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Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 1/6/2010 7:49 AM (GMT -6)   
Well, I made a pact with myself when my catheter was removed on October 14th of 09 that I would be leak free and pad free by January 1st, 2010. I made it! It is so nice to not feel dependent.


It was a lot of hard work doing the pelvic floor exercises twice daily but it paid off. I also supplemented this with visualization. I would visualize being able to go pad free in my mind.



Whether it was luck, a good surgeon, or my work, I am most grateful for the result.



Next hurdle is my first post-op PSA on January 25th.



Keep well,

Regards,

Bill

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 1/6/2010 7:56 AM (GMT -6)   
Cool on being dry and we have our fingers crossed for more got fortune.
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 1/6/2010 8:28 AM (GMT -6)   
Bill,
Congratulations! No Pads! There's a tree in the Amazon smiling today because of you.
Don't worry, Kimberly Clarke is still safe. I'll pick up the slack for you.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next?
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
. 9/27 2 months: Still 3 pads per day.
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day Experimenting with Nyquil for 10 days: Can sleep through the night but withdrawal is bad. Stopped 12/20.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/6/2010 8:43 AM (GMT -6)   
Bill, my friend, that is wondeful news, I know were you dedicated on that project and kept a great attitude about it. We will be all hoping to pull you into the all inclusive, executive level of the "Zero Club", with all honors due to you. So glad you are doing so well.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/6/2010 8:49 AM (GMT -6)   
Good deal, great news. Glad to read that you ar meeting your goals and wishing you success in the rest of them..
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 1/6/2010 8:54 AM (GMT -6)   
Bill,
Congratulations on being dry in such a short time. I hope the rest of your recovery goes well. I'' be looking for your first post-op PSA and hoping for a fat zero.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


brad2513
Regular Member


Date Joined Oct 2009
Total Posts : 22
   Posted 1/6/2010 9:04 AM (GMT -6)   
    Bill
congratulations on reaching your goal.
Allthought I have not really needed pads for about four weeks I still used them, and have given them up for new years. Cold weather and stress seams to be the only problem. I just had to tell myself I would be fine, and so far everything is.
 
Also good luck on the 25th.
I do mine on the 12th.
age 46
diognosed age 45
PSA 3.9
preop and postop gleason score 3+4
daVince robotic surgery at Fremont area medical center, Fremont NE, 9/30/2009
stage T2c
involvement 2%
perineural invasion focal
extraprostatic extension, seminal vesticle, and lymph nodes negative
apex margin negative
peripheral margins positive, left dorsolateral 0.8, and 0.3mm, right dorsolateral 2.0mm


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 1/6/2010 1:33 PM (GMT -6)   
Hi Bill,
 
Congratulations on reaching your goal and start living again without those pads yeah  Looking forward to welcoming you to the zero club towards the end of the month.
Wishing you all the best.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09, = 0.05; July 09, <0.04


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 1/6/2010 6:40 PM (GMT -6)   
Bill,

Congratulations ! I wish I could say I was so goal oriented, but I just headed that direction. I think time can overcome personal laziness.

I am very active in the workplace. I may be climbing ladders up to overhead cranes, working in control cabinets, lifting 80 or 100 lb pieces of equipment, etc.

I was very good about kegels for the first several months, but gradually relaxed, doing them periodically.

I got down to one pad a day, which was really more of a protective device than a pee catcher.

I made my move during the Christmas Holidays. I have been riding bareback for almost 2 weeks. Can't say I don't dribble a little here or there, but my underwear is adquate to catch it.

It does feel good. Now, off to my next PC side effect !

Goodlife
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 1/7/2010 7:22 AM (GMT -6)   
Thank you to everyone for your words of encouragement. The next hurdle is coming and I will let you all know what happens on the 25th.

Keep well,
Regards,
Bill

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 1/7/2010 8:04 AM (GMT -6)   
Bill, Great news for the New Year.  It is nice to be pad free. 
 
Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.

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