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New Member

Date Joined Jan 2010
Total Posts : 2
   Posted 1/8/2010 7:53 PM (GMT -6)   
I was just diagnosed with PC, PSA of 11.3, Gleason score of 9 (4+5).
Urologist stated that 75% of men with this Gleason have the cancer elsewhere even though it did not show up in either the Bone Scan or the CT Scan (micro-metasteses).
He recommended against surgery since he would have to be as agressive as the cancer and would almost guarantee incontinence and impotence.
Instead, he recommended HDR brachytherapy, external radiation and hormone therapy.
My question:  Knowing that there are no absolutes, is this a reasonable recommendation?
Thank you

Veteran Member

Date Joined Jan 2009
Total Posts : 2243
   Posted 1/8/2010 8:14 PM (GMT -6)   
Gray panther, I dont know the answer to that but glad that you are here and others will give you feedback in the hours to come. Keep us posted and ask any question here and with your Dr.'s. The more educated the better the choice we make.
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Consulting with Primary Urologist for further tx.
Great family and friends

Jim B
Regular Member

Date Joined Mar 2009
Total Posts : 45
   Posted 1/8/2010 9:07 PM (GMT -6)   
Gray Panther,

Well I certainly wish you didn't have to join this "club" but I'm really happy that you found us. You will soon see that there are many people who will be joining this conversation with support, advice and encouragement. Your diagnosis sounds very similar to mine. I also had a very similar PSA and a gleason of 4+5. My surgeon told me that the biopsy convinced him that there was some cancer already outside the prostate so it would not do any good to have the surgery. Instead they put me on a course of hormone treatment as well as radiation. Thinking back, I am very happy that I just happened to be in a small town that actually had two hospitals with very well respected oncology departments (medical and radiation). But even though I was fortunate to be near good facilities, I wish that I had taken time to consider other options such as Loma Linda's treatment facility (even with a Gleason 9 you have SOME time to consider options). I don't begrudge my decision but I would like to just encourage you to educate yourself as much as you can. You have seen others in this forum who talk about "Dr PatricK Walsh's guide to Surviving Prostate Cancer." I would highly recommend that you check that book out. We all wish you luck with your treatment and we will all support the decisions you make.

Good luck

Dx age 48 PSA 11.58
Biopsy Nov 04
4 of 6 specimens positive
gleason 4+5=9
Perineural invasion at two locations
40 radiation treatments Jan-Mar 05
PSA May 05 0.07
Aug 05 - 0.15; Feb 06- 0.92; Oct 06- 0.55; Sep 07-0.42; Mar 08-1.13 Aug 08-2.26
Nov 08-3.98; Jan 09-5.81; Mar 09-9.02
Bone scan in Nov 08- one spot in pelvic region 1.9cm with SUV of 11
Bone scan in Mar 09-two spots. Original now 2.5cm with SUV of 22 and 2nd spot less than 1cm with SUV of 7.8
Bone scan in Nov 09 - NO CHANGE WOO HOO!

Elite Member

Date Joined Oct 2008
Total Posts : 25393
   Posted 1/8/2010 9:14 PM (GMT -6)   
Gray Panther,

Welcome here to HW. Your uro's suggestion does sound normal and reasonable on the surface. Being that any Gleason 9 is a more agressive situation, I would definitely want the opinions of one or more really good radiation oncologist and even a prostate oncologist if you can't hook up with one. There are men that have had surgery with your Gleason level, but if doctor's were convinced that the cancer had already escaped the prostate and prostate bed, it would be in vain to do the surgery, and the side effects could be perm or extreme.

Definitely need some additonal opinions. There are a few men here that have had seeding with and without additional radiation, so hopefully they will give your their opinions of their experience with it.

