughts and feelings, which I did above, and she absolutely doesnt believe in blowing smoke up peoples axx, and I a like that about her, my Uro is the same way. But she doesn't know what it will be in 3 months, and neither do I. Just being realistic about the situation. I plan to keep on keeping on, and helping as many as our brothers as I can, both new friends and old friends. PC is a tough road, even when it goes picture perfect. It's never easy, and all of us wish it probably never happened. Got to stick together. The sadest part about being here, and sure its a common feeling/reaction, is that there is an endless line of new brothers finding their way here, and unfortunately for many, needing to enter our group. But rather this be here, then for someone to go through all this alone.

I hope you keep going as well as you have been, you been a toughie really, and you keep on keeping on yourself.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 1/4/2010 1:44 PM (GMT -6)   
David my brother,

PCa is a fickle bastich as you know so well, so let us all hope that the PSA is a blip and the lower numbers are on the horizon.

I know you and I have talked at length about HT and I know we are both of the same mindset. I finished treatment #26 today and have only 9 to go. I plan to do the recommended PSA tests after that, if it is say 3 or 4 months out. At that point, I personally don't plan to have any more done. I have done the surgery and am now nearing completion on the rad, I figure that's enough energy spent on PCa. It's kinda like that movie a few years ago when the newscaster prompted everyone to yell out the window "I've had enough and I'm not gonna take it anymore.

I am just going to get on with the life I have with my lovely wife and enjoy the hell out of it. You know Lynn's situation as well as most people here, so I plan to spend the time traveling with her and making her happy. I just have to figure that if there are any PCa cells left after the rad it would take a long time before they really impact my life. I can't see myself worrying about the next PSA test all the time. It would sure put a damper on life from day to day. I just don't want to waste the energy on it.

So in the meantime Lynn and I will be sending lot's of positive thoughts and energy your way for a lifetime of 0's.

Be well my brother and give Peggy a hug for us,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative
da Vinci 9/17/09
Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
NERVES SPARED-positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT scheduled to begin Nov 30,2009 (74 days post surgery)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/4/2010 2:01 PM (GMT -6)   
THanks Bro. Sonny, you seem to always have the right thing to say. Yeah, I think we are pretty well of the same mind set at this point. How you want to deal with it in the future, and to be able to devote your times and energy to Lynn is 100% understood by me. I plan to go 2 more PSA tests out from here, at 3 months more, then 3 months after, it should show me the general picture by then. I don't want it hanging over my head forever either. There use to be a lot of things I enjoyed doing, like to get back to them while I can enjoy them.

I don't literally mean this, but in some ways, I wondered what it would have been like if I have never had a PSA test or ever agreed to the series of biopsies I underwent. I would still be blissfully ignorant of what was going on inside my body, and still having sex the good old fashioned way, and thinking I would live forever.

Thanks for your friendship. you have been great ever since you arrived at HW.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 1/4/2010 3:08 PM (GMT -6)   
David
 
Hang in there brother.
 
It is really hard when one of our members doesn't get the PSA result that we all had been praying for.
 
David, you are one of our best mentors.  We want you to be around for years and years.
 
I hope today's bump in the road (admittedly one of many for you) is just that -- another bump.  You've steered a good course all these years.  We are all hoping the best for you!
 
Skeener

Age:  63 
Biopsy: May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason Score: 3+3.
RRP on Oct 23/09 in London, Ontario.  Excellent surgeon. 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.
Pathology:  Unremarkable 
First followup PSA and Visit: Feb 07/10.      


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 1/4/2010 3:24 PM (GMT -6)   
David,
I can understand perfectly your thinking on this after all the treatments and pain you have been thru. My thinking is probably in line with yours. Will start my IMRT on the 18th and we will see where it goes from there. I will stay positive and as our brother Sonny likes to say, live large. Wont waste many moments from here on out and will make it all count by taking the time to create as many memories as I can with family and friends. Rather go out like a meteorite than in a NH.
Take care my friend and hope that your next psa offers new hope as well.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Consulting with Primary Urologist for further tx.
Great family and friends
Michael


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 1/4/2010 3:32 PM (GMT -6)   
Get another test in 4 weeks, always confirm trends with psa values, then get another one after that. Just a suggestion from......your campfire pal.  Why wait for them, go get another test somewhere else and compare values, compare a few times to confirm what is what...it is a second opinion in a way. Verify everything with PCa is in your best interests.


Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 1/4/2010 2:43:31 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/4/2010 3:32 PM (GMT -6)   
Skeener, thank you. A PC path can have so many twists and turns, we never know what we are going to get out it. When you look at averages with things, it usually takes extremes on both sides to come out to "average". Just like with our treatments and procedures.
I will patiently wait the next 3 months and hope that my number either starts moving down (I dont care how slow it does either), or at least doesn't start inching up. I have used up my surgery card and my radiation card.

Michael, appreciate your thoughts on the matter. Cancer makes every person afflicted do a lot of soul and inner searching, about life and other matters. Can be a good wake up call too. Some men have revitalized a stale marriage after going through cancer, other's make major life changes, others get their families together in ways never seen before. I definintely know what is important in my life, and what isn't. I think its healthy to do some self reflection in our own lives.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


6071
Regular Member


Date Joined Jul 2008
Total Posts : 112
   Posted 1/4/2010 3:41 PM (GMT -6)   
Hi David
sorry to hear about your psa test results but i think the radiation is still working your psa is down 25%
i think the 9 months test will tell
and I wondered what it would have been like if I have never had a PSA test and still be blissfully ignorant
Wishing you all the best
Age 61 at DX
Biopsy 7/2008 Positive 1 of 12 cores positive 3+4 5% To 10%
Open Radical Prostatectomy 15/10/2008
Stage pt2c
Post op staging Gleason's Score 3+4=7
apical margin is focally positive
no extraprostatic extension
Seminal vesicles and lymph nodes clear
Catheter out on the 13/11/2008
4 week PSA < 0.1
26/1/2009  < 0.1
20/4/2009 < 0.1
11/6/2009 ultra sensitive psa 0.07
20/7/2009 < 0.1
26/8/09 Starting photon 3D CRT
13/10/09 Radiation Finished
25/11/09 ultra sensitive psa < 0.05
 







mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 1/4/2010 3:47 PM (GMT -6)   
[

Post edited to remove quoted material from another post that I had already removed for rules violation, resulting in this post becoming empty...sorry about that if I confuse you all...
smilewinkgrin

Post Edited By Moderator (James C.) : 1/4/2010 5:19:16 PM (GMT-7)

New Topic Post Reply Printable Version
68 posts in this thread.
Viewing Page :
 1  2  3 
Forum Information
Currently it is Saturday, June 23, 2018 4:42 AM (GMT -6)
There are a total of 2,974,453 posts in 326,177 threads.
View Active Threads


Who's Online
This forum has 161281 registered members. Please welcome our newest member, Paw Paw.
292 Guest(s), 1 Registered Member(s) are currently online.  Details
sandyfeet