Top 5 list for Incontinence

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Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3741
   Posted 1/9/2010 9:23 PM (GMT -6)   
Inspired by the HT top 10 here's my top 5 list for incontinence.

#5 Your wife always leaves the seat up when she's done.
#4 No one complains when you pee in the shower.
#3 A just changed, rolled up pee pad feels warm on cold winter nights.
#2 You can talk with your mother-in-law and pee at the same time.
#1 With the right jeans and a full guard, you look like you're hung like a horse.


There is always room for more.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next? See Uro 1/20/10
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day
1/11/10 6 months: Still 3 pads but leak is now 320 ml (5 day avg.)
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.

Post Edited (Worried Guy) : 1/10/2010 8:30:36 AM (GMT-7)


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3255
   Posted 1/9/2010 9:47 PM (GMT -6)   
Excellent. I never had to deal with that but when my prostatee shrunk and I started sleeping well I had a dream I was peeing in the river and I was actually peeing. I guess not having to GET UP to pee at night might be one. lol
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/9/2010 10:11 PM (GMT -6)   
Your #1 was pretty choice, the few times I wore a depends guard, and I am not particully tall, I looked like I was packing heat. Only an illusion, trust me. Good list.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 1/10/2010 8:28 AM (GMT -6)   
#6. You have a great excuse for dodging any boring social event
#7 You have a perfectly logical and sane reason for being neurotic and obsessed.

#8 For animal lovers you become a magnet for all crotch-smelling dogs.

#9 You don't have to do good deeds to get that warm feeling inside.

#10 You end up with glutes of steel like Arnold Swartzennegger from all the Kegels.



Steve

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3741
   Posted 1/10/2010 10:29 AM (GMT -6)   
I guess everything has a bright side.

ED anyone? smilewinkgrin
Jeff (too)

DS Can
Regular Member


Date Joined May 2009
Total Posts : 195
   Posted 1/10/2010 11:18 AM (GMT -6)   

There is no way that I can spend a weekend camping with the Boy Scouts.  The plumbing system just isn't up to it yet.

 


PSA 01/07 1.2, PSA 01/08 1.9, PSA 01/09 2.5
BIOPSY 02/24/09  PCa DX age 52
Right: 3+3=6, 3/6 cores 10% involved,PNI-Y
Left:  3+3=6, 1/7 cores <5% involved,PNI-N
LARP 04/09/09 nerve sparing. Final pathology:
GS 3+4=7, Margins uninvolved, 2 lymph nodes negative
Catheter out 04/17,1st no-pad day 05/03
Followup PSA 05/28/09,08/20/09,12/08/09 <0.1
 
 


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 1/10/2010 11:38 AM (GMT -6)   
Yes Jeff, this is our reality.


But remember.....reality is just an illusion that occurs from a lack of alcohol.



Steve

plowboy
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 1/10/2010 12:47 PM (GMT -6)   
You have some good top ten reasons going.
I am brand new here, first time in chat rooms
Had DaVinci surgery 12-1-09. 59 years old
everything good except the bladder control, and oh what fun
was sure there was a good chat room out there for PC and this looks like a good sight

cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 1/10/2010 12:56 PM (GMT -6)   
Hi Plowboy,


Allow me be the first to welcome you although nobody wants to be here. You'll get some great information, advice, support and maybe some laughs too from a lot of knowledgeable and kind folks.



Steve

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/10/2010 1:16 PM (GMT -6)   
Hello and welcome, Plowboy. Hope you are recovering well.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


plowboy
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 1/10/2010 1:24 PM (GMT -6)   
Thanks for the welcomes.
I have only had IC to deal with.
A lot of the guys here have had a real tough times.
Wish only the best for everyone here

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3741
   Posted 1/10/2010 2:33 PM (GMT -6)   
The list keep getting longer. Having a good excuse to get out of camping with the scouts, or attending boring events. Not needing to get out of bed to pee. etc... Great!
I might have to make it a top 20 list. Pretty soon, the dry guys will be wishing they were leakers!

Also, Welcome Plowboy!
Pull up a chair. There's plenty of room at the table. Can I buy you a drink? Oh wait! Never mind. I forgot you are IC. Well, you can always enjoy a bag of pretzels and a small glass of water.

You found a great site. There is a lot of good information out here from well informed folks who have been down the same road you now travel. Stick around. I'm sure it will help you on your journey.
(In general, my posts won't help unless you are looking for a little levity.)
Jeff

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3255
   Posted 1/10/2010 2:47 PM (GMT -6)   
Hey Jeff. How long you been a member. Your funny man. I like that. Todd
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3741
   Posted 1/10/2010 2:59 PM (GMT -6)   
Hey Todd,
I lurked for about 2 months to convince myself I was heading down the right path. I joined July 2009. My first post was in the middle of the night, a couple of days after my surgery. I was having a particularly bad night and was confused and unhappy about my situation. Several of the guys here jumped right in and pulled me out before I could fall into the abyss. Their helpful responses left me in tears (happy and sad).
Now it is my turn. Quid Pro Quo.
And I still learn something new every day.

Jeff

plowboy
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 1/10/2010 5:32 PM (GMT -6)   
hey Jeff,
every once in a while it seems I just have to drink all I want.
I love assorted dances to the head trying to hold it in. Of which none work well.
then its back to holding fluids.
am going back to work 1-15-10, 12 hour shift 6pm to 6am.
will be interesting to see how that works out.
in the meantime may put my 401k into depends products
59 years old
10-26-09 diagnosed with PC psa 7.5
4 of 16 samples positive, gleason 7
everything else showing clear of cancer
DaVinci robotic 12-1-09 st. louis, mo
catheter 14 days


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 1/10/2010 7:13 PM (GMT -6)   
Hey Jeff,
I think I have experienced all those reasons mentioned. I really laughed out loud when I read #1.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 1/11/2010 4:26 PM (GMT -6)   
guys,
The crazy thing is, Jeff is JUST like this in real life as well. He is one of those guys in whose presence life is just a lot of fun. I hope when he plans his next stag weekend of us, that MANY of you come. It was a blast.
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 1/11/2010 6:25 PM (GMT -6)   
Jeff, thanks for the giggles.

I admire your attitude especially since my Scottish ancestry makes me typically a sourpuss. lol

Welcome to you Plowboy and good luck with your recovery.
Age: 62
Pre-op PSA: 4.1

Post-op pathology:
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks --> .04 (undetectable)
ED: Improvement is very slow to non-existent. Doc has not put me on ED drugs yet.
One pad for the first six weeks. Two pairs of underpants now just to play it safe.
Surgery: Dr. Jim Hu. Brigham & Women's Hospital, Boston

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