Please keep us well posted.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place

Veteran Member

Date Joined May 2008
Total Posts : 1010
   Posted 1/8/2010 10:51 PM (GMT -6)   
Hello Gray Panther,
Welcome to the site. Sorry about the crummy news you have received. The advice you have been given is very similar to what I was told by the urologist who made my diagnosis. I did a good deal of research on the subject and treatments. I also got a second opinion from Mayo in Rochester. I would recommend that you also do the research and seek a second opinion from the facility of your choice.
At Mayo they believe that even in the advanced cases that surgery gives better results in the long term. But only if it is followed by radiation and possibly HT. There are a number of medical papers by Mayo doctors that propose this course of treatment.  In my own research I found that the odds for cure were about the same for radiation of surgery in the case of localized disease. Key here is localized. Even so the data I found on advanced cases seemed to give a slight edge to surgery, radiation and HT vs just radiation and HT. In the end I went with IMRT and HT. Google Bola study for a good dissertation on radiation with adjuvant HT.
I also looked at proton beam at LL, Schands in Jacksonville, FL, and Anderson in Texas. It was (is) very expensive and a long ways from my home as well. I am uninsured so the cost was a major consideration. From what I could discern from my research the results were about the same as IMRT but the side effects were not as severe in most cases. My own side effects from IMRT have been very little. (thankfully) Proton can be given along with IMRT for an advanced case. The IMRT is used to radiate the pelvic region to try and get the lymph nodes.
There is a facility in Georgia (RCOG) that provides the brachy and IMRT combo and they claim very good results. Another that does this is Dattoli in Florida. Tampa I think. You can google both and read up on thier opinions and options. I spoke to both facilities and they took a lot of time to tell me about their treatments and results.
I also consider adjuvant chemotherapy with the IMRT and HT. This was a trial and my oncologist could have gotten me in but at the end of the day I decided not to pursue this track.
Best thing you can do is get educated on this disease, ask all the questions you and anyone you know can think of, and then make the decision and don't look back.
I wish you the best of luck with your treatment. It is a most perplexing disease with few clear cut choices for treatment particularly for the advanced cases.
Best regards,
Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
PSA 03/09 .38 six months post radiation and nine months into hormones 
PSA 06/09 .36 or .30 depending on who did the test
PSA 09/09 .33 one year after IMRT and 16 months into hormone

John T
Veteran Member

Date Joined Nov 2008
Total Posts : 4268
   Posted 1/8/2010 11:20 PM (GMT -6)   
Grey Panther,
Your Urologist is giving you some pretty straight information. There is no 100% way to know if it is localized or that you have micromets. With your gleason score and psa there is a high probability of the latter. His recommendation is reasonable; you will definately need a combination therapy and HDR Brachy, IMRT and HT is a good one. Others are normal Brachy, IMRT and HT, or surgery, IMRT and HT.
There are other tests such a PAP and Ploidy analysis that can indicate micro mets, but with your numbers I would not recommend a single local treatment.
Good luck and we are always here to answere any of your questions. I would definately get a 2nd opinion from a prostate oncologist and use him for the HT portion of your treatment as they are more experienced than urologists in treating advanced PC.

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.


Regular Member

Date Joined Jun 2008
Total Posts : 407
   Posted 1/8/2010 11:42 PM (GMT -6)   
Whatever the treatment chosen, I'd want mine to be "agressive" - and I wouldn't be put-off by the phrase.  I chose my treatment because I wanted the cancer out of my body.  about incontence and ED issues:  I relegated them to secondary concerns . . . because treatment of and the removal of the cancer in my body way my primary concern.  I think the most important thing for you to do at this stage is to find a team of medical advisory in whom you have complete confidence, and then select the treatment choice.  Best wishes for a successful outcome.

Age:  60 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1/2 light pads per day)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0; 9/09: 0.0


Veteran Member

Date Joined May 2009
Total Posts : 2692
   Posted 1/9/2010 1:13 AM (GMT -6)   
Gray Panther,

As a fellow Gleason 9, I wouldn't necessarily disagree with your doctor's opinion, but I would also recommend multiple opinions.

If you have a major cancer center nearby, I think you would find it worth your while. I went to Cleveland Clinic.

Their opinion was that surgery was the correct choice, andso far, they appear to be right. I'll have 9 month PSA in a couple of weeks.

The thing about surgery, it only gets what is in the margins. The radiation can kill PC outside the margins. I'm not sure I would worry too much about nerve sparing, if the doctor deems it necessary. A good surgeon will attempt to spare at least one nerve if possible.

