Gene Autry Said it BEST

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 1/8/2010 4:50 PM (GMT -6)   
The song is" Back in the Saddle Again"  Had Dr visit today.  Meeting with Caverject.  WOW is all I can say.  Should have done this 9 months ago.  I am a new man!
 
Jeff T


Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 1/8/2010 5:03 PM (GMT -6)   
Jeff,

Does this mean that a road trip to Florida won't be happening anytime soon. Don't blame you at all. Use up all the drugs first and then you can use a trip to recharge the batteries.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative
da Vinci 9/17/09
Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
NERVES SPARED-positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT scheduled to begin Nov 30,2009 (74 days post surgery)


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 1/8/2010 5:07 PM (GMT -6)   
Sonny, Still making the trip. Working on the schedule this wkend. Will let you know when. You will be the 2nd to know.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 1/8/2010 5:10 PM (GMT -6)   
The drive is not that long, but be sure to take 2-3 days (overnights) to get here if the drugs are working that good. I know I would. LOL

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative
da Vinci 9/17/09
Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
NERVES SPARED-positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT scheduled to begin Nov 30,2009 (74 days post surgery)


Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 1/8/2010 5:10 PM (GMT -6)   
Hey Jeff, ride em cowboy.
 
.........................Regards Kev
 
 
PS. I am missing something here, or is that a typo in your signature, I have often seen it and meant to ask 3+3=7 ?
Age 51yrs
6 out of 8 cores positive 3 X 60% / 3 X 10%
PSA 4 Gleason Score 3+4=7 Stage T1c
Robotic Surgery 24/12/08
Upgrade Gleason Score 4+3=7 Gleason Differential 60%/40%
Stage T2c Three small foci total volume <10%
Neg Margins and Nodes
Nil - Extraprostatic Extentions
Dry less than 1 week. ED- okay with Meds.
PSA at 12mths no change remains 0.03
"Everyday in Everyway I get better"


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 1/8/2010 5:31 PM (GMT -6)   
Details, man, we want details........pain level, aching level, successful consummated, how long it lasted, what did the doc do, don't hold back, fella tongue devil smhair yeah
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/8/2010 5:48 PM (GMT -6)   
What wonderful news to read this evening, my Cajun Brothers!!!! I am so glad you went to that new dr. Bet you can't wait to put it to good use, now you can do it, all night long!

Your friend to the north. Don't forget to head one of your vettes this way soon too.

David in SC

If the Vette is a rocking, don't come a knocking
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 1/8/2010 6:50 PM (GMT -6)   
Everybody be careful when asking Jeff "What's up?"

Woo-hoo

Tony
Prostate Cancer Forum Co-Moderator


zachattack
Regular Member


Date Joined Dec 2009
Total Posts : 97
   Posted 1/8/2010 7:03 PM (GMT -6)   
I bet he's runnin around lookin like a carousel pony.

Zach
age 55dx 12-2008,psa at biopsy 8.6
biopsy 12/12 gleason 3+4=7
da vinci surgery 6-09 nerve sparing by DR. John W. Scott (my hero)
Hospital 3 days cath 7days still leaking from cough(bad lungs)
still have ed may be the hormones.
9-09 psa 2.2 hormone inj
10-09 nuclear bone scan no results yet I will have gold markers placed 12-29-09
start rad 1-10-10
organ confined
extracapsular seminal vesicle involvement
lymph node involvement


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 664
   Posted 1/8/2010 7:23 PM (GMT -6)   

Hang a towel on it and sing   " oh lord it's hard to be humble!"

Hero


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 1/8/2010 7:33 PM (GMT -6)   
Yea you dogs. You know you love it. Never thought of myself as a carousel pony in that department. ( far from it) Might be able to hang a towel. LOL

I must say I am a happy man this evening! Thanks for all your support.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 1/8/2010 7:46 PM (GMT -6)   

There's gotta be song in there somewhere. Yippee kay-yay or something (wasn't that Quick Draw McGraw?). Great news! I quietly celebrated a trimix success just last week.

Good for you Jeff!

 

Mike


-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving significantly with Trimix at 7 months post-op. Oral ED meds didn't do much.


Carlos
Regular Member


Date Joined Nov 2009
Total Posts : 486
   Posted 1/8/2010 8:04 PM (GMT -6)   
Jeff,   Welcome to the ject club.  Remember, don't leave home without it.
 
Carlos
Diagnosed 2/2008 at age 71, PSA 9.1, Gleason 8 (5+3)and stage T1c.  CT and bone scan neg.
Robotic surgery 5/2008, nerves spared, bladder neck spared with pelvic floor reconstruction.
All margins, SV and lymph nodes were neg.  Staged pT2c, Gleason sum 8 (5+3).
Continent at 6 weeks. 
PSA <0.1 at 20 months, Jan. 4. 2010.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 1/8/2010 8:14 PM (GMT -6)   
Carlos I think that slogan has been used before but definately fits this situation....:)

Mike you being new to this as well can appricaite the excitement. Thanks

Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 1/8/2010 8:41 PM (GMT -6)   

Jeff...excitement is an understatement at my (our) latest achievementsyeah yeah yeah .

