Oops..... spoke too soon..........

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Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 1/9/2010 7:37 AM (GMT -6)   
mad It would appear that for some reason, I am experiencing leaks again. LFPF is on hold for a bit. I am not sure if it is the colder weather, currently -9C for the daily high, or just a blip on the radar screen? It started with having to go more frequently, but with less volume, and the leak happening, unawares to me, soon after urinating. I am going back to a light pad for the time being.......


Don't know if anyone has experienced this before?



Keep well,

Regards,

Bill

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 1/9/2010 7:49 AM (GMT -6)   
Bill,

I don't have any experience with the leak/no leak situation, but I am gaining experience daily in the frequency arena with this rad treatment.

You might be onto something with the cold weather though. It's sleeting right now in Orlando, Fl and it seems like I have been going about 3-4 times per hour.

Maybe this is just our bodies way of making sure the pipes don't freeze up.

I sure hope you get back to the LFPF soon my friend. But for the time being the pad may add a little additional warmth where you need it.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative
da Vinci 9/17/09
Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
NERVES SPARED-positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT scheduled to begin Nov 30,2009 (74 days post surgery)


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 1/9/2010 8:35 AM (GMT -6)   
I was LFPF within about one week post cath. You might be on to something with cold weather. I'm 17 months post op now. A cold front hit south Texas where I live. I've noticed more frequency since the temp cooled down. Additionally, I've had a drip or two after urinating. That's not typical for me. Who wants to pilot placing a hand warmer in their shorts. If it works, you could make $$$. lol
tongue
Age 51
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
Mild ED for about 10 months. Levitra worked well for me. No ED at one year.
PSA 0.00 at one year post

Post Edited (coxjajb) : 1/9/2010 5:48:22 PM (GMT-7)


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 1/9/2010 8:58 AM (GMT -6)   
Bill,
It is also very cold hear in Austin Texas (in the 20s and low thirties) and I find myself urinating more often. I don't necessarily leak though. I have noticed that exposure to cold weather seems to trigger more frequent trips to the bathroom.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/9/2010 9:15 AM (GMT -6)   
Sorry, Bill, just consider it a meteoroglogy temporary setback, cured with the passing of warmer air. Can't remember what it is like urinating in cold weather, my catheter doesnt care about the weather, in fact, on cold days, its like having a heating pipe running down my leg. My left leg is always warmer than my right. A possible bonus?

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


dogbot
Regular Member


Date Joined Aug 2009
Total Posts : 147
   Posted 1/9/2010 10:24 AM (GMT -6)   
Here in England we have had some very cold weather, down to -10 in central areas and -20 in the highlands of Scotland. I do find I need to urinate more often with these temperatures,I think the body tries to keep core temperatures up and in so doing fools the system into more peeing, so we need to drink more. I have also found that after a pee I do need to make sure every last drop has been squeezed out otherwise a small damp patch appears. Hi Ho ! such is life. All the best from England.
Diagnosed February 2009. Gleason 6, Psa 7.2, 12 core biopsy, and then Mri scan, which showed organ specific.
DaVinci at Addenbrookes, Cambridge, England 18th May 2009.  Nerves removed one side.
Catheter in for 8 days, no pain, no post op problems apart from an infection, cleared with antibiotics.
Some aching around the penis, which still occurs.
6 week psa 0.1, post op pathology all good, confirming pre op tests. Ed a problem, no treatment as yet.
Light ladies pad during the day, just to control a slight dampness and a Tena for  men pad at night for occassional leakage.
Awaiting 3 month consultation at the moment.
Sept 09 - still awaiting consultation. 99% dry during the day, tena pad at night just in case.
Sept 18th 09. PSA less than 0.1
Sept 29th follow up consultation at Addenbrookes. Staff happy with progress.
Nov 11th update. One small stress dribble in the last 2 months. Still some muscle stiffness in pelvic area.
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/9/2010 10:55 AM (GMT -6)   
Well, speaking from personal experience, the lower the temp, the more I have the urge to pee. We're in the middle of a realy cold snap, here in the upper corner of the sunny southland, temps been below freeezing since Christmas, and lows in the single digits , with 2 big snowfalls, and I find that I can go to the bathroom the last thing before going somewhere and will feel the urge to go again before I get to the car and get driving. Like little neurotic dog, I got to sprinkle really often when outdoors in this weather. I say I got to, as in urge, I can and do postpone the act, but the initial response is the same.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/9/2010 11:02 AM (GMT -6)   
Just read a British article on the subject of peeing more when its cold. Made sense to me. When it's cold, you aren't sweating, so the body compensates for that by causing more urinating. I will see if I can find a postable source.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 1/9/2010 11:22 AM (GMT -6)   
hoot, Bill,
-9 is enough for me to leak BEFORE surgery just to keep warm...:-|

Hang in there, it is still very early after surgery and you will continue to improve!

Tony
Prostate Cancer Forum Co-Moderator


In This Together Wife
Regular Member


Date Joined Dec 2009
Total Posts : 135
   Posted 1/9/2010 11:34 AM (GMT -6)   
A fellow Texan chiming in here. . .as everyone else has said, the cold does increase things for my hubby--was the case even before surgery.  Before PCa never thought too much about those parts of anatomy as we do now. . .crossed my mind that maybe the body "tucking things in" in cold weather may put pressure on bladder??? 
Enjoying the cold for now.
Smiley
(Hubby's stats)
Age 48 healthy-had bronchitis once :)
 
8-4-09    Family Practioner for back pain  PSA 4.9
8-20-09  Consult with urologist                PSA 4.89
9-2-09    Biopsy          3 cores positive 7% 3+3 (6) gleason
9-22-09  Birthday turned 49
10-12-09 2nd opinion
11-13-09 DaVinci
11-23-09 Cath removed  Path report cancer contained neg. margins
Feb 2010 wil be followup PSA


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 1/9/2010 4:55 PM (GMT -6)   
Well, it would seem that the weather may be the problem here but in Canada, we have to put up with winter and the cold. It will go down to -20C tonight and a high tomorrow of -9C. Brrrrrr. Looks like pads are in order for a while until it warms up. Thanks to all who responded.