But the important thing is, you need to learn enough to make your decsion. Don't let someone else make it for you.

Good luck, and stay in touch.

Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections

Veteran Member

Date Joined Feb 2008
Total Posts : 1858
   Posted 1/9/2010 4:14 AM (GMT -6)   
GRAY PANTHER, welcome to the forum
It is always a wise move to get other professional opinions.....one doctor's opinion is just that, one doc's opinion. He may very well be right but it is reassuring to get back up advice. A good oncologist would be a good person to consult. Radiation can often kill cancer cells at a wider margin than surgery could remove so it may well be the best line of attack. The problem with the higher grades of cells (4s or 5s) is that in general they put out less PSA per cc. of tumour (grade 5 puts out 1/2 of grade 4 which in turn puts out 1/2 of grade 3) so sometimes the actual PSA level can be misleading as to the extent of the tumour. John T's suggestions are very sound. If you want to read the stories and treatments of quite a few Gleason 8, 9 and 10 fellas......there are quite a few here.


Stay with us and best wishes for whatever treatment you choose,
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01
PSA August 09 (2 year mark), <0.01
PSA December 09 <0.01

My Journey: www.yananow.net/Mentors/BillM2.htm

Ed C. (Old67)
Veteran Member

Date Joined Jan 2009
Total Posts : 2460
   Posted 1/9/2010 10:18 AM (GMT -6)   
Gray Panther,
You have been given a reasonable advice. My biopsy showed Gleason 8 and 9. My Urologist suggested surgery and to follow it with IMRT if my post surgery PSA was greater that .01. I followed his suggestions and had the robotic surgery. I asked him to be aggressive and remove the nerve bundles if there was any hint of cancer. My pathology report was Gleason 8 (no 9) and my margins were negative. So far I have had 3 PSA tests (2, 5 and 8 months) all zeroes. I still have the option of IMRT and HT if I have a recurrence. I like the others who responded., recommend that you get multiple opinions. Good luck.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1

Veteran Member

Date Joined Apr 2008
Total Posts : 1382
   Posted 1/9/2010 7:24 PM (GMT -6)   
Welcome to the club Panther. As others have said I wish you were not here but since you are lets make the best of it.
I am a gleason 9 and I opted for surgery. Once the surgeon found my cancer in 3 lymph nodes it was aborted and I still have a prostate. I then started 44 rounds of IMRT and ADT3. It seems to have worked so I am not complaining. I to agree that you should educate yourself however this is aggressive and I think it needs immediate attention.

peace to you
My PSA at diagnosis was 16.3
age 47 (current)


My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores

Veteran Member

Date Joined Feb 2008
Total Posts : 655
   Posted 1/10/2010 11:34 AM (GMT -6)   
Greetings, Gray Panther.  Like others here, I would recommend that you get a couple of opinions from doc's that are well experienced in advanced prostate cancer.  There are lots of ways to address this and we trust you will find exactly the right one for you.  Welcome to the forum - sorry you have to be here but you are among friends.  David
Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me

Regular Member

Date Joined Nov 2009
Total Posts : 212
   Posted 1/11/2010 1:41 PM (GMT -6)   
Hey guys, I recently received my copy of 'snuffy''s book, and found it interesting that he seems to advocate removal of the prostate, even if the cancer has spread outside (I -believe- I interpreted that correctly). His reasoning being that when the prostate cells eventually become resistant to the hormone therapy, one of the first places it starts from again is.....the prostate, so may as well remove it to begin with.

What do you guys think of that?? I know that as mentioned here and in general, the prostate is usually not removed if the cancer has spread. Yet many folks recommend this doctors book as required reading...

Gray Panther - not trying to hijack your thread, my father too has PCa with gleason 9 & 10 biopsies, and was recommended the same sort of treatment you were told. His scans were also clear other than the known seminal vesicle involvement in his case.

