What Haiti tells this PC Survivor

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BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 1/16/2010 9:50 AM (GMT -6)   
I know this is a bit off topic. I've gotten little sleep since Tuesday because I am pastor to 30 Haitians who are part of my parish in San Diego. You can imagine the emotional roller coaster we have been on seeking to get word from their loved ones. Three of our members had flown back to Haiti and were set to come back to San Diego on Wednesday. Bad timing for a visit! But they are OK, we just learned. Some of our members have lost family in the earthquake. I have shed many tears with them these past few days.
 
So to the point: I'm in a battle for my life like all of you against this cancer. But the earthquake did a few things for me. One, it got my mind off PCa for a few days. Two, it helped me see that there are other battles going on, and that simple acts of kindness mean so much to those in dispair. It has helped put my priorties in perspective. It's still all out war on PCa, but there are other priorties I must not neglect.
 
Bless you for your prayers and contributions to Haiti Relief.
 
"Rev. Bill" in San Diego
 
 
 

Age 61 (59 @ Dx) PSA 4.4

Biopsy 5/15/08 Gleason (3+3=6)

Bone scan and pelvic CT: clear

HT - 2 mo Casodex, 3 mo Trelstar

RRP Surgery 9/15/08

Post-OP Gleason 3+4=7, Stage pT2c pN0 MX

SV, perineural margin, 18 lymph nodes, bladder neck: all carcinoma free

Perineural invasion & Distal Margin: Carcinoma present

IMRT adjuvant radiation (35 Treatments) Ended 1/27/09

PSA Tests: (10/08) (3/09) (7/09) (1/10): all <0.1


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 1/16/2010 11:01 AM (GMT -6)   
Rev, sadly it does take something like the catastrophe in Haiti to put our own lives in perspective.

I found out yesterday that one of the missing students in Haiti is a "local" girl - she graduated from our high school last year, and the family is known by many in town. What this family is going through - as well as countless others enduring the limbo of not knowing whether their loved ones are dead or alive - cannot be comprehended.

While we continue to fight our own battles with whatever challenges exist in our lives, sometimes you just have to stop and be thankful.

Bill, I hope that you win your battle with PCA, and I extend the same to all here who are in this fight.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009- 0.1, September 0.3, October back to 0.0, December 0.0. Thank you God!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/16/2010 11:14 AM (GMT -6)   
Bill, I share your tears and agony about what is going on in Haiti. Its beyond belief, and I can only handle emotionally looking at the news unfolding there a few minutes at a time. That nation already had so little to start with, went through all those tropical storms 2 years ago, and now an epic mega earthquake. I feel for you in your situation.

Makes the things we think and worry about pale in comparisom. I am with you in spirit in this matter, brother.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 1/16/2010 5:33 PM (GMT -6)   
Thanks Sephie and David,

Let us hope something good comes out of this terrible tragedy.

Peace and Grace,
Bill

Age 61 (59 @ Dx) PSA 4.4

Biopsy 5/15/08 Gleason (3+3=6)

Bone scan and pelvic CT: clear

HT - 2 mo Casodex, 3 mo Trelstar

RRP Surgery 9/15/08

Post-OP Gleason 3+4=7, Stage pT2c pN0 MX

SV, perineural margin, 18 lymph nodes, bladder neck: all carcinoma free

Perineural invasion & Distal Margin: Carcinoma present

IMRT adjuvant radiation (35 Treatments) Ended 1/27/09

PSA Tests: (10/08) (3/09) (7/09) (1/10): all <0.1


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 1/16/2010 6:08 PM (GMT -6)   
I just can't find the words that express my feelings. It brings me to tears when I see some of the newscasts. I wish there was a way to get supplies to all those who need them immediately. I can understand there are a lot of complexities that I surely don't understand but there has to be a way to distribute at least water immediately.

so sorry,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Four PSA tests undetectable, latest Oct 30


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 1/17/2010 5:30 PM (GMT -6)   
Bill,

Please email me sometime, Haiti is near and dear to my heart. I am trying to get my team over there Feb 18th. We have an orphanage in Moron and I cannot get word as to how it is there. Plenty of news coming out of Port Au Prince and obviously that is not good.
I to am battling this cancer but right now my concern is for my families in Moron. I figure cancer will still be there when I get back.

peace and love
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 1/17/2010 6:59 PM (GMT -6)   
Bill,
We have a priest that visits our church frequently from Port au Prince that we have not heard from. We know the building he spent a great deal of time at has collapsed. What a terrible disaster. So many are affected...

PCa is a bit behind me as well...

Tony
Prostate Cancer Forum Co-Moderator


BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 1/18/2010 7:12 PM (GMT -6)   
Thanks Bob. I know, it seems like they could find a way to get water and food to everyone. But it is very complex in all that devastation.

Dale, I will pray for your orphanage ministry.

Tony, it makes us realize what a small world we live in after all. I'll pray you will hear from the priest.

We Methodists lost the head of our world-wide Disaster Response program and two others who just happened to be in the Hotel Montana when the quake struck. They were there to make sure Haiti was prepared for the next disaster. But they died doing what they loved doing, helping others.

Peace,
Bill

Age 61 (59 @ Dx) PSA 4.4

Biopsy 5/15/08 Gleason (3+3=6)

Bone scan and pelvic CT: clear

HT - 2 mo Casodex, 3 mo Trelstar

RRP Surgery 9/15/08

Post-OP Gleason 3+4=7, Stage pT2c pN0 MX

SV, perineural margin, 18 lymph nodes, bladder neck: all carcinoma free

Perineural invasion & Distal Margin: Carcinoma present

IMRT adjuvant radiation (35 Treatments) Ended 1/27/09

PSA Tests: (10/08) (3/09) (7/09) (1/10): all <0.1

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