It's amazing what was taken for granted not too long ago.

I didn't post a new thread about it. I was just enjoying the the step back up and counting my blessings that I was able to get there. So far, I believe I've had a pretty uneventful recovery in the context of what many others are going through, here. I wish all of us the same...a good recovery.

Mike


-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving significantly with Trimix at 7 months post-op. Oral ED meds didn't do much.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted 1/8/2010 9:04 PM (GMT -6)   
Hey Jeff,
Just saw the email! Congratulations dog! I do believe I can see the smile from here. I sure do like hearing success stories.
And Mikey , you 'lil devil, you had a rough weekend too. I'm so glad.

At 11:15 on the 20th I'll be sticking myself with trimix for the first time and hopefully joining the team.
It's a 35 minute drive home and hope to steer the car hands free! Don't bother to call my house that day. We're not answering the phone. :-)
Jeff, too
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next?
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
. 9/27 2 months: Still 3 pads per day.
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day Experimenting with Nyquil for 10 days: Can sleep through the night but withdrawal is bad. Stopped 12/20.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 1/8/2010 9:26 PM (GMT -6)   
Hey Jeff (Worried),
 
Thanks. It was certainly an uplifting experience. The stuff works. James C has been a lot of help for me. PM him on some specifics...a good source of info and support on injections...thanks James:)
 
It may take a few times to get the dose and procedure right. But, when it works...it does work.
 
In radio engineer talk, I figure I'm headed back down into VHF frequencies in terms of antenna length due to trimix. Radiated efficiency good at better than 80% and no reception problems, so far.
 
Good luck!
 
Mike
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving significantly with Trimix at 7 months post-op. Oral ED meds didn't do much.


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 1/8/2010 9:39 PM (GMT -6)   
Yahoo! Jeff!!!! Congratulations! You have found the holy grail.
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted 1/9/2010 8:32 PM (GMT -6)   
Jeff,
I'm counting the days! T minus 11 days to lift off! You have inspired me.

Mikey- I don't need to pick up VHF. I'd gladly settle for UHF. Anything is better than the 3 cm microwave stub I have now.

Jeff, too
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next?
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
. 9/27 2 months: Still 3 pads per day.
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day Experimenting with Nyquil for 10 days: Can sleep through the night but withdrawal is bad. Stopped 12/20.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 1/9/2010 10:39 PM (GMT -6)   
Jeff 2, Thanks for the phone call. Enjoyed our chat. I do hope your visit goes as well. Stay in touch.

Jeff T
Cajun Country or Jeff 1
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


pigeonflyer
Regular Member


Date Joined Nov 2009
Total Posts : 85
   Posted 1/14/2010 10:04 PM (GMT -6)   
now that im not pluged anymore its time to start on something else like the ed problem. after talking to jeff about the pain not being bad,im a niny for pain, i think ill skip the pump and go for the gusto. time to inject. my uro even suggested it. mama has been a little frustrated latley but understanding and its time to make her happy. when mama;s mad there is no one happy. its just part of being the Queen of the castle.ill get this in motion on my next visit with the uro. got to let this blockage surgery heal for now. thanks jeff for the encouragement.   neil
49 years
da vinci on 9/28/09
gleeson 3+3
psa before surgery 5.1
cather out on oct 5, back in on oct 5
two more trys for cather out, still in .
cather out nov. 13/09
cystocope nov.13/09      


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 1/15/2010 12:03 AM (GMT -6)   
Neil, you know we are buds. Let me know how I can help. Keep Mamma Happy!

One Cajun to another.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


clearwatercowboy
Regular Member


Date Joined Oct 2009
Total Posts : 135
   Posted 1/15/2010 1:52 AM (GMT -6)   
Jeff,
Congratulations !! I recall wanting to get "Back in the Saddle Again" after surgery, but it was the leather saddle that I throw up on that big gray quarter horse. Hell, I knew that the other "saddle" was going to be a long ways off. But, the Bimix has made a difference, albeit difficult to titrate the dosage for the best response. One time it works, and the next it is a complete failure, so we are still trying to "go figure" that one out. The ache persists following the injection, and we have not been able to resolve that either, so it takes away from the purpose of the pleasure. But, we shall keep forging away with it, as it still beats not being back in the saddle at all.

Be careful, don't want you to have to end up in the emergency department where they end up sticking a large bore needle in Mr. Willie to drain off the blood that refuses to leave on it's own. Last night, I almost had to make that trip, but the Pseudofed took care of it ! Wheww !!

Dallas
RRP May 04, 2009
Pre-op Gleason 6
Post-op Gleason 7


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 1/15/2010 9:12 AM (GMT -6)   
Dallas. I do understand not wanting to make that trip to the ER. Not what I would call fun!

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, September 20, 2018 3:48 AM (GMT -6)
There are a total of 3,005,006 posts in 329,196 threads.
View Active Threads


Who's Online
This forum has 161762 registered members. Please welcome our newest member, fdgdfhdff88.
237 Guest(s), 4 Registered Member(s) are currently online.  Details
paul_t, mengshshasuxn, fdgdfhdff88, Serfr