Regular Member

Date Joined Apr 2008
Total Posts : 364
   Posted 1/11/2010 4:16 PM (GMT -6)   
Grey Panther:  gibson is correct in that having the prostate removed will reduce the chance of reoccurence by about 50% even if the cancer has already gotten out of the capsule but is still localized.  According to Dr. Meyer's book, and if you think about it it makes complete sense, reoccurence occurs approximatel 50% of the time inside of the prostate even after radiation.  His explanation is that is where the largest portion of cancer was and therefore would be the hardest to kill completely.  You might want to look towards surgery with HT and radiation if PSA starts to rise or radiation and HT immediately after recovery from surgery depending on pathology and PSA post surgery. 
I also would recommend if you are going to spend some time getting other opinions, think about starting HT immediately which will stop the spread or growth of cancer cells.  Just know the HT causes the prostate to be a little stickier than normal.  My surgeon took an extra  hour because of the HT prior to surgery but I sure felt better about it during the wait for surgery.
 54 y.o.
 Diagnosed 4/10/08
 DRE Normal
 Biopsy- 12 cores, 4 positive highest 4+4=8
 Bone scan, CT scan and Chest X-ray clear 4/16/08
 Urologist suggested surgery 4/16/08
 MRI on 4/24/08 clear no suggestion of lymph node   involvement.
 4/24/08 -Started on Lupron and Casodex preparing for HDRT and IMRT in late July.  This treatment will not preclude me from surgery if I change my mind.
Decide to have DaVinci surgery after another consult with surgeon.
6/19/08- DaVinci surgery at University of Washington.
6/25/08- Path report, clear margins, no noted extension
9/12/08- PSA <0.02 
12/05/08-PSA <0.02 Six months after surgery 
3/02/09-PSA <0.02 Nine months after surgery
5/02/09-PSA .10
8/17/09-PSA .21 Begin HT and set up for SRT to begin in 2 months.

Regular Member

Date Joined Dec 2009
Total Posts : 316
   Posted 1/11/2010 5:26 PM (GMT -6)   
Hi Gray Panther,
Sorry to hear of your diagnosis. I just wanted to tell you that my father's stats are very similar to yours. He also had gleason 9, 12/12 biopsies all positive. My father is a physician and of course he started to hit the internet and books. He spoke with many reputable physicians in the area and a handful of them recommended surgery. At Sloan, they believe in "debulking." The idea that removing the tumor in and of itself regardless of whether the cancer is encapsulated or not has beneficial effects on life expectancy.

Of course I am not a doctor, but I just wanted to share with you what my father has been told. Of course there is also the other argument that the cat is out of the bag and that surgery will be a failure. But knowing myself, if there is a 25% chance that the cancer can still be encapsulated and I can potentially have a cure, I would take it.
Good luck.


Cajun Jeff
Veteran Member

Date Joined Mar 2009
Total Posts : 4119
   Posted 1/11/2010 8:10 PM (GMT -6)   
Gray Panther, I just have no medical advise for you. Get a second opinion! Find out as much as you can about your situation then you make the decision. As you can see here many have been in your shoes and they let you know what they have done and what was recomended to them. This is a source on knowledge. Best of luck on your journey. Do keep us posted as to the road you travel.

Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)

Veteran Member

Date Joined Apr 2007
Total Posts : 823
   Posted 1/11/2010 9:52 PM (GMT -6)   
Hi Gray Panther

My first urologist told me with a Gleason 7 the cancer had escaped the prostate and told me surgery would do no good and my best course would be to have braky and radiation. I wanted the cancer out so I had regular surgery and have had had zero's for two and a half years. Get a second opinion by a real cancer center, I had my surgery at Duke Medical Center, they have a pretty good basketball team at the University too. Take care care and keep in touch.

age at dx 54 now 57
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
ED is getting better
the shots work great, still can't give them to myself
two years of zero's

New Member

Date Joined Jan 2010
Total Posts : 2
   Posted 1/19/2010 9:48 AM (GMT -6)   
Thank you all for your support and help.  I am getting a 2nd opinion tomorrow and hope that there is agreement because I can see myself going for the best 2 out of 3 or best 3 out of 5.  My appointment with the rad onc is at the end of the month.
Thank you again

Veteran Member

Date Joined Jan 2009
Total Posts : 2243
   Posted 1/19/2010 11:26 AM (GMT -6)   
Keep us posted Gray Panther and we wish the best for you and your family. Glad you are getting another opinion or two.
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends

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