Keep well,
Regards,
Bill

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 1/9/2010 5:03 PM (GMT -6)   
Bill,
 
I have found one thing about the IC game.  It appears to be two steps forward and 1 step back.  For the last several months I have thoight that I was ready, and then the next day or two I would have some unwanted leakage.
 
I know you are a goal oriented guy, but just take it as the nature of IC recovery.  Maybe it's weather, maybe it's your level of activity, maybe it's a full moon.  Just take it in stride, wear a pad if you have to, otherwise, just keep on going.  You are 99% + there.
 
Keep the faith.
 
Goodlife

MaxBuck
Regular Member


Date Joined Jan 2010
Total Posts : 75
   Posted 1/9/2010 5:10 PM (GMT -6)   
I'm experimenting by trying out one of my wife's old "panty liner" minipads. Dimensions maybe 5" long by 2" wide, very thin, and permits me to pee standing up, without dropping trou, in my tighty whities. My leakage has been on the order of 4-6 grams (4-6 milliliters, about 1/6 ounce) daily, for the past 4-5 days.

I'll provide a status report tomorrow. The thing is much more comfortable than even the small pads sold "to men" for "our problem."
Dx at age 56: Oct 09; PSA 5.8, followed up by 9.9 two weeks later (reproducibility of test - ?)
Biopsy ind cancer in 8/12 cores: Gleason 8 (4+4)
open radical retropubic prostatectomy Dec 4 09
Post-op pathology: 56 g weight, cancer in 21%, Gleason 7 (4+3, tert 5); margins clear, lymph node involvement 0/9, perineural invasion, T2c N0Mx (but showed clear from distant metastasis in pre-op bone scan and CT scan)
Continence data: 1 maxipad/day, with minor leakage when I get up from long seated position; ED pretty complete: some erection possible but current non-functional


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 1/9/2010 6:08 PM (GMT -6)   
Problem with pany liners, Willie doesn't always lay the same place. The panty liners are too small.

Besides, the wife sure screams when she goes to get a panty liner and they are all gone !

Goodlife
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


Mike E
Regular Member


Date Joined Oct 2009
Total Posts : 23
   Posted 1/10/2010 9:25 PM (GMT -6)   
I can really relate to the statement about two steps forward and ones step backward (though, sometimes it seems the opposite). I am now three months post-cath and am making slow, but steady progress. One thing I have noticed is that I do much better in the morning. By late afternoon, I leak much more. Another thing, I can hold it for a good while after I get up from sitting, but if I am just standing or walking around for awhile, I leak like crazy. I am down to one-two diapers per day and two-three pads. That's progress! Oh, and I would love to have a pad with wings. I don't need the long aspect so much (too bad), but wider would save on the pull-ups!

I had my first post-surgery psa done last week. I plan to post when I get the results. Here's hoping...

Mike
Age 56
After several years of being treated for on and off prostatitis, my PSA stopped responding to Cipro...
PSA: 2.56 (up from 1.6 over a year and a half)
Bone Scan: negative
Biopsy: 8/21/09 6/12 plugs were positive for cancer
open RRP done at Johns Hopkins: 10/7/09
Upgraded Gleason to 4+5 = 9 (from an 8)
Tumor extent: Moderate
Margins: Positive 1 mm
Extraprostatic Extension: could not be distinguished because of incision site
No seminal vesicle or lymphatic invasion
Stage: pT2x
11/21: Incontinence- mostly dry at night, but little progress during the day, multiple pads
ED: Nothing but fleeting twinges of hope every now and then


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/10/2010 9:32 PM (GMT -6)   
mike, good luck on your upcoming psa test. on the incontinence, as the day wears on, your muscles down there get tired, and then one would tend to leak more, not that uncommon.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 1/11/2010 7:08 AM (GMT -6)   
Hey Mike,

Good luck on the upcoming PSA result and keep you chin up on the incontinence.

Regards,
Bill

cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 1/11/2010 8:04 AM (GMT -6)   
Hi Mike,

We have similar stories....you had your surgery six days before me and I am in exactly the same place you are with the incontinence. I'ts been cold here in FL for a week and I have done a lot of sitting around. IF all I do is get up and walk to the bathroom I hardly leak at all so I've been going through two or three pads daily. But as soon as I get active I don't hold a thing walking or standing. Curious.

I just had my first post-surg. PSA last week so I know the stress you probably feel. Want to wish you best of luck!

Steve

Mike E
Regular Member


Date Joined Oct 2009
Total Posts : 23
   Posted 1/11/2010 9:02 PM (GMT -6)   
Thanks for the encouragement everyone. If I don't hear from the doctor tomorrow, I will call. It is starting to loom large in my mind.
Age 56
After several years of being treated for on and off prostatitis, my PSA stopped responding to Cipro...
PSA: 2.56 (up from 1.6 over a year and a half)
Bone Scan: negative
Biopsy: 8/21/09 6/12 plugs were positive for cancer
open RRP done at Johns Hopkins: 10/7/09
Upgraded Gleason to 4+5 = 9 (from an 8)
Tumor extent: Moderate
Margins: Positive 1 mm
Extraprostatic Extension: could not be distinguished because of incision site
No seminal vesicle or lymphatic invasion
Stage: pT2x
11/21: Incontinence- mostly dry at night, but little progress during the day, multiple pads
ED: Nothing but fleeting twinges of hope every now and then

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