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compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 1/13/2010 8:36 PM (GMT -6)   
OK, time to focus on the surgery and aftermath.
 
1) Did you all have very swollen private parts? Painful? How long? Did you do anything special about it (type of underwear or???)?
 
2) When you are incontinent and say wearing a pad, do you KNOW that you are leaking/peeing?
 
OK, enough for starters.
Mel (t-12 days and counting!)
63 years old
PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%), this after 45 days on cipro! DREs have always been normal.  
History of BPH/prostatitis. PCA-3 test: 75.9 (bad news, guaranteeing I have to do....): Biopsy on 11/30/09. Result of biopsy:

5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C

REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:

5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)

 Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10

 


spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 345
   Posted 1/13/2010 8:42 PM (GMT -6)   
Hi Mel,
I had bruising on the lower stomach and penis, but not painful.
I was continent almost immediately but the few leaks I had I was aware of, and for
the pads the best underwear I found were briefs, I normally wear boxers.
Cheers
Mike

Age 51
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report due 8 jan 10
post op psa 22/12/09, 0.04
no incontinence after 7 days
total ed

 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 1/13/2010 8:47 PM (GMT -6)   
Mell,
Mine was swollen for a few days. It looked like an Osage Orange , only purple. I wore briefs to hold things in place.

As for the incontinence, a few times I would think maybe something was going on and look down in my underwear. I thought I saw a string going from my pen*s to the pad. It was a stream of urine. Didn't feel a thing. I am guessing that is not a good sign.
Even now, 6 months later, the only indicator I have of leakage is the warm feeling as it dribbles over my bits.
It is getting a ittle better. These past 5 days the leak has gone down to about 280ml per day. Something is happening.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next? See Uro 1/20/10
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (Try cutting down on fluids. Bad idea. I know.)
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day
1/11/10 6 months: Still 3 pads but leak is now 320 ml (5 day avg.)
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 1/13/2010 8:55 PM (GMT -6)   
1. I had no bruising and no pain from the private parts. The single large incision (I had open surgery) was uncomfortable, but not painful, but again no bruising and very little swelling.

2. No incontinence problems.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
19-month: 0.09 (maybe)
ED:
After a learning curve, Bimix injections (0.2ml) worked well. From 14 months, occasional nocturnal erections. Have "graduated" to just the pump.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/13/2010 9:14 PM (GMT -6)   
1 - no swelling to speak of, but lots of pain in that area

2 - sometimes yes, sometimes no
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/13/2010 9:28 PM (GMT -6)   
My testicles and penis was swollen and discolored with technicolor bruising for a couple weeks after. No pain, just edema and bruising. Doc said a lot of it was gravity taking the blood and such, by osmosis downward into the scrotum.

Never had the pad problem
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, ED Continues-Bimix .3ml PRN or Trimix .15ml PRN


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 1/13/2010 9:29 PM (GMT -6)   
1. No

2. Yes. You will have the great pleasure of delivering a lecture at the same time that you know that you are peeing in your pants. No, this is not a Chinese curse, it is the truth. BUT no one except you will know -- so just get on with it.

P.S. Remember that you may not ride the unicycle as a part of lecture until 6 weeks after surgery.

Hey: PC is not for sissies!
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 1/13/2010 9:42 PM (GMT -6)   
I had some swelling and bruising with junior and the twins

Didn't have much pad experience, but did know the first day or two if I had a stress squirt. After that, no problems.
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving significantly with Trimix at 7 months post-op. Oral ED meds didn't do much.


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 1/13/2010 9:50 PM (GMT -6)   
I had minor swelling and pain but it was tolerable. I was totally incontinent for about 6 months after surgery unless sitting or lying down. Since then the incontinence has faded to where I use a single pad for the day while at work. At home I can go through the day without a pad.
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Four PSA tests undetectable, latest Oct 30


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 1/13/2010 10:07 PM (GMT -6)   
For a time I could hardly sit my balls were so big. Dr said it was lymphadema. It went away with a bit if icing after a few days.

JEFF t
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


MaxBuck
Regular Member


Date Joined Jan 2010
Total Posts : 75
   Posted 1/13/2010 10:18 PM (GMT -6)   
1. No swelling or bruising, but the testicles were very tender for about 3 weeks.

2. If I leak, I know it. Even a small amount.
Dx at age 56: Oct 09; PSA 5.8, followed up by 9.9 two weeks later (reproducibility of test - ?)
Biopsy ind cancer in 8/12 cores: Gleason 8 (4+4)
open radical retropubic prostatectomy Dec 4 09
Post-op pathology: 56 g weight, cancer in 21%, Gleason 7 (4+3, tert 5); margins clear, lymph node involvement 0/9, perineural invasion present, T2c N0Mx (but showed clear from distant metastasis in pre-op bone scan and CT scan)
Continence data: 1 "panty liner"/day, with minor leakage when I get up from long seated position; ED pretty complete: some erection possible but current non-functional


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 1/13/2010 10:31 PM (GMT -6)   

No swelling, no pain, no bruising. 

Had a snake hanging out of my penis for 2 weeks.

Pretty much always knew when I was peeing, just couldn't stop it.

Oh, and still no swelling of the penis.

Goodlife


Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 1/13/2010 10:37 PM (GMT -6)   
Yes I had bruising. It looked like a department store pet turtle wearing a dark navy blue turtle neck until I got home about a week later. The was a little bruising on my abdomen.

I wore boxer briefs, they work best for holding everything in place. You don't really want anything to be free swinging or moving around.

Don't know about the leaking. Was bone dry from the day the cath was removed. I wore a pad just in case for the first week and checked it often, but it was always dry.

Best of luck. You are going to enjoy having the SP catheter and not the Foley. Just make sure you don't get up and walk away without the catch bag. Hurts like hell, but only once. I promise you won't do it a second time.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative
da Vinci 9/17/09
Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
NERVES SPARED-positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT scheduled to begin Nov 30,2009 (74 days post surgery)


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 1/14/2010 6:59 AM (GMT -6)   
Greetings, Mel.  I had open surgery and had no swelling or bruising.  I was dry from the start (although I wore a pad for a couple of days) and so I knew when I was peeing.  David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 1/14/2010 7:40 AM (GMT -6)   
Hi Mel......Robotic for me. No bruising or swelling or pain following surgery. Just the immediate soreness of the incisions. Incontinence gardually abated, and i could have gone pad-free sooner than I did (approx. 3 months)
 
Arnie in DE
Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 1/14/2010 8:18 AM (GMT -6)   
I had no swelling or bruising and only soreness. I had no sharp or throbbing pains. I never took a pain pill other then extra strength Tylenol. When I leaked at first I could feel it. When it got down to just a few drops I could not feel that amount. I was fully continent three months post op and do not have any stress incontinence.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 1/14/2010 8:52 AM (GMT -6)   
1. Minor swelling and some bruising of the scrotum but with little pain. I had open and most of my pain was from the incision but that was bearable even without pain relief medication. I did have swelling of my member when I woke up the next day with morning wood.

2. No problems with IC or ED
62yo
V10.46 Dx Feb-09
RRP 5-5-09
No adverse SE
PSA 6-19-09 -0-
PSA 9-21-09 -0-
 
Thriving, not just surviving!
 


turner
Regular Member


Date Joined Jan 2010
Total Posts : 119
   Posted 1/14/2010 1:55 PM (GMT -6)   
 I had robotic. Very little pain. The 3rd day everything turned purple down there. freaked me out but dr said thats normal. Some bloating and bruises @ abdomen. dissapeared in a few weeks.
 The big leaks youll obvviously feel. Not so much the smalled drips. Yes, it can be discouraging. You just have to have patience. I was very happy with the progress at the 3-4 month mark. Briefs were my choice until then. Good luck! Youll be on the mend before you know it....turner
 
 diag 2/09 @ 3 wks before 50th
 
 psa 4.5
 
 t2b
 
 5 of 6 cores pos....5,20,50,25,5 %
 
 gleason 3+4
 
 N/S RALRP 4-20-09
 Path: lymph node -
          seminal ves -
          margins -
          EPE -
          preineural inv-
          gleason 3+4
          stage pt2c
          tumor vol 40
Continence- 99%- @3-4 months post op
ED-gradual work in progress w/meds
         
 
 psa 7/22/09  0.1
      10/23/09  0.3
       11/23/09 0.5
       01/05/10 1.1
 Met with raidioligst 12-28
 Meeting prostate oncologist @Uof M 1-11
 Not like'n where this heading.  Surgery was and still is a walk in the park compared to what lies ahead :(
 
 
 
 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 1/14/2010 6:20 PM (GMT -6)   
Mel,
I had swelling and slight pain in my right testicle.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 1/14/2010 6:34 PM (GMT -6)   

I did not have any swollen or discolored genitalia. I wore a pull-up for a week then changed over to pads. I was aware of when I was leaking but didn’t that didn’t last long  Briefs worked best from me.

Hero


Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 1/15/2010 4:26 PM (GMT -6)   
I'm like Herophilus. Genitalia were not swollen, and I was aware of leaking but it didn't last long.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
http://pcabefore50.blogspot.com

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